Investigation into Lupron Side Effects (Leuprolide Acetate)
Public Comments (5,065)
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Feb 9th, 2015Someone from Kingman, AZ signed.
Feb 8th, 2015Someone from Carnegie, PA writes:
I have done two rounds of the Lupron shot (1 year each, shot every 3 months). My doctor tried to get me to do another year but I refused (he never did any testing i.e. bone density). After reading about women who struggle with what I thought was my body just fighting me, I am aghast; there is so much I did not know, still don't know, and suffer every day. This drug is destroying lives without patients being properly informed about the long term effects. There needs to be an in depth investigation as well as awareness to those who have taken the drug or are being goaded by health care providers.Feb 8th, 2015Someone from Pooler, GA signed.
Feb 8th, 2015Someone from Fort Worth, TX signed.
Feb 8th, 2015Someone from Carnegie, PA signed.
Feb 7th, 2015Someone from Denver, CO signed.
Feb 6th, 2015Someone from Detroit, MI writes:
I was given the lupron injection for endometriosis and I started having hot flashes and night sweats. After about 3 weeks I started having insomnia, headaches, joint pain and acne.REPORT COMMENTS
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No, CancelFeb 6th, 2015Someone from Arcanum, OH writes:
I was prescribed Lupron injections, and was told that it was ?safe and effective and had been used successfully throughout the world?. Within weeks of starting, I had severe hot flashes, INSOMNIA and was in a ?fog?, and for the first time in my career was placed out of work on temporary disability due to ?intensive medical therapy, Lupron?. - I began almost immediately to experience severe and crushing bone pain? as if my bones were in a vice. My feet began to constantly ache and throb. I had GI problems ? anorexia, nausea, vomiting, and bowel problems. There were other odd symptoms ? such as tinglings that ran up one side of my spine to my entire scalp always only on one side at a time, numbness of my fingers and toes, abnormal heart beats and rapid heart rates, and bad headaches. - I have been diagnosed with fibromyalgia, severe muscle and joint pain, chest pains, difficulty breathing, abdominal pain, photosensitivity ? including dimness of vision and difficulty with my vision, audio-sensitivity, dizziness, fainting, memory loss, insomnia, nausea and vomiting, unexplained fevers. I can't even work. I do nothing but want to lay in bed and sleep all day. My life is over because of this drug. I would like to know If I can get help. I have more problems that are still coming up that I will find out this mouth about these problems. In my medical records none of these complaints are in their until i have taken the 7 for 7 months.REPORT COMMENTS
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No, CancelFeb 5th, 2015Someone from New York, NY signed.
Feb 5th, 2015Someone from Los Angeles, CA signed.
Feb 4th, 2015Someone from Hollywood, FL signed.
Feb 4th, 2015Someone from Denver, CO signed.
Feb 4th, 2015Someone from New York, NY signed.
Feb 4th, 2015Someone from Reston, VA signed.
Feb 4th, 2015Someone from Denver, CO writes:
Please look into this destructive drug. It has destroyed my daughters life. It has affected our small family in so many ways.REPORT COMMENTS
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No, CancelFeb 4th, 2015Someone from Astoria, NY signed.
Feb 4th, 2015Someone from Bellerose, NY signed.
Feb 4th, 2015Someone from Washington, DC signed.
Feb 4th, 2015Someone from New York, NY signed.
Feb 4th, 2015Someone from Tarrytown, NY signed.
Feb 4th, 2015Someone from Denver, CO signed.
Feb 4th, 2015Someone from Vallejo, CA writes:
It is a terrible drug and the side effects have ruined my life .After all hormone therapies not working causing more bleeding 6 years suffering losing jobs they suggested lupron to shrink fibroids and it hurts to walk etc.memory weight gain in pain in joint hips hands feet. I refused 2nd shot due to my health and the line of work im in. I need to be healthy im on my feet in restaurant and have no one to take care of me nor do i expect anyone too, but was told only menopause symptoms not all this other crap and it still didnt shut my ovaries down still hemorrhaging. Its pure nightmare!REPORT COMMENTS
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No, CancelFeb 2nd, 2015Someone from Midvale, UT signed.
Feb 2nd, 2015Someone from Northridge, CA writes:
This poison ruined mine life! When I first got sick ALL i had was pelvic pain & I wish I had ALL of this information then that you can get now. I was given it 19 years ago & I still am suffering from it every day! I was misdiagnosed with endometriosis & given this poison & I want it taken off the market! I feel like I have the flu almost everyday & I sweat SO much I have to change my clothes! LONG LIST but this is POSION!REPORT COMMENTS
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No, CancelFeb 2nd, 2015Someone from Northridge, CA writes:
This poison ruined mine life! When I first got sick ALL i had was pelvic pain & I wish I had ALL of this information then that you can get now. I was given it 19 years ago & I still am suffering from it every day! I was misdiagnosed with endometriosis & given this poison & I want it taken off the market! I feel like I have the flu almost everyday & I sweat SO much I have to change my clothes! LONG LIST but this is POSION!REPORT COMMENTS
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No, CancelFeb 1st, 2015Someone from Chester, MD signed.
Feb 1st, 2015Someone from Midland, MI signed.
Jan 31st, 2015Someone from North Las Vegas, NV signed.
Jan 30th, 2015Someone from Windsor Mill, MD writes:
I had Lupron, for 3 years,every 3 months to shrink fibroids, which it did, I was 48. At age 52, During this time, I became hypertensive. To this day, I have flutters, skipped beats, high blood pressure, and in the past year have developed a 3cm "Fibroid" which I now will have to have a full hystorectomy to remove as it is believed to be cancerous. During the period while taking the Lupron it was also discovered I had D.J.D. which has continued to get worse...If I was told the fibroid could come back, I would have elected surgery then, if I was told the Lupron could cause a cancerous fibroid AFTER menopause, I would have never ever done them!REPORT COMMENTS
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No, CancelJan 30th, 2015Someone from Benton, AR signed.
Jan 30th, 2015Someone from Genoa, IL writes:
I was put on Lupron for 2 1/2 years STRAIGHT!! My doctor never told me it was a chemotherapy drug for MEN, never told you weren't supposed to be on it more than 6 months, never told of the long term side effects ( because they didn't know the long term side effects then, we were the unknowing lab rats for Pharma). Lupron has ruined my life. I was only told that I would get reversible bone loss, and hot flashes. What I ended up with was severe depression, osteoarthritis in my spine, severe hair loss that never grew back, Hashimoto's disease, uncontrollable weight gain, joint pain, liver damage and the list goes on.... This side effects were NOT listed on the packaging of the shots when I took them 14 years ago. There are thousands of us out here that are experiencing these side effects, living in chronic pain and organ problems. To what end? What do they always say...follow the money. What a shame that the road is laid over so many women's backs, and the government chooses to do nothing.REPORT COMMENTS
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No, CancelJan 29th, 2015Someone from San Carlos, AZ writes:
I had my second and final shot in September of 2013. I was scheduled for a 3rd shot in December of 2013, and that's when I realized that the physical problems I'd been experiencing for the past couple of months had started shortly after I'd had my first shot. Once I made the connection with the timing, I did lots of research and found many, many women experiencing the same problems I was experiencing. The excruciating pain and muscle degeneration are now gone, but I still have very limited use of my right arm which was damaged by this drug. I'm also now experiencing neurological issues and will be searching to see if other have experienced these as well. This is a very dangerous drug and it should be pulled from the shelves! And I would be happy to testify and share what I've experienced as a result.REPORT COMMENTS
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No, CancelJan 29th, 2015Someone from New Richmond, WI writes:
When you can't defend a family member from harm due to the government in-action there is a problem. My niece has suffered for years, and until recently didn't know why. Now she knows, not from a medical source but from her own research. She thought she was crazy until she found that others have had a similar reaction after taking this drug. This needs to be pulled from availability so others don't suffer as she has. But once again we are waiting on the government to do the right thing. (DAH)REPORT COMMENTS
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No, CancelJan 28th, 2015Someone from Noblesville, IN writes:
I had a very large fibroid tumor. The doctor said the only way to remove it was to shrink it first. He said I had to do 3 Lupron shots. I did one and had such horrible side effects that I didn't do the other two. It sent me into immediate menopause, extreme depression and anxiety, inability to feel happy, loss of sex drive, etc. That was about 2 years ago. I'm 47 but hadn't even started menopause before the shot. Now I'm totally in it. I had a doctor do bloodwork and they found basically no estrogen or progesterone in my body at all! I have to take hormones to even begin to feel normal. I can barely sleep at night because my bones, neck, back and muscles hurt so bad. I wake up numerous times throughout the night trying to get comfortable. I used to love sleep and now I dread it because it's so exhausting. I just feel like crying in the middle of the night because I just want to sleep like I used to. My doctor didn't tell me this was a chemotherapy drug. I would never have taken it if he would've told me these could be the side effects and that they could be permanent. I would've preferred to have the fibroid that was the size of a 5-month pregnancy over how I feel now. Please get this toxic poison off the market before other innocent lives are ruined!!REPORT COMMENTS
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No, CancelJan 28th, 2015Someone from Providence, RI signed.
Jan 28th, 2015Someone from Loveland, OH signed.
Jan 27th, 2015Someone from Montclair, NJ writes:
This is disgraceful that women are not being properly informed about this medication. IT IS A CANCER CHEMOTHERAPY DRUG, originally designed to treat men's prostate cancer. Later, it was decided, (not sure by whom), that it could treat fibroids and endometriosis. WHAT??? When did women grow a prostate gland? This medication now has specific dosing for men and women. They can't be used interchangeably, even if it's cheaper! There's a reason for that. My guess is that it was just NOT designed for a woman to take in the first place...PERIOD! By the way, why isn't it disclosed to the female that this medication is a CANCER CHEMOTHERAPY DRUG, not a "regular" medication for endometriosis? PERHAPS WOMEN WOULDN'T TAKE IT IF THEY KNEW THE TRUTH!!! Are all the women signing this supposed to sit and wait until someone overseeing this petition experiences these issues in their life or the life of their immediate family? Can someone at least hault the use of this medication on women???REPORT COMMENTS
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No, CancelJan 26th, 2015Someone from La Place, LA writes:
2013 I had 2 3 month injections and during the injection I had horrible hot flash, Mood swings, depression, migrianes, and anxiety. Which all of the symptoms I still experience now year plus later. Also since lupron I have been diagnosed with hashimoto's hypothyroidism. I am constantly sick, weak, run fever for unexplained reasons. I under went 2 sinus procedures to try and allegry testing among other things. Ohh and I still experience the endometriosis pain often! So I'm going through all of this for absolutely no relief from the endometriosis! The lupron ruined my life!REPORT COMMENTS
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