Investigation into Lupron Side Effects (Leuprolide Acetate)
Public Comments (5,065)
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Aug 11th, 2012Someone from Sun City, AZ signed.
Aug 11th, 2012Someone from Sun City, AZ signed.
Aug 10th, 2012Someone from Wilmington, DE writes:
I've been on Lupron for 6 months and its been H*LLAug 10th, 2012Someone from Virginia Beach, VA signed.
Aug 10th, 2012Someone from Virginia Beach, VA signed.
Aug 8th, 2012Someone from Harleysville, PA signed.
Aug 8th, 2012Someone from Detroit, MI writes:
please take off market :( it really impacting people our lives in a life theating wayREPORT COMMENTS
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No, CancelAug 7th, 2012Someone from Carlsbad, NM writes:
I was diagnosed at age 30 with stage 4 endometriosis. Aside from negatively impacting my life from pain and discomfort, I was told if I ever wanted to conceive Lupron was the gold standard for preserving fertility. After the first three months I told my doctor I didn't want to continue on Lupron therapy, it was the most awful, horrible, life altering experience I'd ever been through. He looked my fiance in the face and said if I wasn't willing to commit to my own recovery then we would likely never have a child of our own simply because I was too selfish to endure minor, temporary discomfort for the only proven treatment aside from a hysterectomy. I consented to the second shot and suffered through that three month period and the residual menopausal symptoms for 9 months after. Once the menopause symptoms subsided I realized the long term affects were not temporary and I had no recourse to manage what I was experiencing. My condition has progressively worsened and I'm now 34 with a much lengthier list of health issues and no evidence to suggest I will be able to get pregnant. When the treatment was complete and I was still suffering from endometrial related pain, along with other issues I developed during Lupron, my doctor said my only option was a hysterectomy and aside from that there was nothing more he could do. His only contribution to my life was ruining it. Please abolish this drug from existence, for the sake of all the men and women who don't have to needlessly suffer in the future. It's the least we can do for them, because currently there is no indication that much can be done for us.REPORT COMMENTS
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No, CancelAug 7th, 2012Someone from Hamilton, OH writes:
My Dad died from complications from Lupron. He died a horrible death (blind, unable to walk, pain in joints and loss of memory. Doctor have him 4 times the regular dose and after that he was never the same. Congress needs to investigate this drug.REPORT COMMENTS
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No, CancelAug 3rd, 2012Someone from Saint Paul, MN signed.
Aug 2nd, 2012Someone from Saint Paul, MN writes:
I was just a child--6 years old--when I was put on Lupron injections. I finally had to quit a few years later because I was having abscesses in my legs at injection site. It turned out that the glass vial which had to be broken just prior to injection was allowing small shards of glass to be carried into the shot. While on Lupron and after, I have suffered from chronic headaches and migraines, stomach pain, dizziness, vitamin d deficiency, depression, fatigue, and more... I feel very strongly that this is not a medicine we should be giving to children. I deeply regret having been forced to put this poison in my body. (I am now 30 years old.)REPORT COMMENTS
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No, CancelAug 1st, 2012Someone from Revere, MA writes:
This drug has ruined my life. I took it for nine months and have had constant back and hip pain. I just had surgery for a herniated disc and have degenerative disc disease. I also now have arthritis in my hips. Now on top of being in pain from having endometriosis which is why I was prescribed this drug, I now have a whole host of other issues to deal with. I wish I had known how awful the potential side effects would be.REPORT COMMENTS
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No, CancelJul 31st, 2012Someone from Chicago, IL signed.
Jul 29th, 2012Someone from Milwaukee, WI signed.
Jul 29th, 2012Someone from Milwaukee, WI writes:
I just want to justified in saying that Lupron took my ability to run away. Six months later and I still do not have total control of my leg. I still limp because of that drug. I stretch and do yoga and nothing helps my leg. I can't see extreme hip and leg muscle pain, in the leg I got my three month injection, within 24 hours being a coincidence.REPORT COMMENTS
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No, CancelJul 29th, 2012Someone from Buffalo, NY signed.
Jul 29th, 2012Someone from Sacramento, CA writes:
I have had IBS since 1980s w/Raynaud's. Past few years FMS/CFS, anxiety, depression, Vitamin D deficiency, insomnia, DDD, Osteoporosis, Endometriosis/Adenomyosis and now all that has worsened with serious nght sweats/or hot flashes throughout the day, worse insomnia, and nausea/trouble with IBS. Had to post-pone hysterectomy so son could attend school. Received the Lupron injection in the interim hoping it'd help with my pain. Not only is the cost 25% of 3-5k for me to pay which I don't know how since I'm on SSDI and have another lumbar epidural, then a colonoscopy with worsened IBS, and hysterectomy set. The sweats are so uncomfortably drenching my body wet; pain is worse; and fatigue is too. I feel like a human guinea pig, literally don't want to go anywhere cause I feel gross cause I can't control the sweat break-outs. Wish they'd also investigate Lyrica by Pfizer which I took two years - ended up with incontinence issues and had a bladder sling surgery.REPORT COMMENTS
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No, CancelREPORT COMMENTS
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No, CancelJul 27th, 2012Someone from Buffalo, NY writes:
Lupron is a dangerous drug that has changed my ex-wife's life forever. She now suffers from chronic pain which started immediately after beginning Lupron treatment in 06. It's a crime this drug is still available.REPORT COMMENTS
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No, CancelJul 27th, 2012Someone from Kailua Kona, HI writes:
I have been extremely sick since the lupron.It has broken my family up because my health is so poor. I cant hold down a job. NO ONE SHOULD HAVE TO GO THROUGH WHAT IM GOING THROUGH AS FAR AS THE SUFFERING! I NEED HELP! Do NOT TAKE!!!!! ITS KILLING ME!REPORT COMMENTS
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No, CancelJul 26th, 2012Someone from East Aurora, NY writes:
Another " fix" by the drug companies making people sickerREPORT COMMENTS
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No, CancelJul 26th, 2012Someone from Tallmadge, OH writes:
Took it for over one year for treatment of endometriosis - have many of the side effects listedREPORT COMMENTS
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No, CancelJul 26th, 2012Someone from Arcade, NY writes:
This Rx destroyed my body, my life has never been the same since I was given the 1st shot. Please remove terrible drug!,REPORT COMMENTS
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No, CancelJul 26th, 2012Someone from Brooklyn, NY signed.
Jul 26th, 2012Someone from Lorton, VA writes:
Please take Lupron off the market!! I am so sick!!REPORT COMMENTS
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No, CancelJul 26th, 2012Someone from Lorton, VA writes:
Please take Lupron off the market!! I am so sick!!REPORT COMMENTS
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No, CancelJul 26th, 2012Someone from Sheboygan, WI writes:
As usual, big pharm. companies get to put meds out there regardless of the harm it does to people. The FDA is nothing more than a revovling door with companies like Monsanto. The people care only for lining their pockets and not one bit for the well being of people.REPORT COMMENTS
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No, CancelJul 25th, 2012Someone from Coatesville, PA signed.
Jul 24th, 2012Someone from Alpharetta, GA signed.
Jul 20th, 2012Someone from Lancaster, PA writes:
I am in my second month of lupron and will not be getting the third shot next week. the side effects are terrible and it has not helped my pain from endo at all.REPORT COMMENTS
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No, CancelJul 20th, 2012Someone from Somerville, MA signed.
Jul 20th, 2012Someone from Queensbury, NY writes:
This drug has destroyed me. I had 6 total injections over 7 years ago. My joints feel like I am an old woman and I am not. I was under anasethia for the first injection after having a blood transfusion ,, my Dr never even made me aware of what was given to me. Only ti shrink fybroid tumors, New York state statue is 3 years for a Law suit. I am so angry and my whole life has changed dramatically. I am going through many trials in my life now. Weak immune system, gastro problems, eye infections, arthritis, bones that ache so bad everyday,, takes me so long just to get up and move in the morning. I am on 7 different medications yes 7. I am 50 years old, my body feeling 75 at least most days, Something needs to be done. I wasn;t given a choice with this shot in my hips they just took it upon themselves to start me on this road to ,, well,, you know ,, I wish their was a Lawyer actually that would help me. PLease........REPORT COMMENTS
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No, CancelJul 19th, 2012Someone from Chepachet, RI signed.
Jul 18th, 2012Someone from Worcester, MA writes:
Hysterectomy was planned due to enlargement of fibroids and heavy bleeding.My OBGYN said because of the heavy bleeding,I've become anemic and because of that she will not do surgery until the anemia is corrected.Her plan was to shrink and correct the anemia by starting me on a 4 month 3.75MG lupron IM injection given monthly pre-surgery.My doctor told me that the only common side effects reported are hot fluhes and menoposal.The hot fluhes and night sweats started after the first dose which was managable.Injection site irritability and general body/ joint pain followed.A day after the 4th injection I had a seizure in a grossery store,sadden severe headace,vomiting,confusion, lightheadedness,mental status changes,aphasic.......I was hospitalized 3 times with all these adverse reactions which in the begining most of the doctors believed it was the reaction of the medication lupron but later changed their mind because I traveled to Africa in later part of 2011 and tested and treated me for deseases which results stated negative.Its 2 months after the last shot of lupron but am still having these side effects. Lupron is a deadly medication and should be removed from the FDA aproved medication list because it has done more harm done good.If it was not God on my side,I would have been dead from all the try and error medications given to me in the hospital for an adverse reaction of lupron.Because of lupron am not the same any more.Please get ride of this medicationREPORT COMMENTS
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No, CancelJul 18th, 2012Someone from Worcester, MA signed.
Jul 17th, 2012Someone from New Hope, PA writes:
Dr. wanted to put me on Lupron pre-surgery to remove uterus and/or fibroids. Said it would reduce its size and prevent me from bleeding to death during surgery. Something told me not to do it. I rather have heavy periods than suffer the permanent symptoms I read here. What a horrible medication/poison. Get this off the market or we as a group should sue the maker and the doctors who prescribe it without telling us the truth. Truth wins.REPORT COMMENTS
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No, CancelJul 17th, 2012Someone from Altamont, NY writes:
Nope! No Way! I elected an alternative treatment for PC. Why would anyone trust the FDA?REPORT COMMENTS
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No, CancelJul 16th, 2012Someone from Mars Hill, NC signed.
Jul 16th, 2012Someone from Redfield, NY writes:
I was on th shot for 6 months (for endometriosis), it should have worn off by now and I am still having horrible hot flashes, night sweats, memory loss, headaches and insomnia...REPORT COMMENTS
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No, CancelJul 16th, 2012Someone from Grovetown, GA writes:
I was on the shot for a whole year.bad hot flashes.hair falling out and lots of gray hair.major weight gain.can not lose it for the world.(endometriosis treatment)I've been off of it for about 9 months now.no pain, only problem I have is boating,.Reading everyone comments got me thinking that the meds are still in my system.Causing the major bloating I have now.REPORT COMMENTS
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