Add Narcolepsy/Idiopathic Hypersomnia as a qualified disabling condition in the Social Security Blue Book.
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Apr 13th, 2016Someone from Katy, TX signed.
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Apr 12th, 2016Someone from Conway, AR writes:
I am a college student with Narcolepsy with Cataplexy and am grateful for my support system here. I have family, friends, professors, and advisers I can trust but I can imagine that without all of that support, without my medication, I would be completely unable to keep my job, or keep my grades and attendance up. It's important to realize that Narcolepsy with Cataplexy is a disability and those with the condition are living in a world where accessibility is not a norm for our kind of daily lives. Many of us need multiple naps a day, flexible schedules, and understanding bosses and co-workers. It is a condition that affects daily life just as much as Parkinson's disease and yet the public and even the medical community has very little understanding of the condition, what all sorts of creativity and productivity people with narcolepsy with cataplexy are capable of with support, or even basic sleep-health facts in general. It's an invisible illness that should warrant just as much human care and compassion as any broken arm or paralysis and this means government financial assistance for some people at certain points in their lives. Please consider reaching out to Julie Flygare, a lawyer, marathon runner, non-profit coordinator and person with Narcolepsy with Cataplexy; she's done wonders to educate the public on this FASCINATING disorder as well as other sleeping disorders that affect thousands and millions of Americans every day, in every aspect of their waking and sleeping lives. http://julieflygare.com/Apr 12th, 2016Someone from Delaware, OH signed.
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Apr 12th, 2016Someone from Delaware, OH writes:
These illnesses are so devastating to the individual, families, and communities. The inability to consistently remain awake and alert makes it nearly impossible to hold most any job, and so our families are thrown into poverty and our lives seem to spiral out of control. Please, please, please, allow us access to SSDI. I live in constant fear of homelessness.REPORT COMMENTS
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No, CancelApr 12th, 2016Someone from Broken Arrow, OK signed.
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Apr 12th, 2016Someone from Lilburn, GA writes:
This is definitely a terrible function of the body and consequences. I can see the problem is, few doctors are knowledgeable of the disease. Therefore, there also has to be an inducement for doctors to learn about the disease, to be able to diagnose narcolepsy in a true patient in need of assistance. We must be ever vigilant of fraud.REPORT COMMENTS
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