Investigation into Lupron Side Effects (Leuprolide Acetate)
Public Comments (5,065)
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Sep 25th, 2016Someone from Crestview, FL signed.
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Sep 24th, 2016Someone from Greer, SC writes:
People suffer daily from this and doctors lie and do not tell you the actual side effects. I am 29 and I feel like I am 60. I never know if the Lupron caused something or not but a lot of things came up in the couple of years after my treatmentSep 24th, 2016Someone from Smithville, TN writes:
I took LupRon several years ago and have never felt the same and it did not help my endromesosisREPORT COMMENTS
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No, CancelSep 23rd, 2016Someone from Dundee, NY writes:
I was given lupron to help with pelvic pain and bleeding I had suffered with for over a year. Now I am Stuck dealing with severe back pain female reproductive organs pain headache fatigue and some memory loss. Upon talking to my doctor he thinks I'm crazy and says the medicine with wear off soon hang in there. After asking for a pain killer because I couldn't deal with the pain anymore he told me flat out no no medicines at all. I feel for everyone that is on this situation best of luck to all of youREPORT COMMENTS
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No, CancelSep 22nd, 2016Someone from Tilton, NH writes:
In 2005 at the age of 28 for a year-and-a-half I was on diagnosed extremely ill and in pain constantly. My first up as could be found I had endometriosis I had after the second left off could be started Lupron for 6 months I had so many of the side effects then. Since then I've always been very forgetful fast forward I found I had adenomyosis on top of endometriosis after the birth of my son in 2000 a partial hysterectomy leaving just my right ovary after 6 years the past year and a half I have become very ill lost a bunch of weight extreme pelvic pain have seen numerous GI doctors nauseous blood in my urine vomiting tremendous pain.. Found I had why are urologists endometriosis on my right ovary and they are suspicious that it may be on other organs on this coming Monday I will be doing my second round of Lupron I'm only doing it for 2 months per doctor's orders. Have never felt so horrible in all my life at the age of 38 I would like to just give up at this point I have every symptom I'm exhausted I'm in pain I'm Moody I have hot flashes I cannot sleep every joint hurts every muscle hurts and more forgetful than ever and before it was really bad I had no clue back when I was 27 years old being on Lupron for 6 months was the same kind of drug do they give for cancer patients I was never told that it wasn't until after my first injection I started reading because I feel like the symptoms were so much more intensified this time. I don't know how doctors can can leave so many of the other side effects have been telling you what it is they make it seem like it's something just normal it's not this drug is terrible I feel like a demon and I feel like my body just hurts I'm tired I never thought that so many other people could experience or be experiencing the same kind of pain and symptoms that I am it is nice to feel not alone but again no one no one should have to feel like this.. if people only could experience what we feel what we go through while taking this truck for a few hours maybe they would get it I was told that 224 weeks my pain would be intense and it should subside I haven't had a uterus since 2010 and I feel like my guts are being ripped out of me I never want to take this crap again my life I'd rather shoot myself in the head. This is serious and people need to take this seriously because I'm sure I am not alone in this feeling I feel defeated this drug defeats people makes you crazy you question your sanity along with your health which is already deteriorating it's just making it worse.REPORT COMMENTS
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No, CancelSep 22nd, 2016Someone from Washington, MI writes:
I didn't think that what I've taken could've caused a lot of these listed side effects that I currently have.REPORT COMMENTS
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No, CancelSep 20th, 2016Someone from Nixa, MO writes:
6 months of treatment 20 years ago. Terrible degeneration in back, arthritis in many joints - even jaw, plus debilitating migraines. I'm only 41.REPORT COMMENTS
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No, CancelSep 19th, 2016Someone from Thornville, OH signed.
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Sep 18th, 2016Someone from Ellenburg Depot, NY signed.
Sep 14th, 2016Someone from Manorville, PA writes:
It was recommended by my gynecologist to start lupron therapy for endometriosis. At my first appointment for injection I questioned the side effects and the nurses laughed at me. I did the injections for 4 out of six months and had to take another hormone to reduce the risk of lupron causing cancer. I had the usual hot flashes and night sweats. At the time my doctor told me I couldn't have anymore children which I thought meant couldn't. Within a month of no injections I was pregnant and my son was born moderately severe autism. This is just the beginning. I have had a pulmonary embolism. Multiple nerve issues including my bladder and symptoms of fibromyalgia. I have constant every day pain and show symptoms of many autoimmune diseases and have been tested for chrones etcetera. Needless to say I am miserable having had migraines, months that I can't move my muscles, cannot control my bladder and my immunoglobulin G and A are constantly low. I am sick almost nonstop with bronchitis, ear infections and multiple virus' and flu's. I have been to many many specialists and have had every test under the sun with no answers. It's a sad day when you get no answers to chronic pain, your clothes hurt you, and it's like you have the stomach flu every day. I am appalled that they still offer this drug after so many years. They offered it to my daughter and I said absolutely not! Only problem is that with all the chronic pain and no answers you also get no relief. It would be nice to see something come from all of this. No one should have to suffer the way I and many others have. It's debilitating.REPORT COMMENTS
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No, CancelSep 14th, 2016Someone from Manorville, PA writes:
It was recommended by my gynecologist to start lupron therapy for endometriosis. At my first appointment for injection I questioned the side effects and the nurses laughed at me. I did the injections for 4 out of six months and had to take another hormone to reduce the risk of lupron causing cancer. I had the usual hot flashes and night sweats. At the time my doctor told me I couldn't have anymore children which I thought meant couldn't. Within a month of no injections I was pregnant and my son was born moderately severe autism. This is just the beginning. I have had a pulmonary embolism. Multiple nerve issues including my bladder and symptoms of fibromyalgia. I have constant every day pain and show symptoms of many autoimmune diseases and have been tested for chrones etcetera. Needless to say I am miserable having had migraines, months that I can't move my muscles, cannot control my bladder and my immunoglobulin G and A are constantly low. I am sick almost nonstop with bronchitis, ear infections and multiple virus' and flu's. I have been to many many specialists and have had every test under the sun with no answers. It's a sad day when you get no answers to chronic pain, your clothes hurt you, and it's like you have the stomach flu every day. I am appalled that they still offer this drug after so many years. They offered it to my daughter and I said absolutely not! Only problem is that with all the chronic pain and no answers you also get no relief. It would be nice to see something come from all of this. No one should have to suffer the way I and many others have. It's debilitating.REPORT COMMENTS
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No, CancelSep 14th, 2016Someone from Danbury, CT signed.
Sep 12th, 2016Someone from Brooklyn, NY writes:
I live in New York and was prescribed Lupron at the end of 2014 (3 months until I absolutely refused further treatment) for adenomyosis (similar to endometriosis but not related). I've since suffered greatly due to arthritic symptoms, exacerbated hypertension, migraine headaches, fainting / falling incidents, development of eczema and the list goes on. This has cost me almost 2 years of my life including being out of work on disability.REPORT COMMENTS
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No, CancelSep 12th, 2016Someone from Brooklyn, NY writes:
I live in New York and was prescribed Lupron at the end of 2014 (3 months until I absolutely refused further treatment) for adenomyosis (similar to endometriosis but not related). I've since suffered greatly due to arthritic symptoms, exacerbated hypertension, migraine headaches, fainting / falling incidents, development of eczema and the list goes on. This has cost me almost 2 years of my life including being out of work on disability.REPORT COMMENTS
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No, CancelSep 10th, 2016Someone from Bolingbrook, IL writes:
I took one dose and I've never been the same. A year later, I'm still trying to get help.REPORT COMMENTS
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No, CancelSep 10th, 2016Someone from Bolingbrook, IL writes:
I took one dose and I've never been the same. A year later, I'm still trying to get help.REPORT COMMENTS
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No, CancelSep 9th, 2016Someone from San Diego, CA signed.
Sep 9th, 2016Someone from Mountain Home, ID signed.
Sep 8th, 2016Someone from Oak Lawn, IL writes:
I took five monthly shots of Lupron and each shot came with migraines, and with each shot the side effects multiplied. I had numerous visits to the Er and 7 months out from the last shot am still in daily pain with a diagnosis of RA. This drug seriously adversely affects your endocrine system and therefore your immune system. Women with endometriosis have compromised immune systems to begin with. In addition the NIH website states there is no evidence that there is any reduction of endometriosis lesions. So the pain and agony endured in the belief that you will be better for having taken this drug is in vain. The doctors prescribing this drug need to be made aware of the long term risks along with their patientsREPORT COMMENTS
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No, CancelSep 7th, 2016Someone from Blackwell, OK writes:
Was given lupron for fibroid in 2002. 6 shots, 1 each month. Have had many problems since. It didn't help my original problem at all. Doctor told me nothing about any side effects. Permanent side effect I have: severe joint and bone pain, feel like my joints, muscles are throbbing all the time. Depression I can't get past, migraines. I am going to specialist tomorrow to check on lung problems. I have been on oxygen for a year now. I've gained over 100 lbs, can't lose any unless I just don't eat. Thyroid problems and hoping for referral to specialist to check other glands. I don't see any better life in sight for myself. Lupron company should not be allowed to sell this drug! I am 63 and feel like I'm in my 90's. Lung are those of 90 yr old.REPORT COMMENTS
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No, CancelSep 6th, 2016Someone from Crofton, MD writes:
Horrible depression, fatigue & insomnia after 1 shot. Will not go back for another as prescribed.REPORT COMMENTS
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No, CancelSep 6th, 2016Someone from Fallston, MD signed.
Sep 3rd, 2016Someone from Arlington, VA writes:
II wish I would have known how awful this drug was before taking it. Side effects have been awful...an endless cycle, nagging headaches that won't go away, hot flashes and night sweats and joint paint.REPORT COMMENTS
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No, CancelSep 3rd, 2016Someone from Fort Wayne, IN writes:
Im on 8th shot of injection... I realized that I had 2 teeth broken between 3 months... Doctors said that i have to take for a year but now i think i have to cut off the rest...REPORT COMMENTS
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No, CancelSep 2nd, 2016Someone from Weidman, MI signed.
Aug 31st, 2016Someone from Pittsburgh, PA writes:
I have not taken Lupron but spoken with several women who were left nearly crippled with long term side effects. Casual use of chemotherapy drugs for non life-threatening conditions must be stopped at any cost. There is a new forum available for all Lupron victims: https://www.lastingsides.org/groups/lupron/forum/ There are other drugs featured on the site, but Lupron has to be the worst.REPORT COMMENTS
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No, CancelAug 30th, 2016Someone from Puyallup, WA writes:
Horrible drug, and it is still affecting me today. I am pretty certain it destroyed my body. I am now living with chronic migraine suffering that never existed prior to this drug.REPORT COMMENTS
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