Investigation into Lupron Side Effects (Leuprolide Acetate)
Public Comments (5,065)
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Jul 21st, 2010Someone from Pine Brook, NJ signed.
Jul 18th, 2010Someone from Philadelphia, PA writes:
I was given lupron in September 2008, my life will never be normal again. I suffer from bone, joint, muscle and nerve pain. My lower back is in constant pain and my eyesight is affected as well. I was given lupron because I suffered from ovarian cyst. A year after taking lupron my last ovarary was removed and I no longer have abdomanial pain. Now I have everything else wrong with my body. My legs, feet, arms and my face twitch at times. My life will never be as I once knew it. I wouldn't recommend anyone take this medication ever.Jul 18th, 2010Someone from Miami, FL writes:
Hi, I received Lupron-Depot by injection in 1998. I have never been the same, and have disabling problems and pain from this terrible drug....It's ruined my life!. PLEASE stop this from happening to others!! Sheila R.REPORT COMMENTS
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No, CancelJul 14th, 2010Someone from Miami, FL writes:
I am 35 I received my first Lupron shot in November my body and my life has never been the same I regret ever undergoing the treatment and Doctors should really think about prescribing thisREPORT COMMENTS
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No, CancelJul 13th, 2010Someone from Indianapolis, IN writes:
The past ten years of my life has been littered with medical bills and used tissue. I always had horribly painful periods, but until 2000 I never knew what real pain felt like. That is when I took three months of Lupron. Since I have dealt with pain from head to toe & my memory is awful. I was a Manager for a Compliance Department for a Financial Institution including claims, auditing, fraud & forgery investigation for 13 years. I lost my job because I could no longer complete the tasks. I tried a few other similar type jobs & I could not do it. So my college education & 13 years experience were useless. I ended up in childcare & now I am cleaning houses. By the end of the day I am in so much pain I cannot do anything. Each month I would feel more and more pain before, during, and after my period. This, very quickly, became an inconvenience. I had to miss work every month and every month I would have to miss more work than the last. The pain I felt was like someone taking my insides and stretching them until I ripped apart. I would be struck with pain and nearly fall to the ground. This exhausted me so much that I would frequently be sent home from work early, and on occasion days like these would end in the ER. Finally, I had a laparoscopy and it was confirmed that I had severe case of endometriosis. The doctors removed the excess tissue and I was supposed to be OK for a while; of course this was not the case. I think there was a period of a few months where the pain at least leveled off, but never did it get any better or go away. I spent the next year in and out of the emergency room at least twice a month. There were times when the emergency room visits were weekly, and one time an ambulance had to come get me at home because my fiancƩ couldn?t even get me to the car. My quality of life was in the toilet. I was depressed and at one point I didn?t want to live anymore. I seriously thought I was not going to get better. I finally started asking for a hysterectomy. I never wanted children, and I had come to hate my female organs for the pain I was having. My doctor said this may be the inevitable, but we should try Lupron first. Why? My doctor said that if Lupron takes away the pain, then so will a hysterectomy. If the pain did not ease up with Lupron, then having a hysterectomy would be for nothing. I understood and let them give me Lupron that day. I thought I had already been to hell and back. Boy was I wrong.REPORT COMMENTS
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No, CancelJul 13th, 2010Someone from Shelton, WA writes:
I am in my 20's and a mother. My life after taking a 6 month course of Lupron has drastically changed. I was on it for Endometriosis after trying everything else, was told no big deal.... only had the pelvic pain during and before that time. Soon after being on it I got migranes, brain fog and my WHOLE body hurts and my pelvic pain is worse. I cant even work anymore, my husband has to pick up all of my slack at home now. I am now diagnosed with also having Fibromyalgia which I didnt have before and from what I have heard of other women on Lupron now they all of a sudden have fibro too, seems odd. Something needs to be done!REPORT COMMENTS
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No, CancelJul 9th, 2010Someone from Navarre, FL writes:
I am a 38yr old mother, 4 shots of lupron one year ago. My life has never been the same and can not get answers from doctors. Someone needs to do something before the next family is affected.REPORT COMMENTS
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No, CancelJul 7th, 2010Someone from Canterbury, NH writes:
I had Lupron for one month, this past March, and I had never felt so horrible in my life. I became depressed, confused, forgetful, suicidal, terrible mood swings, had hot flashes all the time, horrendous cramping, joint pain, heart palpitations, night sweats, vision problems, dizziness, and severe insomnia (I would sleep for an hour or two every three days). After about 6 weeks I started to feel like myself again, but it wasn't until 4 months after my one and only shot that I am back to my happy side-effect free self! And I only had one dose! Now its just Endometriosis pain, but it is nothing like when I was on Lupron. I did research before taking this too, and I didn't want to try it, but was told this was the only option I had; that I had no choice. No one should be taking this! It is not a treatment - they only want your money!REPORT COMMENTS
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No, CancelJul 6th, 2010Someone from Jacksonville, FL signed.
Jul 6th, 2010Someone from Las Vegas, NV signed.
Jul 6th, 2010Someone from Jacksonville, FL signed.
Jul 5th, 2010Someone from Marshfield, MA signed.
Jul 4th, 2010Someone from Stockton, CA writes:
I had my first lupron shot 3 weeks ago and have been miserable, the first 2 weeks I had major cramping and body aches, now i'm dealing with horrible headaches, depression, hot flashes, night sweats, mood swings, and weight gain. I've been searching the Internet in hopes of finding some type of body cleanse or detox that will remove this from my system so I can feel normal again.REPORT COMMENTS
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No, CancelJul 2nd, 2010Someone from Somerville, MA signed.
Jul 1st, 2010Someone from Wexford, PA writes:
Investigate all these drugs, especially biphosphonates that cause osteonecrosis of the jaw! No cure for that! And they are pushing it on all the mid-age women in America! The pharmaceutical companies have basically been given the legal right to kill people in order to make money for decades with drugs, pesticides and now their filthy hands in our food crops (GMO's) No one will stop them because of the money and they don't care how many people they hurt or kill because the payoffs in the lawsuits are chump change to what they make in profit! SICK! YOU ALL SHOULD BE ASHAMED OF YOURSELF FOR LETTING THIS GO ON - NO REGULATION FOR BIG PHARMA, BIG AGRIBUSINESS, BIG BANKS OR BIG OIL. IT'S ALL LEGALIZED MURDER.REPORT COMMENTS
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No, CancelJun 29th, 2010Someone from Milton, FL writes:
I had the shot before endo surgery in Dec 08. I have never been the same. 2 days after the shot, I was in bed for days..felt like I had the flu..never really felt better. Nausea, joint pain, strange discomfort in the back of my neck(below the occ bone), bouts of chest pain, blood pressure problems, insomnia, had numerous tests ran...ER visit..now, I am having my gallbladder removed this week. If I had it to do again..I would not let them give it to me. After they gave me the shot..they told me there was a support group. First Red flag!REPORT COMMENTS
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No, CancelJun 26th, 2010Someone from Derby, KS writes:
I was put on this drug almost 11 years ago. I'm in my 20s now and still struggle with pain from endometriosis. My family and I were made to believe this was the only treatment option. I wish we knew the side effects I would suffer: weight gain, joint pain, depression, fibromyalgia to name a few. I hope some good can come from this, no woman should have to go through what I have.REPORT COMMENTS
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No, CancelJun 25th, 2010Someone from Kiowa, KS writes:
I took Lupron nearly 10 years ago for endometriosis pain. I am only in my 20's now, but my body is riddled with the health problems and pains of a woman in her 80's. If I had known then what I know now, I never would have taken Lupron. It's too late for my body, but my hope is that other women could be spared from this hell by being fully informed.REPORT COMMENTS
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No, CancelJun 23rd, 2010Someone from Roxbury, CT signed.
Jun 23rd, 2010Someone from San Francisco, CA signed.
Jun 22nd, 2010Someone from Lakeview, AR writes:
PERMANENTLY DISABLED WITH VARIOUS PROBLEMS (FIBROMYALGIA), PANIC/ANXIETY DISORDER, CHEMICAL SENSITIVITY, THYROID UNSTABLE, PAST MISCARRIAGE AND HYSTERECTOMY OCCURRING AFTER TAKING LUPRON, WELL THE LIST SEEMS TO BE ENDLESS....WENT FROM BEING AN ACTIVE VIBRANT PERSON TO TOTALLY DISABLED TAKING HANDS FULL OF PILLS EVERY DAY TO HAVE SOME SEMBLANCE OF A LIFE.....LUPRON IS POISON.REPORT COMMENTS
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No, CancelJun 22nd, 2010Someone from Henderson, NV signed.
Jun 22nd, 2010Someone from Henderson, NV signed.
Jun 22nd, 2010Someone from Arlington, MA writes:
this drug turned my thyroid to rubber. I'm now a hypo-thyroid patient. My intuition told me not to use lupron after my surgery for endometriosis, but my doctor talked me into it. I was super fit and active before. Now fitness is a complete struggle. Thanks for ruining my life, Big Pharma. :'-(REPORT COMMENTS
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No, CancelJun 22nd, 2010Someone from Osceola, IN writes:
Five years later I am still experiencing the joint pain, extreme fatigue, headaches and occasional vision problems. What I wouldn't give to have my pre-Lupron life back.REPORT COMMENTS
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No, CancelJun 22nd, 2010Someone from Taunton, MA writes:
When you have endometriosis, you will try anything to get rid of the pain. But the doctors don't tell you that the side effects of Lupron are 10 times worse than the pain. I never felt so helpless in my life. I had 3 shots too many. It has and still is (6 months since the last shot)affecting my memory, joints, and vision. This drug is terrible, and absolutely needs to be taken off the market.REPORT COMMENTS
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No, CancelJun 21st, 2010Someone from Milford, CT writes:
I received treatment for endometriosis with Lupron and during that time I felt highly depressed and even suicidal. Shortly after discontinuing use of Lupron, my gallbladder had to be removed and I have learned that this is also likely due to the Lupron. The amount of unlisted side effects for women taking Lupron is disgusting. Please do the proper research on this drug so patients can be properly informed PRIOR to treatment.REPORT COMMENTS
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No, CancelJun 19th, 2010Someone from Kansas City, MO signed.
Jun 17th, 2010Someone from Brooklyn, NY writes:
I have experienced severe bone loss while on this drug. It must be taken off of the market.REPORT COMMENTS
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No, CancelJun 17th, 2010Someone from Brooklyn, NY writes:
I have experienced severe bone loss while on this drug. It must be taken off of the market.REPORT COMMENTS
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No, CancelJun 16th, 2010Someone from Southampton, PA signed.
Jun 16th, 2010Someone from Southampton, PA signed.
Jun 16th, 2010Someone from Decatur, GA signed.
Jun 16th, 2010Someone from Newark, DE writes:
I wish I had done more research on this drug. I trusted my doctor who said I could stay on this indefinetely. I never had severe side effects, but now I am worried about long term effects. I have been off the shot for 6 months.REPORT COMMENTS
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No, CancelJun 12th, 2010Someone from Lithonia, GA writes:
It brings me to tears to read all the suffering other women have gone through and are going through. For years I have thought I was crazy because I am having all these problems and don't know why. Now I do! It has been ten years since my last injection but I am still suffering from the side effects today. I now have hypertension, permanent vision loss, bone spurs in both my feet,which makes it painful to walk, bone loss in my mouth, which has caused me to loose several teeth, numbness in my hands and arms, weight gain that I despite my best efforts can't loose, headaches, mood swings, hot flashes and that's just to name a few. I always thought it was the Lupron causing all these problems because aside from the endometriosis, I was healthy. Now healthy is a thing of the past and all experience is pain and more pain. Please stop this suffering and remove Lupron before it destroys more lives. There have been enough sacrifical lambs!!REPORT COMMENTS
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No, CancelJun 11th, 2010Someone from Brooklyn, NY signed.
Jun 11th, 2010Someone from Wakarusa, KS writes:
I'm still battling the side effects from lupron from over 12 years ago. The biggest ones are seizures, memory loss, and joint pain. One of the wore things is the Doctor I had trusted for years said I was having anxiety attacks and nothing more and then he sudennly retired at a young age. I lost my job, my ability to work, and it looks like my home is next.REPORT COMMENTS
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No, CancelJun 10th, 2010Someone from Roanoke, VA signed.
Jun 7th, 2010Someone from Kingwood, TX signed.
May 28th, 2010Someone from Philadelphia, PA writes:
Dear Members of Congress: Please ban this drug, please investigate the manufacturer. I was a healthy 32 year old when I was asked to take this drug(3 minutes from being wheeled into the operating room for "clean-up" of endometriosis. I was never informed about the side effects. The effects of this drug are so awful that sometimes I feel like I am dying. Since being adminsistered this drug under duress, and for a year after the last injection I have had the following problms: Memory Loss Rash all over my face that becomes inflammed 20 pounds weight gain (that will not come off) Joint pain back aches blurred vision hot flashes night sweats day sweats heart palpatations Inability (at times) to remember how to do simple math problems. Chronic fatigue headaches stuttering thyroid disorder discharge from nipple now being told I may have a brain tumor. I was healthy with the exception of endometriosis. Now I am destroyed.REPORT COMMENTS
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