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CHRONIC PAIN PATIENTS\' PETITION FOR REINSTATEMENT OF RIGHTS

Public Comments (796)
  • Mar 15th, 2017
    Someone from Hayden, AZ signed.
  • Mar 7th, 2017
    Wendie B. from Mandeville, LA writes:
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    This is inhumane! So many people will have no choice but to commit suicide for relief of their diseases or injuries. Remember you took an oath to cause no harm. Please have !mercy on these patients.
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  • Mar 6th, 2017
    Keith R. from Lakeside, AZ signed.
  • Mar 2nd, 2017
    Jim M. from Medical Lake, WA writes:
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    Need to find alternative yes, but simply "cutting" people from this is unsafe in many areas and without a feasible backup makes zero sense.
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  • Mar 2nd, 2017
    Renee M. from Medical Lake, WA writes:
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    Since the guidelines, I have suffered so much with savage chronic pain and have lost my doctor of 14 years because he cared about his pain patients. Most doctors just don't hand out pain pills, in my case we tried everything, medications, theraphys, counseling, massage, prolotheraphy, all the nerve blocks and other injections, herbs and etc. After everything else failed, then I started on low dosages of pain medications, finally getting relief. I have Central Pain Syndrome, there is no cure or treatment other than pain medications and some anti seizure medications to ease our pain, which if you read up on it, every year your pain worsens from the last year. Please stop this insane guidelines and instead I agree with a pain contract, if you are using your medications as prescribed then you will do fine, but if you are an addict and sell or over use it, then you should be taken of this life saving medicine. Real Chronic Pain Sufferers deserve relief, so that we too can enjoy our life. Imagine if you have really bad cerebral palsy and there was this pill you could take to let you experience life as normal as possible, out of the wheel car, your arms and legs move as intended and such, the world would be calling these doctors and the CDC monsters for taking this God Blessed pill away, worried that cerebral palsy patients might enjoy life TOO MUCH! I know it doesn't make sense, but that is how I feel about the CDC's guidelines on Pain medications, not heroin, not crack, not meth, but a pharmaceutical pill to lessen a person's chronic pain. Please stop this insanity and keep us on the medications that help and if you are worried about us becoming addicts, then create another option that will ease our pain first before you take away the only thing out there that has given me my life.
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  • Feb 28th, 2017
    Someone from Rockville, MD writes:
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    This is really sad. I am dealing with chronic pain. I have never abused Vicodin but now I feel like a criminal for asking. The new CDC/Dea laws are punishing real people, who just want to have some quality to their life. If anyone can tell me who to contact, I will. I am 66 years old have been taking Vicodin for many years with no problem. Now the new guidelines, make people that are in terrible pain feel worse and scared
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  • Feb 24th, 2017
    Valerie B. from Yucca Valley, CA signed.
  • Feb 23rd, 2017
    Someone from Stockton, CA writes:
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    This is very sad as I am a chronic pain patient ! I'm confined. To bed due to the pain !! Researching this problem on botb sides., Doczors are scared & are starting to tell the next generation not to become Doctors! Why because of the regulations & fear! They say - We can not treat the patients properly any longer ! My question is - since when did the DEA - get a degree to practice & why is it the handful of famous people who died made this to reflect on patients & Dr.'s! This is causing more problems according to a recent Documentary - chronic pain patients are going to the streets for medications. It's seems to me , that it's creating more problems! I have a rare disorder &. Many allergic reactions to many medications ! It's difficult to go from having a full active life n now down to just existing- we didn't ask to become sick n we suffer daily, Try to live the way we do for 1 week - there is no quality of life and no help now due to the interference of the DEA - A pharmacist gets fined 25,000 dollars for a missed signature - what will happen to our future generations. If both the pharmacist n Dr - go into different fields because of hefty fines, regulations , & not being able to treat patients freely - based on the education & what the Dr beloved is the appropriate treatment?
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  • Feb 22nd, 2017
    Someone from MISSION HILL, SD writes:
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    I agree and fully support this!!! Go after the real problem and leave the Chronic Pain sufferers and the Doctors alone!!!
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  • Feb 18th, 2017
    Someone from Jacksonville, FL writes:
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    My husband is a Vietnam vet and the va has stopped giving him pain medication. His va doctor says it comes from his boss don't get mad at him. Question. They are so worried about suicides from the ones (which are few) that abuse but what the hell do they think these guys like my husband will do now. They just want to get rid of older ones sooner.
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  • Feb 16th, 2017
    Cheryl H. from Meriden, CT writes:
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    I have been in chronic pain for 19 years now. I have Chiari malformation, degenerative disc disease, spinal stenosis,cervical spondylitis. I was on pain medication since 2000. Although I am disabled, I was able to do some part time work and was able to live a halfway decent life. The pain medication allowed me this. I was 39 when I was diagnosed and now I'm 55. I basically have no life now. I can barely function. Although I am still getting a very small amount of pain meds it is not touching my pain and my pain Dr. Will not give me the amount I need to be able to function. This is all due to the Crack down and new laws. This is not right. I followed every rule and never abused my meds. Yet I feel I am being ignored, pushed aside and treated like a criminal. Please make changes to allow pain management to treat each patient as they seem appropriate according to their needs. You cannot lump us all together and put a limit on the entire group. Pain management should be allowed to determine who is a risk for abuse. This is an atrocity! My basic human rights to live the best life I can has been taken away because of a problem I had nothing to do with. I beg you to consider my plea and those of other chronic pain patients.
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  • Feb 14th, 2017
    dianna n. from Hastings, NE signed.
  • Feb 14th, 2017
    Catherine C. from Houston, TX signed.
  • Feb 14th, 2017
    Someone from Warrenville, IL writes:
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    As a chronic pain patient, I will have no life without the pain medication that I so desperately need. I will be completely bed ridden, not even able to make it to the bathroom. I am only 37,and have a neurological condition that has no cure. Please, please don't take my only lifeline away from me! Not every chronic pain patient has misused their medications, please don't let the bad eggs ruin it for those who are completely compliant. Many people like myself have very little hope, and we find that hope in our family members. Please don't force me to not have the ability to even see them!
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  • Feb 12th, 2017
    Shawn B. from Arlington, TN writes:
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    Ridiculous that I have to suffer with degenerative disc disease and spinal stenosis. Also I had a cervical fusion Aug 1st 2016 and continue to ache. Absolutely ridiculous.
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  • Feb 6th, 2017
    Someone from Roseville, CA signed.
  • Feb 2nd, 2017
    Rhonda G. from Sacramento, CA writes:
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    We as Citizens need to take the power back away from the government the way this country is supposed to be ran there are so many people having chronic pain and with rare diseases they can't even get pain meds down they just have to suffer they are doing this to a lot of veterans as well as civilians. Something needs to be done
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  • Jan 26th, 2017
    Someone from Newark, DE signed.
  • Jan 25th, 2017
    Someone from Shelbyville, IN writes:
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    As you sit in your office a chronic pain patient is suffering in severe pain unable to get enough relief to get out of bed and be productive. As you sit in your office a chronic pain patient is taking their life because they can not get pain relief. Not only have the federal government played God with OUR lives they have let the states take it even further with some states making us refill every 7 days putting undue stress and burden on an already sick and worn out human being. The extra expense that you have all caused us is unreal! $1500.00 urine tests at least twice a year, $220.00 per visit at the pain doctor. We are forced to sign contracts under duress, treated as criminals and humiliated when we simply ask for help from the very people who are supposed to be helping us! This is all inhumane and needs to stop immediately! It will certainly be you or your loved one suffering one day in unrelenting pain and then who will stand for you?
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  • Jan 25th, 2017
    Michael J. M. from Clark, NJ writes:
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    The present policies on Opiod prescribing are NOT curbing the Heroin epidemic in America today. There will NEVER be a time when narcotics are not misused or abused. It's been that way since the dawn of man. But by punishing PATIENTS, they are forced to make serious decisions. If they can no longer have access to necessary pain meds, they are left with few options. One, to TRY and live in excruciating pain, two, to turn to the streets and Heroin or three, suicide. Tell me.....which is better? You have NOT cured or even helped the Heroin crisis, you are SUPPLYING it with new customers every single day! YOU created the narcotic epidemic. You are causing DEATHS! MORE than the drugs themselves, you now have a new era of suicide patients that is and will grow bigger and bigger every day!
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  • Jan 13th, 2017
    Bobby P. from Maysville, NC signed.
  • Jan 6th, 2017
    Nicole S. from Longview, WA writes:
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    The problem is heroin, not the patient with chronic pain. I was on pain medication for a very long time and never found myself looking for illegal drugs when I was done. It's not a gateway drug. People need to take responsibility and realize their children that die from overdose were drug addict before they ever started taking medication and leave people with chronic pain alone. They need their medication!! It's become ridiculous!!!! I've had numerous surgeries and it's like pulling teeth to have to get any refills of pain mess. You're treated by medical staff like you're some sort of vermin now, it's humiliating to ask and it shouldn't be that way!!
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  • Dec 24th, 2016
    Robert D. from New Milford, CT writes:
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    Three times more people die each year from alcohol related issues than from opioids. Drunk drivers kill thousands of innocent people. Shouldn't alcohol be restricted? Oh yea...we tried that already
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  • Dec 10th, 2016
    virginia h. from Chesapeake, VA signed.
  • Dec 5th, 2016
    David H. from Mesa, AZ writes:
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    The opioid epidemic is devastating indeed .... but does CDC have the right culprit? The Pain News Network published this: Fentanyl & Heroin Changing U.S. Opioid Epidemic November 19, 2016 By Pat Anson, Editor A prominent Alabama physician says the U.S. opioid epidemic has changed so profoundly in the last 3 years that a serious reconsideration of government policy is needed. STEFAN KERTESZ, MD states that "?Heroin and fentanyl have come to dominate an escalating epidemic of lethal opioid overdose, while opioids commonly obtained by prescription play a minor role,? Kertesz wrote in a commentary published in the journal Substance Abuse. Kertesz says the Centers for Disease Control and Prevention relied on faulty data and failed to address the changing nature of opioid abuse when it released its opioid prescribing guidelines in March. Since then, many pain patients have reported their opioid doses have been lowered or discontinued, while some have been discharged by their physicians and forced to seek treatment elsewhere. He likened the situation to Pontius Pilate washing his hands.
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  • Nov 19th, 2016
    Someone from Alvin, TX writes:
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    Stop abusing grandparents for younger adults that become addicted Taking away from us will only promote a new drug for them.
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  • Nov 12th, 2016
    Sam from Buckhannon, WV writes:
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    Making human beings suffer with out even a low dose of medicine for pain is evil, cruel and inhuman. The ones behind this have caused people to even die. "You are murders, just as well have Hitler or north Korea running our country. No wonder america is hated by its own people... Inhumane murders.
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  • Nov 11th, 2016
    April T. from Mesa, AZ signed.
  • Nov 10th, 2016
    Ellen C. from Cheraw, SC signed.
  • Nov 2nd, 2016
    Rebecca M. from Beverly, WV writes:
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    It is awful when you have to be practically bed ridden and pay someone to come and clean your house and help you with daily chores because the government has decided you can no longer get help for your pain. When I was getting pain medication I was actually able to due my own housework and still feel good at the end of the day. I was also 80 lbs lighter then I am now. Without help with my chronic pain my life is miserable trying to get around. I think someone needs to assist our government with chronic pain and no medication for awhile and let them feel what we feel everyday. No one but you and your Dr should have a say in your health. Now my Dr is telling me that unless I have CANCER SHE CAN'T HELP ME. I have never done marijuana but I am seriously considering it right now. That is awful.
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  • Nov 1st, 2016
    Karen G. from Roseville, MI writes:
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    Due to fibromyalgia I have pain that never goes away. I was on a Narco for 2 years and was able to have long periods of being active and enjoying life due to the periods of no pain. It's been over 3 yrs since I have had that medication and life is sometimes just unbearable dealing with this pain. I am so upset because abusers have made it. Impossible for a doctor to feel comfortable prescribing the medication that will help me... it's just wrong!!
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  • Oct 14th, 2016
    Jennifer B. from Geneva, OH writes:
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    I am signing this because I WAS a chronic pain patient that was living a functional, meaningful and quality filled life assisted by long term opioid therapy. Currently however, I find myself now significantly debilitated as a direct result of a huge decrease in my medications by my pain management physician based solely on the new CDC guidelines for treating chronic pain. I am now another casualty of this problem as is the case with thousands of other pain patients currently.
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  • Oct 7th, 2016
    Someone from Sutherlin, OR writes:
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    There isn't a place for government in the patient/dr. Relationship... this has gone too far! We have alcoholics and still sell booze! What's the difference here??
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  • Oct 3rd, 2016
    Rhonda G. from Sacramento, CA writes:
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    This is when our government has gone too far. When it allows people with chronic conditions to suffer in pain and not be able to get the right pain medications it is nothing short of evil and needs to be stopped. But the problem lies with the public also. There is power in numbers and we need to make our voices heard a government that is Run for the People by the people seems to be non-existent anymore. And people you have chronic pain and are suffering and dying should not be made a mockery of by trying to hand them psych meds for pain what a joke. I myself am a veteran with a chronic illness and I cry everyday from the pain that I am having after serving my country do you think that it's right for me to go through this? I don't.
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  • Oct 1st, 2016
    Amber V. from Amarillo, TX writes:
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    It is easier for me to get a hold of a recreational drug such as meth, heroine, or marijuana than it is to go to the doctor to get a prescription for Hydrocodone to help relieve pain on my worst days. I am not a drug addict but a chronic pain sufferer! I should be able to use my health insurance and go to my doctor to get a prescription to help with my medical condition. Instead, I'm laying here with suicidal thoughts after being in horrible pain for several days unable to get relief because doctor's are to afraid to prescribe anything stronger than a Tramadol. I pray I can sleep tonight and if I can sleep, I wake up in Heaven tomorrow so my suffering will be over. I'm 40 years old and have been living in constant pain since a car accident when I was 23. I try to work, care for family and home but many days I'm sentenced to bed in tears and pain. Unfortunately since the Opioid reform, I am no longer able to get a script for Lortab by my doctor's and I have run out. Now, the pain feels hopeless and never ending so I pray daily for God to put an ending to my pain.
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  • Sep 26th, 2016
    Someone from Horseshoe Bend, AR writes:
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    I agree with what other's that live in pain and use the medication to survive. Maybe some of these people who make these laws should have to go through the pain that all of us who use these medications and then maybe they would understand. Don't judge someone till you have walked a mile in their shoes.
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  • Sep 26th, 2016
    Someone from Horseshoe Bend, AR writes:
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    It's about quality of life or just give us a chance to try to live better. That maybe the right pain med will just once allow me to enjoy life alittle better if even for an hour; or just once maybe let me go to the park with my kids. Is that asking to much? Please let my doctor help me.
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  • Sep 26th, 2016
    Someone from Palestine, IL writes:
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    I am a pain patient and deserve the right to use what helps me.
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  • Sep 25th, 2016
    Someone from Kingsville, OH writes:
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    It's unjustified to conflate the millions who use pain medicine appropriately, with addiction, and calling it "dependence". Diabetics are dependent upon insulin, and we are all dependent upon air to breathe! A person needs a predisposition to addiction or an addictive personality to become an addict! Millions have taken opiates for decades without an escalation of dosage or craving heroin. Suddenly they are scrutinized, treated like criminals and drug-seekers, and are abruptly denied the medicine that's doing what it's designed to do; relieve pain, allowing them to work, function, care for themselves and their families, and participate in society. Shame on this government sponsored propaganda and discrimination against people in pain. It has resulted in the abuse, mistreatment, neglect, and abandonment of the ill, the elderly, the disabled, and veterans. People in pain did not create the heroin epidemic and the rise in street drug deaths! The United States, which considers itself a "civil society", should not use the weakest, most vulnerable citizens as scapegoats in the "War on Drugs".
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  • Sep 22nd, 2016
    Someone from Carmichael, CA writes:
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    they are not doctors nor do they have the right to draw conclusions they have no basis on. I am as responsible 59 year old woman with severe chronic illness. how dare they impose their blind whims. shame on them for taking the role of doctors..I'm thinking they know what is best for us when they haven't got a clue as to what's going on with us as individual patients and the pain we suffer every single day. back off!
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