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Investigation into Lupron Side Effects (Leuprolide Acetate)

Public Comments (5,065)
  • Jul 9th, 2014
    Someone from Thomaston, GA writes:
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    I almost died from it with a brain hemmorrage
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  • Jul 9th, 2014
    Someone from Reedsburg, WI writes:
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    It is not ok to offer this to ANYONE without further studies!!!
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  • Jul 9th, 2014
    Someone from Blanding, UT writes:
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    treated for Lupron for enlarged prostate, concerned with side effects, memory loss, huge weight gain, fatigue, dizziness, loss of lobido, insomnia.Doctor ignored and down played side effects and insisted on more shots. I took them for a year,I am afraid the side effects are permanant.
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  • Jul 8th, 2014
    Someone from Trabuco Canyon, CA signed.
  • Jul 7th, 2014
    Someone from Detroit, MI writes:
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    While I have no way of being certain in the Lupron administered prior to my myomectomy is the result of my infertility and/thinning of uterine lining I believe if has played a huge part in my current medical situation. It has been over a year now and my cycle has not started even after several attempt at Western, Chinese and Wholistic medicine. It has been discovered my lining is thin and there is a blockage in my lower uterine canal. I do believe Lupron is the cause.
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  • Jul 6th, 2014
    Someone from Yarmouth Port, MA writes:
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    The pain in the shoulder joints, fingers, hands are unbearable. Would rather die than live this way.
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  • Jul 4th, 2014
    Someone from Norman, OK writes:
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    I've had most of these same problems everyone has mentioned. However my teeth have basically eroded. I'm in my 40s and was given Lupron in my 20s and I'm now looking at having to get implants or dentures. My dentist days my mouth looks like a cancer patient. Please contact me if you've also experience major dental problems as well.
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  • Jul 4th, 2014
    Someone from El Paso, TX writes:
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    I am both fortunate and unfortunate with Lupron. I have had a cancer cocktail of Lupron, finesteride, Leukine, Revlimid, Zytiga and low-level chemo for some 18 years now and still on the drug. I am fortunate because I had Gleason 8 and 10 Prostate Cancer Scores and given less than 3-5 years back in 1996-7. I have been to M.D. Andersen, Waco, Texas, Austin, Texas and Arizona and California. Believe me, I know hurt to the highest degree. Over the years I have developed kidney disease, got the maddening Osteonecrosis of The JAW, Parkinson's disease, IBS, Osteoporosis, Thyroid Disease, Osteopathic pain of a severe nature, internal organ pain, urinating problems , and every time I get a Lupron shot (usually a 4 month shot) I have so much hip pain with swelling that I hardly sleep. The hip feels like it has a canon ball with a load of pain in it; I can hardly walk for weeks, just drag my leg around in agony.The good news is that I am alive and active at 80 years of age even though I am in constant pain. I work out three days a week and teach boxing classes three days a week. I am involved with children with cancer so that I don't get carried away with my own depression. Those poor children. Most have less than a dogs life to live. So, who really wants to cure cancer? Nobody does. It is a trillion dollar business just like oil, banking and war.We had a Project Manhattan, we have had disease cured before moderrn technology. .Why? Because we needed people or our society would have collapsed. Now, we are an overcrowded planet and the creation of medical jobs is a must and the profits enormous. Healthcare is becoming out of reach and is busting millions of families. With our resent technology and especially nanotechnology, a "Project Cure Cancer" could rid us of most of the cancers , especially our beloved children. So why not? Ha! Who you kidding? The world would go bankrupt and a Depression a 100 times that of the 1920's would envelop humankind. Not a happy * I am both lucky and unlucky. My body is a mess but my mind and fists are comparable to a 40 year old. Yowee!!!!!!!!!!!!!!!
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  • Jul 4th, 2014
    Someone from El Paso, TX writes:
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    I am both fortunate and unfortunate with Lupron. I have had a cancer cocktail of Lupron, finesteride, Leukine, Revlimid, Zytiga and low-level chemo for some 18 years now and still on the drug. I am fortunate because I had Gleason 8 and 10 Prostate Cancer Scores and given less than 3-5 years back in 1996-7. I have been to M.D. Andersen, Waco, Texas, Austin, Texas and Arizona and California. Believe me, I know hurt to the highest degree. Over the years I have developed kidney disease, got the maddening Osteonecrosis of The JAW, Parkinson's disease, IBS, Osteoporosis, Thyroid Disease, Osteopathic pain of a severe nature, internal organ pain, urinating problems , and every time I get a Lupron shot (usually a 4 month shot) I have so much hip pain with swelling that I hardly sleep. The hip feels like it has a canon ball with a load of pain in it; I can hardly walk for weeks, just drag my leg around in agony.The good news is that I am alive and active at 80 years of age even though I am in constant pain. I work out three days a week and teach boxing classes three days a week. I am involved with children with cancer so that I don't get carried away with my own depression. Those poor children. Most have less than a dogs life to live. So, who really wants to cure cancer? Nobody does. It is a trillion dollar business just like oil, banking and war.We had a Project Manhattan, we have had disease cured before moderrn technology. .Why? Because we needed people or our society would have collapsed. Now, we are an overcrowded planet and the creation of medical jobs is a must and the profits enormous. Healthcare is becoming out of reach and is busting millions of families. With our resent technology and especially nanotechnology, a "Project Cure Cancer" could rid us of most of the cancers , especially our beloved children. So why not? Ha! Who you kidding? The world would go bankrupt and a Depression a 100 times that of the 1920's would envelop humankind. Not a happy * I am both lucky and unlucky. My body is a mess but my mind and fists are comparable to a 40 year old. Yowee!!!!!!!!!!!!!!!
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  • Jul 4th, 2014
    Someone from Valparaiso, IN signed.
  • Jul 3rd, 2014
    Someone from Yonkers, NY writes:
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    My sister contracted MS Asa result of this medication. It was utilized to treat her for endometriosis. Now she is wheelchair bound and using morphine for pain.
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  • Jul 1st, 2014
    Someone from Riverdale, GA signed.
  • Jul 1st, 2014
    Someone from Chester Springs, PA writes:
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    I am in my third month with the Lurpon injection to stop menses as I am premenopausal and have had Breast Cancer. I am completely aches in my muscles, bones and joints. I am slowly gaining weight even though i am forcing myself to exercise. I am becoming increasingly moody and very forgetful. I am barely 40 years old and feel like I have aged 20 years in two months.
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  • Jul 1st, 2014
    Someone from Roseville, MI signed.
  • Jul 1st, 2014
    Someone from Roseville, MI signed.
  • Jun 30th, 2014
    Someone from Denver, CO signed.
  • Jun 28th, 2014
    Someone from Katonah, NY writes:
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    Something definitely should be done about this disastrous situation
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  • Jun 28th, 2014
    Someone from Azusa, CA writes:
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    I suffer from severe endometriosis, and my doctors are pushing on the Lupron shot, I have read about it and I dont want to do it, the bad out weights the good, please investigate this drug and doctors, please stop pushing women to do things that are not healthy for our bodies, we are already going through enough.
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  • Jun 26th, 2014
    Someone from Rockmart, GA signed.
  • Jun 26th, 2014
    Someone from Pomona, CA writes:
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    Horrible side effects made worse by doctors trying to convince me its not the shot! Everyone is always after the money..the manufacturer pays docs to dispense then they also get money etc...so disgusting to know how sick our world has become where we cant even trust out doctors.This drug is dangerous-
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  • Jun 26th, 2014
    Someone from Clear Lake, IA writes:
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    I am a 42 year old woman. Hot Flashes, memory loss, osteoporosis, heart attack, degenerative disc disease, cancer, dizziness, insomnia and depression. I was administered Lupron Depot 4 times in a 6 month cycle every 2 years. From the time I was 24 to 34.
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  • Jun 26th, 2014
    Someone from Chicago, IL signed.
  • Jun 26th, 2014
    Someone from Saint Petersburg, FL writes:
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    I was advised to take the Lupron shots to shrink my Fibroid tumors which never worked. Every since then my health has declined in one way or another. I suffer from migraines, Hyperhydrosis, Bone thinning, Vitamin D lost, depression, muscle spams, anxiety, pelvic pain and much more. I was 27 when I took the shots for a period of 6 months. I am now 40 and still suffering.
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  • Jun 26th, 2014
    Someone from Saint Petersburg, FL writes:
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    My wife suffers drastically from many of the side effects of taking this drug, impacting our lives greatly.
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  • Jun 25th, 2014
    Someone from Martinsburg, WV writes:
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    I took Lupron for 13 months and my side effects were different than most. I started having muscle spasms, drop weighting of my arm, wheezing, rocking back and forth for hours on end and etc... No matter how much vitamin D I took in either food, vitamins, or via the sun; it could not stay in my system. I now have hashimitos and Multiple Sclerosis 9Vitamin D and MS are closely linked.) Lupron is dangerous and has not just physically disabled me, it has also financially crushed me. It is also hard to find a lawyer willing to go up against the pharmaceutical company.
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  • Jun 25th, 2014
    Someone from Naples, FL writes:
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    20 years ago I was treated for endometreosis. I had a servere case of it. i toook it for 6 mos. while on it I had migraines and servere joint pain. It was an awful drug. Now 20 years later I continue to suffer from migraines and joint pain and I have had numerous fractures. At an early age I was told i developed Osteperosis. I regret taking this drug. 10 years ago I had a complete hysterectomy and I still have migraines and a great deal of joint pain. MS was ruled out along with other well know diseases.
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  • Jun 24th, 2014
    Someone from Mc Kenzie, TN writes:
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    My sister has been on the shots for about 2 months. Since she has started them she has been battling with depression,anexity. She has had severe mmuscle spasams, her left side of her face is partily drooped down like when you have a stroke. This has taken white a toll on all of us. My little brother is having to baby sit her at night and is to call if she has any episodes. No one should be aloud to take this shot at all
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  • Jun 24th, 2014
    Someone from Mc Kenzie, TN writes:
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    My sister has been on the shots for about 2 months. Since she has started them she has been battling with depression,anexity. She has had severe mmuscle spasams, her left side of her face is partily drooped down like when you have a stroke. This has taken white a toll on all of us. My little brother is having to baby sit her at night and is to call if she has any episodes. No one should be aloud to take this shot at all
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  • Jun 23rd, 2014
    Someone from Hot Springs National Park, AR writes:
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    I truly feel that this medication is the reason I can't have kids.
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  • Jun 23rd, 2014
    Someone from Hot Springs National Park, AR signed.
  • Jun 23rd, 2014
    Someone from Hampton, VA signed.
  • Jun 22nd, 2014
    Someone from Valparaiso, IN writes:
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    I now have adrenal and pituitary disease due to this. My blood pressure is constantly dramatically low and I pass out very often. Plesse stop giving this drug to people. If I would've known what I know now I would've never taken it.
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  • Jun 20th, 2014
    Someone from Mount Pleasant, PA signed.
  • Jun 19th, 2014
    Someone from San Diego, CA signed.
  • Jun 19th, 2014
    Someone from Vista, CA signed.
  • Jun 19th, 2014
    Someone from Brooklyn, NY signed.
  • Jun 19th, 2014
    Someone from Tacoma, WA writes:
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    There is no reason for people to have their lives stolen because of money hungry monsters who refuse to acknowledge that there is an immensely destructive problem with this drug and investigate properly.
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  • Jun 19th, 2014
    Someone from Tacoma, WA writes:
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    There is no reason for people to have their lives stolen because of money hungry monsters who refuse to acknowledge that there is an immensely destructive problem with this drug and investigate properly.
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  • Jun 19th, 2014
    Someone from Denver, CO writes:
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    I am 26yrs old and have suffered from Endo since I was 17years old. Not knowing then, after my fisrt Laparoscopy, the decision I made to NOT go on Lupron may have saved my life. However I find myself now at a crossroads of choosing to not go on the Lupron and my Dr. telling me that there are no other options. Why? Why are there NO OTHER options? Who's pushing this drug saying that it's the holy grail of Endo cures? To be honest, I've done the research and read through the clinical trials. The laughable clinical trials which the FDA bases the "facts" and "rules" of this administered drug have more hole than Swiss cheese. Their control group only has 166 participants, and non of the studies exceed 24mos. It's just NOT GOOD ENOUGH. None of this is. No one should have to suffer like this. It's just not good enough.
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  • Jun 19th, 2014
    Someone from Sierra Vista, AZ writes:
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    Had cysts on both ovaries. Doctor said they would not operate for fear of scar tissue damage, so Lupron was offered. I was told I would have hot flashes as the side effect, but it would reduce my pain. I wish I had found this pain before subjecting myself to this hideous drug. I had catastrophic vasomotor reactions, then BV, and now chronic vaginal burning, no period has returned after 6 months, pins and needles everywhere, bouts of extreme liquid pain into my blood stream causing my blood pressure to skyrocket leaving me unable to walk, trouble breathing, pressure in my head, and now an MRI of my brain shows non-specific demylineation. Hormone doctor says my estrone has soared to extremely high levels found in breast cancer patients and I have no estradiol with minimal progesterone. I am in so much pain, I can hardly walk. I have to wait 4 months to get in to see a Neurologist, but the referring dr. said she things the MRI points to MS. From my head to my vagina, I'm burning -- no one knows why. I am a mother of 3 and can barely function and cannot work. I am suffering so and just want some relief in my vagina and head. PLEASE DO NOT TAKE THIS DRUG.... I DONT KNOW IF I'LL EVER RECOVER.
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