Urge the CDC to take action against surging unexplained disease
Public Comments (2,563)
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Jul 18th, 2016Someone from Sturgis, MI writes:
I can't, in good conscience, hold my grandchildren. It's a profound hearyache. -
Jul 18th, 2016Someone from Sturgis, MI writes:
I can't, in good conscience, hold my grandchildren. It's a profound hearyache.REPORT COMMENTS
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Jul 17th, 2016Someone from Dayton, OH writes:
3 year old daughter and I s this hell for a year. Tried everything and after aging my face with home made remedies and moving twice we are 90% better still have problems in eyes and sometimes ears and nose. Doctors don't believe me. :(. Have Business degree from MichiganREPORT COMMENTS
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Jul 17th, 2016Someone from Mesa, AZ signed.
Jul 17th, 2016Someone from Port Saint Lucie, FL signed.
Jul 17th, 2016Someone from Houston, TX writes:
I have found that if a doctor don't know about am illness they just label the patient as psycho.REPORT COMMENTS
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No, CancelJul 16th, 2016Someone from Rochester, MI writes:
Pararasites should be a very important concern. They cause many incurable illnesses that sometimes can lead to death. They are more prevelant now than ever because of so much imagration and international travel, old sewer systems, polution of our fresh water system, and most of all lack of medical research against them.REPORT COMMENTS
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No, CancelJul 13th, 2016Someone from Harbor City, CA writes:
This has destroyed my life . I can no longer work.REPORT COMMENTS
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No, CancelJul 13th, 2016Someone from Harbor City, CA writes:
This has destroyed my life . I can no longer work.REPORT COMMENTS
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No, CancelJul 13th, 2016Someone from Killeen, TX signed.
Jul 13th, 2016Someone from Arvada, CO signed.
Jul 12th, 2016Someone from Conway, AR writes:
I apologize for this long winded entry, but feel the need to share my experience in hope it will help in some way. I'm now in my 6th year with this debilitating scourge. I have researched and read everything I can find on a host of different possibilities such as mites, black flies, scabies, parasites, gnats, etc. With absolutely NO help from the CDC, or the medical community, it is up to us to find some answers. The following are my symptoms/facts; *Inside my house, some type of flying gnats were biting the backs of my arms, temples, scalp, and legs. I caught some in a jar using vinegar, and took them to my county extension office. The guy said they were drain gnats-nothing would kill them, but they would be gone in the Fall when temps cooled off. That was not true. *My eyes began secreting (what looked like tiny eggs or worms). *A lump came up on my back, between my shoulder blades. It grew and became extremely painful. Local doctor said it was a sebaceous cyst-not to worry about it. I had to have my boyfriend apply a poultice to get it to open. I now have a large hole/scar, and it took 6 months to heal. *My mouth/teeth became infected. Gums puffed and I had to have all teeth pulled. I thought that would end my suffering there, but it did not. My gums are still swollen, and I have pain as if I had an abscess tooth. *Feel something fly in my nose, eyes, ears, and in my hair/scalp. *Sticky substance in my hair/scalp. Black specs on face, scalp, eyebrows, and neck. My hair is coming out with the sticky substance which I believe to be biofilm, *In cycles, I have a substance constantly coming up my throat. It is white, and I cough and get as much of it out as I can. I believe it to be larvae. *Nesting of whatever this crap is, in the clothes in my closets. I have found nesting in boxes of stored clothing. * I finally found a job after three years, and have insurance. I found a local Primary care doc. I knew better than to tell her I had parasites, so I just said "I had movement in my eyes and scalp" I have been diagnosed with a pituitary tumor just under my brain. It is large and is bearing down on my optic nerve causing certain blindness. I feel certain this is directly related to this vermin. This problem is world-wide. We need to look into the possibility of sewage/septic systems that are not up to code/failing. There are a host of vermin associated with raw sewage. If a septic system becomes compromised, it contaminates soil and ground water. Then affects all living creatures. We still have gnats and can't get rid of them, Thanks for letting me vent. We need to do some research on the topic of outdated and failed sewage septic/sewage systems.REPORT COMMENTS
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No, CancelJul 12th, 2016Someone from Houston, TX writes:
Please create a help site somewhere other than Facebook. Your every move is tracked on Facebook and companies pay for that info. That's why fb is free to us. Please - use a medical site that offers more privacy.REPORT COMMENTS
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No, CancelJul 11th, 2016Someone from Pasadena, MD signed.
Jul 11th, 2016Someone from Palmdale, CA signed.
Jul 11th, 2016Someone from Hollywood, FL writes:
Dear All, There is a new Facebook group devoted to Skin Mites Support. Dr Sparagano (famous scientist who studies red poultry mite and believes they can feed off of humans) and Jane Ishka (author of Year of the Mite) are members. We are about to create a formal organization devoted to this issue. Please request to join. It is a closed group, so as to protect members' privacy. The more people who join together, the stronger we will be. Here is the link: https://www.facebook.com/groups/skinmitesupportgroup/REPORT COMMENTS
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No, CancelJul 11th, 2016Someone from Reseda, CA signed.
Jul 11th, 2016Someone from Springfield, OR writes:
I have had this disease since June and have kept myself way from my child and everyone. I have lost everything and am being treated like a crazy lunatic. I have been homeless now because I got kicked out of my apartments because of excessive cleaning. Please help...nothing is working and I want to die!!!...The only thing that seems to help is antimicrobial towels with witch hazel and alcohol as pure as possible and calamine lotion . I feel a static and s a pull on my clothing as it adheres to my body. My name is Michelle 5412143128.REPORT COMMENTS
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No, CancelJul 11th, 2016Someone from Springfield, OR signed.
Jul 11th, 2016Someone from Vancouver, WA writes:
Something is happening and is contagious. It is spreading like wild fire and needs to be addressed now! Intensional or not. There is to many people being infested and infected with this to continue to ignore. There is cancer, mersa, aids, on and on OK. Why is it so hard for doctors, CDC, on and on, to believe. They are smart, they want to survive just like us. We know it doesn't want to be found and health care and CDC, everyone wants to say, there is hundreds of thousands people being infected, in their head?!!! What is the problem and why the cover up?? People have committed suicide, lost everything they had, including family, have something wrong, it can be seen, but told it is in their head or it's something else. I have Prof, I have been told its one thing after another. Being treated with, guess what, anti depression's. Antibiotics, creams, goes on and on and quess what, nothing works because they are being misdiagnosed, mistreated, and someone needs to answer this. If it is spreading this fast, anyone of you could be next. It don't care how much money you have. I was mostly healthy until this. Very clean person, and now. So anyone, anyone can get it. Once you do you will want to die, beg for Mercie, understanding, relief, and you won't get it. You will spend thousands of dollars trying to get it the **** off you, but nothing works. Steals all your money, friends, health, family, belongings, until all you have left is this overwhelming need to die! No one helps you, believes you or stands by you. After all that! You find yourself alone, money can't kill it, noe you just suffere and die in isolation. Do you want this to happen to you. You better start Carin cause it can. Maybe you got it now you infected your kid, not only does it steal your life but also your child's.n its real! What is it, money, isn't that always the reason so many people suffer and die. Anyone out there, they never ****ing die! They absolutely hate Honey.REPORT COMMENTS
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No, CancelJul 10th, 2016Someone from Channelview, TX writes:
I truly believe we are ALL going through some sort of myiasis and if you have had scabies of any kind it makes it even harder to get rid of. I have been dealing with this for about three years now. At my wits end I googled morgellons after true denial of being delusional. I then found a link that is about Morgellons and myiasis being closely related. As I was reading I immediately knew that I had the answers to all my questions EXCEPT where and who will help me. The scientist say there is some kind of a fly strike. Imagine that. Flies are using humans and pets to reproduce without technology mating. My boyfriend, my pit bull, and I are all sick. No help !!! It can be treated if society, America, would stop being soooo scared of the word BUGS. Hell, I'm scared of them too, that's why we need your help you get help. Knowledge is proven to be powerfully full of potential. I don't want to die yet, but please help because nobody should ever have to go through this life is supposed to be beautiful not buggy.Rachelle English Williams 281 836 2956REPORT COMMENTS
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No, CancelJul 10th, 2016Someone from Waterbury, CT signed.
Jul 10th, 2016Someone from Marietta, GA signed.
Jul 9th, 2016Someone from Fallbrook, CA signed.
Jul 9th, 2016Someone from Jenison, MI writes:
my son has been dealing with this horrible disease for 3-4 years, he is miserable, and wishes he would die, not one helps....REPORT COMMENTS
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No, CancelJul 9th, 2016Someone from Denver, CO writes:
It's been 5 months now since this insane thing started in my body. I thought I had head lice as my head was itching and dI had some bumps around my hairline in back. After treating it twice, it got better but then chest, back, and shoulders suddenlly got lesions, a total of over 50 just overnight. I went to the dermatologist-he was very weird about the whole thing, he didn't even tell me what he thought it was until I asked him as I was being escorted out the door by the nurse. He said "Mites, looks like some kind of nite" and the visit was over with no answers as to what I needed to do to get rid of it! A month later, back to the derm again, this time he said Delusional Parisitis and he referred me to the psychiatrist. I went there, my 72 yrs young sister went with me. He said he can tell when people are delusional or psychotic, they will at least show a couple signs and I had zero. And he referred me to Infectious Disease. I went there twice and he said he has never seen this and can't help me. I asked him to just try but nope, he emailed me through Kaiser website that there is nothing he can do. Back to the dermatologist again. He gave me something for the severe itching, but he gave me no hope. Oops I forgot to say, in the beginning, there was an instance one night where my total upper body was freezing like I've never felt before. I didn't know you could be this freezing without being dead. My upper body felt like a solid block of ice, inside and out. The next morning it was gone. But I woke up with more lesions on my legs, and the last week now, they are on my face also. Over 100 now all over. I was putting vinegar and hydrogen peroxide on them, because the ambulance parametic told me that Hydrogen Peroxide kills everything, good and bad. and another oops is that I called 911 about 4 or 5 times, and I went to the ER. My car was out of commish so I had no other way except bugging my family and friends and they all think I'm nuts and they are mean about it. I can't think straight, can you tell? OK so the ER always said Del Par. To me it felt likek an emergency, I thought that if you found any kind of worm or bug in your body, that it would be an emergency. Boy was I in for a rude awakening. I don't know of any other illness where the people are treated so horrible. And seriously, I think abused!! I am getting really ****ed about it!! The way they are ignoring us! And trying to make us think we're crazy. I have no mental problems except from dealing with this insane thing I have with no help. I am 63 yrs old, have 4 grandchildren who I saw often before this, because I don't want to expose them just in case it is contagious. I raised 3 sons mostly alone. We all live here in Denver where we'v been for 16 years. I had a career as a Dist Sales Mgr for Avon in St. Louis before moving here. And before that I managed a Nutrisysten weight loss clinic. I'm not a dummy. And the 4 ladies who have contacted me with the same thing, are very smart olderREPORT COMMENTS
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No, CancelJul 9th, 2016Someone from Sapulpa, OK signed.
Jul 8th, 2016Someone from Tacoma, WA signed.
Jul 8th, 2016Someone from Richmond, VA signed.
Jul 8th, 2016Someone from Glen Mills, PA signed.
Jul 7th, 2016Someone from Orange, VA writes:
Last June I presented with a rash on my right ankle that spread to the left, up my legs, and covered my entire body by November 2015. My primary care doctor refused to do a skin scraping, and told me to see a dermatologist, then "fired me as a patient" via certified mail. I went to a dermatologist. She told my psychiatrist, who I saw the next day, that I "had the worst looking skin she has ever seen". He prescribed Pimozide, but I refused, knowing that I had been exposed to poultry, bird and rodent mites previously. Lymes test (not the 5 part, just the 2 part assay) was negative. Four ER's said I had DP. As did the Head Doctor of the Infectious Disease Department of Virginia Commonwealth University Hospital. Only my pshychiatrist, two months after the Morgellon's appreared, agreed it was not delusional parasitosis - he saw the detritus and samples as well as photographs, and filled out a serious medical condition form stating I have "Morgellon's Disease". The irony. Only my shrink believes it's real. STOP THE COVER-UP!REPORT COMMENTS
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No, CancelJul 6th, 2016Someone from Irving, TX writes:
With so many people suffering from this why will officials not turn their attention? Doctors will not help. This thing is highly contagious, I don't wish bad on anyone but maybe if someone in high society would contract this plague them maybe people will step in to research & help.REPORT COMMENTS
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No, CancelJul 6th, 2016Someone from Irving, TX writes:
With so many people suffering from this why will officials not turn their attention? Doctors will not help. This thing is highly contagious, I don't wish bad on anyone but maybe if someone in high society would contract this plague them maybe people will step in to research & help.REPORT COMMENTS
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No, CancelJul 6th, 2016Someone from Fleming Island, FL writes:
Dear All, There is a new Facebook group devoted to Skin Mites Support. Dr Sparagano (famous scientist who studies red poultry mite and believes they can feed off of humans) and Jane Ishka (author of Year of the Mite) are members. We are about to create a formal organization devoted to this issue. Please request to join. It is a closed group, so as to protect members' privacy. The more people who join together, the stronger we will be. Here is the link: https://www.facebook.com/groups/skinmitesupportgroup/REPORT COMMENTS
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No, CancelJul 5th, 2016Someone from Fremont, CA writes:
There is clearly an epidemic of tiny itchy biting organisms that is not being addressed right now. The secondary effects are potentially huge due to impacts to sleep, etc, so i dearly hope serious research will be initiated to start recognizing and understanding the issue. in our house we have cats that brought the problem into our home. And after petting our outdoor cat, sometimes I can feel a wavefront of these critters making their way up my arm. They are too small to see, but their movement creates itchiness and periodically pinpoint needle-like pain results from what I assume are bites. I personally have not seen welts or other evidence of a bite site ever, from these. They seem to like my toes - even the thicker-skin parts, but will bite anywhere on my body at times. And whatever is biting and crawling, its too small to see. Please help! Thank you.REPORT COMMENTS
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No, CancelJul 5th, 2016Someone from Vancouver, WA signed.
Jul 4th, 2016Someone from Mars, PA writes:
Dear congress please help with patient like us morgellons I have been sick for ten yearsi haven't seen my son and two grandaughters because I'm contagous and very ill please help we are not dillutional we are very.sick.thank you very muchREPORT COMMENTS
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No, CancelJul 4th, 2016Someone from Stacy, MN signed.
Jul 3rd, 2016Someone from Salem, OR writes:
I think the doctors and government know what it is and they are not telling usREPORT COMMENTS
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No, CancelJul 3rd, 2016Someone from Brenham, TX writes:
I was infected with this about 10-11 months ago. My husband and I purchased a second hand mattress only to find out that it's illegal to sell second hand mattresses in TX. I started waking up in the middle of the night to bites. Since the bites are deep they look like punctures. I was afraid that there were scorpions. The less sleep I got the nuttier I got. I went to our family doctor and told her I had parasites. She asked me if I was hallucinating. I told her no. A few weeks later I found a mark on our daughter. I called our family doctor again to have our daughter examined. They insisted I was delusional and hallucinating. They called CPS and CPS took our daughter. That was 6 months ago. I still haven't found anyone to properly diagnose me. I'm not sure what to do or where to go. I just want my life back. Please, please, please HELP US!REPORT COMMENTS
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