Urge the CDC to take action against surging unexplained disease
Public Comments (2,563)
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Jun 5th, 2015Someone from New Freedom, PA writes:
OK It looks as though we are all suffering from the same type of affliction. I just wanted to add another bizarre (X-Files bizarre. Really) to the compilation of all of these other, scary-similar stories. My story started with a "fungal infection" that was (obviously) misdiagnosed by a well-meaning P.A. who was working at my local dermotologists' office. She prescribed me an antifungal topical, which cleared my female hot-spots (Groin, under breasts, underarms etc...) all except for my scalp. That is definitely something else all together. Fast-Forward to last week, A few days before the "mystery bugs" that have been so well described, by hundreds of should-be-patients have described on this site-came-a-calling into our home. So far, it's only me itchin' & doing the "I Itch Danggit" Dance." Well, my two little dogs, and one very sociable cat, as well. I think the rest of our home was clear, but Mr. Cat is tippy-toeing everywhere, so who knows. OK, so it's pretty much the same story that's been told a lot on here... No-See-Ums whose bites wake me up at 2:30-3AM & keep me up etc... Here's where it gets odd. The sweet, kind, caring P.A. Who I saw six weeks ago " Is no longer with this dermotologists' office." They send in New Guy. This tool isn't even wearing gloves. He touched me 2x & both times, he Dove, Olympic Diver-Style for the hand sanitizer, after touching me. I had Zero, Zilch, Nada. None of the signs or symptoms for scabies. He was in the room with me for -
Jun 1st, 2015Someone from Plano, TX signed.
Jun 1st, 2015Someone from Pleasant Grove, AL writes:
No one should have to live in misery, suffering from this parasite. Thousands of people are being diagnosed as delusional! fund research for this horrible medical issue and provide some help!REPORT COMMENTS
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No, CancelMay 30th, 2015Someone from Lawrenceville, GA writes:
I have been suffering since 2012. The medical doctors I saw first did absolutely no testing and called it delusional. Come to find out it is a combination of several parasitic infections that actually escaped thru my colon into the body cavity and be is in the skin from a bug bite received in Mexico several years ago.. My new ID doctor has been so wonderful. He at no time ever mentional delusional. It has taken way too long to get here and way to much unnecessary medical costs not to mention the horrible affects it has had n my body in a whole. I actually used horse medication as a cream on my skin and I will always say this is what saved me from dying. It had both ivermectin and praziquantel in it. It is so sad how doctors are allowed to dx any patient as delusional and it be allowed. This is where we need to start, this will make them do the needed test !!! It will make them accountable!!!! Have them complete an extensive course on parasites. We, as a nation, are probably infected worse in the US than any other 3 rd world country. They need look at things when diagnosing. If your on Prednisone then your Eosinphil levels may not be elevated. Don't use alcohol to prep skin for biopsy, this makes the parasites leave that area. Alcohol is one of 3 chemicals that affect them. Realize that the sores on the arms is the point of entrance, mainly because that area is the most exposed. Realize that the sores only come from dying parasites and cysts and look to see if Ivermectin, premethrim cream used or some other drug to cause worm death. Very easy to identify. Cover completely with vasoline for at least 4 hours, the cyst will come from middle while the adult worm is pulled way from frame of sore. But getting it tested is another thing. Most pysicians think o&p done with stool is all that should be tested. There is a test called, prasite ID worm. Make aure when you pick up container they use an alchol solution in the contain, it will kill the parasites but it will not dissolve it like formalin does. There are way to many doctors, including infectious disease doctor, that just don't have the education. I actually had a Dr Sexton, at Emory Infectious Disease, and I quote, tell me "in order for you to have a parasite infection in the US, you must have aids" my husband didnt think he heard her correctly so he ask her to repeat. I do understand she is a fellow, but the other doctor with her agreed with her. So both lady doctors said this. I had another doctor who teaches dermatology tell me there could be nothing left in my body after Ivermectin. So sad because the 3 that I have are treated with Praziquantel. Ivermectin does not have any affect on them. My husband think that if a doctor cannot and does not help you he should have to refund your money or not charge you just like a good mechanic would!!! There is so much more that I have self taught myself since I have been so sick. One thing that does help to remove the small ones from the skin, is put oneREPORT COMMENTS
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No, CancelMay 28th, 2015Someone from Alvarado, TX writes:
Unexplained? Oh, I beg to differ. What kind of disease do you suppose comes from countries all over the world that slaughter animals like the numbers of raindrops? Dogs, cats, ANY animals. Do they really think burying animal waste makes the germs and disease from these dead animals just goes away? And people just never seem to learn and stop the killing of aninals. So the "merry go round" of animal abuse and disease in humansand animals just keeps going around and around and around......... Human Beings are are there any compassionate ones left in the world?REPORT COMMENTS
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No, CancelMay 28th, 2015Someone from Alvarado, TX writes:
Unexplained? Oh, I beg to differ. What kind of disease do you suppose comes fro countries all over the world that slaughter animals like the numbers of raindrops? Dogs, cats, ANY animals. Do they really think burying animal waste makes the germs and disease from these dead animals just goes away? And people just never seem to learn and stop the killing of aninals. So the "merry go round" of animal abuse and disease in humansand animals just keeps going around and around and around......... Human Beings are are there any compassionate ones left in the world?REPORT COMMENTS
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No, CancelMay 23rd, 2015Someone from Rochester, MN writes:
Docs wont even test for known parasites unless you have been out of the country. This is the main problem since we all share the same public space like door handles and handshakes with many that do or roomates or former apartment renters ect. I worked directly with parasites and still cant get anyone to test. They just treat symptoms causing my disability. New DNA tests just came out and can identify new unknown strains. They are much more accurate than current testinG so this isnt the last of us. comprehensive stool analysis pcr testing will be the standard soon to ensure docs address the root cause and stop covering symptoms with expensive and damaging drugs like it is 1950 still. The groupthink atmosphere runs deep in medicine and is quick to label anything 'mental ly ill' that it doesnt understand. Lots of examples in medical history such as the doctor that discovered that handwashing cant prevent disease was sent to the luney bin not to be vindicated long after he died.REPORT COMMENTS
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No, CancelMay 23rd, 2015Someone from Los Angeles, CA signed.
May 18th, 2015Someone from Marion, IL writes:
Been suffering since Apr 2014,in the process of losing everything because 4our government doesn't care about US!REPORT COMMENTS
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No, CancelMay 15th, 2015Someone from Beaverton, OR writes:
It cut off the rest of mine but it's important. I'll keep this short. If you have pets.. they have it too. Here is the cure for me at least. All my symptoms are exactly the same as all these horror stories so please listen. 1. Get t-plus shampoo from walgreens. 11 dollars. Use as shampoo and body wash.. my skin and red bite bumps almost instantly went away. After letting that sit for 10 full minutes in the shower, wash off. 2. Same shower, Use 80 percent bleach 20 percent water, give or take .. rub all over your body every single shower. Let sit as long as you can.. at least 2 to 3 minutes. Yes including hair. And no my hair hasn't changed colors from this. Do this once daily. Twice isn't even needed but you can if you want. Now.. If you have pets.. Mix the t plus with flea shampoo that has oatmeal in it. Get dog or cat wet and rub the shampoo in and let sit for 10 min. You'll feel a burning sensation from their fur on your hands cause the mites are basically dying and hopping all over freaking out. Use color safe bleach on your clothes when doing laundry. At the worst symptoms I've had, I started doing this and had no washer and dryer.. I went 2.5 weeks without doing laundry and I only own 3 pairs of jeans ok.. and as long as I did this in the shower every day once a day, and bathed my dog every 2 days or so.. symptoms almost completely gone. So much so, I realized doing laundry and steam cleaning and all that sh** isn't as important as cleaning any living thing in your house. You, animals, and I guess you can put t plus in your carpets but I didn't and it worked well still. This is coming from someone who was getting lock jaw from it and lost 50 percent of my hair on my arms and dog started losing fur on his face and itching and crying. I DO notice immune system totally makes a difference. If I drink or smoke weed I instantly will feel it a little.. If I'm drunk drunk I'll get really itchy. So on. Just take a little better care of yourself, take some pro biotics, and follow my show techniques plleeaasse. You want answers ? I searched online 12 hours a day for weeks to figure this out. Promise you won't regret it. Just don't use so much bleach that you burn your skin cause my ex used straight bleach on her face and skin got burnt on her face for a few days. Also.. If I went 3 days or more without washing my dog, it started coming back. Good luck everyone ! Hope this helped. It's the cheapest and by far most effective way.REPORT COMMENTS
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No, CancelMay 14th, 2015Someone from Hammond, IN writes:
Please Help us, I have dealing with this bird mite situation since February,but actually even earlier I just thought it was fleas. My Husband and oldest son don't seem to be affected by them. It is causing me, my youngest son and my Mother who lives with me, mel anguish! Beside the bird mite problem, we now have fiber like parasites on us, I have no idea what connection they have to bird mites,but they are in our hair and skin it is really disturbing. Please help us, there are so many of us, please don't leave us helpless!REPORT COMMENTS
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No, CancelMay 14th, 2015Someone from Houston, TX signed.
May 14th, 2015Someone from Georges Mills, NH writes:
I cannot believe with today's modern medicine that this mite disease, scabies, is taking over my life. I have stopped traveling and staying in hotels, as I think I may have been infected while on vacation. Money that should be spent on travel and vacations is now being spent on doctors' visits, RX meds, and over the counter products to try and rid myself of this infestation. Nothing is working, and I almost feel no hope. I am afraid to touch anyone, and I would love to hug my grandgirl. So much is being taken away with this constant itch, and sleepless nights. I don't know how health can be rebuilt on nightly sleep of 3 hours. Scabies is not a death sentence; you don't die from it, but your whole life falls apart from it. Please fund money for research to fight this major health issue.REPORT COMMENTS
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No, CancelMay 13th, 2015Someone from San Antonio, TX writes:
Hello. I have been dealing with skin parasites for over 2 years now. I still have to work and try to eradicate them from my car especially. They are little demons. It all started in my prior home where they found 6 birds nests in the attic. It soon spread to my entire family. Congress please help in the name of Jesus I pray.REPORT COMMENTS
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No, CancelMay 13th, 2015Someone from Woodbridge, NJ signed.
May 11th, 2015Someone from Ogden, UT signed.
May 8th, 2015Someone from Sparks, NV writes:
My boyfriend and I have had bird mites almost a year now. So many people are suffering out there and it makes me so sad when I read these stories. We left everything behind (Denton, Texas) and went out into the world, changing hotels every day so not to infest any place. We brought nothing with us and bought different clothes every day (from thrift store, washed them before wearing them). We thought initially that it would take a couple weeks to get rid of them once we were out of the house that was infested, but we were very wrong. It has now been 8 months, we have tried almost everything out there that other people have used to get these out of us but these things are very strong and become immune to things very fast and reproduce like crazy. That is right all you close minded doctors and entomologist, these things were reproducing off of our blood, how else would they stay with us for 8 months after leaving the infested place. It is as if doctors and entomologist don't believe that there is anything new to discover in this world, wow, now that is true ignorance! There is a yahoo site all of you out there can join to email or talk to other people who have gone thru this or are going thru right now. It have been extremely helpful to me and my boyfriend, there are people on this site that have actually beat these things. We started talking with a guy on the site that got rid of them and he is now helping us. Please don't suffer in silence anymore, there are people who care and want to help you. I know when I beat this (we are so close now), I will be there for anyone who needs help.REPORT COMMENTS
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No, CancelMay 7th, 2015Someone from Irving, TX signed.
May 6th, 2015Someone from West Deptford, NJ signed.
May 2nd, 2015Someone from Tulsa, OK signed.
May 1st, 2015Someone from Indianapolis, IN signed.
May 1st, 2015Someone from Los Angeles, CA signed.
Apr 30th, 2015Someone from Olathe, KS writes:
I have been dealing with this for almost 2 years on and off. My husband's work was infested wit scabies and then my work was, we both work at nursing homes. Then I got a new job and there were scabies infestationo there too. Everyone ignored the issue at my jobs. My husbands work had everyone treated but only one time and they were supposed to do a second treatment. My dermatologist thought it was staff and put me on antibiotics and water pills and after 3 months no change. I have been using premetherin cream every day and thousands of black specs are coming out of the sores. I hope to get some real help from a professional soon because this has ruined my life.REPORT COMMENTS
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No, CancelApr 29th, 2015Someone from Bluefield, WV signed.
Apr 28th, 2015Someone from Ventura, CA writes:
i dont know what to think...i am shocked at the numbers of people affected, there is no response on any meaningful level. suicide has cross my mind, if it were not for the love of my family and community, who knows how it will end. do soemthing, i am a fan of all the "danger foods" high in pesticides, so that stops, treating oneself is neverending, its very anxiety producing......please help..... ps, it seems those with strong immune systems can not catch it on any form....i have witnessed many people go thru my environment and they are all fine. i have MS and this could be paritally an oppty for it to affect me. no sane person could manage this alone. NOXEMA skin cream and iuts genreic equivalent arrest development of lesions, as long as you have NOT picked...menthol, whatever it is , helps clear. but its still in me. help me please ans all of us who are writing. it is real.REPORT COMMENTS
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No, CancelApr 28th, 2015Someone from Ventura, CA writes:
i dont know what to think...i am shocked at thREPORT COMMENTS
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No, CancelApr 28th, 2015Someone from Seattle, WA writes:
I have this same condition and unfortunately, science and the medical community are not able to or willing to help. Doctors will not admit they don't know what it is but will easily dismiss as delusional parasitosis. There is no funding or initiative for a study. But people are suffering bad, and it's killing us while we are unable to speak about it, since people will run when you bring up the existence of a parasite. CDC, US government, please help. I've lost the motivation to keep going at time and I'm sure others have too.REPORT COMMENTS
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No, CancelApr 28th, 2015Someone from Nashville, TN writes:
My family and I are infected by some type of invisible mite. We have been diagnosed with having scabies and the told that it was not scabies by a dermatologist. We have tried everything, heat treatment thinking that it was bedbugs, pest control treatments, and finally treatment for bird mites. Initially we tried benzarid and it seemed to work for a short period then we sprayed the house and attic with demon wp. The biting itching and night crawling would go away for a short period of time but would come back. My Dr. Is worthless. Doctors treat you like you are crazy. I have parasites in my stool but they find nothing after during a 17 gastro panel. I lost my job because I could not concentrate due to these invisible things crawling on me and in my scalp. Can some one please provide some advice as to what has helped you with this horrible pestREPORT COMMENTS
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No, CancelApr 26th, 2015Someone from Clarksville, TN writes:
Okay. I?ve had this problem for about 4 months now. At first I was shocked that these parasites are living and breeding right under the CDC?s nose. But the more I study them, I realize how it is happening (more on this later). This may sound fantastic, but I hope this will aid in our fight against these parasites. First of all, the these parasites are survivors. They may be ancient and may have been picked up by grave robbers or unearth in the countless archaeological digs going on around the globe. Well anyway: - The number one key to their survival is they attack an ENVIRONMENT just as aggressively as they attack a host. They are quorum sensing. Hence, when an infested person (YOU) goes into a new environment, the lil suckers immediately start to spread. This is why you can never seems to completely get rid of them. Kill them inside you and the lil suckers in the environment will immediately re-infest you. Kill them in your environment and a you will re-infest the environment (a vicious cycle). You must kill them inside you and in your environment SIMULTANEOUSLY to rid yourself of them. Then, you have to convince everybody you have already infested to do the same. If you don?t, as soon as they come to your house (or you go to theirs), the nightmare will start again. The easiest way to kill them in your house is with foggers, but obviously can get expensive. I?m sure other insect killing methods will work too. Believe it or not, they will die on their own in a few days without dark and dampness. - In the HOST, the lil suckers are living and breeding inside you. They come out of your orifices - your eyes (specifically in the Meibomian (Oil) Glands around the eyes). This is similar to the Demodex parasite. You can verify this by getting a hand mirror, cleaning it with alcohol and placing it directly under your chin for a few minutes. You will see lil white specks on the mirror that most would consider lint or dust. A quick look under a microscope will show you a different story. Although alcohol will kill them on contact, once it evaporates, it leaves a clean environment that the quorum sensing pest immediately infest. You will also notice lil crustations on your eyelashes. Those are the lil suckers. If you pluck one from the lash, another will immediately move forward to take its place. This may come with a grainy sensation in the eye. Like a speck of dirt. You will also occasionally feel them fall down your cheeks. You may also feel them fall out of your ears. Yes, they are also coming out of your ears. - I believe they need body oil to survive/reproduce. Human oil obviously, but maybe pets too. Any other oil (mostly plant) seems to be deadly to them. This is why others have had various levels of success with a variety of oils. I notice my shampoo/conditioner, which contains moroccan argon oil (sold in any beauty store) seems to kill them on the hair and body. You (or your ophthalmologist) will notice a decrease in the Meibomian GlaREPORT COMMENTS
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No, CancelApr 21st, 2015Someone from Calabasas, CA writes:
Our dog brought us fleas and these parasites from our yard in May 2014. The fleas were soon taken care of from our home, but my family and I have been dealing with the parasites and fibers on us since then. The brown, black and white specks are everywhere in our house. After cleaning, they appear again quickly. It took a while for us to realize they are coming off of us. I had no idea until last month that other people suffer from this also. I thought the feeling of the crawling, the bites, the rashes were due to parasites extremely new to the U.S. perhaps, from a third world country. Unbelievable that this has already been known about for at least 12 years, studied ever so briefly and dismissed as nothing more than a delusion. It really needs to be studied further and doctors need to be educated right away. Please help.REPORT COMMENTS
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No, CancelApr 19th, 2015Someone from Abington, MA signed.
Apr 19th, 2015Someone from Eugene, OR writes:
After 3 years, I think I have discovered a cure. ... But you have to avoid getting reinfected. I keep getting re infected. First, selsun blue medicated... using as a lotion overnight. If its bad, use it a lot and the top layer of skin will experience a 'chemical peel'. The skin will get shinny and you will see it begin to seperate itself. After the skin peels away, IT NEVER COMES BACK TO THAT AREA! Please help me and everyone else and verify this. I sat on a friends bed and got them on my wrist, got home and my inner thigh was on fire itching, scratched and it multiplied like crazy. went to the bathroom and it got on my *****, literally the worst skin experience of a lifetime... but, a skin peel from selsun blue medicated made it a brand new *****, and I dont have to worry about it anymore, they/it stays away because of the skin peel. My shirts keep reinfecting my torso. I am about to steam clean them and I will perform a skin peel if these less drastic things dont work.. I just started TTO and its helping. Ive tried a Zapper on an infected sore and I felt it connected to some network of something inside me. Like networked infection pathways... and the zapper killed a lot of it I think, had a huge die off where my liver, spleen and kidneys swelled for days. This is 95% healed it feels like. I have coconut oil, melted under minimal heat, mixed with a few essential oils, peppermint TTO Oregano and Thieves, also mixed with baking sode... I use this to cover my skin at night and it helps a lot, almost never get new bites... but they could be coming out of me as well. Bleach whites, grapefruit seed extract laundry soap + borax+ hot water... helps but they still seem in my shirts. oh ya putting Thieves in the laundry really is helping too. Stay ontop of a cleansing diet, eat fermented things like sauerkraut and kombucha... cayanne clove cinnemon powders help cleans them from inside of us. GROUND FLAX SEED helps cleans them from intestines. Does your butt itch? They are coming out of you. I just discovered fermented cabbage juice, but havent tried it. But just read that it didnt work for someone. Other people on another forum said it was working for them. Again, a skin peel from selsun blue medicated has stopped any bite marks from happening ... this has happend around my eyes.... it was a minimal skin peel but I don't get any bites around my eyelashes anymore. BUT they are still tickling my eyebrows and lashes. Get a hepa air filter stop using cotton, I ruined many nice blankets because they are too big to wash these things out. I am using a microfiber polyester something sleeping bag and I dont have any issues anymore with getting bit on my legs, It happens, but not as much with cotton. cover yourself in coconut oil mix at the beginning of the day, wash hands with really warm water, then rub in the oil with your hot hands... do this in the problem areas. pat dry. this really helps. I have a king size bed that I havREPORT COMMENTS
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No, CancelApr 18th, 2015Someone from Fredericksburg, VA writes:
Please help find a cure a we are in desperate need of help to kill these mites. I almost died in a car crash as I fell asleep behind the wheel because the mites kept me up for 72 hours. I almost lost my job because I would fall asleep at work.REPORT COMMENTS
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No, CancelApr 17th, 2015Someone from Oklahoma City, OK writes:
Whatever this problem is, is a nightmare. It has been a living hell for me and my husband and my 2 kids. My husband fortunately the only one not affected has watched me live being tortured by this on a daily basis. We have made huge progress, as I was so sick and my mental clarity was so bad, and I could barley get out of bed. This was like dealing with something out of a science fiction book. We fell behind on our rent and bills because I was unable to work and we're eventually evicted from our home as our landlord did not know what to think of our problems. And I can't say I don't blame her. Im young, and i feel so old a decrepit, I've gained 20 lbs out of no where, brain fog is unreal, arthritis has set in all over my body, I've never had a cavity in my whole 25 years, but within the past year my teeth have taken a turn for the worst, depression so bad I can't even leave my house, this is all just a small portion of my symptoms and problems. This is all so unreal and a huge problem that I think someone knows a little bit more about. Someone has maybe made a mistake? ??? We need to figure this out. The healing has been a slow and painful process but we are getting better and stronger one day at a time. Something needs to be done about this!REPORT COMMENTS
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No, CancelApr 14th, 2015Someone from Spokane, WA signed.
Apr 14th, 2015Someone from Chattanooga, TN writes:
These "Invisibles" are real! When you get them you'll KNOW it, too!REPORT COMMENTS
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No, CancelApr 14th, 2015Someone from Jacksonville, FL writes:
I have been suffering for about 15 years and have had serious back surgeries. unexplained weight gain. arthritic problems in my 30's. urinary problems and infections, and swelling and pain in my joints. I have had numerous diagnosis' that range from fibromyalgia to lupus to delusional parasitosis. I have been treated like a liar, a hyperchondriac, crazy, a drug addict and have been dismissed by 6 hospitals and over 100 doctors as being crazy and not sick when I almost died of severe encephalitic likening iris like pressure in my brain that was so painful I understood why some people drill holes in their brain. I knew I didn't have long to live. a person knows when they are about to die. there is no doubt in my mind that I was going to die. I had stuff coming out of my skin. nose. movement under my skin. biting stinging crawling. just about EVERY medical establishment and dr refused to believe me. treated me like I was nuts. I had pictures and they refused to even look at it. therew my stool sample away where strange bug like things came out and I finally found a doctor that believed me and started to treat me w dignity. respect love and compassion. she saved my life. I would not stop till I found someone to help me. I have a daughter. I refused to die and leave her alone. I saw specks. black like specks come out of my skin. larvae things moving under my skin. other adults. normal people have witnessed this. even my counselor who sent me to a dr who would help me saw stuff come out of my skin. I have so many pictures it's pathetic. I want to know with an extreme passion what this is. I want to be v validated. not called crazy. I want and need along w all these other sick people to have research done on how to completely kill this. WE KNOW IT IS CONTAGIOUS. DO U THINK WE R STUPID??? This government and the doctors need to stop lying to us and the fear of causing mass hysteria will happen anyway because the truth WILL COME OUT. I will keep spreading the word until I make sure this disease is recognized, researched, and killed. I am NOT a religious person but I believe in a higher power I chose to call God. and the bible says that in the final last days, the apocalypse, pestilence will be ramped. the flesh will fall off our bones. do we really want to ignore something that is killing us? are we that controlled by insurance and the CDC and pharmaceutical companies that we are ignoring people who ARE NOT CRAZY. who do not lie about their condition. and whose are now in ruin because of this illness? THIS PARASITIC INFECTION IS REAL. and it is killing us. many of us. I am doing everything I can to beat it. but without knowing what IT is is like stabbing in the dark. I have about 150 pictures. 5 adult witnesses. Cardinal witnesses. and 1 doctor who is the best doctor I have ever encountered. HOW CAN WE CONTINUE TO BE IGNORED. is oil and politics and money more iREPORT COMMENTS
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No, CancelApr 11th, 2015Someone from Columbus, IN writes:
I have been fighting this Hellish and horrid affliction for over 3 years now. I can NOT take much more. It has changed my entire life & rules over when I feel okay enough to even walk down the road. I am broke, sick, in pain, and only eat because of food stamps. This HAS to stop. HELP USREPORT COMMENTS
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