Investigation into Lupron Side Effects (Leuprolide Acetate)
Public Comments (5,065)
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Apr 29th, 2014Someone from Lewisberry, PA writes:
I now have an autoimmune disease which I feel is linked to this drug. -
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Apr 28th, 2014Someone from Glen Ellyn, IL signed.
Apr 28th, 2014Someone from Chicago, IL writes:
I was prescribed this shot april 24th,to shrink my fibroids before a partial hysterectomy...so far only migraines headaches, I pray no other symptoms..REPORT COMMENTS
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No, CancelApr 28th, 2014Someone from Paulding, MS signed.
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No, CancelApr 27th, 2014Someone from Temecula, CA writes:
My 8 year old daughter took Lupron for 2 1/2 years. Since taking her off the drug due to depression issues she at 15 now has Fibromylgia AND TMJ! Her oral surgeon says she has the jaw joints of a 60 year old woman and she needs them both replaced! She has hit flashes, chills and constant migraines. Lupron is poison! Soon after taking her off the drug her depression issues went completely away. Now she is just depressed because she is a singer ( her voice would make a grown man cry) and now she can't sing. Initially when she was given the drug the paperwork ( that I still have" says the only side effect is " redness at injection site". Come to find out after a lot of research there had been many adverse effects that had already been reported at that time. I am angry and I want this taken off if the market immediately.REPORT COMMENTS
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No, CancelApr 25th, 2014Someone from Edison, NJ writes:
It has only been one month and I now have sleep apnea. I refuse to continue and find out what else this shot has in store.REPORT COMMENTS
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No, CancelApr 22nd, 2014Someone from Everett, WA writes:
I am in living hell after taking the drug lupron. Joint pain, can't sleep, bone pain especially at night, muscle weakness and pain, every movement hurt, depression, fatigue. I struggle daily. Constant swelling.....REPORT COMMENTS
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No, CancelApr 22nd, 2014Someone from Virginia, MN writes:
Recieved injections for 6 mos in buttocks in 2007. Still have injection marks and severe nerve pain in back, butt, and leg. Terrible drug.REPORT COMMENTS
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No, CancelApr 22nd, 2014Someone from Alsip, IL writes:
I took lupron for IVf and I have been in pain ever since. I did have a little girl who is also feeling the effects of this awful drug. My little girl was born with VSD and is almost 5 and it has not gotten any smaller. She will most likely need surgery. Praying for everyoneREPORT COMMENTS
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No, CancelApr 21st, 2014Someone from Medina, OH writes:
Lupron dose in 2003 for 6 months for Endo. Chronic severe joint pain.REPORT COMMENTS
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No, CancelApr 21st, 2014Someone from Medina, OH writes:
Lupron dose in 2003 for 6 months for Endo. Chronic severe joint pain.REPORT COMMENTS
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No, CancelApr 20th, 2014Someone from Saint Petersburg, FL signed.
Apr 18th, 2014Someone from Saltsburg, PA signed.
Apr 15th, 2014Someone from Lake Ariel, PA signed.
Apr 14th, 2014Someone from Amarillo, TX signed.
Apr 13th, 2014Someone from Mount Sinai, NY signed.
Apr 13th, 2014Someone from Fayetteville, NC writes:
No woman should have to suffer because of this medicine please discontinue use I just received an injection April 9 and i feel like there is no life in me. I'm going to stop the doctor from prescribing it to meREPORT COMMENTS
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No, CancelApr 13th, 2014Someone from Fayetteville, NC writes:
No woman should have to suffer because of this medicine please discontinue use I just received an injection April 9 and i feel like there is no life in me. I'm going to stop the doctor from prescribing it to meREPORT COMMENTS
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No, CancelApr 13th, 2014Someone from Fayetteville, NC signed.
Apr 13th, 2014Someone from Omaha, NE signed.
Apr 13th, 2014Someone from Baton Rouge, LA signed.
Apr 13th, 2014Someone from Gretna, LA signed.
Apr 12th, 2014Someone from Kapolei, HI signed.
Apr 11th, 2014Someone from Trumbull, CT writes:
Worst drug ever. I was told it would help my endo and I would feel better again. Well, I feel worse! My entire body has been in pain since taking this drug. I have pins & needles in my hands, joint pain in my shoulders, legs, hips, and back. Just getting up and down from a chair is painful, not to mention the pain each morning when I wake up. And there's no such thing as a good nights sleep anymore. Please, if you're thinking of taking this drug DONT!!! I regret every minute of it.REPORT COMMENTS
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No, CancelApr 10th, 2014Someone from Fort Lauderdale, FL writes:
My son 11 year son had a 12 month treatment of Lupron 15mg. Our doctor just wrote this:"Concerning his thyroid sonogram: The radiologist stated that he saw 2 nodules (1 cm each). With this size they recommend evaluation by a surgeon. having autoimmune thyroiditis (like in Our sons case) increases the risk for developing thyroid nodules."We know this is due to the Lupron treatment. After 3 months off he still has joint pain and is not in the same physical condition he was before the Lupron treatment.REPORT COMMENTS
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No, CancelApr 10th, 2014Someone from Orlando, FL writes:
I made the decision to do 6 months of lupron to help with my endo. It helped for a very short time because I ended up having a partial hysterectomy a couple of years later. After the treatment I have had severe depression,anxiety, muscle, and bone pain. I also have sleep apnea, fibromyalgia, brain loss, and ect. I would not do this drug again.REPORT COMMENTS
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No, CancelApr 10th, 2014Someone from Cambridge, IL signed.
Apr 10th, 2014Someone from Springfield, MO writes:
I was put on Lupron when it first came on the market. My doctor prescribed the daily shots, 2.0mg for the first two months; and 1.0 mg for the next four months. My uper abdomen and strait through into my spine stared hurting two months into taking the daily shots. Hall start for me fall of 1989. I have sent gotten Migraine, fibromyalgia, thyroid diseases, restless legg syndrome, arthritis, my body hurts from the tips of my fingers to the tip of my toes. There is no exaggeration in any part of this testimony. Karen K Hubler Springfield Mo. 65803.REPORT COMMENTS
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No, CancelApr 10th, 2014Someone from Roseville, MI signed.
Apr 9th, 2014Someone from Ben Lomond, CA signed.
Apr 9th, 2014Someone from Los Angeles, CA writes:
lupron has worked for me but the pain and other side effects have me questioning if it's worth living.REPORT COMMENTS
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No, CancelApr 7th, 2014Someone from Lake Worth, FL signed.
Apr 7th, 2014Someone from Denver, CO signed.
Apr 5th, 2014Someone from Granville, OH writes:
My oncologist prescribed Lupron to lower my estrogen level. I had hormone receptor positve breast cancer last year but the ordinarily prescribed Tamoxifen for post surgical treatment gave me too many side effects. So, my oncologist asked that I try Lupron shots. I've only had 2 and the 2nd was all it took to throw me into severe side effects - bone and muscle pain, weakness, lack of energy, sleep disruption and fatigue. I'm also somewhat depressed but don't know if that's a side effect or my reaction to the pain and weakness. Before I was highly energetic and exercised nearly every day for about 45". I use to press 25 pound weights but have dropped to 12 pound weights practically overnight. It has been about 4 weeks since my last shot and I'm feeling slightly better but these side effects can't go away fast enough. I'm nothing like I was and told my oncologist this past week that I'm done with these shots.REPORT COMMENTS
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No, CancelApr 4th, 2014Someone from Pine Grove, PA writes:
In addition to increasing my abdominal pain, an old injury which never caused me any discomfort, started hurting badly.REPORT COMMENTS
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No, CancelApr 4th, 2014Someone from Pittsburgh, PA writes:
I was on this drug following surgery for endometriosis and ovarian cysts. The side effects were and still are terrible. The weight gain was horrible in the first 3 months. I still suffer from lack of energy, depression, joint pain, and being over weight. My doctor tried to put me on a med that could counter act with the drug to help reduce the weight. That did not work. I am 31 years old and can barley get the energy to take my children for a walk. The migraines are mind blowing, my emotions are everywhere, I still have sweats my body swells at a drop of a dime, periods come and go, I am always tired. My husband and I can't even go on vacation with out my body swelling and the pain being so bad that I stay in the hotel. No one wants to listen about the effects on this drug and how it even years later ruins your life. I would rather deal with the pain then to ever have any of this happen. The effects have even taken a toll on my family and marriage. I wish there was a way to get rid of this. Now I am stuck with it for life. I hope this helps others with information on this drug.REPORT COMMENTS
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No, CancelApr 4th, 2014Someone from Verona, PA writes:
Lupron has caused me damaging emotional effects. It has given me disabling anxiety and panic attacks, as well as random depressive episodes along with disruptive sleep patterns and near constant fatigue. I had so much energy and was outgoing and confident depspite the endo pain before my injection. Now I have emotional and physical limitations that have greatly impacted my life and relationships. There were other options for me, but my doctor recommended Lupron. I wish I'd sought out other opinions and had never taken this drug. It pains me to read and hear the stories of many women who are suffering so much worse than I am. Thank you.REPORT COMMENTS
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