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Investigation into Lupron Side Effects (Leuprolide Acetate)
Public Comments (5,065)
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Jun 12th, 2015Someone from Sealy, TX signed.
Jun 12th, 2015Someone from Giddings, TX signed.
Jun 10th, 2015Someone from Elyria, OH signed.
Jun 10th, 2015Someone from Azle, TX writes:
I have not been able to return to work since I was given 3 Lupron injections. Soon after diagnosed with Fibromyalgia. Suffered from Severe back pain, Insomnia, Nueropathy, Severe foot pain, Short Term Memory Loss, Severe weakness in arms & legs. (Suffered from many falls, causing head injuries, along with shoulder, elbow, knee injuries. Please, Please take it off the market until long term research of side effects is done.Jun 9th, 2015Someone from Brooksville, FL signed.
Jun 8th, 2015Someone from Beverly Hills, CA signed.
Jun 5th, 2015Someone from Palmyra, NE writes:
I have been diagnosed with serve vitamin d deficiency. Degenerative disc disease. I am thirty years old. Mother for kids and I am unable to play with them like I use to. Please look in to this. I took the injections for a while.REPORT COMMENTS
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No, CancelJun 5th, 2015Someone from Palmyra, NE writes:
I have been diagnosed with serve vitamin d deficiency. Degenerative disc disease. I am thirty years old. Mother for kids and I am unable to play with them like I use to. Please look in to this. I took the injections for a while.REPORT COMMENTS
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No, CancelJun 4th, 2015Someone from New York, NY writes:
To Congress I was diagnosed with Prostrate Cancer and received Lupron injections. Almost immediately I started having Hot Flashes where I would sweat profusely and than get very cold. I lost all of my energy; had serious difficulty with urination; dizziness; joint pain; back pain; extreme emotional mood swings that I could not control, and I was unable to sleep at night. Three weeks after receiving my final lupron injection; I had a brain stroke that effected my ability to talk and I had limited use of my right leg and right arm. After being in the hospital for over 3 weeks, I was able to walk with a walker but I no longer had any quality of life, as I have become an invalid. My joint pain and back pain got even worse even though I was no longer getting Lupron injections. I was in so much pain that I had to have emergency back surgery. I developed Pneumonia while recovering from the back surgery in the hospital. The shape of my legs and toes have changed drastically due to what I believe is a loss of bone density. I recently saw a Doctor who performed a knee operation on me two decades ago (I needed Cortisone shots because of my extreme knee pain). My Doctor was shocked at how bow-legged I have become as I always had perfectly straight legs. My toes have also changed shape and now curl downward making it painful to walk with the walker. None of the side effects I developed after taking Lupron have ever gone away with the exception that my back pain has decreased after having surgery. I was never told about any of these horrific side effects by my Doctor, although he said that I may gain weight while taking this drug. Please pull this horrific drug off the market because it has destroyed my life. Respectfully, Youssef RizkallahREPORT COMMENTS
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No, CancelJun 4th, 2015Someone from Fort Payne, AL signed.
Jun 3rd, 2015Someone from El Cerrito, CA signed.
Jun 2nd, 2015Someone from Oakland, CA writes:
I'm suffering currently most of the negative, painful side effects, i was not aware the total lack of long term side effects studies about Lupron.REPORT COMMENTS
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No, CancelJun 1st, 2015Someone from Santa Fe, NM signed.
Jun 1st, 2015Someone from Acworth, GA writes:
I received this injection twice in 2012. I was 24, suffering from Endometriosis, had already had a failed laparoscopy. My OBGYN at the time recommended this, biggest mistake of my life. I am now 27 years old, I have not had a period since Jan of 2012, I suffer from horrible night hot flashes even when my apartment is 50 degrees, I wake up covered in sweat. My body has not been the same since this injection. I have underwent 2 laparoscopies countless birth control tweaks, progesterone treatment and nothing. I also, still suffering from debilitating cramps, migraines, lower back pain and gained over 55 pounds. I fear this is irreversible damage.REPORT COMMENTS
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No, CancelMay 31st, 2015Someone from Kirkland, WA writes:
My Dr. did not explain to me the possible strong side effects of this drug. I was working and now after just *3.5 weeks* of lupron I am entirely debilitated. I can barely do my own self-care activities due to the joint and muscle pain, extreme fatigue, daily diarrhea, severe depression, even thoughts of ending my life. I had stage 1 endometriosis. I feel I have been poisoned. Have had 2 trips to the ER already. I have no doctor able to help me. Now I read that for many these effects are permanent. I am simply beside myself with lost hope. Last month I was employed as a healthcare worker. Today I can barely walk to get the mail and want to die.REPORT COMMENTS
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No, CancelMay 31st, 2015Someone from Fairview, OR signed.
May 31st, 2015Someone from Salem, NH writes:
As i sit here in shock and awe... Makes me wonder... Has anyone received or benefited from this drug? And sooo many people have the same side effects... Do the math it doesnt add up to the (profitable) margin.. What is the recorded ratio of people walked away well to those whom lives where made worse than first diagnosed? Just curious.... Does the government have this information.... As far as i can tell the studies weren't long enough to be approved... Hearing all these horror stories... Someone should be ashamed of themselves.....REPORT COMMENTS
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No, CancelMay 31st, 2015Someone from Salem, NH signed.
May 31st, 2015Someone from Key West, FL writes:
I did two shots of Lupron Depot (6 months worth) for endometriosis. I was never told about possible bone loss or any of the side effects I am now experiencing. I have been off of the Lupron for almost 2 years now. My depression is terrible. My anxiety is terrible. My TEETH are literally crumbling. I have lost all of my upper molars, except for the parts of the teeth that remained after they broke at the gumline. I had to stop working because my memory was going. I had a great job as a paralegal, and now I sit home, wondering how I am going to afford the over $10,000 worth of just dental work I now need done. I am so angry!!! I cannot believe this drug is STILL on the market! It did nothing to make me better, and now I am worse off than I was before I was given it. I've broken bones that shouldn't have broken very easily and am scared to death to get a bone density scan. When I mentioned Lupron to my dentist, the look on his face was all I needed to see to know that I am not alone out there, and that he's seen and heard of this before. He will not do any work on me because he is afraid there will be more problems. I cannot eat properly anymore. I feel I am wasting away. This drug is terrible and the drug company, FDA and doctors pushing this drug need to be held accountable for what it is doing/has done to so many of us!!!REPORT COMMENTS
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No, CancelMay 31st, 2015Someone from Yonkers, NY signed.
May 29th, 2015Someone from West Nyack, NY writes:
I am a victim of Lupron. A few years of injections every 90 days. Post hysterectomy endometriosis/ovarian Remnant Syndrome. It has destroyed my life. Is there any Doctor out there that won't turn away and stay silent when I say the word Lupron!? I am losing my life slowly from this evil drug. I live in New York.REPORT COMMENTS
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No, CancelMay 28th, 2015Someone from Laguna Niguel, CA signed.
May 28th, 2015Someone from Saint Cloud, WI signed.
May 27th, 2015Someone from Madison, SD writes:
I have undergone constant hot flashes anxiety, depression, bone/joint pain. I've had disk disease resulting in back surgery,osteoarthritis resulting in broken bones and severe pain. I am sick on a non-stop basis. People need to be warned about this drug.REPORT COMMENTS
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No, CancelMay 27th, 2015Someone from Saint Johns, FL signed.
May 26th, 2015Someone from Clarkston, MI writes:
We deserve more from our doctors, from our government and from the FDA. Lupron prescription is an injustice to women. WE DESERVE BETTER.REPORT COMMENTS
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No, CancelMay 26th, 2015Someone from North Andover, MA signed.
May 26th, 2015Someone from North Andover, MA signed.
May 26th, 2015Someone from Salem, NH signed.
May 26th, 2015Someone from North Andover, MA signed.
May 26th, 2015Someone from Haverhill, MA signed.
May 25th, 2015Someone from Brooklyn, MD signed.
May 24th, 2015Someone from Tucson, AZ signed.
May 24th, 2015Someone from Hoquiam, WA writes:
Took my 5th dose a few days ago. I choose to trade the pain of endometriosis for the pain of Lupron. I currently feel like I climbed Mt. Rainier yesterday, when I really didn't do anything. I wish there were better treatment options for women.REPORT COMMENTS
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No, CancelMay 24th, 2015Someone from North Andover, MA signed.
May 22nd, 2015Someone from Seattle, WA signed.
May 21st, 2015Someone from Hollywood, FL writes:
Taking this drug was the worse decision I've ever made. I took this drug over 15 years ago and I am still suffering from side effects.REPORT COMMENTS
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No, CancelMay 21st, 2015Someone from Elk Grove, CA writes:
I had two month injections that caused severe fatigue, generalized joint and muscle pain, migraines, numbness in hands all of symptoms started 5 days after injection in January 2015.this drug should not be used on anybody due to the risk of catastrophic side effects that alter people's lifeREPORT COMMENTS
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No, CancelMay 21st, 2015Someone from Huntington Beach, CA signed.
May 21st, 2015Someone from Irmo, SC writes:
I had a course of the lupron depo and I now deal with the diagnosis's of fibromylagia, connective tissue disease, ibs, tachycardia, insomnia, raynauds and depression. I ended up having a partial hysterectomy and the endo is back. The doctor said he could start me on the Lupron and I would probably have to be on it indefinitely and I said NO due to the complications and I had during it such as bone loss and major depression while on two depression meds I still had bad depression now I am dealing with long term affects from this injection. Something needs to be done about this and doctors need to be educated.REPORT COMMENTS
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