Investigation into Lupron Side Effects (Leuprolide Acetate)
Public Comments (5,065)
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Dec 9th, 2013Someone from Round Lake, IL writes:
Lupron has ruined my life! Since my doctor administered Lupron, I have been diagnosed with countless diseases and conditions, the worst which is being called fibromyalgia, and severe bodily swelling which renders me immobile! I was an outgoing, energetic, and happy person prior to Lupron. I am now disabled and some days can't even get out of bed for simple tasks! My story is too long to include in this post, but just know that this drug will ruin people! I was not warned of these after effects, or I would have said NO WAY!! God bless all of you who are dealing with this! I am only 35 years old! -
Dec 7th, 2013Someone from Catskill, NY signed.
Dec 7th, 2013Someone from Leesburg, VA signed.
Dec 6th, 2013Someone from Buffalo, NY signed.
Dec 4th, 2013Someone from Woodstock, GA writes:
I was administered monthly shots of Lupron for 6 months following laparoscopic surgery for an endometrioma/endometriosis. This was back in 1997. I was 26 years old. I recently read that a total of 6 shots in a woman's lifetime is advised, and my doctor did not share this with me. Nor were any other concerns about this drug's side effects/dangers other than the symptoms of early onset menopause during treatment, which would resolve upon treatment completion, which they did. My 6th shot was administered in December 1997. In March of 1999 (15 months later), I had a terrible liver flare up which was diagnosed by biopsy in June 1999 as autoimmune heptatitis. I believe the autoimmune disease was triggered by the Lupron drug treatment administered at its highest levels to me. If I could turn back the clock, I would have refused the injections and waited to see if the surgery alone would have resolved my symptoms. I was young, a bit afraid of my doctor who was a very strong-willed woman and who, when I asked her experience doing laparoscopic surgeries (as a book I read advised me to do), she turned on me with an accusation of mistrust in her. The combination of extremely ego-driven, pioneering doctor and this cutting edge drug cavalierly administered, with no caution to me about what I might be facing or even without the presentation of the injections as an option for my consideration but rather a non-negotiable post-surgery setp, frightens me in hindsight. I've had 3 liver biopsies and just learned that I may have a fourth. This drug is powerful, dangerous and the scope of its impact not fully documented. The testimonials on this site alone to date speak volumes.REPORT COMMENTS
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No, CancelDec 4th, 2013Someone from Oakland, CA writes:
I was just given this drug and the side effects are horrible. I have extreme itching, night sweats, mood swings, suicidal thoughts as well as homicidal thoughts. I don't think that I can do the next series of shots. I think this drug should be pulled from market. I'm worried about the side effects in the years to come. I'm discouraged that my doctors didn't tell me about the side effectsREPORT COMMENTS
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No, CancelDec 3rd, 2013Someone from Oakland, CA writes:
I was just given this drug and the side effects are horrible. I have extreme itching, night sweats, mood swings, suicidal thoughts as well as homicidal thoughts. I don't think that I can do the next series of shots. I think this drug should be pulled from market. I'm worried about the side effects in the years to come. I'm discouraged that my doctors didn't tell me about the side effectsREPORT COMMENTS
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No, CancelDec 3rd, 2013Someone from Natick, MA writes:
I was on lupron for 6 years! I now struggle every day with depression and infertility.REPORT COMMENTS
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No, CancelNov 30th, 2013Someone from Chicago, IL signed.
Nov 28th, 2013Someone from Manlius, NY writes:
Was treated for precocious puberty with lupron, now suffering from autoimmune diseases and osteopenia.REPORT COMMENTS
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No, CancelNov 27th, 2013Someone from West Hempstead, NY writes:
I was recommended by two doctors to take the Lupron shot for three months prior to my fibroid removal surgery and that was almost two years ago. I am 33 years old and I am still feeling the side effects which I feel like has had a permanent change to my body chemistry. I gained 5 lbs a month from the time of my first injection for at least 6 to 7 months for a total of 30lbs which I still can't lose. My anemia isn't any better, I have serious memory problems, loss of sexual desire, anxiety, hot flashes still - I wish I could stop any woman from taking this medicine. The benefits obviously did not outweigh the side effects. I feel trapped by this drug. I've been to several doctors who just say that I need to wait and let it leave my system naturally. My first injection was January 2012. How much longer should it really take! It's ruined my life.REPORT COMMENTS
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No, CancelNov 26th, 2013Someone from Dallas, TX writes:
I'm taking lupron for fibroids, it's shrinking tumors but making me feel horrible, I have very bad muscle pain, extremely forgetful, hot flashes all day long, and can't sleep at nightREPORT COMMENTS
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No, CancelNov 26th, 2013Someone from Dallas, TX writes:
I'm taking lupron for fibroids, it's shrinking tumors but making me feel horrible, I have very bad muscle pain, extremely forgetful, hot flashes all day long, and can't sleep at nightREPORT COMMENTS
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No, CancelNov 26th, 2013Someone from Tucson, AZ signed.
Nov 26th, 2013Someone from North Fort Myers, FL writes:
3 years latter I am still suffering from 6 month Injection..It does not go away...REPORT COMMENTS
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No, CancelNov 26th, 2013Someone from Malden, MA signed.
Nov 25th, 2013Someone from Omaha, NE writes:
I have not taken this drug but it is currently being recommended as a means to test for endometriosis. I have no insurance but have found a charity willing to pay for the surgery to diagnose endometriosis but the doctor won't even consider surgery (even though I have no health risks that would contraindicate the procedure) unless I do a 3-6 month round of Lupron. Without insurance, I can't obtain a second opinion without paying full price (there is only one sliding scale/free clinic in my area) and in the meantime, I'm offered NOTHING in the form of pain relief because I dared question/disagree with the doctor about using Lupron as a diagnostic tool. I've been in constant, moderate-severe pain for a year now and have been spending every free dollar I have trying to access care and getting nowhere. When I found out that they thought it might be endometriosis, I thought I was finally seeing the light at the end of the tunnel only to have it quickly dimmed by a misinformed doctor that thinks 3-6 months of side-effects and possible long-term complications is better for me than undergoing a minor surgical procedure that I am healthy enough for and have funding for. It doesn't make sense at all! It should be added that I already have generalized anxiety disorder and major depression. I've already had all the children I want to have so preserving my fertility is not an issue. I just want to find out what is wrong, treat it without causing more pain and symptoms but it seems that this drug company has convinced far too many doctors that it is the BEST approach to diagnosing/treating pelvic pain even when their own studies don't show that to be true. I don't feel as if I should have to play Russian Roulette with my health in order to get a diagnosis but this is what the drug company has convinced doctors is best for us. PLEASE investigate this long term effects of this drug, not just for those that have already suffered, those that will unknowingly suffer, but also to stop this practice of doctors routinely turning to the medication, dismissing the side-effects, and delaying diagnosis and treatment. Thank you.REPORT COMMENTS
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No, CancelNov 25th, 2013Someone from Culver City, CA signed.
Nov 20th, 2013Someone from Temecula, CA signed.
Nov 20th, 2013Someone from Howell, MI writes:
I was given 6 months of injections for mild Endometriosis 20 years ago at the age of 32 and I am still suffering from permanent side effects. I feel like I am 82. Like others who have had these injections I also have degenerative disc disease, insomnia,anxiety, horrible bone & joint pain, numbness, broken bones, chronic pain in my back, neck & hips. A suicide attempt. Heart issues that I just learned about last October. My memory loss so bad that i don't get back to things I have started and I'm forgetting things that I know I know, like spelling simple words and forgetting what I was talking about mjd sentence. I notice the memory problems the first week after the shot. The most horrible thing that happened while taking Lupron was divorcing my husband for no particular reason and my children having to be raised by their father because of my emotional state. This drug causes us women to go into a drug induced menopause that our bodies have not had time to ease into naturally, The effects are devastating. You've always heard people joking about the crazy lady going thru the change of life, well it's no joke this drug makes you feel like you really are crazy. No one in my family knew what was happening to me or how to help me. My sister Teresa made the connection. She looked into the drug Lupron I kept telling her I knew that's what was causing me all these problems and that I have not felt the same since the first of day taking it. So she went online & found so much information about women who were going thru the same thing as me. It was a relief to find out I wasn't going crazy. My life was absolutely ruined because of this drug. Like so many other lives were. I pray they stop giving this drugs to others. We have all suffered enough. One more thing. I had to have a hysterectomy anyways the endo was still present.The Lupron did not work..REPORT COMMENTS
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No, CancelNov 20th, 2013Someone from Calabasas, CA signed.
Nov 18th, 2013Someone from Lufkin, TX writes:
I was diagnosed with PCOS and Endometrosis at the age of 12 my first injection in surgery. Now just turing thirty have had to have complete Hysteroctomy after trying clomid for fertility another horriable choice and no children. I have no life i hurt all the time have horriable anxiety, tachycardia and most of the things listed in the lawsuit. i took this drug for over 10 years and I feel it is the reason that i have no children cant live a life and suufer every day its poision. and still being given to so many women. the dr that gave it to me no longert will speak to me i guess because he is n ot making money off of me He ripped my insides out and threw me away as a patient. Did i mention Im still not over the surgery only been one year 30 and feel like im 55+. Depression is my LIFEREPORT COMMENTS
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No, CancelNov 16th, 2013Someone from Watertown, NY signed.
Nov 16th, 2013Someone from Bourbonnais, IL writes:
I was administered Lupron on two separate occasions and now I am currently having serious joint pain. I also have memory loss somewhat. I also have found that I have other issues from taking this medicine. I am, however, grateful for my child but this medicine as made my life MISERABLE!!!!REPORT COMMENTS
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No, CancelNov 16th, 2013Someone from Bourbonnais, IL writes:
I was administered Lupron on two separate occasions and now I am currently having serious joint pain. I also have memory loss somewhat. I also have found that I have other issues from taking this medicine. I am, however, grateful for my child but this medicine as made my life MISERABLE!!!!REPORT COMMENTS
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No, CancelNov 16th, 2013Someone from Fishers, IN writes:
I was given lupron for 12 months in a row...now to find out that's not the dosing you should get. I now have tooth loss, memory loss, neurological disorders and severe pain. I thought this was my miracle drug and felt great on it...now my body is paying for it. Broken bones, depression, anxiety. It ruined my life.REPORT COMMENTS
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No, CancelNov 16th, 2013Someone from Fishers, IN writes:
I was given lupron for 12 months in a row...now to find out that's not the dosing you should get. I now have tooth loss, memory loss, neurological disorders and severe pain. I thought this was my miracle drug and felt great on it...now my body is paying for it. Broken bones, depression, anxiety. It ruined my life.REPORT COMMENTS
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No, CancelNov 16th, 2013Someone from Goddard, KS writes:
I was given a 6 month Lupron shot for advanced prostate cancer , Dr.'s lied about this worthless drug. This is worse than the disease. I was a strong active man before taking this. After they injected me with this I was then informed I would have to always be on this and have a bone building drugs to cope with the damage this caused. After that , I would probably be put on an experimental drug when the Lupron quit working. I have virtually had me legs taken away from me, lost my ability for sexual relations, and can not sleep because of the pain I live with. There are no benefits from this drug except to make money for doctors and Rx companies. Knowing what I know now, I would tell the Dr. to inject himself if this is so great. This in a life destroyer that needs to be taken off the market. By the way, I walked out of the cancer treatment center and don't plan on ever returning. This has taken away any trust I ever had in doctors and pharmaceutical companies. I have been told I would die without all the invasive treatments(I have news for them, they killed me when they injected that poison in my body).REPORT COMMENTS
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No, CancelNov 15th, 2013Someone from Houston, TX writes:
I was 24 when I had my first Lupron injection after having a laparoscopy and hysteroscopy to help with ovarian cysts and severe endo. I took Lupron for 6 months to help with irregular menstrual cycles (continuous menstrual for 3 and 1/2 years straight, no break in between). I was diagnosed with I.C and Endo. 4 years prior to taking Lupron. The Lupron injection was horrible. I had a fracture in the heel of my foot cause by weakened bones and was later dX with osteoporosis. I still suffer from mood swings, anxiety and depression. I have continuous joint pain from head to toe, and the pain as just become worse over time. I was an all star athlete growing up and my ability to do activities has decreased. Anything from grocery shopping, housework and sometimes even cooking. I don't get much rest at all between going to the restroom at night or tossing and turning because of joint pain or night sweats. For someone who was diagnosed with Interstitial Cystitis prior to taking Lupron, and the prescribing dr. knowing about the possible sides effects that deal particularly with the bladder, I'm disgusted that Lupron was even thought of. Had I known that the injection would cause this much damage I would not have even considered it. My dr. said this was my last option unless I wanted to have an hysterectomy at 24. I would not recommend this drug to anyone and it should definitely be taken off the market for good.REPORT COMMENTS
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No, CancelNov 13th, 2013Someone from Blooming Prairie, MN writes:
I took lupron for a year and now the effects are debilitating. This drug ruined my life.REPORT COMMENTS
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No, CancelNov 10th, 2013Someone from Ragland, WV signed.
Nov 9th, 2013Someone from Attleboro, MA writes:
This drug is not safe. I believe after using this drug for 6 months around 1999 it has caused many if not all of my long term medical problems. I suffer from joint pain that Dr.s can only label as fibromyalgia, tachycardia, dizzy spells, chest pains, and a permanent loss of libido. All unexplained and all since being on this drug. It is too much of a coincidence that so many others share the same issues after being on the drug. I stopped complaining to my Dr's since they could not pinpoint the cause. I went through the same tests. EKG's, thyroid tests, blood work-ups, hepatitis tests, heart monitors, and even a brain and chest scan. I work full time. I eat right. I take vitamins and even try to exercise to keep my body moving which causes me pain after. I can assure you I do not suffer from hypochondria, although I do feel like it sometimes when I have to talk to my Dr. during routine exams. It was not until now that I decided to see if I could find anyone else with the same issue that was on this drug too. I was shocked to read about my life through someone elses experience. I too was told the side effects go away. I can assure you they do not. Please put a stop to this drug. It's benefits do NOT outweigh the destruction it causes.REPORT COMMENTS
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No, CancelNov 9th, 2013Someone from Northville, MI writes:
I began taking Lupron the first week in September 2013. The second injection was administered early October. Every joint in my body aches, including my fingers. I can barely walk at times. Can't do stairs. Getting in and out my car, is a challenge. I have extensive headaches and memory loss. Had to go on FMLA. Missed several days of work. My doctor discontinued any additional doses.REPORT COMMENTS
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No, CancelNov 9th, 2013Someone from Northville, MI signed.
Nov 9th, 2013Someone from Las Vegas, NV signed.
Nov 8th, 2013Someone from Las Vegas, NV writes:
This Drug has destroyed so much of my life. Please take this off the market.REPORT COMMENTS
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No, CancelNov 6th, 2013Someone from Clermont, FL signed.
Nov 6th, 2013Someone from Clermont, FL signed.
Nov 5th, 2013Someone from Burbank, CA writes:
I have had Vitamin D deficiency, bone/joint pain, anxiety and insomnia. I would like this to be investigated and maybe take the medication on the market.REPORT COMMENTS
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