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Urge the CDC to take action against surging unexplained disease

Public Comments (2,563)
  • Dec 12th, 2017
    Gary W. from Monroe Township, NJ writes:
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    I and my family have been suffering from this for 10 years. I am currently living in a hotel in a state of semi quarantine. My mother and I contracted this from our outdoor cats and can't find a cure. The cats have passed on and the condition persists. This is zoonotic parasite disease which is drug resistant. For my family this has been an ongoing catastrophe. I will gladly publish my name and share my medical records as need be and other evidence to any professional that may be able to offer some help or insights. . People need to know about this. It's real. As for all of the frauds and cranks who have moved in on this discussion on various discussion boards those people should be prosecuted but when you get past the swirl we have people who's lives have been ruined and doctors that don't have the first idea of how to respond or refuse to believe what they are seeing with their own eyes.
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  • Dec 11th, 2017
    Someone from San Francisco, CA writes:
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    Someone from Carrboro STOP SPAMMING THIS PAGE!
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  • Dec 11th, 2017
    Kristen N. from Salt Lake City, UT signed.
  • Dec 10th, 2017
    Gail S. from Heidenheimer, TX writes:
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    All I want to know is does any one have it in there Food .???? are am I the only one seeing it please answer bad if I boil an Egg i can see it and lots of other food also I can't hardly see its in my eyes lashes and eye brows so bad. God bless us all.
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  • Dec 10th, 2017
    Someone from Sumerco, WV writes:
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    I first thought it was just in my mind went to the Doctor several times asked him about being bitten and crawling sensation was told allergies so tried to ignore when it got so bad I couldn't ignore things there was defiantly a problem I am a very clean person,clean every week the infestation resulted in bites that would not heal intense itching the mites were everywhere and there eggs,we lost all of our clothes have been using Kleen Green for 3 months now problem is better but still have unsealed lesions and some type of worms coming out of them also have some type of worms inside cause they come out in my mouth please someone help us I thought I was going to loose my mind but no other choice but to keep going this problem is everywhere I noticed all the stores around have the eggs in them please please look at this and investigate
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  • Dec 10th, 2017
    Kristen N. from Salt Lake City, UT writes:
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    Dealing with this now. It is nothing less than a plague and we need help. We need to be believed. We need action. NOW.
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  • Dec 10th, 2017
    Samantha P. from Cleveland, OH writes:
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    Please help us! This nearly killed me the first time after six months of hell and a little girl to raise and two years later I have it again and it’s sonoainful so terrible my face had already been so scared and destroyed I can’t live like this and I also now have a baby boy. I need help so bad! Please help so this doesn’t thsolen any longer nevshe I wouldn’t wish this on even the worst person in the planet! We need to know what if doing this and how to stop as well as treat it! We need help!!
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  • Dec 8th, 2017
    Gail S. from Heidenheimer, TX signed.
  • Dec 8th, 2017
    Gail S. from Heidenheimer, TX signed.
  • Dec 7th, 2017
    Shannon J. from Jewett City, CT signed.
  • Dec 7th, 2017
    adam j. from Savannah, GA writes:
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    I've been dealing with this for a little over a month and it's miserable. I wasn't sure if it was in my head or not. It's affecting every aspect of my life and needs to be looked into. I'm making an appointment with veterans affairs to see if my doctor can help in any way, but I'm not very hopeful.
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  • Dec 6th, 2017
    Someone from Escondido, CA signed.
  • Dec 6th, 2017
    Someone from Richmond, VA writes:
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    Help. This is a miserable way to live. My itchy bites are the size of an eraser and are round, plus they are very hard...like hard lumps and take weeks to go away leaving the skin a bit discolored reddish.
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  • Dec 4th, 2017
    Someone from Glen Ellyn, IL writes:
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    I was diagnosed with rat mites they are on every wild animal outside went to different drs finally went to contagious desease dr this is a skin desease causes lesions our prescription federal government do not approve permethrin every other day so you have to make it yourself I was also given doxycycline for some Coxisackle pox from mite bite the spray does not help these mites invade everything your home your car your scalp your job until the federal government acknowlodeges there's a problem you are on your own try to get samples infctious dsas dr will help you only so much but you can get 10 percent permethrin from on line and mix with lotion every other day whole body plus scalp and treat your environment morgellons I believe is from these mites not being treated you become a walking nesting place for them I found help but my dog died from these mites and I've gone bald and ditched my job and car these mites destroy lives I can only pray fro everyone afflicted and u afflicted this is our future with pestelance our drs can't handle we do need to let our government know we won't tolerate their abuse of ignoring health issues that are treatable our animals are treated better then us God help all of us
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  • Dec 3rd, 2017
    DONALD G. from Everett, MA signed.
  • Nov 24th, 2017
    Someone from Charlotte, NC writes:
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    #WeThePeople demand attention!
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  • Nov 17th, 2017
    Peggy N. from Hoffman Estates, IL writes:
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    Dear CDC twits: do something
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  • Nov 17th, 2017
    Someone from Hoffman Estates, IL signed.
  • Nov 15th, 2017
    Someone from Bothell, WA writes:
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    Hi Knoxville. It may or may not be in the water. But mold is a big part of this affliction/ infestation. Or living near woodys or damp area. Check ur roof or crawl space for moisture. Bathrooms r famous for this. There does seem to be a mite involved, bird or rat mites. But not always. Many people notice teeny tiny fast moving flying bugs also. If u have this, u know it seems to be a little different for each person. Then there r the skin lesions that take for ever to heal, and the fibers that some people get, others don’t. There is more information out there saying that bird mites don’t bite people and can not reproduce on humans. That is old out dated info. Sadly drs r not being kept current, or the info may not have been available when the took the 5 minute course on mites. ( kidding). There is no 5 minute class. Lol. There’s a great book called the year of the mite by jane, shoot can’t remever her last name. As u problem all ready know, this scourge affects ur brain too. Serious brain fog. JANE ISHKA! Also a DVM Dr Olivier sparangano The names came back to me. This book include the most current info. I found the book on kindle. But think can find that info without buying the book. Try googling Understanding Scientific time line for mites on humans. I think that will bring up the chart and time line of discovery. I think maybe science is starting to realize not all mites r host specific. Especially between human and mammals.
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  • Nov 13th, 2017
    Someone from Los Angeles, CA writes:
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    OK whoever keeps posting itchy bird mite sting solved you need to give it a rest. It's not one size fits all and one protocal that worked for certain people is not necessarily the silver bullet for everyone. Some people have deep stubborn infestations that do not respond to things like essential oils, bleach, hydrogen peroxide, tea tree oil, permithrin, colloidal silver, malathion, vinegar, lindane, rubbing alcohol/witch hazel, etc. etc. etc. The single formula cure all is not going to apply here as some people have various DIFFERENT TYPES of bird mites, rat mites, canine mites (yes they can and do stubbornly infest humans) collembola, morgellons and so forth. In fact some people may need something very very strong....stronger than lindane. Something stronger than home remedies. I personally believe a strong rotenone would do it cause unlike most miticdes it does not typically work on their nervous system but instead affects their ability to breathe. Maybe one could get some in Australia or Peru. This is pure suffering. God help us and may the medical community WAKE UP to the broader reality of various serious skin parasites.
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  • Nov 13th, 2017
    Someone from Los Angeles, CA writes:
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    OK whoever keeps posting itchy bird mite sting solved you need to give it a rest. It's not one size fits all and one protocal that worked for certain people is not necessarily the silver bullet for everyone. Some people have deep stubborn infestations that do not respond to things like essential oils, bleach, hydrogen peroxide, tea tree oil, permithrin, colloidal silver, malathion, vinegar, lindane, rubbing alcohol/witch hazel, etc. etc. etc. The single formula cure all is not going to apply here as some people have various DIFFERENT TYPES of bird mites, rat mites, canine mites (yes they can and do stubbornly infest humans) collembola, morgellons and so forth. In fact some people may need something very very strong....stronger than lindane. Something stronger than home remedies. I personally believe a strong rotenone would do it cause unlike most miticdes it does not typically work on their nervous system but instead affects their ability to breathe. Maybe one could get some in Australia or Peru. This is pure suffering. God help us and may the medical community WAKE UP to the broader reality of various serious skin parasites.
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  • Nov 13th, 2017
    Someone from Los Angeles, CA writes:
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    OK whoever keeps posting itchy bird mite sting solved you need to give it a rest. It's not one size fits all and one protocal that worked for certain people is not necessarily the silver bullet for everyone. Some people have deep stubborn infestations that do not respond to things like essential oils, bleach, hydrogen peroxide, tea tree oil, permithrin, colloidal silver, malathion, vinegar, lindane, rubbing alcohol/witch hazel, etc. etc. etc. The single formula cure all is not going to apply here as some people have various DIFFERENT TYPES of bird mites, rat mites, canine mites (yes they can and do stubbornly infest humans) collembola, morgellons and so forth. In fact some people may need something very very strong....stronger than lindane. Something stronger than home remedies. I personally believe a strong rotenone would do it cause unlike most miticdes it does not typically work on their nervous system but instead affects their ability to breathe. Maybe one could get some in Australia or Peru. This is pure suffering. God help us and may the medical community WAKE UP to the broader reality of various serious skin parasites.
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  • Nov 12th, 2017
    Someone from Kirkland, WA writes:
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    Testing
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  • Nov 11th, 2017
    Tammy E. from Knoxville, TN writes:
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    I moved into a government subsidized apartment and the mites are in the water supply. That is how they get in. Once in they attack everything in the apartment including me and my dog. I do not have the money to wash my clothes and bedding everyday. And people here are getting very sick. The managers don't listen and disregard everything you say about it. We need help.
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  • Nov 9th, 2017
    Someone from Manvel, TX signed.
  • Nov 8th, 2017
    Someone from Galesburg, IL writes:
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    These things really need to be figured out , there awful. If you can figure other countries why not your own. How do we not know if were getting this from other countries. We have more people from Africa move to our city in the last two yrs. Ive notice since it started things that I've been using to clean have run out at stores so people dealing with this in silence because no one will listen and yet we try to protect others from getting it. If it breaks out no one here in the US will be ready.
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  • Nov 8th, 2017
    Someone from Galesburg, IL writes:
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    These things really need to be figured out , there awful. If you can figure other countries why not your own. How do we not know if were getting this from other countries. We have more people from Africa move to our city in the last two yrs. Ive notice since it started things that I've been using to clean have run out at stores so people dealing with this in silence because no one will listen and yet we try to protect others from getting it. If it breaks out no one here in the US will be ready.
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  • Nov 4th, 2017
    Michele F. from Concord, NC writes:
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    Awful tried everything. Im a medical professional. Called CDC. They seemed clueless.
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  • Nov 4th, 2017
    Someone from Los Angeles, CA writes:
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    Well a coupla posts back somebody with dogs and outdoor cats was getting bit up bad. These things contaminate animals birds racoons digs cats wild foxes rats etc. Docs think they can't jump back and forth from animal to human but oh yes yes yes they can. Rotenone is available in some countries and kills em. God help us. This for many is bigget than an esssential oil spray with tea tree or eucalyptus alcohol vinegar....we need something much stronger.
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  • Nov 3rd, 2017
    Someone from Houston, TX writes:
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    Just a note to let everyone know that I have tried Marie's (Someone from Carrboro NC)formula for 3 nights now, and it has not made a difference. I still get the pinpricks and crawling in the same places with the same frequency. The bug spray smell is not too bad, but is noticeable to anyone who is close by for about an hour after application (but after the smell is gone would it still work?). As I said previously, for many of us, there is more to this scourge than simply mites, though mites appear to be or have been involved at some point. The problem is now deep under our skin and throughout our systems, and diluted Cutter won't cut it. (I used diluted Repel brand lemon eucalyptus bug spray.) Just reiterating that this is not a solution, though if it helps you, that's great. She does give some good tips in her article about cutting down on the mite population, if that is your main problem.
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  • Nov 3rd, 2017
    Someone from Titusville, FL signed.
  • Nov 3rd, 2017
    Someone from Titusville, FL signed.
  • Nov 3rd, 2017
    Someone from Titusville, FL signed.
  • Nov 3rd, 2017
    Someone from Titusville, FL signed.
  • Nov 3rd, 2017
    Someone from Buffalo, NY signed.
  • Nov 2nd, 2017
    Someone from Houston, TX writes:
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    Marie, my problem started out looking like a mite problem. There may still be mites because the biting still exists, but I think my skin treatments and supplements have cut the population down and I don't see any more of the larger ones (the size of a poppy seed) that I used to see. Nevertheless, there is a disease process in my body that started after I first noticed the bugs biting me at my office. People with Morgellons often report that their health decline started after a mite or collembola infestation, and moldy environments seem to exacerbate things. So, treating the bugs externally is a smart thing to do, if done safely (i.e., not causing liver damage) but if a disease process has begun internally (maybe the mites inoculated us with some as-yet unrecognized bacterium), there is much more work to be done to relieve our suffering. Many Morgellons sufferers also have Lyme Disease, so the combination of Lyme (which compromises the immune system -- esp. CD-57 -- and antibiotic treatment can lead to systemic fungal overgrowths) and whatever the mites may be carrying could be a menacing combo. The problem with doctors is that they are relying on what they learned in med school and are not "thinking outside the box". They are not exhibiting any curiosity about a potentially new condition, and are happy to dismiss the growing numbers of "skin parasite sufferers" (let's use that term, but as I said, it can be systemic too) as psych cases rather than visit some websites, send samples off for microscopy, talk it up among their colleagues, and consider that they are looking at a new problem. Or, as "Someone from Ft. Myers FL" said, this may be a known phenomenon like a bioweapon or GMO accident, but the medical community has been sworn to secrecy and we are the lab rats who are dying slow and miserable deaths to support some secret research. At this point, most of us here realize that Congress will not compel the CDC to do anything; those sufferers who have contacted the CDC were told that the CDC wasn't going to do anything about it, so we have only ourselves. We are helping each other with tips (like yours) and commiseration. Maybe someone from the government will stop by here some day, take pity on us, and start the ball rolling to at least gain an understanding of the problem. So we continue to post here. Let's work together to try to get noticed in the right way -- starting with describing the problem accurately. It can be far more than a mite infestation. If your formula gives some people relief from the stinging, or prevents them from getting the full impact of this disease, that is a great thing, but please advertise your formula as "something that might help" rather than THE SOLUTION, which it is not. Thank you.
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  • Nov 2nd, 2017
    Someone from Houston, TX writes:
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    Marie, you must be getting a lot of money for every hit your blog gets, otherwise, why are you so argumentative? We are already sick, exhausted, and frustrated here and don't need the drama. I tried your 10% solution using Repel Lemon Eucalyptus and I smelled enough like bug spray to want to avoid going out in public, and my husband remarked on the smell. The 10% I mentioned isn't about other people, it helped reduce *my* itching, pricking, etc. sensations by about 10%. (Speaking of numbers, where do you get that 1% of the population is affected by this? And to your climate theory, sufferers post here from all U.S. latitudes throughout the year, possibly because we live indoors?) 10% relief (I hope it works better for others) may be enough to help some people get some sleep, and that's great but it is not the SOLUTION you keep harping on. I have been reading all the posts here for about 2 years, and quite a few (not all) people, particularly the long-term sufferers, report hair loss, tooth loss, fibers coming out of their skin, sores that take a long time to heal, memory and motor problems, etc. That is a systemic degenerative disease process and requires more than bug spray to heal, though it seems to start with bugs. Look up Morgellons Disease since you don't know about it. Check out Dr. Ginger Savely's website and look at the pictures. Look at some other Morgellons sites. Then you will see how bad our doctors are, dismissing innocent people who have tried "everything", refusing to treat them while their bodies sink to that very visible level of physical deterioration. By the way, I have LOW body temperature and I have this. So, at this point I am finding your self-serving, combative, condescending, speculative, and frankly ignorant posts to be annoying and very counterproductive to our getting recognition of our condition and real help from the medical community. I too am a retired scientist, by the way, and I am sorry that you are experiencing these bugs as well, but you would help us more by backing off and inviting people to your site maybe once or twice a week, because THIS IS NOT JUST ABOUT BIRD MITES.
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  • Nov 2nd, 2017
    Someone from Fort Myers, FL writes:
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    Doctors are either ignorant or keeping an oath stating “this subject is taboo” they tell their patients to see a physiatrist!?? They are WEak
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  • Nov 1st, 2017
    Someone from Houston, TX writes:
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    To Marie L: While I appreciate your generosity in sharing your approach to repelling certain insects, it is clear that lemon eucalyptus oil is NOT a cure for what is afflicting the majority of the people who are posting here. Many of us actually have Morgellons Disease, which is in the earliest stages of gaining credibility in the medical field, and will likely take another decade or two to remove the stigma. Insects seem to be involved, but different kinds of insects and fungi, and eventually (the stage I have reached) the sufferer sees no insects at all, just balls of different colored fibers and bits of yellowish goop coming out of their skin, with stinging, drilling, crawling, and pricking sensations. nevertheless. Please stop trolling this site and directing everyone who posts here to your site. Your formula seems to help a bit, maybe 10%, but most of us have a systemic disease that insect repellent cannot cure, and we cannot walk around in public all day long smelling like bug spray. This is far more complicated and serious than a matter for bug spray. Please show us some respect, since we are currently unable to get any from the medical community. Thank you.
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  • Nov 1st, 2017
    Someone from Tucson, AZ writes:
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    Whatever it is is most likely being IMPORTED (fabrics, furniture, etc.) from China; a secret war in which they are laughing and winning.
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