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Urge the CDC to take action against surging unexplained disease

Public Comments (2,563)
  • Jan 6th, 2018
    J M. from Hamilton, OH signed.
  • Jan 2nd, 2018
    Tjulia B. from Nottingham, MD writes:
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    I saw this mysterious illness attack, infest and kill my friend and her dogs. Very terrifying and very real.
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  • Dec 30th, 2017
    Emily K. from Las Vegas, NV signed.
  • Dec 30th, 2017
    Someone from Amesbury, MA writes:
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    Something needs to be done NOW!!
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  • Dec 30th, 2017
    Someone from Boiling Springs, SC writes:
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    This is a real need. Have had medical professionals say that it just isn't a worry here in the US while I watch my husband suffer horribly daily.
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  • Dec 29th, 2017
    Delores S. from Brooklyn, NY signed.
  • Dec 26th, 2017
    Someone from Elsberry, MO writes:
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    I can not say this with certainty, but I believe that the powers that be know all about this affliction. I contacted the CDC and got the name of a doctor they recommended locally. The fellow I spoke to at the "CDC" confided in me that he was merely an "answering service". When I contacted the doctor that the guy (at CDC) recommended, my primary doctors office was instructed by that doctor, to send my records to his office ahead of my actual visit. My primary doctor caught wind of the request for records and then got in contact with that doctor telling him that I, the afflicted patient, did not need to be seen by the CDC recommended doctor. Next, I got a letter from the CDC recommended doctor notifying me that they did not treat "mental disorders" and only treated Infectious Disease. So, you can only guess what my primary care doctor must have been saying behind my back. My Primary care doctor never owned up to doing that, either. However, I have never been diagnosed with a mental illness. never owned up to doing In fact, my primary care doctor blamed one of the other doctors I chose for "diagnosing" me with the "mental illness" (but no record and no treatment of such an illness exists). Yet, the doctor that he blamed never even hinted at a mental disorder in his report. The doctor being blamed clearly stated that "I am unsure exactly what the causation is", and then he stated that my primary care doctor had made conversation to him about a "mental disorder". After I explained to that doctor what was going on, he said "Go back to your primary care doctor, we are done". He wanted no further part of this little "game" once he knew the facts. So you see, there is this little game going on here. Some doctors seemingly are trying to give the afflicted person the run around. For what reason, I am not exactly sure. I do know that everything that I have described in my statement is true and I have the evidence to prove what I stated. I am a former law enforcement officer. As such, I treated this exactly as I would have an investigation while collecting the office visit reports, and their coinciding tape recordings. I "dotted all of the I's and crossed all of the T's" before informing the doctors large health care employer of his strange and unethical (if not illegal) behavior. However, that was to no avail. (See my previous 2 posts, below.) So, I am led to believe that there is possibly some thwarting going on here. If not an actual cover up. Could it be that there would be a lot of political fallout and implications if the source of this affliction came to be known? Maybe, as in, it originates from a foreign country, and has done so through immigration (immigrants). Legal or not. Imagine what would happen politically if the originating source was determined to come from outside of the United States, and from say, refugees or undocumented workers. Vectors coming in and spreading a third world disease. There is a lot to consider here folks. My doctor was willing to outright lie and jeopardize his many years of schooling and hard work. I believe that he knew nothing would be done about it. As in, he'd get a complete pass,... and he did receive such a pass. Chime in and tell the rest of us your experience, please.
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  • Dec 26th, 2017
    Someone from Elsberry, MO writes:
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    I can not say this with certainty, but I believe that the powers that be know all about this affliction. I contacted the CDC and got the name of a doctor they recommended locally. The fellow I spoke to at the "CDC" confided in me that he was merely an "answering service". When I contacted the doctor that the guy (at CDC) recommended, my primary doctors office was instructed by that doctor, to send my records to his office ahead of my actual visit. My primary doctor caught wind of the request for records and then got in contact with that doctor telling him that I, the afflicted patient, did not need to be seen by the CDC recommended doctor. Next, I got a letter from the CDC recommended doctor notifying me that they did not treat "mental disorders" and only treated Infectious Disease. So, you can only guess what my primary care doctor must have been saying behind my back. My Primary care doctor never owned up to doing that, either. However, I have never been diagnosed with a mental illness. My primary care doctor never owned up to doing that, either. In fact, my primary care doctor blamed one of the other doctors I chose for "diagnosing" me with the "mental illness" (but no record and no treatment of such an illness exists). Yet, the doctor that he blamed never even hinted at a mental disorder in his report. The doctor being blamed clearly stated that "I am unsure exactly what the causation is", and then he stated that my primary care doctor had made conversation to him about a "mental disorder". After I explained to that doctor what was going on, he said "Go back to your primary care doctor, we are done". He wanted no further part of this little "game" once he knew the facts. So you see, there is this little game going on here. Some doctors seemingly are trying to give the afflicted person the run around. For what reason, I am not exactly sure. I do know that everything that I have described in my statement is true and I have the evidence to prove what I stated. I am a former law enforcement officer. As such, I treated this exactly as I would have an investigation while collecting the office visit reports, and their coinciding tape recordings. I "dotted all of the I's and crossed all of the T's" before informing the doctors large health care employer of his strange and unethical (if not illegal) behavior. However, that was to no avail. (See my previous 2 posts, below.) So, I am led to believe that there is possibly some thwarting going on here. If not an actual cover up. Could it be that there would be a lot of political fallout and implications if the source of this affliction came to be known? Maybe, as in, it originates from a foreign country, and has done so through immigration (immigrants). Legal or not. Imagine what would happen politically if the originating source was determined to come from outside of the United States, and from say, refugees or undocumented workers. Vectors coming in and spreading a third world disease. There is a lot to consider here folks. My doctor was willing to outright lie and jeopardize his many years of schooling and hard work. I believe that he knew nothing would be done about it. As in, he'd get a complete pass,... and he did receive such a pass. Chime in and tell the rest of us your experience, please.
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  • Dec 26th, 2017
    Someone from Fort Myers, FL writes:
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    I'm a cpht serving the community for over 20 years until EMOCIONAL y by doctor sayI was mental nyw after byosi ad other text found plevaand others ubkwon deaeas please I want my life back gors of sleep oain suffering my hole family been affected please help
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  • Dec 25th, 2017
    Someone from Elsberry, MO writes:
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    Every time I decided to seek treatment from a doctor, other than my lying PCP,...he would use the Electronic Health Record (EHR) format to get into contact with the next physician I chose to see. He was playing it off as though he was "consulting" as my Primary Care Physician, and as such "he was interested in my well being". He was never asked to do this. He never gave me a referral. In fact he refused to give me a referral. He did this to fill the (next) doctors head with his lies and was using his falsified written reports to reinforce what he was verbally telling the second doctor. This made it impossible to know exactly what he was telling my newly hired physicians, except to say, that with all of the lying that my primary doctor was doing behind my back,... you could bet that it was not in my best interest. Suffice to say, the next physician simply rubber stamped a diagnosis coinciding with my primary doctor, as if I were simply seeking a second opinion. I was paying to get an actual diagnosis and treatment. The doctors however, use the EHR to "piggyback" off of each others records, copying the previous doctors work and diagnosis. Thereby saving them from doing any actual (further) work. All I got was corroboration of the primary care doctors "rash". I could not get an independent medical evaluation, no matter how many other doctors I saw or how much money I spent. The primary doctor made contact with every doctor that I made an appointment with. The thing is...the newly hired doctors always told me that they had been contacted by my primary care physician (and he did not know that). I could not get away from his nonsense, no matter how hard I tried. It wasn't until he was caught lying on tape (see my previous post) that the manager had him terminate me as a patient and then she promptly banned me from all of the facilities. Punishing me for having to endure all of this, pay for it, and then, actually gathering the proof of the doctors unethical behaviors. Never wishing to sit down and go over the facts or allowing me the opportunity to offer up the proof of what I was asserting. They closed the drapes and locked the door on me.
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  • Dec 25th, 2017
    Someone from Elsberry, MO writes:
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    It is here in Missouri. I have had it for 2 years. I think they know it is here. My doctor got caught lying (by me) in his medical reports. I think he was lying in order to simply create a different "reality" of what was happening in our office visits. I got the office visit reports and noticed all of the lies. So I then tape recorded my office visits and compared the tapes to his reports. They did not match up. Why would he need to lie? I informed the large health care agency that employs him (of his lies)...and they promptly banned me from ALL of their many facilities and every single physician (thousands). Simply for having tangible proof of the doctor lying. They did that, rather than listen to the tapes and compare them to his written, entirely made up accounts of the office visits. Unbelievable SSM health (Missouri).
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  • Dec 25th, 2017
    Someone from Millbrook, IL signed.
  • Dec 24th, 2017
    Someone from Chesapeake, VA writes:
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    Out of the shadows we are coming.... we are in pain and agony.. this is a problem that can be solved .. and we implore someone at the CDC to care enough to help. I intend to write a book about my journey through this hell and how I was ignored and left to suffer without any support from the medical community... and I am not alone.
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  • Dec 23rd, 2017
    Someone from Lake Worth, FL writes:
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    I have been reading serious real stories about these invisable mites at first there was only a few hard to find stories and now there are pages and pages regarding 2017. Something must be done because the hospitals do NOT know about this and people are literally loosing all their material items and their children are suffering. I'm considering getting rid of my cats or building their own home outside as they are indoor outdoor. I believe this is partly due to earth warming, population and unclean practices where animals are held to produce food.
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  • Dec 23rd, 2017
    Someone from Lake Worth, FL writes:
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    I have been reading serious real stories about these invisable mites at first there was only a few hard to find stories and now there are pages and pages regarding 2017. Something must be done because the hospitals do NOT know about this and people are literally loosing all their material items and their children are suffering. I'm considering getting rid of my cats or building their own home outside as they are indoor outdoor. I believe this is partly due to earth warming, population and unclean practices where animals are held to produce food.
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  • Dec 23rd, 2017
    Someone from Lake Worth, FL writes:
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    I have been reading serious real stories about these invisable mites at first there was only a few hard to find stories and now there are pages and pages regarding 2017. Something must be done because the hospitals do NOT know about this and people are literally loosing all their material items and their children are suffering. I'm considering getting rid of my cats or building their own home outside as they are indoor outdoor. I believe this is partly due to earth warming, population and unclean practices where animals are held to produce food.
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  • Dec 23rd, 2017
    Someone from Lake Worth, FL writes:
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    I have been reading serious real stories about these invisable mites at first there was only a few hard to find stories and now there are pages and pages regarding 2017. Something must be done because the hospitals do NOT know about this and people are literally loosing all their material items and their children are suffering. I'm considering getting rid of my cats or building their own home outside as they are indoor outdoor. I believe this is partly due to earth warming, population and unclean practices where animals are held to produce food.
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  • Dec 23rd, 2017
    Someone from Lake Worth, FL writes:
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    I have been reading serious real stories about these invisable mites at first there was only a few hard to find stories and now there are pages and pages regarding 2017. Something must be done because the hospitals do NOT know about this and people are literally loosing all their material items and their children are suffering. I'm considering getting rid of my cats or building their own home outside as they are indoor outdoor. I believe this is partly due to earth warming, population and unclean practices where animals are held to produce food.
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  • Dec 23rd, 2017
    Someone from Lake Worth, FL writes:
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    I have been reading serious real stories about these invisable mites at first there was only a few hard to find stories and now there are pages and pages regarding 2017. Something must be done because the hospitals do NOT know about this and people are literally loosing all their material items and their children are suffering. I'm considering getting rid of my cats or building their own home outside as they are indoor outdoor. I believe this is partly due to earth warming, population and unclean practices where animals are held to produce food.
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  • Dec 23rd, 2017
    Someone from Lake Worth, FL writes:
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    I have been reading serious real stories about these invisable mites at first there was only a few hard to find stories and now there are pages and pages regarding 2017. Something must be done because the hospitals do NOT know about this and people are literally loosing all their material items and their children are suffering. I'm considering getting rid of my cats or building their own home outside as they are indoor outdoor. I believe this is partly due to earth warming, population and unclean practices where animals are held to produce food.
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  • Dec 23rd, 2017
    Someone from Lake Worth, FL writes:
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    I have been reading serious real stories about these invisable mites at first there was only a few hard to find stories and now there are pages and pages regarding 2017. Something must be done because the hospitals do NOT know about this and people are literally loosing all their material items and their children are suffering. I'm considering getting rid of my cats or building their own home outside as they are indoor outdoor. I believe this is partly due to earth warming, population and unclean practices where animals are held to produce food.
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  • Dec 23rd, 2017
    Someone from Lake Worth, FL writes:
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    I have been reading serious real stories about these invisable mites at first there was only a few hard to find stories and now there are pages and pages regarding 2017. Something must be done because the hospitals do NOT know about this and people are literally loosing all their material items and their children are suffering. I'm considering getting rid of my cats or building their own home outside as they are indoor outdoor. I believe this is partly due to earth warming, population and unclean practices where animals are held to produce food.
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  • Dec 23rd, 2017
    Someone from Lake Worth, FL writes:
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    I have been reading serious real stories about these invisable mites at first there was only a few hard to find stories and now there are pages and pages regarding 2017. Something must be done because the hospitals do NOT know about this and people are literally loosing all their material items and their children are suffering. I'm considering getting rid of my cats or building their own home outside as they are indoor outdoor. I believe this is partly due to earth warming, population and unclean practices where animals are held to produce food.
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  • Dec 23rd, 2017
    Someone from Lake Worth, FL writes:
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    I have been reading serious real stories about these invisable mites at first there was only a few hard to find stories and now there are pages and pages regarding 2017. Something must be done because the hospitals do NOT know about this and people are literally loosing all their material items and their children are suffering. I'm considering getting rid of my cats or building their own home outside as they are indoor outdoor. I believe this is partly due to earth warming, population and unclean practices where animals are held to produce food.
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  • Dec 23rd, 2017
    Someone from Lake Worth, FL writes:
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    I have been reading serious real stories about these invisable mites at first there was only a few hard to find stories and now there are pages and pages regarding 2017. Something must be done because the hospitals do NOT know about this and people are literally loosing all their material items and their children are suffering. I'm considering getting rid of my cats or building their own home outside as they are indoor outdoor. I believe this is partly due to earth warming, population and unclean practices where animals are held to produce food.
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  • Dec 23rd, 2017
    Someone from Lake Worth, FL writes:
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    I have been reading serious real stories about these invisable mites at first there was only a few hard to find stories and now there are pages and pages regarding 2017. Something must be done because the hospitals do NOT know about this and people are literally loosing all their material items and their children are suffering. I'm considering getting rid of my cats or building their own home outside as they are indoor outdoor. I believe this is partly due to earth warming, population and unclean practices where animals are held to produce food.
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  • Dec 23rd, 2017
    Someone from Lake Worth, FL writes:
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    I have been reading serious real stories about these invisable mites at first there was only a few hard to find stories and now there are pages and pages regarding 2017. Something must be done because the hospitals do NOT know about this and people are literally loosing all their material items and their children are suffering. I'm considering getting rid of my cats or building their own home outside as they are indoor outdoor. I believe this is partly due to earth warming, population and unclean practices where animals are held to produce food.
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  • Dec 23rd, 2017
    Someone from Lake Worth, FL writes:
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    I have been reading serious real stories about these invisable mites at first there was only a few hard to find stories and now there are pages and pages regarding 2017. Something must be done because the hospitals do NOT know about this and people are literally loosing all their material items and their children are suffering. I'm considering getting rid of my cats or building their own home outside as they are indoor outdoor. I believe this is partly due to earth warming, population and unclean practices where animals are held to produce food.
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  • Dec 23rd, 2017
    Someone from Lake Worth, FL writes:
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    I have been reading serious real stories about these invisable mites at first there was only a few hard to find stories and now there are pages and pages regarding 2017. Something must be done because the hospitals do NOT know about this and people are literally loosing all their material items and their children are suffering. I'm considering getting rid of my cats or building their own home outside as they are indoor outdoor. I believe this is partly due to earth warming, population and unclean practices where animals are held to produce food.
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  • Dec 22nd, 2017
    Denise D. from Long Beach, CA writes:
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    At 57 i Lost every material thing I owned to these mites. Just when we think it is getting under control at our new place, it rains and we are attacked. They have destroyed my life. Hospital visits with them not knowing what to do. Doctors do not know what to do. And lawyers do not want to help because the CDC has zero information on them. The last report on it was 1960 .
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  • Dec 22nd, 2017
    Denise D. from Long Beach, CA writes:
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    At 57 i Lost every material thing I owned to these mites. Just when we think it is getting under control at our new place, it rains and we are attacked. They have destroyed my life. Hospital visits with them not knowing what to do. Doctors do not know what to do. And lawyers do not want to help because the CDC has zero information on them. The last report on it was 1960 .
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  • Dec 22nd, 2017
    Denise D. from Long Beach, CA writes:
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    At 57 i Lost every material thing I owned to these mites. Just when we think it is getting under control at our new place, it rains and we are attacked. They have destroyed my life. Hospital visits with them not knowing what to do. Doctors do not know what to do. And lawyers do not want to help because the CDC has zero information on them. The last report on it was 1960 .
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  • Dec 22nd, 2017
    Someone from Houston, TX writes:
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    It's bird mite (lice)! Vets will confirm that humans can be infested with them but medical docs do not acknowledge.
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  • Dec 20th, 2017
    Someone from Port Huron, MI signed.
  • Dec 20th, 2017
    Someone from Bothell, WA writes:
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    Please don’t waste your time with the spam that keeps appearing here as a cure. There is some good information on her page, but nothing you haven’t tried already if you are finding yourself here at this site. Don’t waste your money or your time. this is a combo of fungus and mold. It is within you. Your environment and your pets too. The bugs are attracted to you because you have this. You most likely have internal parasites too. If you havnt read about morgellons you should. It too is called a delusional illness. But it is no more delusional than you are. This has nothing to do with drinking to much when you were younger or now. That doctor is a crack pot. I’m so sorry for those of you that have been treated this way. Several of us have asked this girl Maria to quit spamming this site, but she continues. If you have been bitten by bird or rat mites, there is also a fungus and other bacteria that gets transferred during the bite. Much the same with Lyme disease. There are several good morgellons groups on FB. Steve bettingsfield has some honest science going on and has developed a protocol. He doesn’t sell it, but tells you what and how much to take. People r getting recovery. It’s not fast. But it seems to calm down the itching and biting quite a bit for most people. With continued use there seems to be recovery. The difference between sleeping and not sleeping. If you are seeing fibers and other strange things in your skin and your environment, there are many pictures on this site to help you identify and confirm and not feel so alone and isolated. None of you are crazy. This is real. It’s not from meth. He has 2 sites. He has over 10,000 people following his site. They are following him because he has science behind his findings. Look up morgellons support science talk to LOTS OF OTHER PEOPLE THAT ARE GOING THROUGH THE SAME THING YOU ARE. ASK QUESTIONS. ask anything about any body part that is affected by this scourge. Take care everyone.
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  • Dec 19th, 2017
    Someone from Bloomfield, IA writes:
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    This has been another miserable experience, Doctors don’t believe me, they said it was a condition alcoholics develop an I shouldn’t have drank so much when I was younger, that’s ok I’ll get it figured out. So far I have found some relief by using tea tree an castor oil, also windex an lysol, an the dermisil lotion for the itching. Demodex helped for about a week. Gasoline and Paint thinner had no effect. Brake fluid helped with my fingers, they hurt all the time an feel like they have splintèrs in them, hopefully everyone finds some kind of relief
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  • Dec 16th, 2017
    Sherry M. from Cohoes, NY writes:
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    Please please help me. Begins with a tiny black dot and itching. Now I have painful pin pricking and feeling movement under my skin. They are in my eyes, ears, mouth, tongue, gums, scalp, hands, privates, stool, all of my skin has burrows. Nightly I became attacked. My mom & 8 yes old daughter are starting to become infected but not as bad. My cats also. Dr. Thinks it's scabies but you see those and whatever my family has we can see it. Yesterday I accidentally got my hair wet and I managed to get an fully intact clear worm looking thing that fell from my hair. I took pictures of it. I'm scared to death. Been to the emergency room and was told I'm delusional. Today I've started having a fever and stomach issues and then I noticed my stool has the same things I mentioned above. Last week I was able to pull one out of my gums, it had a good hold on me as I pulled painfully for about 3min til it let go. This one was full of blood so it wasn't clear it was reddish. Last night urgent Care gave me a script for Albenza but my insurance refused to pay for it. Cost is $400, I feel like I have no hope in getting cured. It's been 6 weeks. I'm devastated & disgusted. My teeth are rotting, one fell out because of this mite/bug/worm. Please please please help us!!
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  • Dec 14th, 2017
    Someone from Hesperia, CA writes:
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    I got these mites, which I believe to be bird mites, from a visit to a park with ducks. The biting and itching began in my car and quickly spread to my kitchen, then my bedroom, and finally all over my home. The worst feeling is at night about 3 AM the crawling sensation and pin prick biting begins. After two months of this I believe the mites are now taking over my body as I feel them on me all the time. They have entered my nose, mouth, ears, private areas, and eyes!! Pesticides do not work as I have hired a pesticide company who sprayed numerous times. They suggested tenting my home, but I cannot afford $3500 + on something that they cannot guarantee will work. I have gone to the doctor but they do not believe me and do not have a remedy. I have tried various things such as windex, enzyme cleaners, borax, various mixes of essential oils, pesticides, DE powder, sulfur soap, the list goes on. have read various accounts from other people going through the same issues all over the country and world.
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  • Dec 14th, 2017
    Someone from Hesperia, CA writes:
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    I got these mites, which I believe to be bird mites, from a visit to a park with ducks. The biting and itching began in my car and quickly spread to my kitchen, then my bedroom, and finally all over my home. The worst feeling is at night about 3 AM the crawling sensation and pin prick biting begins. After two months of this I believe the mites are now taking over my body as I feel them on me all the time. They have entered my nose, mouth, ears, private areas, and eyes!! Pesticides do not work as I have hired a pesticide company who sprayed numerous times. They suggested tenting my home, but I cannot afford $3500 + on something that they cannot guarantee will work. I have gone to the doctor but they do not believe me and do not have a remedy. I have tried various things such as windex, enzyme cleaners, borax, various mixes of essential oils, pesticides, DE powder, sulfur soap, the list goes on. have read various accounts from other people going through the same issues all over the country and world.
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  • Dec 12th, 2017
    Shannon J. from Griswold, CT writes:
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    Please help this is exactly what is happening to me and my family...we are all being plagued by this!
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