Investigation into Lupron Side Effects (Leuprolide Acetate)
Public Comments (5,065)
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Nov 25th, 2012Someone from Raleigh, NC writes:
My mother is dying from this drug. She was unwillingly used as a test subject from a doctor in North Carolina. For years her and her sister have tried to get the word out about the dangers of Lupron. It was given to her in the late 80's/90's. Something must be done to help the ones who suffer with this day in and day out! I would rather see her die from cancer than to suffer with this. Everyday the joint pain and depression gets worse. She now has COPD and arthritis that is eating away at her. -
Nov 24th, 2012Someone from Chicopee, MA writes:
I had really bad reaction because of lupron. I started it for my IVF protocol. But on next day I felt really bad: it started with fever (101.6), terrible headaches and fatigue. It took 2 months to find out the reason of such a bad health condition. I had to stop my IVF protocol. And that cost a lot of money and time. I did tones of blood-work, MRI, MRA, MRV, Heart echocardiogram, kidney CAT scan and bunch of others. Finally they (doctors) found the reason, because they didn't find any other reasons.REPORT COMMENTS
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Nov 24th, 2012Someone from Rincon, GA writes:
This injection is dangerous it needs to be taken off market . Permanent side affects from this toxic stuff people should be warned before taking this. Very frustratedREPORT COMMENTS
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Nov 21st, 2012Someone from Denver, CO signed.
Nov 19th, 2012Someone from Wilmington, NC writes:
I am on it to put me into chemical menopause for my breast cancer treatments and I cannot believe the bone pain. I am hobbling on my left foot, both elbows are inflamed, and I never taking this again.REPORT COMMENTS
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No, CancelNov 19th, 2012Someone from Wilmington, NC writes:
I am on it to put me into chemical menopause for my breast cancer treatments and I cannot believe the bone pain. I am hobbling on my left foot, both elbows are inflamed, and I never taking this again.REPORT COMMENTS
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No, CancelNov 18th, 2012Someone from Mount Pleasant, SC signed.
Nov 15th, 2012Someone from Walker, MO writes:
I was on this for fertility treatments...I continue to have swelling in my feet and hands. The joint pain is horrible. I am only 33, but I feel like I'm 80.REPORT COMMENTS
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No, CancelNov 15th, 2012Someone from Altadena, CA writes:
Very bad side effects - used the treatment for heavy bleeding due to fibroids. Few months latter I have hyperthyroidism - joint, muscle, bone pains, headaches, insomnia, memory loss, etc.REPORT COMMENTS
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No, CancelNov 15th, 2012Someone from Arcata, CA signed.
Nov 15th, 2012Someone from Pensacola, FL signed.
Nov 15th, 2012Someone from Clarkston, WA signed.
Nov 15th, 2012Someone from Rancho Cucamonga, CA signed.
Nov 10th, 2012Someone from Flint, TX signed.
Nov 9th, 2012Someone from Fresno, CA writes:
1 am only on my first shot and have been sick constantly, nausea, migraine, back ache, sleeplessness, cramps, just miserable...REPORT COMMENTS
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No, CancelNov 9th, 2012Someone from Hollywood, FL signed.
Nov 9th, 2012Someone from Turlock, CA signed.
Nov 9th, 2012Someone from Brookline, MA signed.
Nov 9th, 2012Someone from Lutz, FL writes:
I took Lupron 20 years ago for endometriosis. I am now 40 years old and have extreme joint pain and osteoporosis. I also suffer from extreme fatigue that I fight every day. I always wondered if this drug had something to do with all the pain I have.REPORT COMMENTS
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No, CancelNov 8th, 2012Someone from Tuscaloosa, AL signed.
Nov 8th, 2012Someone from Tuscaloosa, AL signed.
Nov 8th, 2012Someone from Pelham, AL writes:
I took a one month injection on March 7, 2012. I experienced horrible side effects - not mentioned to me. The side effects set in almost immediately and are still affecting me to this day. I was only informed of a few of the side effects. I think a informational pamphlet should be created and given to the patient before they make the decision. Also, the patient should be aware of the long term side effects before agreeing to Lupron and drugs like it.REPORT COMMENTS
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No, CancelNov 8th, 2012Someone from Franklin, TN writes:
I was diagnosed with endometriosis via laparoscopy in April 2010, and since then have been on numerous birth control pills, a depo-provera injection, and am currently in the middle of my second 2-month Lupron injection. It has done very little for my pain, and instead I have to deal with confusion, memory loss, muscle weakness, and incredible joint pain and stiffness, particularly in my fingers, hands, and knees. When brought up to my doctor, all she could say is that she's never heard of Lupron causing these symptoms with anyone before. Like many others, I feel brushed aside and am treated as though all of this is made up. Please, the adverse side effects are REAL and much more DANGEROUS than the public is lead to believe! This information needs to be brought to light!REPORT COMMENTS
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No, CancelNov 8th, 2012Someone from Cincinnati, OH signed.
Nov 8th, 2012Someone from Blackstone, MA writes:
I was diagnosed with endometriosis 10 years ago (14 years old). I have had 7 surgeries since then, currently recovering from my 7th. I have tried the combination pill, progrestrone only, agestrone, and Lupron. I was on Lupron for 6 years (no breaks), progressively getting more and more potent (finally ended on 33.75 mg--I was told I was the only person this has ever been done to). I now have more issues than I could have ever thought I would because of Lupron (osteopenia, arnold chiari malformation of the brain, empty cella syndrome, among other minor issues). I was told recently by my newest doctor (4th one, other 3 gave up on me) that the length of time and dose I was on was medically irresponsible. After going of Lupron, I have chosen to go untreated for the last 4 years because of my fear of medications. This drug is horrible and destroys lives.REPORT COMMENTS
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No, CancelNov 8th, 2012Someone from New York, NY signed.
Nov 8th, 2012Someone from Clark, NJ signed.
Nov 8th, 2012Someone from Wayland, MA writes:
I was given this drug to treat my endometriosis when I was only 15 years old! It caused severe swelling and joint pain, I'm 22 and I still have joint pain. I was very thin at 15 and the bones of my joints in my ankles and wrists stuck out but with lupron, my joints were so swollen you couldn't see the bones! Then my doctor told me I was lying when I showed him what was happening to me and told him how much it hurt - he didn't believe me! I can't count on my doctor to protect me, he didn't. Now it's your job. Please protect your daughters, your wives, your nieces, sisters and your mothers from this horrific drug. Women are counting on you to do your job and protect us from the drug company on this one important issue. This is a public safety issue, this is why we showed up at the polls to vote for you. There are five million women suffering in the US from endometriosis, stand up beside us, stand up for us and protect us. And while you're mustering support from both sides of the aisle, from people whose daughters and sisters and wives suffer like I do, remember us, take action do us one better - fund research for awareness and for a cure. A cure is what we really need. At it's best, Lupron may provide temporary relief, but it's at the cost of danger and more pain, so much more pain, and even death. If you saw someone beating a woman, would you stop it if you could? You can, you can stop this drug company from hurting desperate women and young girls - and then you can remember us and work for a cure. Help us, help us, help us! You are the only people who can. Please, if it would make any difference I'd get on my knees and beg. HELP!REPORT COMMENTS
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No, CancelNov 7th, 2012Someone from Leander, TX writes:
Ive had lupron depot with 2 different obgyn's. My last treatment was more aggressive approach with these shots for endo. Shortly after lupron was given I was hospitalized numerous times for muscle pain, stomaxh pain, diahrea, lower back pain nausea, weight loss body aches and much more. I also discoveries a lump on the back of my hip also that wasn't there before. I have no sex drive what so ever and it's been close to 9.months since i received my treatment. 2nd lupron treatment started after my 3rd lap. For endo.This is unacceptable!!!! Please help!!!!! This is just the tip of the iceburg for my ongoing symptoms since during treatment and now!!!! marriage is suffering bc of this.REPORT COMMENTS
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No, CancelNov 7th, 2012Someone from Leander, TX writes:
Ive had lupron depot with 2 different obgyn's. My last treatment was more aggressive approach with these shots for endo. Shortly after lupron was given I was hospitalized numerous times for muscle pain, stomaxh pain, diahrea, lower back pain nausea, weight loss body aches and much more. I also discoveries a lump on the back of my hip also that wasn't there before. I have no sex drive what so ever and it's been close to 9.months since i received my treatment. 2nd lupron treatment started after my 3rd lap. For endo.This is unacceptable!!!! Please help!!!!! This is just the tip of the iceburg for my ongoing symptoms since during treatment and now!!!! marriage is suffering bc of this.REPORT COMMENTS
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No, CancelNov 7th, 2012Someone from Leander, TX writes:
Ive had lupron depot with 2 different obgyn's. My last treatment was more aggressive approach with these shots for endo. Shortly after lupron was given I was hospitalized numerous times for muscle pain, stomaxh pain, diahrea, lower back pain nausea, weight loss body aches and much more. I also discoveries a lump on the back of my hip also that wasn't there before. I have no sex drive what so ever and it's been close to 9.months since i received my treatment. 2nd lupron treatment started after my 3rd lap. For endo.This is unacceptable!!!! Please help!!!!!REPORT COMMENTS
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No, CancelNov 7th, 2012Someone from Leander, TX writes:
Ive had lupron depot with 2 different obgyn's. My last treatment was more aggressive approach with these shots for endo. Shortly after lupron was given I was hospitalized numerous times for muscle pain, stomaxh pain, diahrea, lower back pain nausea, weight loss body aches and much more. I also discoveries a lump on the back of my hip also that wasn't there before. I have no sex drive what so ever and it's been close to 9.months since i received my treatment. 2nd lupron treatment started after my 3rd lap. For endo.This is unacceptable!!!! Please help!!!!!REPORT COMMENTS
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No, CancelNov 7th, 2012Someone from San Diego, CA signed.
Nov 7th, 2012Someone from Austin, TX writes:
I can not believe any doctor would prescribe this medicine. It has taken my on a painful down ward spiral. A year ago i loved everything about my life. After starting this treatment I can barely get out of bed. Since my first injection i suffer from Bone/ joint paint, 20lbs weight gain ( i am a yoga teacher and an extremely active healthy person), severe depression, irregular heart rate, no sex drive, hypothyroism, endocrine system problems,low vitamin d and well the list is actually twice this long but you get the point. I had to have an additional surgery to remove my endometriosis six months after the first surgery and 3 months after stopping lupron. This medicine did no good and caused a substantial amount of damage. Please investigate this drug and remove it from the market. It does way more harm that good.REPORT COMMENTS
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No, CancelNov 6th, 2012Someone from Bolingbrook, IL signed.
Nov 6th, 2012Someone from Beaumont, TX writes:
I've been taking this lupron shot for 5 months and still have a month left on it.I've been suffering from all these hormone changes.the depression has got worst each month I've been on it.lots of hot flashes but my dr explained that would happen.I pour sweat off of me at times.I can't sleep.some nights I lay in bed so miserable an cry until all hours of the night.I can't seem to find any energy most days.I don't know yet if it has helped but I do know I've barey had any endometriosis syptoms the last few months.I found this sight trying to figure out why I'm feeling so crazy.its midnight and I'm so tired but here I am again wide awke because I can't fall asleep.this is horribleREPORT COMMENTS
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No, CancelNov 5th, 2012Someone from Brownsville, WI signed.
Nov 5th, 2012Someone from Bolingbrook, IL writes:
My wife has had many of the horrible, debilitating side effects listed on this web page since having the Lupron treatment back in 2005, some of which still affect her today / never get better. She even stopped getting the shots before the full treatment was over, due to what it was doing to her at the time. What a terrible mistake it was for her ob-gyn to recommend she take the treatment (for her severe endometriosis). And worst of all, there is no way to take back having been on it - some of these effects are permanent. PLEASE CONSIDER SKIPPING THIS HARMFUL TREATMENT IF YOU HAVEN'T ALREADY!REPORT COMMENTS
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No, CancelNov 3rd, 2012Someone from Canon City, CO signed.
Nov 3rd, 2012Someone from Roxbury, VT writes:
This drug is being handed out with increasing frequency, often with little or no explanation of the risks and side effects being given to the patient ahead of time. I have used it for a total of 12 months, and do believe it may have a place in the treatment of a few medical conditions. But women (and their doctors) need ALL the facts in order to make an informed and healthy decision regarding their treatment, just like with any drug. Currently women in desperate situations are being taken advantage of by the drug company seeking to make a buck and hide the consequences.REPORT COMMENTS
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