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Add Narcolepsy/Idiopathic Hypersomnia as a qualified disabling condition in the Social Security Blue Book.

Public Comments (2,251)
  • Apr 17th, 2016
    Someone from Brownsburg, IN signed.
  • Apr 17th, 2016
    Someone from Lewisburg, TN signed.
  • Apr 17th, 2016
    Someone from Corpus Christi, TX signed.
  • Apr 17th, 2016
    Someone from Lewisburg, TN signed.
  • Apr 17th, 2016
    Someone from Centreville, VA writes:
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    As a person with narcolepsy, I have personal experience with both career and social ramifications of that disease in my life. It is very difficult to commit to any obligations because of the sleepiness that can hit me at any moment, preventing me from even hearing my alarm clock. If I can wake up enough to take my medications, I might face a day when my mind will not completely feel awake, and instead feels very foggy. This disease has kept me from fully participating in my life. I feel like I am trying to run a race through deep mud, compared to others. Nothing I have experienced in my life has been harder than dealing with narcolepsy.
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  • Apr 17th, 2016
    Someone from Pearland, TX signed.
  • Apr 17th, 2016
    Someone from Lyles, TN signed.
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    Someone from Spring Hill, TN signed.
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    Someone from Gatlinburg, TN signed.
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    Someone from Fort Knox, KY signed.
  • Apr 17th, 2016
    Someone from Richmond, TX signed.
  • Apr 17th, 2016
    Someone from Perryville, MD writes:
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    As a person who struggles with narcolepsy, I can testify how debilitating it is. It's impossible to establish a career because you simply can't be present enough to put in the time and quality of work necessary to get ahead. Because it's an 'orphan disease' there are few medications for, and none that is truly effective.
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  • Apr 17th, 2016
    Someone from Alvin, TX signed.
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    Someone from Morton, IL signed.
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    Someone from Marshfield, WI signed.
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    Someone from Magnolia, TX signed.
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    Someone from Lakeland, FL signed.
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    Someone from Chicago, IL signed.
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    Someone from Franklin, OH signed.
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    Someone from Stirling, NJ signed.
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    Someone from Lewes, DE signed.
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    Someone from Summerville, SC signed.
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    Someone from Summerville, SC signed.
  • Apr 17th, 2016
    Someone from Feasterville Trevose, PA signed.
  • Apr 17th, 2016
    Someone from Lansdale, PA signed.
  • Apr 17th, 2016
    Someone from Toney, AL signed.
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    Someone from Toney, AL signed.
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    Someone from Bristol, PA signed.
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    Someone from Omaha, NE signed.
  • Apr 17th, 2016
    Someone from Oklahoma City, OK signed.
  • Apr 16th, 2016
    Someone from Richmond, VA writes:
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    My sister in law suffers from this devastating condition it should seriously considered as a disability as so many people w it can NOT work. Just getting to n from work could be seriously endangering themselves n other should the fall asleep while driving. Please consider this as a disability.
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  • Apr 16th, 2016
    Someone from Chandler, AZ signed.
  • Apr 16th, 2016
    Someone from Newmarket, NH signed.
  • Apr 16th, 2016
    Someone from Clinton, MS writes:
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    Your body is not the same life style change.
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  • Apr 16th, 2016
    Someone from Greenville, NC writes:
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    It is debilitating and unfair to not be counted.
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  • Apr 15th, 2016
    Someone from Concord, NH signed.
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    Someone from Greenville, SC signed.
  • Apr 15th, 2016
    Someone from Memphis, TN signed.
  • Apr 15th, 2016
    Someone from Somersworth, NH signed.
  • Apr 15th, 2016
    Someone from Greenville, NC writes:
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    It is debilitating and unfair to not be counted.
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