Investigation into Lupron Side Effects (Leuprolide Acetate)
Public Comments (5,065)
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Nov 2nd, 2012Someone from Garrett, IN writes:
I have suffered terribly after taking this drug! I received 10 injections of this medication.. Years after, I still suffer from horrible night sweats! -
Nov 2nd, 2012Someone from Fort Worth, TX writes:
I just got my second shot on October 31, and after reading a lot of the comments posted on here, I'm starting to get concerned. So far, I have only had hot flashes, increased fatigue, I've been a little more irritable, and I've gained about 10 pounds since my first shot in June... and I don't even have a confirmed diagnosis for my pelvic pain issues yet. I'm potentially looking at being Med Boarded from the Army because my pelvic pain keeps me from doing most things that I should be able to do at 27 years old, and if I start having all these problems that others are having on the Lupron shot, then I don't think I'll know what to do yet. Lupron does at least need to be more extensively researched, if not banned.REPORT COMMENTS
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Nov 2nd, 2012Someone from Lowell, MA signed.
Oct 28th, 2012Someone from Seattle, WA writes:
My father was diagnosed with prostate cancer and is in the 5th stage. He has 2 shots of the lupron shot and he has heavy chest pain that is spreading to the arm and shoulder. Also my father can't walk, his feet and legs are weak and numb that I have to assist him with trying to lift him up under his arms.REPORT COMMENTS
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No, CancelOct 28th, 2012Someone from Fredericksburg, VA signed.
Oct 28th, 2012Someone from La Puente, CA writes:
My body and mind have not been the same since having two- 3 month injections of this horrible drug. I advise anyone thinking about allowing this drug in their body to try every other solution first. My bones ache all the time, especially my hips. The pain is deep inside. My last injection was December 2011.REPORT COMMENTS
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No, CancelOct 28th, 2012Someone from Naples, FL signed.
Oct 27th, 2012Someone from Hawkinsville, GA signed.
Oct 26th, 2012Someone from Alexander City, AL signed.
Oct 26th, 2012Someone from Warner Robins, GA writes:
Lupron Depot needs more investigation. I truely believe all the issues I'm having now stems back to having my shots back around 2006 time frame. I was told everything was reversable when the shots stopped and I was never told it was a Chemotherapy drug. Please look into these long term irreversable side effects before many more woman and men get hurt.REPORT COMMENTS
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No, CancelOct 25th, 2012Someone from Somerset, KY writes:
I was 20 when I was diagnosed with endometriosis. The first thingthe dr told me was to try the lupron cause I was in the last stage so I took 2shots that lasted 6 months then went straight to the birth control pill. My life has been a living hell since then and that was 11 years ago. I have suffered from severe anxiety, panic attacks, joint pain, and major hot flashes and cant get rid of any of it. I know it came from the lupron cause it started when I took the first shot and has never stopped. They need to study this medication before more young girls go through there life living in menopause but having a period. This is the worst feeling I have ever had in my life.REPORT COMMENTS
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No, CancelOct 25th, 2012Someone from Decatur, IL signed.
Oct 24th, 2012Someone from Macungie, PA writes:
I received my first lupron 3month injection a month ago . A few hours after I received injection I had sudden pain deep in my bones. Every bone in my body is screaming in pain every single day since I was injected with lupron depot.REPORT COMMENTS
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No, CancelOct 24th, 2012Someone from Kill Devil Hills, NC writes:
I wish I had read more before I agreed to an injection of Lupron for fibroids before hysterectomy. I am miserable on the medication, wonder if it will wear off and now am terrified of lasting effects after reading the comments on this petition. I do think our FDA is trying to poison us.REPORT COMMENTS
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No, CancelOct 22nd, 2012Someone from Sevierville, TN writes:
I had 7injections in 2007 for severe endometriosis and was never told of any long term side effects. I suffer from joint pain and weird thoughts of death and depression,anxiety now. No doctor knows if it's from the Lupron or not, so should I just ignore like they do. We need more research and doctors that are concerned about women's health.REPORT COMMENTS
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No, CancelOct 22nd, 2012Someone from Stamford, CT writes:
I was 23 when I found out I had endometriosis. After my surgery I started to take Lupron. It is something I regret very much to this day. I dealt with hot flashes, anger like I have never felt, mood swings, weight gain, depression, anxiety, sleepless nights, dryness, and thoughts of suicide. Since taking the Lupron I have been placed on anti-anxiety pills, mood stabilizers, and sleeping pills. I will never be the same again. This drug is not meant for everyone. More tests should be done.REPORT COMMENTS
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No, CancelOct 22nd, 2012Someone from Dearborn, MI signed.
Oct 22nd, 2012Someone from Wrightsville Beach, NC writes:
We need to find a way to reverse these side effects as they are ruining a lot of lives.REPORT COMMENTS
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No, CancelOct 20th, 2012Someone from Joliet, IL signed.
Oct 20th, 2012Someone from Lubbock, TX writes:
I was 21 when I had lap surgery and they found endo that had torn a whole in my uterus, but they fixed it. Immediately after my doctor strongly recommended lupron. Before the shot, I specifically asked about weight gain for sure and also other side effects. He said just menopause symptoms. After 1 injection I gained 20 pounds, he said I wasn't eating right (which is bull because I have always been small, I'm a cheerleader) and strongly recommended to continue the treatment. I now am severely depressed, angry all the time, still have pelvic pain, horrible migraines, memory loss and can barely get out of bed. This drug should be banned. I am getting tests done soon to make sure nothing more serious is wrongREPORT COMMENTS
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No, CancelOct 19th, 2012Someone from Allentown, PA writes:
FDA - are you protecting or harming? I don't get it - what is your motive? I really don't trust you anymoreREPORT COMMENTS
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No, CancelOct 19th, 2012Someone from Hamden, CT writes:
I am a 31 year female and I feel as though my life has been riped out from underneath me. I was diagnosed with adenomisis when I was 15 and started lupron at the time, a few years later I started having cyst pop up all over the place. They now said I have endometriosis and I have had 8 surgeries one a year to control the chronic pevlic pain. Over the past ten years I have noticed my value on life has decreased. I feel robbed of my life. I have chronic pain, migraines, stomach issues where B12 was not in my system, I was diagnosed with hlba12 Ankylosing Spondilitis, degenerative disc disease and now on top of everything else they think I have addisions disease because I have no cortisol in my body. I feel like I am going crazy sometimes. I just want my life back and right now I have no children and want them in the future. It is so hard to control my emotions because I want children. I want to experience what it is like. Lets not even get into being sexual because that hurts like heck as well. Being on Lupron for over 13 years, is silently killing me. I wish there was long term side effect tests done. I feel as though we all were cheated. I see read about people who are on Lupron for a month try being on it for as long as i have. You sometimes that you do not even know where to begin. I feel that Abbott cheated us. When I was on Lupron at 15, no one told me the side effects were like this. No where does it read or did it read that it can cause the things I am going through or anyone else. I feel for each and everyone of you on this site because I feel it tooo. We are not crazy, we are not mentally challenged and I believe Abbott should take responsibilty for what peop;e are going through. Its hard to hold a job feeling the way I do on reg basis. How about anyone else? What isone to do. I lay in bed after working 8 hours a day if that. Some days I feel as though I can not make it through the day. Recently my inflamation disease blew up and I was out of work for three months. I had chronic fatigue and slept all day. I go from weighing about 100lbs to 130 back and forth and no one seems to think there is an issue. In a few week I will be going in for another laproscopic surgery and I have a bleeding cyst removed. I have been bleeding on lupron 11.75 for 6 months. Its ahorrible thing to be on a medication that has really decreased the value of my life so drastically. I went from being so happy and joyful and all smiles where I could conqour the world, to barely getting out of bed in the morning. Each doctor says non of my side effects have anything to do with lupron, but I feel like I am on a rollar coaster from hell most of the time. I have good days and bad days. I have shortness of breath all the time. I feel like someone is sitting on my chest. When I started this medication it was still on a trial basis for endometriosis. It was not used for what it is now. Yet I still get Cyst, Bleed Like Crazy and my Pain Level can be baREPORT COMMENTS
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No, CancelOct 19th, 2012Someone from Hamden, CT writes:
I am a 31 year female and I feel as though my life has been riped out from underneath me. I was diagnosed with adenomisis when I was 15 and started lupron at the time, a few years later I started having cyst pop up all over the place. They now said I have endometriosis and I have had 8 surgeries one a year to control the chronic pevlic pain. Over the past ten years I have noticed my value on life has decreased. I feel robbed of my life. I have chronic pain, migraines, stomach issues where B12 was not in my system, I was diagnosed with hlba12 Ankylosing Spondilitis, degenerative disc disease and now on top of everything else they think I have addisions disease because I have no cortisol in my body. I feel like I am going crazy sometimes. I just want my life back and right now I have no children and want them in the future. It is so hard to control my emotions because I want children. I want to experience what it is like. Lets not even get into being sexual because that hurts like heck as well. Being on Lupron for over 13 years, is silently killing me. I wish there was long term side effect tests done. I feel as though we all were cheated. I see read about people who are on Lupron for a month try being on it for as long as i have. You sometimes that you do not even know where to begin. I feel that Abbott cheated us. When I was on Lupron at 15, no one told me the side effects were like this. No where does it read or did it read that it can cause the things I am going through or anyone else. I feel for each and everyone of you on this site because I feel it tooo. We are not crazy, we are not mentally challenged and I believe Abbott should take responsibilty for what peop;e are going through. Its hard to hold a job feeling the way I do on reg basis. How about anyone else? What isone to do. I lay in bed after working 8 hours a day if that. Some days I feel as though I can not make it through the day. Recently my inflamation disease blew up and I was out of work for three months. I had chronic fatigue and slept all day. I go from weighing about 100lbs to 130 back and forth and no one seems to think there is an issue. In a few week I will be going in for another laproscopic surgery and I have a bleeding cyst removed. I have been bleeding on lupron 11.75 for 6 months. Its ahorrible thing to be on a medication that has really decreased the value of my life so drastically. I went from being so happy and joyful and all smiles where I could conqour the world, to barely getting out of bed in the morning. Each doctor says non of my side effects have anything to do with lupron, but I feel like I am on a rollar coaster from hell most of the time. I have good days and bad days. I have shortness of breath all the time. I feel like someone is sitting on my chest. I went from Psyc to Psyc and no anti anxiety medication helped. So here are my symptoms in a nutshell When I started this medication it was still on a trial basis for endometrioREPORT COMMENTS
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No, CancelOct 19th, 2012Someone from Las Vegas, NV writes:
This is a very dangerous drug. it needs to be pulled off the marketREPORT COMMENTS
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No, CancelOct 19th, 2012Someone from Las Vegas, NV signed.
Oct 18th, 2012Someone from Battle Creek, MI writes:
I received 8 months of injections in 2005 and still suffer with pain, hard heavy menstral cycles, loss of sexual desire, anxiety, and some depression..REPORT COMMENTS
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No, CancelOct 18th, 2012Someone from Wind Gap, PA writes:
I was on lupron on and off for eight years to treat endometriosis. Lots of side effects! Went through two failed IVFs, and found out my ovaries don't function and don't produce eggs. I wish I and my doctor was more educated ESP. Knowing my infertility was preventableREPORT COMMENTS
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No, CancelOct 18th, 2012Someone from Mount Airy, NC writes:
I have already had 4 surgerys due to severe endometriosis, Now i am on the lupron injection. This is the worse thing ever. It has caused me sever back pain, i cant sleep at night, and every time i eat i get so sick. I have a 2 year old daughter that dosent understand why her mom is sick. Lupron is a very bad thing, It has caused me more pain then i had. My pain level was at a 10 before and now i swear its at a 20. My pain doubled. They keep saying lupron is the best way to go. BUt really all is does is make everything worse, and really makes you go crazy. I just wana be able to do actvites with my daughter, sleep and be pain free. I cant handle the stomach, head, and back pains.REPORT COMMENTS
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No, CancelOct 18th, 2012Someone from Fort Lauderdale, FL signed.
Oct 18th, 2012Someone from Culver City, CA writes:
Lupron not only didn't do anything it was intended to do for me, but has made me very sick during the 20+ years since taking it. In that time, I've lost a successful career, my savings (spent on medical care), and quality of life. Additionally, it has negatively impacted all of those who care about me. Given the numbers of people who have been injured by this drug, it is more than reasonable to ask for a thorough unbiased investigation of the drug.REPORT COMMENTS
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No, CancelOct 18th, 2012Someone from Murrieta, CA signed.
Oct 18th, 2012Someone from Edwards, CA writes:
The first time I took Lupron was in Aug 2005 - I had hot flashes and the normal side effects, I also got pregnant while on the shot (I am lucky that my son didnt have anything to serious with him when he was born at 36 wks) The Second and third time i took it was in 2010. I have had more side effects this time around and alot worse. No one can figure out why a 30 yr is having joint pains (and the rest of my symptoms) and all the blood work they do on me is showing that i am normal and nothing is wrong. I am in the Air Force and they are doing a medical board on me bc there is no way i can stay in with all my issues. I wish the docs never put me on this drug 7 yrs ago. I want my life back. It sucks that I cant even spend time with my 4 yr old and my 6 yr old and play with them and they know mommy is in pain and cant do anything.REPORT COMMENTS
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No, CancelOct 18th, 2012Someone from San Francisco, CA writes:
I have been sick with fibromyalgia type symptoms ever since I took Lupron 17 years agoREPORT COMMENTS
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No, CancelOct 18th, 2012Someone from Aurora, IN writes:
My daughter took lupron while trying to have invetro. about 2 mo after use developed all symptoms listed,, as well as adrenal insufficiency. none of the side effects were give before giving.REPORT COMMENTS
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No, CancelOct 17th, 2012Someone from Washington, DC writes:
Please conduct longterm studies! 49 y/o woman. 15 years ago in 1997, I took Lupron shots to shrink uterine fibroids prior to my transvaginal hysterectomy (did not remove ovaries). Slowly over these 15 years, I went from running marathons, bodybuilding, rock climbing, hiking, skydiving, etc. to being inactive due to pain and I?ve gained 30 lbs. I?ve not made the connection until a new nurse told me about her personal experience recently. I?ve been trying to get answers and a diagnosis to my plethora of symptoms. I'm tired of being sick and tired and doctors and people thinking I'm crazy. I finally tested positive for RA; however, that could be mean I have something else. I've tested negative for indicators of, Fibromyalgia, Sjorgrens, Ankylosing Spondylosis, Lupus, MS, but I have all the markers and elevated labs for some inflammatory condition. I have chronic joint pain in feet, neck/hip/back that sometimes goes away for short periods of time with the longest absence being last year for 2 ½ months , bouts of unexplained shortness of breath without asthma. I?ll get night sweats and hot flashes for a few weeks at a time with bouts of swollen axillary lymph nodes, memory loss (short term and long term), history of crazy stuff like gastric reflux and I?m not obese, bilateral rotator cuff tears w/two surgeries and no related injury event, benign nodules in my lungs, nodule in my liver, unusually dry cuticles, itchy palms and feet and itchy generally, 3-4 times a year I have severe altered sensations on my entire left side face and through my calves and my hearing goes out, migraines, motion sickness, diagnosed moderate-severe dry eyes, several episodes of kidney stones, I get heart palpitations and all I?m told by rheumatologists, neurologists, primary care docs, etc. is I have an autoimmune disease. On days that my pain level is 3, I rejoice! One winter, I recall crying myself to sleep several weeks at a time. One thing I do know, stress worsens it but sometimes it worsen without stress but stress is a predictable trigger. 80% of my life, I?m in pain from 3-6 level. What I would give to surf, run and play with my grandkids the way that I should be able to this young age!!REPORT COMMENTS
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No, CancelOct 17th, 2012Someone from Duxbury, MA signed.
Oct 17th, 2012Someone from Gardena, CA writes:
I'm currently taking the injection and my life has been flipped upside down. I'm no longer outgoing, I like to stay in the house in the dark, and I stay sleep most days while trying my best to take care of my autistic seven-year old son. I don not think this is fair to him or myself. This drug has helped with the pain, yes! It has harmed me in more ways than the pain did. Everything I do is a force. Just to wake up in the morning is a hard task. I miss living and loving life!!!!REPORT COMMENTS
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No, CancelOct 17th, 2012Someone from Torrance, CA signed.
Oct 16th, 2012Someone from Everett, WA writes:
My life has never been the same since I took this drug. I need to be strong and independant sice my husbend serves our nation in the US Navy, and is away alot. The past 8 months since I took Lupron this is impossible. I used to be a full time sous chef, and now I can barley get in my car to go to the store. I have major health issues because of this drug. Just to list some, extream anxiety attacks, thyroid disorder, horibble head aches, and my vitamin D levels are non existant. These are just some of the things that I found when I wasn't even looking for them. Imagine what all of this could lead to. Did I deserve this? Is this how you treat your service members loved ones...like we don't go through enough....gonna sue!!!! :(REPORT COMMENTS
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No, CancelOct 15th, 2012Someone from Leonardo, NJ writes:
This drug has aged my body at least 30 years I am unable to do practicly anything fuzzy memory and the pain is just unbearable no one should have to live like this . Dr.s should make patients more aware of the side effects . they are permenent. it is soooooo sad sooo many of us there are . The negative far out weighs the positive . for women anyway .REPORT COMMENTS
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