Share:

Add Narcolepsy/Idiopathic Hypersomnia as a qualified disabling condition in the Social Security Blue Book.

Public Comments (2,251)
  • Mar 17th, 2016
    Someone from Wake Forest, NC signed.
  • Mar 17th, 2016
    Someone from Tomball, TX signed.
  • Mar 17th, 2016
    Someone from Gum Spring, VA writes:
    Quotation mark icon
    The struggle for a normal daily life is real. Even with medication and understanding, an average day is riddled with missed minutes, mistakes and forgotten moments. I am narcoleptic and trying hard to stay employed and useful in todays society.
    REPORT COMMENTS

    Do you want to report these comments to the moderator for removal? They should be offensive, threatening, a duplicate submission, or spam.

       
    No, Cancel
  • Mar 17th, 2016
    Someone from Windham, NH signed.
  • Mar 17th, 2016
    Someone from Harrisburg, PA signed.
  • Mar 17th, 2016
    Someone from Naperville, IL signed.
  • Mar 17th, 2016
    Someone from Algonac, MI signed.
  • Mar 17th, 2016
    Someone from Tomball, TX signed.
  • Mar 17th, 2016
    Someone from Cottage Grove, MN signed.
  • Mar 17th, 2016
    Someone from Camp Hill, PA writes:
    Quotation mark icon
    I have narcolepsy with severe cataplexy. Narcolepsy/cataplexy has completely ruined my life.
    REPORT COMMENTS

    Do you want to report these comments to the moderator for removal? They should be offensive, threatening, a duplicate submission, or spam.

       
    No, Cancel
  • Mar 17th, 2016
    Someone from Arlington, MN signed.
  • Mar 17th, 2016
    Someone from Tampa, FL signed.
  • Mar 17th, 2016
    Someone from Moscow, ID signed.
  • Mar 17th, 2016
    Someone from Champaign, IL signed.
  • Mar 17th, 2016
    Someone from South Haven, MI writes:
    Quotation mark icon
    I have narcolepsy and everything written here and more is an everyday struggle for me. I have a job that won't accommodate me because of there own stipulations they don't have to go by the EEOC. That's not right either. Please sign to help all of us who do have it, feel safe. Thank you
    REPORT COMMENTS

    Do you want to report these comments to the moderator for removal? They should be offensive, threatening, a duplicate submission, or spam.

       
    No, Cancel
  • Mar 17th, 2016
    Someone from Rome, NY signed.
  • Mar 17th, 2016
    Someone from Arlington, SD signed.
  • Mar 17th, 2016
    Someone from Farmington, UT writes:
    Quotation mark icon
    As a person with Narcolepsy, I'd like to add my voice iin behalf of this petition.
    REPORT COMMENTS

    Do you want to report these comments to the moderator for removal? They should be offensive, threatening, a duplicate submission, or spam.

       
    No, Cancel
  • Mar 17th, 2016
    Someone from Madison, AL signed.
  • Mar 17th, 2016
    Someone from Edgerton, WI signed.
  • Mar 17th, 2016
    Someone from Lake Forest, IL signed.
  • Mar 17th, 2016
    Someone from Cross, SC signed.
  • Mar 17th, 2016
    Someone from Roxbury, MA writes:
    Quotation mark icon
    I am one of those who suffers from this debilitating disease. I suffered for many years undiagnosed believing that it was lack of sleep and now I'm told I can no longer work a FT job. I'm 32,no children, and if I can't support myself with at least 1 job what am I to do? Please sign for people like me, people with narcolepsy.
    REPORT COMMENTS

    Do you want to report these comments to the moderator for removal? They should be offensive, threatening, a duplicate submission, or spam.

       
    No, Cancel
  • Mar 17th, 2016
    Someone from Missoula, MT signed.
  • Mar 17th, 2016
    Someone from Springville, UT signed.
  • Mar 17th, 2016
    Someone from Mayfield, KY signed.
  • Mar 17th, 2016
    Someone from Minneapolis, MN signed.
  • Mar 17th, 2016
    Someone from Lexington, SC writes:
    Quotation mark icon
    I think IH should be added to this list as well!
    REPORT COMMENTS

    Do you want to report these comments to the moderator for removal? They should be offensive, threatening, a duplicate submission, or spam.

       
    No, Cancel
  • Mar 17th, 2016
    Someone from Marion, IA signed.
  • Mar 17th, 2016
    Someone from Pooler, GA signed.
  • Mar 17th, 2016
    Someone from Grand Forks, ND signed.
  • Mar 17th, 2016
    Someone from Grand Forks, ND signed.
  • Mar 17th, 2016
    Someone from Grand Forks, ND writes:
    Quotation mark icon
    Narcolepsy is a serious, debilitating condition and many thousands of people need help!
    REPORT COMMENTS

    Do you want to report these comments to the moderator for removal? They should be offensive, threatening, a duplicate submission, or spam.

       
    No, Cancel
  • Mar 17th, 2016
    Someone from Munroe Falls, OH writes:
    Quotation mark icon
    I have Narcolepsy with Cataplexy. This makes it terribly difficult for daily functioning. I can barely work part time and can't rely on medication to be consistent enough to maintain a reliable job. Please add narcolepsy. There is no cure and it affects negatively me every day. I applied a year ago and was immediately denied based solely on the fact that narcolepsy was not "on the list." Thank you for your attention to this matter!
    REPORT COMMENTS

    Do you want to report these comments to the moderator for removal? They should be offensive, threatening, a duplicate submission, or spam.

       
    No, Cancel
  • Mar 17th, 2016
    Someone from Peterstown, WV writes:
    Quotation mark icon
    You know this is debilitating and should be in the book under neurological disorders it is uncure able as well as very debilitating .
    REPORT COMMENTS

    Do you want to report these comments to the moderator for removal? They should be offensive, threatening, a duplicate submission, or spam.

       
    No, Cancel
  • Mar 17th, 2016
    Someone from Somerset, TX signed.
  • Mar 17th, 2016
    Someone from Shreveport, LA signed.
  • Mar 17th, 2016
    Someone from San Antonio, TX writes:
    Quotation mark icon
    I suffer from Narcolepsy. I have struggled for all of my adult and teenage life. Because of automatic behavior, microsleep episodes, Cataplexy, and severe cognitive issues due to excessive sleepiness, I have not been able to maintain any type of stable employment, despite my best efforts. I have been homeless and on the brink of it. I feel as if this illness has destroyed any chance I have for a future.
    REPORT COMMENTS

    Do you want to report these comments to the moderator for removal? They should be offensive, threatening, a duplicate submission, or spam.

       
    No, Cancel
  • Mar 17th, 2016
    Someone from Winchester, TN signed.
  • Mar 17th, 2016
    Someone from Auburn, ME signed.