Investigation into Lupron Side Effects (Leuprolide Acetate)
Public Comments (5,065)
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Dec 27th, 2014Someone from Whitesboro, TX signed.
Dec 27th, 2014Someone from Elkhorn, NE signed.
Dec 27th, 2014Someone from Spring Hill, FL signed.
Dec 26th, 2014Someone from Alexandria, VA signed.
Dec 25th, 2014Someone from Lake Ariel, PA signed.
Dec 25th, 2014Someone from Lake Ariel, PA signed.
Dec 25th, 2014Someone from Cochranton, PA writes:
My daughter had endo so bad for so long that she endured through 3 or 4 lupron injections. The side effects were devastating. She became a stranger to all of us including her husband. She suffered severe depression during those months and still suffers from it. My daughter was one of the friendliest, happiest and loving, easy going young ladies I ever knew. She continues to suffer from severe depression and it has been over 3 years since she had the lupron injections. We would like some answers. This has devastated our family.Dec 25th, 2014Someone from Lynn, MA signed.
Dec 22nd, 2014Someone from Inglewood, CA signed.
Dec 20th, 2014Someone from Fort Bragg, NC writes:
I am on my last month of the 3 month shot of Lupron, and I am the most miserable I have ever been in my life!!! I have a giant Fibroid that has caused me to be on my period for the majority of this past year. They told me they could surgically remove the fibroid, but that standard protocol stated that they had to give me a Lupron treatment first to shrink it. Basically, they told me that I didn't have a choice, it was either Lupron, or suffer in silence with my Fibroid. The side effects of the Lupron are worse than my Fibroid problem was, and it didn't help the bleeding at all, if anything it made it worse. My mood swings are horrible, hot flashes, night sweats, I'm constantly out of breath... I cant' even climb a flight of stairs without having to sit down to catch my breath. My job requires me to be physically fit, and it's getting really hard since I can't breath, and have gained 15 lbs in these last 2.5 months from the Lupron. I'm a small framed, short woman, so 15 lbs is a huge deal. I'm depressed all the time, and I hate life every single day. I was NEVER like that before Lupron. It's messing with my brain, and my emotions, and I feel like a crazy person. I hate to be touched by my husband, or even hugged my children. It's ruining my marriage because I can't stand the thought of having intercourse. My poor husband doesn't know what to do with my crazy self. They told me the side effect would be mild, and that I might not even have any. They sugar coated the devil. More research needs to be done on this drug. Nobody should feel like this.REPORT COMMENTS
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No, CancelDec 20th, 2014Someone from Fort Bragg, NC writes:
I am on my last month of the 3 month shot of Lupron, and I am the most miserable I have ever been in my life!!! I have a giant Fibroid that has caused me to be on my period for the majority of this past year. They told me they could surgically remove the fibroid, but that standard protocol stated that they had to give me a Lupron treatment first to shrink it. Basically, they told me that I didn't have a choice, it was either Lupron, or suffer in silence with my Fibroid. The side effects of the Lupron are worse than my Fibroid problem was, and it didn't help the bleeding at all, if anything it made it worse. My mood swings are horrible, hot flashes, night sweats, I'm constantly out of breath... I cant' even climb a flight of stairs without having to sit down to catch my breath. My job requires me to be physically fit, and it's getting really hard since I can't breath, and have gained 15 lbs in these last 2.5 months. I'm a small framed, short woman, so 15 lbs is a huge deal. I'm depressed all the time, and I hate life every single day. I was NEVER like that before Lupron. It's messing with my brain, and my emotions, and I feel like a crazy person. I hate to be touched by my husband, or even hugged my children. It's ruining my marriage because I can't stand the though of having intercourse. My poor husband doesn't know what to do with my crazy self. They told me the side effect would be mild, and that I might not even have any. They sugar coated the devil.REPORT COMMENTS
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No, CancelDec 20th, 2014Someone from Fort Bragg, NC writes:
I am on my last month of the 3 month shot of Lupron, and I am the most miserable I have ever been in my life!!! I have a giant Fibroid that has caused me to be on my period for the majority of this past year. They told me they could surgically remove the fibroid, but that standard protocol stated that they had to give me a Lupron treatment first to shrink it. Basically, they told me that I didn't have a choice, it was either Lupron, or suffer in silence with my Fibroid. The side effects of the Lupron are worse than my Fibroid problem was, and it didn't help the bleeding at all, if anything it made it worse. My mood swings are horrible, hot flashes, night sweats, I'm constantly out of breath... I cant' even climb a flight of stairs without having to sit down to catch my breath. My job requires me to be physically fit, and it's getting really hard since I can't breath, and have gained 15 lbs in these last 2.5 months. I'm a small framed, short woman, so 15 lbs is a huge deal. I'm depressed all the time, and I hate life every single day. I was NEVER like that before Lupron. It's messing with my brain, and my emotions, and I feel like a crazy person. I hate to be touched by my husband, or even hugged my children. It's ruining my marriage because I can't stand the though of having intercourse. My poor husband doesn't know what to do with my crazy self. They told me the side effect would be mild, and that I might not even have any. They sugar coated the devil, and I'm Ticked.REPORT COMMENTS
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No, CancelDec 19th, 2014Someone from Mcdonough, GA writes:
I had one injection caused an adverse event. Pulmonary Embolism on each lung now on warfarin for life. I am allergic to this drug yet still given.REPORT COMMENTS
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No, CancelDec 18th, 2014Someone from Medford, MA writes:
I have been on Lupron for nearly 2 years as part of cancer treatment. I have terrible bone pain, migraines, blurred vision, bone loss, fatty liver, and as others have started ad nauseum, a myriad of symptoms. I am becoming more aware of side effects as doctors randomly say oh yes that or as I gather conflicting information. I am 31. I hurt daily. I was trying to survive cancer but now I worry that my quality of life or lack thereof will be counterproductive to that dream. People are not profit. I would hope nations, companies, and the great minds who create, produce, and distribute these compounds would have learned from this nation's past follies, that human life has value. I've learned that decency and respect is too much to ask from those who eat, sleep, and defecate money. May you and your loved ones never "need" this "medicine ". And to the doctors that know of the damaging effects and continue to prescribe this, especially those who prescribe this without properly informing their patients, shame on you. This is beyond a violation of your Hippocratic oath.REPORT COMMENTS
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No, CancelDec 16th, 2014Someone from Forney, TX signed.
Dec 15th, 2014Someone from Jackson, MS writes:
I had my first shot in June 2014. My dr. said it would help with my severe cramps and endo. My husband and I discussed this is detail and I read the brochures but they did not prepare me for what I am experiencing. HORRIBLE FEELING!! I often feel like I'm going crazy. Hot flashes are so uncomfortable. Pain in my knees makes it hard to walk up stairs. Depression....crying for no reason and feeling antsy all the time. I have not taken another shot and WILL NOT have another one! I will not let this drug have my life!! I am speaking my life back to normal and I speak the same for all of the other women that are suffering. This drug needs to be taken off the market!REPORT COMMENTS
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No, CancelDec 14th, 2014Someone from Durham, NC writes:
I have been through alot since being on the Lupron Depot. My health appears to be failing more so since being on this medication. I am no longer on this medicine, but I have received at least 10 injections since 2009. I recently had a biopsy due to high estrogen and prescribed provera to help balance out hormones in my body. I trusted the Dr that gave me the Lupron and I trusted the FDA!! This is so not fair as to what I am going through in my body due to been given this injection. I suffer with joint pain, low Vitamin D, and other problems due to the side effects of been given Lupron Depot. Is this fair to us women as human beings and mothers? I suffer daily in different areas of my health but never as much before given the Lupron Depot Injection. Congress has to take a stand for the humanity sake of women who have taken this medication.REPORT COMMENTS
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No, CancelDec 14th, 2014Someone from Whitesboro, TX writes:
My life will never be the same again!!!REPORT COMMENTS
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No, CancelDec 14th, 2014Someone from Whitesboro, TX writes:
My life will never be the same again!!!REPORT COMMENTS
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No, CancelDec 14th, 2014Someone from Northridge, CA signed.
Dec 13th, 2014Someone from Canton, OH writes:
The side effects of this drug made we wish for my endometriosis. It's a terrible drug..and when you trust your doctor ..you believe them. Lies. It made me feel like I was a stranger to myself. I lasted 3 months and said no more..I need my life back. Do doctors ever really have our health in their minds? I often wonder..this shot proves that questionREPORT COMMENTS
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No, CancelDec 10th, 2014Someone from Austin, TX signed.
Dec 8th, 2014Someone from Evergreen, CO signed.
Dec 5th, 2014Someone from Union, NJ signed.
Dec 5th, 2014Someone from Holtsville, NY writes:
Had lupron and my bone pain like you've put every joint into a vise and are squeezing them is life altering. Went from beating cancer to living in hell due to this drug. From going to the gym 2x a day to not being able to get out of bed, pill popping all day long and nothing works for the pain either. Doctor still says this will go away. I'm thinking I'm screwed with everything that I've read. Nothing works.REPORT COMMENTS
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No, CancelDec 5th, 2014Someone from Morristown, TN writes:
I started my first Lupron shot in April 2014. I had been diagnosed with Endometriosis in late August,2013. I had always cramped really bad but I chose to have the surgery to see if I had it because it seemed my cramps just kept getting worse. It got to a point to where that there was not a day went by where I wasn't hurting. During the shots,my body did the exact opposite of what my doctor said. They said I wouldn't have a period,well I did. Every month. It sounded to me like they didn't know all the side affects and problems it could cause. Now here it is December and I have yet to start a period. I know I'm not pregnant because I've taken several tests to make sure. And my doctor can't even tell me what's going on. I know that medicine side effects are different for everyone,but this is ridiculous. I've always suffered with depression but it seems like it's gotten worse over the months I've been on Lupron. I'm too emotional and moody,I wasn't like this before. I don't even feel like myself.REPORT COMMENTS
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No, CancelDec 4th, 2014Someone from Acme, PA writes:
I got my first shot last month and ever since I have had anxiety attacks, severe depression, headaches. I don't want to get out of bed. I can't control my emotions....I cry over everything and anything. I scream at my family. Lupron is the worst drug that I've ever taken!REPORT COMMENTS
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No, CancelDec 3rd, 2014Someone from Orlando, FL signed.
Dec 2nd, 2014Someone from Kannapolis, NC writes:
I too was misinterpreted about lupron. I was treated for endometriosis. The drug was described as a hormonal suppliment NOT A TOXIC CHEMOTHEARAPY DRUG. Side affects were suppose to last months. 12 yrs later I still have issues. Have severe fibromyalgia, pain in bones & joints, arthritis since age 26, memory issues, add type issues. And the list goes on & on. Too bad I wasn't aware of lawsuit. A big part of my life was taken unfairly. Now partially disabled, unable to function w/ around the clock heavy narcotics.REPORT COMMENTS
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No, CancelDec 2nd, 2014Someone from Madison, MS signed.
Dec 1st, 2014Someone from Montevideo, MN signed.
Nov 29th, 2014Someone from Jacksonville, FL signed.
Nov 26th, 2014Someone from Spring, TX signed.
Nov 26th, 2014Someone from Seattle, WA signed.
Nov 25th, 2014Someone from Wilmington, DE signed.
Nov 25th, 2014Someone from State College, PA signed.
Nov 25th, 2014Someone from Cypress, TX signed.
Nov 24th, 2014Someone from Tulare, CA signed.
Nov 23rd, 2014Someone from South Bend, IN writes:
i was given injections for 5 years as treatment for breast cancer. I continue to experience side effects 2 years after my last treatment. Depression, insomnia, bone pain, shortness of breath...I could go on. I was never given information about this drug from my oncologist. More needs to be known and communicated about this drug.REPORT COMMENTS
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No, CancelNov 20th, 2014Someone from Quantico, VA writes:
I am 3 weeks into the one month shot. One week after the shot I had a sever panic attack and was taken to the ER by ambulance. My heart rate was 245 when the paramedics picked me up. I am now on antennal and effexor to slow my heart rate and calm my anxiety. My husband keeps telling me to cheer up. This shot is debilitating. I am still in pain. I am bleeding and I am depressed. I have always been happy and social. Now I just want to hide at home until this is over. I have a 2 year old and I feel horrible that I don't have the energy to play with him at the park or anything. No one should be put through this. Take this off the market! My doctor didn't warn me about these side effects. She just said I may have some hot flashes. What a load of crap. I won't get this shot again.REPORT COMMENTS
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