Investigation into Lupron Side Effects (Leuprolide Acetate)
Public Comments (5,065)
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Feb 1st, 2010Someone from Peoria, IL signed.
Feb 1st, 2010Someone from Waterford, MI signed.
Feb 1st, 2010Someone from San Pedro, CA signed.
Feb 1st, 2010Someone from Romeo, MI writes:
Lupron is a dangerous drug being used on women who are already in pain. The doctors tell us it is safe and there won't be any bad side effects, thats a lie! It has caused nothing but grief for me and it has made my life harder! I have had to spend money on medical bills due to the side effects of Lupron! It needs to be banned!Jan 30th, 2010Someone from Yuba City, CA writes:
My doctor gave me lupron injections for 6 months to control the excessive bleeding and endometriosis. Since the beginning I notified my doctor of the side affects I was experiencing while I was on the drug. My doctor would just say it was normal. Its been two months now that I have been off the drug and I am still very sick. I have been to the hospital three times because of severe lower abdomen pain, lower back pain, dizziness, headaches, and joint pains. My knees are always aching and sometimes feel like they are burning. I researched about the possible side affects of lupron before taking the drug and read the drug facts that my doctor gave me. Every time I had a severe side affects like headaches, depression, back pain, bleeding while I was on the drug, and the label states to call your doctor right away about the side affects. I did just that and he said it was nothing to worry about. After reading this investigation into Lupron side affects I feel like my doctor did not care about my health. How could he do this to me? I feel confused and betrayed.REPORT COMMENTS
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No, CancelJan 26th, 2010Someone from La Habra, CA writes:
Took Lupron for 8 months; I lost the vision on my left eye and on the right I barely see for living; the pain is still awful, every single bone hurts too.REPORT COMMENTS
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No, CancelJan 26th, 2010Someone from New York, NY signed.
Jan 25th, 2010Someone from Cleveland, OH signed.
Jan 25th, 2010Someone from Cleveland, OH signed.
Jan 24th, 2010Someone from Alma, AR signed.
Jan 23rd, 2010Someone from Mansfield, OH writes:
lupron given for 6mths 11 yrs ago, suffering many of the symptoms above!REPORT COMMENTS
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No, CancelJan 22nd, 2010Someone from Chesapeake, VA signed.
Jan 21st, 2010Someone from Charlotte, NC signed.
Jan 20th, 2010Someone from Wilmington, NC signed.
Jan 20th, 2010Someone from Lititz, PA signed.
Jan 19th, 2010Someone from Milwaukee, WI signed.
Jan 19th, 2010Someone from Oak Harbor, WA signed.
Jan 16th, 2010Someone from Charlotte, NC signed.
Jan 15th, 2010Someone from Mcalester, OK signed.
Jan 15th, 2010Someone from Cary, NC signed.
Jan 14th, 2010Someone from Richmond, VA writes:
I too are like many and had my first six months of lupron at the age of 18- and I got the night sweats,hot flashes and weight gain (40 lbs) at that time. The lupron when I took only stopped the pain and growth of the endo for about 2 years. Then I had another lap and tried different birth control pills. Then when I was 25 the endo returned with a vengeance and I have had 3 laps in the period of 3 years. Now I am 28 and am suffering from fibromyalgia, high blood pressure from excess weight, and GI problems.Plus my endo is thought to have returned again and my doctors do not want to do anymore laps...and want me to try another round of Lupron...what else am I to do? I already have the most of the bad side effects it can cause... and probably did cause...REPORT COMMENTS
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No, CancelJan 14th, 2010Someone from Mechanicsburg, PA signed.
Jan 12th, 2010Someone from Camp Hill, PA writes:
I think this is ********. My cousin took this and now is in a wheelchair. The government needs to take more care and do more test before throughing their new drugs out there. This isnt the first time a drug has caused problems. My fiance took seroquel and now has perminent side affects from it and they did a recall. And they produce this H1-M1 flu vaccination too quick its only a matter of time before there are severe consiquences from this. They are too impatient to make sure their drugs are safe and slowly killing the innocent people of the US. They are ignorant to what they are doing. To many recalls on things anymore and most of the side affects for drugs are worse then what they are even treating.REPORT COMMENTS
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No, CancelJan 12th, 2010Someone from Indianapolis, IN signed.
Jan 12th, 2010Someone from Highland Park, IL signed.
Jan 12th, 2010Someone from Lexington, KY signed.
Jan 11th, 2010Someone from Tiverton, RI signed.
Jan 11th, 2010Someone from Milaca, MN signed.
Jan 10th, 2010Someone from Pompton Plains, NJ writes:
I was treated with Lupron in my 30s and subsequently lost my 6 figure career and, with that, over half of our household income. I became a stay at home mom, but not a very useful one. I had disability insurance but I am not allowed to discuss that situation. So, now I/we subsist on Social Security, and a small(I mean small) very part-time income that I earn and my husband's job alone. In the northeast it's hard to "live" much less "enjoy" any kind of life on our income. I have used a walker, cane (which I never needed prior to Lupron treatment). I am in constant pain, gained over 40 lbs and could not make it up a small flight of stairs. Now I am heavily medicated just to stay "comfortable". I have fibro, degenerative disc and lupus. I went to an attorney years ago and he said I'd have to have thousands of dollars to fight the pharmaceutical company and I did not. You know, I believe in fate, but NOT when it's dictated by a poorly tested, researched med from a greedy pharmaceutical company. We were all guinea pigs in a test that went horribly wrong. I have nothing to look forward to anymore because we are barely getting by. Lupron took away my life, livelihood and my family's life as well. It's simply not fair and I don't want it happening to anyone else. It makes me sick to think this med is still being administered and women are going to suffer as a result. Please do something.REPORT COMMENTS
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No, CancelJan 9th, 2010Someone from Parkville, MD writes:
I had 2 courses of Lupron Treatment. The first course was years after my Lap. It was the one month shots. I do not recall having any adverse reactions at that time. Shortly after coming off the Lupron my pelvic pain started returning again. I took another Lupron course this summer after having pain so severe it prevented me from being productive ao work every month. Since my pain was so severe it was recommended that I take the 3 month dosage. In less than a month I started complaining about muscle pain in my chest area. The doctor who prescribed the Lupron said it was not a side effect from the Lupron and my primary care doctor was determined to label me as being in denial from depression. She felt that because the cause of the pain was undetermined I was over-exaggerating my level of painand refused to give me any pain medication.I again asked if it was possible side effects from the Lupron and was told not likely. Over the next 2 months my muscle pain attacked my legs so bad I was literally not able to walk. I went to the emergency room several times and was just given pain pills when testing did not show any signs of inflammation in my body. I issed at least a week of work. Fifnally in October I was told I had fibromyalgia. I have never had these issues until I took my second course of Lupron. It is now January and I am still suffering from "unexplained" joint/muscle pain throughout my body. I can not find a doctor who will treat the fibromyalgia. My endometriosis continues to spread through my body. I am unable to take Lupron or any other related medicine due to the extreme side effects I have no other recourse for my condition. In addition, to the muscle pain I have also developed severe, unexplained GI problem that lsnded me in the hospital 3 times in the course of 1 month. Again i am being treated as if I am making all this up. I feel like my body is shutting down and no one is doing anything about it because all of it is unexplained. None of these things started I took that last course of Lupron. I hope that further research will be done and the actual side effects many of us are experiencing will be written on the drug label.REPORT COMMENTS
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No, CancelJan 9th, 2010Someone from Virginia Beach, VA writes:
I was treated with Lupron when I was 18 for Endometriosis. I am now 31. I experienced horrible hot flashes, weight gain (approximately 30 lbs.) and now reading this petition I wonder if the arthritic-like symptoms I have are related too, although I probably would never be able to prove it. It did nothing to help my endometriosis, it, as with most treatments just temporarily stopped my cycle, no other good came out of it. I do not think it is a good option for treatment of Endometriosis as it only temporarily stops your cycle, which basically just stops the growth for a few months. The side effects are not worth it.REPORT COMMENTS
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No, CancelJan 8th, 2010Someone from Beaverton, OR writes:
I completed 2 rounds of this treatment for endometriosis. It has not relieved any of my symptoms. Adversely, I gained more problems. This drug is toxic and hazardous. We need a long term study to determine if this medication is even useful and worth the side effects and turmoil. The very least, people should be required to receive literature on this medication before taking it. I was given very little information from my physician. Only thing I was told was that I may get menopausal symptoms. Wrong. Very wrong. At 24 years old, I should be thriving and enjoying life - not struggling every single day with pain. Gals with endometriosis are already seen as 'weak' by physicians who truly don't care enough to listen to them. Lurpon only makes it worse.REPORT COMMENTS
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No, CancelJan 8th, 2010Someone from Beaverton, OR writes:
Toxic and hazardous. 2 treatments - zero relief and more problems.REPORT COMMENTS
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No, CancelJan 8th, 2010Someone from Natick, MA writes:
I have always been very healthy, except for fibroids, and know my body signals very well. I was your typical 90-mile-an-hour woman. Whenever I had routine tests such as ultrasounds, the tests always showed my organs were perfect. There is no arthritis or bone disease in my family. I had two Lupron injections prior to fibroid surgery in 2005, and I noticed an instant deterioration of my health. I literally aged instantly, and at 48, got the health problems of a 70-year-old woman. I am loaded with arthritis, and have one health problem after another. I am constantly seeing doctors. Every test I have shows another lesion on my bones or my organs. I won?t even get into what the drug did to my female anatomy. I read the pharmacy pamphlets that gave no warnings about many of the side effects, and the promises that any side effects are temporary are lies. Doctors dismiss the women who suffer from this drug as eccentrics. Where are the consciences of the people who get rich from this drug? I feel that the only thing left for me now in life is maybe saving someone else. Tell me what I can do to help.REPORT COMMENTS
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No, CancelJan 5th, 2010Someone from Wylie, TX signed.
Jan 5th, 2010Someone from Leavenworth, KS writes:
Lupron put me in a wheelchair from the immense pain and not being able to walk. Hot flashes and minor heart quirks. this drug ruined my life at that moment in time. I am now suffering from endomitriosis pain AGAIN. Do not take this until it is a last possible resource and your research is done personally.REPORT COMMENTS
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No, CancelJan 4th, 2010Someone from Uniontown, OH writes:
Wow! I just found this! I'm not sure what to say! I have so many things wrong with me that never existed before my injections back in 1996! I suffered severe mental issues back then, I know the lupron did that.....but I never put 2&2 together with everything else . I have been in pain for 15 years. was on lupron for I believe 6 months,and for a total of 2 years (injection time included) I was a mental mess. That 2 years are a total blur. My life after Lupron is a very sad story that I thought was just me! I almost sad to see it isnt just me, but glad to know I not crazy!!!!!!!!!!!!! (sorry for the word crazy,sometimes thats just how I feel!)REPORT COMMENTS
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No, CancelJan 2nd, 2010Someone from Coalinga, CA signed.
Jan 2nd, 2010Someone from North Olmsted, OH writes:
It has been 12 months since my last Lupron shot. I am still suffering from side effects that have effected my quality of life. I'm 30 years old and from the moment I wake in the morning, to the moment I go to sleep at night, my body aches and throbs and I find it very difficult to live a normal, healthy, pain free life. Sadly, when I try to explain my symptoms to my doctors, my complaints of pain aren't taken seriously and I'm viewed as a complainer. I've taken so much time off work from the pain as well as the countless doctors appointments. Each appointment I go to, I pray that the doctor will believe my symptoms and take me seriously but I've yet to find an empathetic doctor that really, truly listens to me and values my health and not their payment for service. Lupron has changed my life not only physically but emotionally too. Living the way I have for the past 12 months has been a nightmare that I just wish I could wake up from.REPORT COMMENTS
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No, CancelJan 1st, 2010Someone from Milwaukee, WI writes:
I was a full scholarship division 1 athlete. Happy, healthy and very active. After researching the negative side effects of Lupron and prior to starting the month-long injections as part of my infertility protocol, I voiced my concerns to the nurse educator at the fertility clinic. She reassured me in a whimsical manner, that the doses I would be injecting were so low that if I did have any side effects, they would be very minimal and only during the course of treatment. Over one year later, after numerous hours of physical and massage therapy, the joint and muscle pain endures and I still can't walk or sleep without pain. Please help.REPORT COMMENTS
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