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Urge the CDC to take action against surging unexplained disease

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  • Sep 11th, 2017
    Someone from Festus, MO writes:
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    I cant believe its 2017 and I suffer from insects living in and on my body Please we need help
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  • Sep 11th, 2017
    Someone from Edmond, OK writes:
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    Please help!!! Whether it's lyme or unknown parasites, please help!! Doctors are not educated in this and instead say it's imaginary. I know what i feel, and it is not imaginary. This is real, and it is an epidemic.
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  • Sep 11th, 2017
    Someone from Stateline, NV writes:
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    Where is the petition? Congress should be paying attention.
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  • Sep 10th, 2017
    Someone from Middleboro, MA writes:
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    Thank you for creating this web site I am completely alone and fighting this thing. If there is anyone out there who would like a to partner to stay focused I would like a fight the might buddy. We could check in with each other and encourage and share and maybe even pray together if you are into that. Margie from Massachusetts
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  • Sep 10th, 2017
    Someone from Middleboro, MA writes:
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    Thank you for creating this web site I am completely alone and fighting this thing. If there is anyone out there who would like a to partner to stay focused I would like a fight the might buddy. We could check in with each other and encourage and share and maybe even pray together if you are into that. Margie from Massachusetts
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  • Sep 10th, 2017
    Someone from Middleboro, MA writes:
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    Thank you for creating this web site I am completely alone and fighting this thing. If there is anyone out there who would like a to partner to stay focused I would like a fight the might buddy. We could check in with each other and encourage and share and maybe even pray together if you are into that. Margie from Massachusetts
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  • Sep 9th, 2017
    Someone from Houston, TX writes:
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    Dallas: Would you please share what you know? The idea is to help people here since the medical community will not. Bothell, yep, it's "me". I don't have a positive sporo dx but my integrative doc does believe me and has at least 4 other patients like me and is willing to learn and try to get us to a better place. I contacted Dr. Ginger Savely's office, who used to practice in Austin TX but the going was so rough there that she moved to D.C. She is up there with Klinghardt as an authority on Lyme and Morgs. She shares her Morgs protocol with doctors, but not with patients. So my doc got her protocol and has started it with me, though I will have to piece together what it is because the protocol cannot be revealed to me, the patient. ;-D I'm finishing up a course of Albendazole, an antiparasitic for which my insurance company was charged $10,000 (no typo) and my copay was $100. It is made in Canada and should be much cheaper to order from there. One pill (I take 4/day) is $180!!!!! Talk about criminal -- the pills cost only a few bucks each to manufacture, but I digress. Without going into detail, let's just say that it seems to be working on some things. The itraconazole I took before that also moved some things out. That was before starting the protocol, so Albendazole is the starting point. My integrative doc could not really diagnose me with sporo, so on the basis of a skin rash was able to get me 1/4 the amount of itraconazole I needed (due to the $%^#%^& insurance co.) - had had me take 4x the dose until the pills were gone. This time I went to my derm for a "foot fungus" and got a much larger quantity of itraconazole, which I will start on only when my labs are clear and my integrative doc says to. I showed the derm the rashy area on my back, which I said starts itching and makes me scratch til I bleed, and she said it was neurological, lots of ppl report that, and ignored the pimples that are (to me) obvious portals where the bugs enter and exit my skin. I know not to trust facebook if I want to keep my identity private, so I will not even search for a bug-related page on fb. but thanks anyway.
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  • Sep 9th, 2017
    Someone from Bothell, WA writes:
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    Hi Houston , it IS YOU. Lol. When u made the mention of thyroid and iodine, I recall u reminding me of that. YES. U r so correct. good that u continue to point that out. So how long ago did u test positive for sporo? Dr klinghardts offic is about 6 miles from me. He treats all the hard stuff that Regular western medicine call crazy. When people have something western medicine can't diagnose, that's when people start thinking out of the box, and start finding doctors like dr klinghardt. I've thought for along time now that this starts out as fungal SOMEWHERE in an area we spend a lot of time. The few people I chatted with that actually got a dr to do a skin scraping were told it was agrobaterium. Isn't that associated with mold? If we could just get about 10 different drs and scientist that want to help us prove this is real and agree to meet with 200 people that have this, interview them all. Run test, actually LOOK at the samples these people bring in under a microscope ( (instead of laughing ) we might get somewhere. A Morgs symposium. But for now that's just a dream in the future. I glad to hear that u and your family are safe. I know ur going to have to fight with ur insurance co for the correct help. Are you on any of the FB morg sites? I'd love to really compare notes. Or if u don't know the FB sites yet, they are really good. MORGELLINS SUPPORT SCIENCE Is a good one. STEVE BEDDINFIELD runs the site I think. He has more of a science / biology background. I'm pretty sure he's a non chemtrail believer and non conspiracists too. Science and conspiracy don't usually mesh. Lol. Hoping U and ur family are safe and warm.
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  • Sep 8th, 2017
    Someone from Dallas, TX writes:
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    I have answers. I'm guessing they are kept from us on purpose because most people couldn't handle the truth and most people don't have it to this degree..
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  • Sep 8th, 2017
    Someone from Houston, TX writes:
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    Thank you, Bothell. Yes, I am absolutely sure the dots weren't on the clothes before I put them on the concrete. I contracted Lyme after a previous flood (different house) doing this exact thing - laying out ruined items to sort and photograph for insurance. I have some Sporonox on hand but must first finish albendazole for parasites and have my liver tested to see if I can move forward. It has been recognized that the most prevalent and previously unrecognized coinfection of Lyme Disease is parasites. Dr. Dietrich Klinghardt, the world's foremost authority on Lyme, has developed a protocol that first kicks the parasites, then the bacteria they harbor and release as they die, then heavy metals they release, then various fungi. So I'm on a program. Recall that people with thyroid issues should not take potassium iodide, as it inhibits thyroid function. This flood gave us the opportunity to open up the walls and remove wet sheetrock and flooring materials throughout the house. (The yucky buggy carpet is still throughout the upstairs.) We have two mold products for the currently exposed wood structure of the house -- one that kills it in the areas that have already been damaged, and one that kills it for the future, becoming active when the humidity gets over 10%. So basically, the infestation will now be concentrated upstairs, since insurance will not pay for anything up there and we will have to recover financially from restoring our gutted downstairs before we can fix the upstairs. I feel for those who are not able to run fans and dehumidifiers throughout their flooded houses...we will be seeing new cases of this for sure.
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  • Sep 8th, 2017
    Someone from Bothell, WA writes:
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    Hey Houston! I don't know which Houston u r, but so happy u survived HARVEY. Now u just have to survive the itch, mold and mites. So ur saying the possible pin oak mites for sure showed up when u laid ur clothing out on the ground? Sounds like Ur sure those dots weren't there before. I also read about the pin oak mite. they say the bites and itching only last for a few weeks But heres what they don't mention, what if the pin mite carries other bacteria that can cause all the long last problems. I dont think theyve studied the Pin Oak Mite bite enough. Or followed the people that were being bit by these them. Some people think that moregellins is secondary to Lyme disease, which is from a tick. If morgellons really is secondary to tick bite, I see no reason why pin oak mites can't come in contact with the same stuff the Lyme tick does. We don't know. There are all sorts of bacteria that mites and ticks can come in contact with. All that can make u very sick. There are more people finally, that are getting tested for SPOROTHRIX, from the fungus sporo schenkii. Wiki has the best info on sporo. But read the whole thing. Especially if u are beginning to have lung issues. Sporo can be breathed also. sporo is found in dirt mulch decaying wood and other out door matter. Ur pets can get sick with this too. Anyway read about it. If your dr won't test u, u can order both of the treatments on the sporo wiki site on line. One is an antifungal. I can't recall the name. But I found it available on a pet med site when I checked this once before. Don't worry, these are human grade medications. Besides, I'm sure most people that have this disease, have tried a many unhealthy treatments, like spraying oneself or bedding with raid every nite before bed, now that is scary to me. I understand desperation and frustration make Morgs people do this. The other treatment is potassium iodide. Google THE UNKNOWN CAT SSKI MORGELLONS YOUTUBE. U will find a great guy there that suffered for years. He finally got diagnosed with sporothrix. He had been diagnosed with Morgellons too. He tried everything under the sun. Something would work for a day or two or a week, then it was back. Full force. potassium iodide is inexpensive. THE UNKNOWN CAT, talks about it in great detail in his video. He will show how to mix it up. U can order from him , or anyplace on line. Watch his videos. I worry so much about all the water damage and mold growing in Texas right now. I wouldn't be surprised if there is a huge outbreak morgellons down there in your neck of the woods. Take care Houston !
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  • Sep 7th, 2017
    Someone from Houston, TX writes:
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    Flooded in Houston and pretty much back to square 1. The downstairs is torn up and I'm bringing my bugs upstairs to get a firm foothold in the guest bedroom. The walls are basically open and anything can crawl in downstairs; not sure how many weeks that will be the case, but the good news is that we can now do the mold remediation we've needed all along. There was tons of mold and mildew in my closet, which backed up to the tub (both now gone) and we have special chemicals that will kill it and keep killing it when it starts to grow again. So I am hopeful on the fungus note. Another very interesting thing I noticed while set up out in the driveway photographing lost items for insurance: when I picked up light colored clothing items from the driveway after photographing them, they would be peppered with little black dots that they did not have when I set them down. THEY LOOK JUST LIKE THE SAME EFFING DOTS THAT BITE ME! My sandaled feet were getting bitten up as well. These must be falling from the pin oak or black oak trees over the driveway that are suffering from some sort of fungus. !!! I read something a while back about this possibly being an oak mite thing. Well, it really may be so for me. But the key is still improving my body chemistry so that they are not interested in me, because they do not bother my spouse though they are all over his environment and clothing too.
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  • Sep 5th, 2017
    Someone from San Mateo, CA writes:
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    I have Borrelia B, Babesia Divergens and Bartonella H. All diagnosed through PCR. My journey started with a tick bite followed by an acne looking rash. After being left untreated for a year by kaiser Permanente Northern California, my rash turned into Morgellons. I wish I was delusional. My reality makes zero sense and I'm not the only one. We are all sick and being neglected by healthcare providers. Find the cause. Find a cure. Do the research. Stop publishing delusional BS on the internet discrediting my physical illness. Thanks
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  • Sep 4th, 2017
    Someone from Deltona, FL writes:
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    I forgot to tell you I also take sulphur pills 4 times a day 5 pills you can buy them at Swanson Vitamins.come $ 6.00 for 250 pills they r small and tasteless
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  • Sep 4th, 2017
    Someone from Deltona, FL writes:
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    Here is what I discovered since I posted a few months ago,dealing with these pests for years I'm happy to say I think I found a way to make life a little easier for all of us! I bought some sulfer soap and it was the best thing I every did... shower with it use a loofa sponge and rub it in really good, wash your hair with it and let it dry a few mins,wash it of with a good moisturizing soap,I use one with tea tree oil and condition your hair with teatree and mint conditioner .Shred a bar of sulfer soap I use a cheese shredder...get a spray bottle fill with hot water and the soap shake it really well,now spray everything in your house it will leave a white film on some stuff which you can always wipe off.spray under the bed and the mattress the walls floor carpets everything,I spray every time I make my bed the sheet blanket and pillows.Use Arm and Hammer laundry detergent and add the sulfer you can use Borax along with it but use a good softener after !. I wash every day and I spray my house down every day,I shower before I go to bed ,i have noticed a big difference after 1 week,it's been 2 months now and I feel I'm in control again,it will take a bit longer but after years of this tormenting biting ,itching and crawling life is almost back to Normal! I keep a spray bottle filled in every room and I always have one next to me, I think it's 60% better now... when I do feel a bite I spray the spot and it stops immediately, I have a little way to go but I am 100% sure this time I will win this battle! Never give up be strong you can win and have a normal life Again! I wish you all good luck and God's blessing on this war!
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  • Sep 3rd, 2017
    Teri L. from Glendale Heights, IL writes:
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    This has been devastating to my family I can't help take care of my elderly 87 year old father nore have my adult children visit our little dog is suffering too and revalution does not work . I've had bird mites in my scalp for three months drs and dermatoligist waste of money, plus they think ur nuts. This is contagious and has cost us 3 grand so far my government has failed me u can't protect Americans if u don't believe in parasites we live on a gulf course in ill and its infested the squirrels have no hair neither do the coyotes I can only pray for a booster of some sort before this affects the rest of my exstented family where is the cdc ? Oh fighting zika well guess what u have an almost epedemic of mites that don't die hope someone listens soon.
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  • Sep 2nd, 2017
    Someone from Boerne, TX writes:
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    No one believes me when I ask for help. They think I parasitic delusions. My doctor put me on antipsychotic meds. Said my mental status was questionable.I suffer alone and I fight these bugs all day every day. CDC needs to recognize this problem and encourage doctors to address it more seriously.
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  • Sep 1st, 2017
    Someone from Fountain Valley, CA signed.
  • Aug 30th, 2017
    Someone from Bothell, WA writes:
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    Hi there Costa Mesa. Ur not crazy and ur not alone. There r thousand and thousand of people dealing with this. U didn't mention how long and what u tried. this is also mold related. Mold attracts all sorts of microscopic critters. If u have mold in ur home or work place, ur r breathing in mold spores. The mold becomes systemic with in YOU. The bugs and mites become attracted to YOU. Don't try to convince a regular doctor of this. They will note in ur medical file that u have mental problems. Instead talk to drs about possibly having a fungal infection of your skin and scalp or where ever on ur body this is affecting you. They can understand a home having mold and making u sick. Mold spores in the air can also feel like bites and stings and make u itch. There r also mold mites. That's not a generic term. Mold mites r real. I just can't remember what the real name is. But if u google mold mites u will find it. Mold mites have tiny little hairs that they shed. These get in the environment along with mold spores. Along with the other bugs attracted to mold. Like springtails. Check ur house really well for mold. Look in ur bathroom first. Under ur bath and kitchen sinks. Look under and behind the fridge and ur washing machine. Che k ur attic for tiny leaks. Check the crawl space under ur house for a leaky pipe. It doesn't take much to cause a huge mold infestation. Anyway if I can talk to ur doctor about fungal or mold problems, he may prescribe u an anti fungal prescription instead of an anti depressant and a referral to see a shrink. For real. It's very rare when drs actually do a skin scraping and have it checked under a microscope. U need to get the humidity down in ur house. If u don't have a vent or fan in ur kitchen or bathroom or a window, get a small fan. In the winter time get a small heat. Run it for 5-10 mins after a shower or bath to help keep it dryer. An air purifier will also make a difference. Cut down on sugar and carbs as best u can. This will help right away. Not make it stop, but it slows down the biting stinging. Mold and fungus like sugar. Get ur body as healthy as u can. Ur home too. Change ur furnace filter and check ur AC units for mold. Check for bird nest or mice-rats. In ur attic under ur house. even a near by tree that has a branch that touches ur house can make the perfect hiway for mites from a birdsnest to U. The best drs to help u r Lyme drs or naturopaths. Sadly naturopaths r not a first choice when people get sick. Most people don't see naturopath or homeopath drs until AFTER they've exhausted all other options. U can talk freely with an NP or homeopathy dr. They r used to hearing about strange stuff. Weird stuff. Unbelievable stuff. Make sure ur water heater is set hot enough. Use a lint roller on ur body and bed before u get in it. It SEEMS, that the bugs r less drawn to synthetic materials. That may help. Get a mattress cover too. When siton something lay down a large plastic garbage bag on the chair or ur car seat before u sit. Live as bare minimum as u can stand. I never had the crawling all over the body. But I did have the bites and sting fibers black dots and lesions that wouldn't heal. The lesions that were SO BAD and kept me from sleeping, I put ice cubes directly on them. A baggie would probably easier. But I found that the ice cubes would STOP that feeling of biting and movement going on in the lesions. It would allow me to fall asleep. I'm allergic to so many chemicals. I couldn't use pesticides. I did manage to get rid of them. It took me a few years. It wasn't fast. For me there was nothing fast about healing from this. I also put black walnut salve on the lesions. We also moved right in the middle of this things starting and quit my job which is where I got this from in the first place. Along with most of my co workers. I don't know that moving no helped or not. Most people it doesn't help. But because this plague wasn't coming from my home, I think my stuff didn't get as infested as it could have. One last thing. Especially if u have pets. Read about a fungus callled SPORO SCHENKII or sporotricosis or sporothrix. Wiki has good info. Read the WHOLE THING. Especially if u r starting to feel physically sick. Not just itchy. I can get sporothrix from ur pets. Sporo is a fungus found in dirt. Gardners can get it too. It's found all over the world. U can get it from having a cut and then the fungus spores get in the cut. That could happen just by petting ur animals if they have it in their fur. U can get it by breathing in the spores too. After u read that if u want to go further. Check out this guy on you tube. Type in this, THE UNKNOWN CAT MORGELLONS. There's 2 of guys talking about this. One guy is just a trouble maker. So u must type in THE UNKNOWN CAT Not just Unknown cat. He has put out several good videos. From when he was first sick to getting well. Turns out he had sporothrix. The fungus attracta the bug. He had the fungus in and on him. So the bugs came to him. It's worth watching his videos. I hope this info will help someone. Don't give up. Keeping talking. U just have to be careful what u say when dealing with MDs.
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  • Aug 30th, 2017
    Someone from Costa Mesa, CA writes:
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    This is horrible......I get bit, stung nightly. I have tore apart my van, and my house. I've washed everything, steamed everything, I've used Diatomaous earth (D.E) everywhere. I have thrown out clothes, shoes, and furniture......and still dealing with this. I feel like there in the fabric of certain clothes, and coming out of carpet......the only thing left is inside the walls...uggggg. I've been made fun of and called crazy. It's very depressing. I hope there is help for getting rid of whatever this is.......
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  • Aug 28th, 2017
    Jorge S. from Bronx, NY writes:
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    Its driving me crazy and I'm not going to give up easily
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  • Aug 27th, 2017
    Someone from Fargo, ND writes:
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    Also, I might add, that Corporations and Special Interest Groups have the money to pay lobbyists to go to your office and tell you to vote for their project. They also have the money to bribe you. Now, can you see how useless our system is? Did you know that one Congress Woman will retire with a $800K a year Pension.
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  • Aug 26th, 2017
    Yolanda P. from San Jose, CA writes:
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    I'm going completly ??? .!! I have bee to a couple Drs also pest experts.Piped.Pipet have.came to my apt.they.r not bef.bugs no one.knows or is doing any thing.to.a limitate.problem.will not spray put tent on bulding 7rs teant carpet.inhabitable.pant tile.cabnet bottom open to.ground Dirt outside squiral. Possible fruitfrys ect long river.a.cross street disclosure of bed bugs in close neb apt 4 units in 1 b
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  • Aug 26th, 2017
    Yolanda P. from San Jose, CA writes:
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    I'm going completly ??? .!! I have bee to a couple Drs also pest experts.Piped.Pipet have.came to my apt.they.r not bef.bugs no one.knows or is doing any thing.to.a limitate.problem.will not spray put tent on bulding 7rs teant carpet.inhabitable.pant tile.cabnet bottom open to.ground Dirt outside squiral. Possible fruitfrys ect long river.a.cross street disclosure of bed bugs in close neb apt 4 units in 1 b
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  • Aug 26th, 2017
    Someone from Fargo, ND writes:
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    Dear Representatives of the people, I have a question for your. If the Mayo Clinic, Cleveland Clinic, county, state, and federal health departments, and all major pest control companies won't help us with these mites, Who will? Of course, the answer is obvious, No one will help us. That's why we are forced to petition you. But, you don't know nothing about health care. And, even worse, you're swamped with petitions from big dollar Special Interest Groups and Corporations. So, you got to admit, it's kinda of a stupid system, don't you think?
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  • Aug 26th, 2017
    Someone from Fargo, ND writes:
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    Dear Representatives of the people, I have a question for your. If the Mayo Clinic, Cleveland Clinic, county, state, and federal health departments, and all major pest control companies won't help us with these mites, Who will? Of course, the answer is obvious, No one will help us. That's why we are forced to petition you. But, you don't know nothing about health care. And, even worse, you're swamped with petitions from big dollar Special Interest Groups and Corporations. So, you got to admit, it's kinda of a stupid system, don't you think?
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  • Aug 24th, 2017
    Someone from Bath Springs, TN writes:
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    Do Something and Do Something Soon! I am a single mother to a once happy 8 yro little girl, we were both happy and living life to the fullest until about a month ago and then our lives turned upside down overnight! I could go into all the horrific tales what is going on in both of our bodies but I believe 100% the CDC already knows what is going on! It all started with a lady in Korea and now it's spreading all over this beautiful planet invading our bodies like a terrorist attacking it's victims in the most slow and horrific manner ever thought of. What happens in the dark WILL come to light and by the CDC blinding their eyes to what is going on it tells the American people exactly what is going on. It's time they step up and if they don't won't to confirm anything that's fine but at least assist in a cure. If they need confirmation that this disease is more than delusional, I will be happy to send them specimen samples I have in each stage of growth that they can experiment on.
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  • Aug 24th, 2017
    Alexcyandrea D. from Salt Lake City, UT writes:
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    It's real, I'm a living example. And I hope that they do something about this. Millions are living in such a uncomfortable state of being. It's not right to just push it away and say we're crazy. We're in pain, please; help us!
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  • Aug 23rd, 2017
    Debbie M. from Greenville, SC writes:
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    Please I'm a single mom trying to live this horror that no one understands or believes . If the CDC or government is worried people will blame those responsible and are therefore doing nothing then I myself totally agree with another comment I saw here and that was I'm sure anyone living this nightmare does not care where it came from or who is responsible we just want our lives back please I am begging the CDC to study this again. Use me as a participant. I can't live like this. It's hell.
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  • Aug 23rd, 2017
    Debbie M. from Greenville, SC writes:
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    Please I'm a single mom trying to live this horror that no one understands or believes . If the CDC or government is worried people will blame those responsible and are therefore doing nothing then I myself totally agree with another comment I saw here and that was I'm sure anyone living this nightmare does not care where it came from or who is responsible we just want our lives back please I am begging the CDC to study this again. Use me as a participant. I can't live like this. It's hell.
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  • Aug 21st, 2017
    Someone from Chicago, IL signed.
  • Aug 20th, 2017
    Someone from Bowie, MD signed.
  • Aug 20th, 2017
    John G. from Bowie, MD signed.
  • Aug 20th, 2017
    Christie L. from Speedwell, TN signed.
  • Aug 20th, 2017
    Someone from Speedwell, TN writes:
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    I'm so used too I've already beyond the physical and mental stage of trying to accept it but it was living hell if there were one so if your on the site laughing making fun of us than I hate it for you cause good wl make u deal with this if not worse sition.....I've spoken too an seasonal nurse and ya know they will brJe the backs on everything else but **** us huh
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  • Aug 19th, 2017
    Someone in A. from Hoffman Estates, IL writes:
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    I'm 53, single, raising a teenager-working a lot of hours to provide for us it's already busy-then I acquired this- it's horrible the marks on my face the time spent in baths and trying different remedies the money that is spent buying anything that may help including pet antibiotics. I hope the CDC is allowed to study this again- an honest effort this time. Then maybe a cure. At this point I don't think anyone of us cares where it came from more than we care about just having our lives back for a cure. My 15-year-old also has it- It's already a rat race trying to make a good life. Trying to fix myself worrying about him trying to fix him. Very sad-I have to tell myself many times during the week to stay strong- don't panic.
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  • Aug 17th, 2017
    Someone from Windsor, VT writes:
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    This started with mites that were actually seen. But they were microscopic and probably thousands gathered together on a water bowl. Initially I had fairly good sized bites. Now I don't have any bites, but have the crawling sensation. This affliction disrupts a person's life completely, and destroys any productivity. I am just devastated to be suffering under this.
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  • Aug 12th, 2017
    Someone from Largo, FL writes:
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    I just keep praying that someone will find a cure for us all ,and the one's who aren't infected yet.....Doctor's- Hospitals_aren't going to help that's a proven Fact.. ( Truer than true), it's very sad,but taken this day and age in which we live in its all (Bible for filling).. (Keep the faith), "Because that's all we got" and each other to console (talk to ) and try to find relief May God hear our anguish and desperate call in Jesus name I ask and I pray if God permits amen...
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  • Aug 12th, 2017
    Someone from Minden, LA writes:
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    Our family has been attacked by unseen parasite, after stinging bite the only sign of it is white skin looking edge, that is seen around the edges of the scab and only after it dies can you pull off scab. The sore scabs are all over our backs, sides, legs and even our scalp! This is a nightmare for our family, no help from Doctors!!
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  • Aug 8th, 2017
    Someone from Tacoma, WA signed.