Investigation into Lupron Side Effects (Leuprolide Acetate)
Public Comments (5,065)
-
May 27th, 2010Someone from Belmar, NJ writes:
If you dont do something you will learn when it is your Mother, Wife, Sister, or even you'r Child. This is poision and this company is falseifying the truth. Where is the FDA in this? This drug is not safe Im living proof as are too many others. How much proof is needed to pull this pioson? -
May 26th, 2010Someone from San Gabriel, CA writes:
Lupron has changed my life literally the moment it was injected into my body by my doctor. It is unsafe for general use and treatment of endometriosis, however, it is the first line of treatment given by doctors today. These doctors have little knowledge as to the affects, yet choose to continue treatment because it is supported by the FDA. There have not been enough studies to warrant this a safe drug. This is drug that has altered my daily life, my family, and my well being to function normally.REPORT COMMENTS
Do you want to report these comments to the moderator for removal? They should be offensive, threatening, a duplicate submission, or spam.
No, Cancel -
May 26th, 2010Someone from Keller, TX signed.
May 26th, 2010Someone from Mountlake Terrace, WA writes:
Had my first shot last week...since then I've had hot and cold flashes, constant headache and nausea. My doctor only told me about possible osteoporosis and menopause like symptoms. Will not be going back for another shotREPORT COMMENTS
Do you want to report these comments to the moderator for removal? They should be offensive, threatening, a duplicate submission, or spam.
No, CancelMay 26th, 2010Someone from Columbus, OH signed.
May 26th, 2010Someone from Fletcher, NC writes:
Our health insurance company physician recommended that I do 2 shots of Lupron, to see if I qualified for a hysterectomy. Got the first one about 20 1/2 mths ago. Appealed the 2nd one as I was experiencing severe headaches. I still have them 24/7 & these headaches have caused a domino effect to happen to my body. It has been 14 1/2 mths since I have been able to eat solid food, can't work due to pain & the headaches, & just barely function through out the day. I researched it before taking it, but what TAP pharmaceticals has out there, make it out to seem like the best medicine in the world. Please look into this medication. More warnings need to be out there. My family is not the only that is suffering from this!REPORT COMMENTS
Do you want to report these comments to the moderator for removal? They should be offensive, threatening, a duplicate submission, or spam.
No, CancelMay 24th, 2010Someone from New Castle, DE writes:
I have seen first hand the suffering my daughter has gone through and read many, many posts of the nightmares others have suffered from the side effects of this drug under its many names. It still baffles my mind how many time my daughter has tried to tell many Physicians of the side effects she has suffered with only to be blown off with a look or a snide remark. My daughter once was a very vibrant, independent young woman now only to have at best one good day a month, which she suffers for afterward. It is so scary and sad the the Physicians we trust to care for us do not even have the compassion to take us seriously when we try to express REAL problems from medications these big drug companies have pushed for monetary gains.REPORT COMMENTS
Do you want to report these comments to the moderator for removal? They should be offensive, threatening, a duplicate submission, or spam.
No, CancelMay 21st, 2010Someone from New Castle, DE writes:
I had "normal" reactions to the first set of lupron I had way before it was approved by the FDA, and then had a set of zolodex, but the 2nd set of lupron I had, 10 years ago, messed me up so badly I can no longer work. (never was told that I should have only had one set, and after a hyst, almost bled to death when I've never had bleeding problems in the past) The sad part is along with being so ill, I'm sure like others, I'm fighting to keep my disability payments, stress I don't need. My first problem was a horrible pain in my right kidney after the first shot. After many ER visits, kidney stones were found, and more each visit. The pain was unrelenting. Now, 10 years after that last shot, I have a list of illnesses ranging from thyroid problems, pelvic pain problems and constant urinary tract spasms, and am basically bedbound when I had a full and independent life. Now I have to rely on friends and family to live any type of life. My outings have been reduced to DR visits, many that I have to leave due to the pain, and my clothing attire to sweats because tight clothing makes my pain much worse. There are too many problems to list here, but it's as long as my arm. The only reason I continue to live in this lupron induced hell is my family. I would have given up long ago if it wasn't for them. Please look into lupron and TAP's continued testing on not only women and men, but our precious children. This isn't a game, it's our lives they are playing with, and TAP never seems to lose or even skip a beat. They also never seem to do reports on long term problems that those of us that have been off of it for years still have. The problems Lupron causes are many, and permanent. Not only is it devistating that we agreed to take the FDA approved drug, but that some of us were given it prior to being approved by the FDA, trusting our DRs. My feelings on lupron is that it's not the miricle drug that TAP and some GYN's would like us to believe, but a slow death sentence. One that my cousin didn't make, but I am trying very hard to.REPORT COMMENTS
Do you want to report these comments to the moderator for removal? They should be offensive, threatening, a duplicate submission, or spam.
No, CancelMay 20th, 2010Someone from Thornton, IL writes:
I had five injections and think this medication isnt worth it. I have terrible hot flashes, weight gain, memory fog, memory loss, headaches, general feeling of being tired and not feeling well, and my thyroid levels have been from one extrem to another. I think there should have been more research done on this medication and I wish I would have dont more research myself before taking it.REPORT COMMENTS
Do you want to report these comments to the moderator for removal? They should be offensive, threatening, a duplicate submission, or spam.
No, CancelMay 19th, 2010Someone from Miami, FL signed.
May 16th, 2010Someone from Nazareth, PA writes:
I had 2 injections, one in February and one in March for fibroid tumors. I cancelled 3rd injection after hot flashes became unbearable, gained approximately 10 lbs., and bones ached to the point that it hurt to walk...right down to my ankles. My vision has only been affected and sometimes it's hard to focus on my work. I wish I had been more informed prior to taking this drug. I would never recommend it...only wish I could turn back the hands of time and not start it.REPORT COMMENTS
Do you want to report these comments to the moderator for removal? They should be offensive, threatening, a duplicate submission, or spam.
No, CancelMay 13th, 2010Someone from Boise, ID signed.
May 10th, 2010Someone from Playa Del Rey, CA signed.
May 9th, 2010Someone from Magnolia, TX writes:
Forced to take injections for breast cancer. Battling horrific side effects which have put me into the hospital and are ruining my quality of life which is already poor due to my stage IV diagnosisREPORT COMMENTS
Do you want to report these comments to the moderator for removal? They should be offensive, threatening, a duplicate submission, or spam.
No, CancelMay 8th, 2010Someone from Indianapolis, IN writes:
My heath was ruined by this drug. My doc prescribed 6 monthly injections for endometrosis. I was told it had a 98% cure rate and was never told about side effects except for possible calcium defiency. I have permanent pituitary loss of TSH (thyroid), ACTH (cortisol), GH (growth hormone), plus Hashimoto's, fibromyalgia and Interstitial Cystitis...all auto-immune diseases. I can't believe my doctor gave a perfectly healthy 29 year old a chemotherapy drug, let alone one that could cause such devastating health problems.REPORT COMMENTS
Do you want to report these comments to the moderator for removal? They should be offensive, threatening, a duplicate submission, or spam.
No, CancelMay 4th, 2010Someone from Garland, TX writes:
Lupron has ruined my life, I am a shell of what I use to be both mentally and physically. My memory use to be so good and now is all mushy.REPORT COMMENTS
Do you want to report these comments to the moderator for removal? They should be offensive, threatening, a duplicate submission, or spam.
No, CancelMay 2nd, 2010Someone from Clackamas, OR signed.
May 1st, 2010Someone from Frankfort, IL writes:
This stuff is POISON that has ruined many women's lives. My doctor suggested it for me to shrink fibroids,thank heaven I researched it first!A girlfriend took it. She was supposed to do the 6 month treatment,but after just 1 shot,refused to take any more. There are way too many women who just blindly followed their doctor's suggestion and are now paying dearly for it.REPORT COMMENTS
Do you want to report these comments to the moderator for removal? They should be offensive, threatening, a duplicate submission, or spam.
No, CancelMay 1st, 2010Someone from Dover, DE writes:
I had my last Lupron injection around 6yrs ago and STILL have hot flashes, and chest/bone pain!REPORT COMMENTS
Do you want to report these comments to the moderator for removal? They should be offensive, threatening, a duplicate submission, or spam.
No, CancelApr 29th, 2010Someone from West Bend, WI writes:
The worst drug ever. I had 3 Lupron shots in April, May & June 1999 for a fibroid tumor prior to surgery. Haven't been the same since. Migraines, muscle weakness, foggy thinking, hot flashes, chills. Agree with all of the posts here and share their symptoms, 10 years later. This needs to be stopped NOW!REPORT COMMENTS
Do you want to report these comments to the moderator for removal? They should be offensive, threatening, a duplicate submission, or spam.
No, CancelApr 28th, 2010Someone from Winchester, CA signed.
Apr 27th, 2010Someone from Oak Park, IL signed.
Apr 27th, 2010Someone from Cedar City, UT signed.
Apr 26th, 2010Someone from Philadelphia, PA signed.
Apr 26th, 2010Someone from Las Vegas, NV signed.
Apr 24th, 2010Someone from Albertville, MN writes:
Dr. suggested Lupron after LAP surgery revealed endometriosis. Consented to the 3 month injection after being told the only side effect was occasional hot flashes. Had immediate severe side effects that were dismissed during phone consultation. Edema, chronic vasodilation, hypokalemia, migraine, and myalgia presented one year post injection. Medication to treat even some of the symptoms is incredibly expensive. I will never be the same person I was before Lupron. Injection was in 2006, symptoms appeared in 2007 and continue to worsen.REPORT COMMENTS
Do you want to report these comments to the moderator for removal? They should be offensive, threatening, a duplicate submission, or spam.
No, CancelApr 22nd, 2010Someone from Troy, OH writes:
I've had three rounds of Lupron injections. the second round I did not complete due to I didn't like the hot flashes and couldn't afford it. The third round of injections was the worst which I started seven months ago. I am now dealing with bone and joint pain, migraines, and the hot flashes. I really don't think this drug should be on the market, my endometriosis is still there and worse than it has been, now not only dealing with pain from endometriosis I also deal with pain from the lupron.REPORT COMMENTS
Do you want to report these comments to the moderator for removal? They should be offensive, threatening, a duplicate submission, or spam.
No, CancelApr 21st, 2010Someone from Sayreville, NJ writes:
My sister took Lupron back in 2003 and is now suffering with chronic, constant pain. She has been diagnosed with osteopenia, osteoarthritis in all her joints, neuropathy, has a titer for scleroderma and has been to the oncologist for possible bone marrow cancer. I am aware of a law firm that is currently investigating this drug. Please contact them at: www.stuevesiegel.com and look up lupron investigations. With other victims help, we can get this off the market.REPORT COMMENTS
Do you want to report these comments to the moderator for removal? They should be offensive, threatening, a duplicate submission, or spam.
No, CancelApr 21st, 2010Someone from Studio City, CA writes:
My name is Brittany Howe and I am 22 years old. I took lupron in Jan. of 2010. It made my endometriosis worse, left me to suffer with interstitial cystitis (which has no cure), my bones are VERY weak, it gave me dangerously low vitamin D levels, it took complete control of my emotions, left me extremely forgetful to the point where I thought I was loosing my mind! This drug does not CURE endometriosis. They claim it temporarily represses the endometriosis, but it does not. And even if it did it should not be legal because of all the long term TERRIBLE side effects that it brings. I was 100% misleaded into taking lupron. If I had any idea of what would happen to me there is no way I would EVER had taken the drug. I was told this was my only option from my doctor. I understand that there is no cure currently for endometriosis. And these woman are in such chronic pain that they are willing to do ANYTHING to try to get some relief. Lupron is NOT the answer. Clearly the makers of lupron are making ALOT of money misleading the millions of woman who have endometriosis. Capital hill needs to fight for us and save future woman from being put through hell. I would love to go to capital hill and speak on behalf of lupron victims. Or do anything that I can to help get lupron off the market.REPORT COMMENTS
Do you want to report these comments to the moderator for removal? They should be offensive, threatening, a duplicate submission, or spam.
No, CancelApr 20th, 2010Someone from San Francisco, CA writes:
I had two rounds of Lupron injections for the treatment of Endometriosis many years ago. I first stopped the medication because of the hot flashes and extreme difficulty I was having walking and standing. These problems continue now along with high blood pressure, fibromyalgia, depression, anxiety, and MIGRAINES.REPORT COMMENTS
Do you want to report these comments to the moderator for removal? They should be offensive, threatening, a duplicate submission, or spam.
No, CancelApr 20th, 2010Someone from Olathe, KS writes:
caused anxiety, depression, migraines that I am suffering still until this day. I had the Lupron injections in 2002.REPORT COMMENTS
Do you want to report these comments to the moderator for removal? They should be offensive, threatening, a duplicate submission, or spam.
No, CancelApr 20th, 2010Someone from Radford, VA writes:
Having CFS and Fibro before taking Lupron, it worsened my overall health. But the real struggle was the sudden onset OCD it caused and the resulting struggle back to better mental health.REPORT COMMENTS
Do you want to report these comments to the moderator for removal? They should be offensive, threatening, a duplicate submission, or spam.
No, CancelApr 20th, 2010Someone from Ventura, CA writes:
Was on Lupron for endometriosis. Ended up with partial pituitary failure.REPORT COMMENTS
Do you want to report these comments to the moderator for removal? They should be offensive, threatening, a duplicate submission, or spam.
No, CancelApr 18th, 2010Someone from Martinsville, IN signed.
Apr 18th, 2010Someone from Fallbrook, CA signed.
Apr 16th, 2010Someone from Duluth, MN writes:
I took three 3-month injections of Lupron for Endometriosis and an ovarian cyst in 2003. Within days of the last injection, searing pain in the injection site moved to my knees, then within weeks to every joint in my body aside from my spine. I was wracked by pain for over a year and still have flares of joint pain to this day. After having my menstrual cycle suppressed for 13 months on Lupron, I now have degenerative disc disease in my lower spine and osteopenia. I was only 26 when I took Lupron and healthy aside from the Endometriosis and ovarian cyst. Not only did Lupron physiologically age my body, it did NOT treat any of my gynecological problems. They were all still there when the drug wore off and prompt required surgery. Longitudinal studies are needed to accurately examine the effects Lupron has on the body over time. Prescribing a drug that only suppresses a disease while often leaving permanent side effects is not only unethical, it is a gross violation of a patient's right to the best possible treatment. Lupron needs to be thoroughly investigated and ultimately removed from the market completely.REPORT COMMENTS
Do you want to report these comments to the moderator for removal? They should be offensive, threatening, a duplicate submission, or spam.
No, CancelApr 15th, 2010Someone from Shelton, CT writes:
I took Lupron for 4 months prior to getting pregnant. Three years after my twins were born my symptoms came back. Instead of having surgery, Lupron was once again prescribed for me long term with a small add back of estrogen. I was on this for 6 years. I lost my vision twice, battled horrible migraines all the time, along with joint pain and tachycardia with 2 syncopal episodes. I have now since been off Lupron for 1 1/2 years and are still battling tachycardia, anxiety, depression, and insomnia. What other medical conditions can we look forward to.REPORT COMMENTS
Do you want to report these comments to the moderator for removal? They should be offensive, threatening, a duplicate submission, or spam.
No, CancelApr 12th, 2010Someone from Oakland, CA signed.
Apr 11th, 2010Someone from Brick, NJ writes:
Went temporarily blind in right eye, rushed to ER for chest pain and pressure and now may have permanent heart damage. 8 hour migraines, increase in pelvic pain, dizzy and light-headed.REPORT COMMENTS
Do you want to report these comments to the moderator for removal? They should be offensive, threatening, a duplicate submission, or spam.
No, CancelApr 10th, 2010Someone from Brighton, MA writes:
have never been the same since taking lupron in 2004.REPORT COMMENTS
Do you want to report these comments to the moderator for removal? They should be offensive, threatening, a duplicate submission, or spam.
No, Cancel
Do you want to report these comments to the moderator for removal? They should be offensive, threatening, a duplicate submission, or spam.