Investigation into Lupron Side Effects (Leuprolide Acetate)
Public Comments (5,065)
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May 19th, 2012Someone from Atlanta, GA writes:
I took this shot under the supervision of three different Doctors, none of them ever told me this was a form of chemo. They told me I was cray because the side effects I went through were unbearable! I was on the shot three times for 6 months each time. The red cross told me blood was poisonous and to never donate blood again. Several years after taking it, I developed Langerhans Cell Histiocytosis and had to have a tumor removed from my hip bone. My bone density is that of a woman 30+ years older than I actually am. Someone needs to stop this drug! -
May 19th, 2012Someone from Rex, GA writes:
I am so glad to have found this website. I thought it was all in my head. I am literally in tears now because this has website has confirmed that I am not crazy and what I am feeling is validated. I took the shot 3 years ago and life for me has never been the same. I feel different, my weight is out of control, I have mood swings, more frequent headaches, skin extremely dry, brittle hair, joint pain. This shot needs to be band ASAP.REPORT COMMENTS
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May 19th, 2012Someone from Chicago, IL signed.
May 18th, 2012Someone from Little Rock, AR signed.
May 17th, 2012Someone from North Tonawanda, NY writes:
I'm 24, going threw hot flashes, rages and depression and pain. It made my quality of life worse. This needs to be band please!!!!!REPORT COMMENTS
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No, CancelMay 16th, 2012Someone from Rockwall, TX writes:
This medication has ruined the last 2 years of my daughters life. She has picked up a huge amount of weight, she is depressed, constantly tired.REPORT COMMENTS
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No, CancelMay 16th, 2012Someone from Clare, MI writes:
Took this shot for 12 months, felt better on it, minus the menopause side effects, all the stomach pain i had dissappeared have been off it for 5 months, dr said my periods would start around the time i was due for another shot, went through monopause, legs hurt where i could barely walk, arms the same, couldn't pin the arm and shoulder pain on the shot due to a car accident with whiplash, still have hot flashes, dizzy a lot and bad headaches at top of head when i get dizzy, my sex drive is gone, and now it hurts like hell when i do have sex with my husbandREPORT COMMENTS
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No, CancelMay 11th, 2012Someone from Spencerville, IN writes:
I have fibromyalgia with severe upper thigh pain and hip pain. I have overall muscle pain with weakness. My muscle stiffness is extreme in the mornings and comes back every afternoon making walking very difficult. I received 6 lupron injections in 1994 for endometriosis.My life has become very painful, but I have remained hopeful tnat this drug will be investigated and doctors will be informed so patients can make an informed decision about it's possible side effects. Hope to help others!!REPORT COMMENTS
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No, CancelMay 11th, 2012Someone from Atlanta, GA signed.
May 8th, 2012Someone from Plymouth, MA signed.
May 8th, 2012Someone from Elyria, OH writes:
I received 6 lupron injections for the treatment of endo in 2003. 3 months after my final injection I was diagnosed with fibromyalgia. This horrible drug changed my life forever. I am on strong rx's for pain, but the pain never goes away. Please warn others.REPORT COMMENTS
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No, CancelMay 7th, 2012Someone from Hubert, NC writes:
I must say my life has been changed in so many horrible ways by this medicine. It's been HELL since December of 2011 for me and I"m still battling the effects. My doctor talked me into getting my second shot and I regret it. I've been in severe pain for two months. My hips hurt to the point I can barely walk most days. I called my doctor not too long ago and she told me to cally my primary doctor and my doctor was pretty upset that she told me to do so. But she is helping me cope with the pain by MORE drugs. I'm sick of taking medicine. I'm sick of feeling like I'm going to get sick through out the day EVERYDAY. I"m sick of being in so much pain. It's taken time away from my Fiance' and my family. I'm scared to see how this will affect me in the long run. I want kids and so does my fiance' and now we have to face not being able to have them. And I have to face hurting my entire life because this drug is recommened. AND IT SHOULD NOT BE.....I trusted my doctor and I'm terrified to even go to a new one. But with medical issues I can no avoid going to the doctor. This shot should be taken off the market. Too many people are suffering long term affects and we should of been warned and I regret not researching this shot a little more.REPORT COMMENTS
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No, CancelMay 7th, 2012Someone from Chambersburg, PA writes:
i had the lupron shot and now they say i have fibromyagia and have been suffering since and its been 3 yearsREPORT COMMENTS
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No, CancelMay 6th, 2012Someone from Falls Church, VA writes:
My father was given Lupron 6 weeks ago. Now he is out of it. Sleeps all the time & does not eat. He went from a vibrant 86 yr old to severe incapcitation. No one will tell us why but I'm sure it is the LupronREPORT COMMENTS
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No, CancelMay 6th, 2012Someone from Charlotte, NC signed.
May 6th, 2012Someone from Redondo Beach, CA signed.
May 3rd, 2012Someone from Buffalo, NY writes:
Lupron permanently damaged my wife after taking it. It MUST be removed, it's not safe!REPORT COMMENTS
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No, CancelMay 2nd, 2012Someone from Crown Point, IN writes:
i am about to start lupron treatment to alleviate excessive bleeding from fibroid.REPORT COMMENTS
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No, CancelMay 2nd, 2012Someone from Niagara Falls, NY signed.
May 1st, 2012Someone from Lawrence, KS signed.
Apr 27th, 2012Someone from Altadena, CA signed.
Apr 26th, 2012Someone from Lakeland, FL writes:
I have taken this drug, and my period has not returned. I am only 31 and am now undergoing several procedures to correct the lasting affects of this horrible drug. I have had horrible memory loss, problems with my bones, joint and jaw pain, insomnia, depression and anxiety, and now maybe not be able to have any more children.REPORT COMMENTS
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No, CancelApr 26th, 2012Someone from Mchenry, IL writes:
i was on this drug and became pregnant within my secound treatment of every 3 mo now they said my son that i was pregnant with has Brain damage cuz the left side of the Brain did not grow they said it was fetal alcohol disease but i never drank with my son i also have myself digentitive disc disease, hypotension, bone and joint pain, tachycardia, fybromyalgia, memory loss, insomnia, and depression anxiety and several other things also my ex husbands wife also had the lupron injection she also has most of the symtoms also i really wish someone would do somethingREPORT COMMENTS
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No, CancelApr 25th, 2012Someone from Mahomet, IL writes:
It is truly amazing how many woman have been treated with this horrible drug! I have had five injections of Lupron over the course of 10 years and just refused to take the injection 2 weeks ago. I had a complete hysterectomy in 2004 in an effort to stop the pain...only to learn a year later that the doctor was unable to remove all of my ovaries! She insisted that the Lupron shot would "burn out" the ovarian remnants. I reluctantly agreed and to this date I have gained too much weight to mention, have severe leg and hip pain on my left side, joint pain all over, lower back pain, severe asthma (which I did not have before)and the list goes on and on! Today I have an appointment with another OB and I hope she has a different approach. I really hope this petition makes a difference!REPORT COMMENTS
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No, CancelApr 23rd, 2012Someone from Miller, SD writes:
My oncologist put me on lupron injections to send me into menopause, because of lung fibrios. After the first shot, severe mood swings, hot flashes and cramps from hell. Now after my third shot I have excurxiating pain in my left hip and leg, that there is no relief for.REPORT COMMENTS
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No, CancelApr 23rd, 2012Someone from Port Orchard, WA writes:
I had injections in '04, I am still having major issues with joint pain and back pain. Also, my teeth are now rotting, I did not have a cavity or anything until I was 35, 1 year after the shots.REPORT COMMENTS
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No, CancelApr 22nd, 2012Someone from Indio, CA writes:
Within 24hrs of getting a Lupron shot I ended up in the ER. The side effects for the next 6 months were awful. I regretted putting this in my body & rather deal with level 10 pain then ever deal with something like this again!REPORT COMMENTS
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No, CancelApr 22nd, 2012Someone from Hubert, NC signed.
Apr 20th, 2012Someone from Sacramento, CA writes:
I suffer everyday due to lupron injections I was given at the age of 21. I had it 6 months one injection a month. constant pain, hormonal imbalance, and lumps in left breast and armpit and left rib cage that are painful. painful periods, restless leg syndrome, high resting pulse rate always 115 or higher, anxiety, depression, mood swings. and more. can't work steady job, and dont have health insurance.REPORT COMMENTS
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No, CancelApr 20th, 2012Someone from Austin, TX writes:
This drug was approved based on falsified data, and it is ruining lives. THIS is the problem with our healthcare system. Begin by FIRST DOING NO HARM!REPORT COMMENTS
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No, CancelApr 17th, 2012Someone from Memphis, TN signed.
Apr 16th, 2012Someone from Grand Prairie, TX signed.
Apr 16th, 2012Someone from Hugo, MN signed.
Apr 16th, 2012Someone from Santa Fe, NM writes:
I was not made fully aware of Lupron Depot injection side effects. I was told that I would be induced to menopause . That danger of bone loss would occur near the 6th month mark of monthly injections. I stopped taking the drug after my first 30 day injection. Total nightmare! Within the first hour I became very dizzy. Immediate moodswings. Laughing and crying in the same few minutes. Terrible short term memory loss began the day after the shot. Night Sweats. Severe chills. Joint pain. My knees felt weak and hurt. My hands still have joint pain. Urinary problems. All for the treatment of uterine fibroids!? My Lupron symptoms were worse than my uterine issues. I felt so decieved by my gynecologist. I was never warned. I was not warned on paper nor verbally. I went through two months of hellish symptoms after just one 30 day injection. My hands still hurt. I still get dizzy. I am a single woman. I am a medical health professional and cannot afford to lose my job lest I become homeless. I almost lost my job to this drug because of the memory loss; weight gain; moodiness and the startling struggle to breathe. My lungs were very tired after the injection and my breathing was labored. My clients and coworkers were alarmed. I was alarmed. Please take Lupron off the market. At the very least please disallow phd's from using this drug to treat female issues.REPORT COMMENTS
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No, CancelApr 15th, 2012Someone from West Springfield, MA writes:
Its been four years since I took two injections of lupron. Still extremely ill and now have lesions on my brain and was just diagnosed with mast cell activation disorder which I know was caused by the lupron. Anyone that has all the symptoms we have all experienced after taking this drug should be tested for this disorder. My life is a living hell from this drug.REPORT COMMENTS
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No, CancelApr 14th, 2012Someone from Sarasota, FL signed.
Apr 13th, 2012Someone from Mahopac, NY signed.
Apr 13th, 2012Someone from Gary, IN signed.
Apr 13th, 2012Someone from Cedar Park, TX signed.
Apr 12th, 2012Someone from Cookeville, TN writes:
I am 24 and feel like a part of me is gone thanks to the 6 months of Lupron I took over a year ago. This needs to be pulled off the market ASAP!REPORT COMMENTS
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