Investigation into Lupron Side Effects (Leuprolide Acetate)
Public Comments (5,065)
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Apr 25th, 2016Someone from Minneapolis, MN writes:
This drug was just recommended to me to treat endometriosis. After doing some research, my heart breaks for the people (both women and men) who have been severely impacted by Lupron's awful side effects. I won't be taking it because the risks are far too great for me. Please take this drug off the market for the safety of the people. -
Apr 24th, 2016Someone from Zephyrhills, FL signed.
Apr 24th, 2016Someone from Winder, GA writes:
This drug has changed my life, and it has not been for the good. Not only do I suffer from endometriosis after THREE years on Lupron, 5 shots, I suffer from vitamin deficiency, chronic pain, anxiety and memory loss. I'm higher risk for breast cancer now too. Please investigate so other women don't lose their lives from the hope of saving it through this drug.REPORT COMMENTS
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No, CancelApr 24th, 2016Someone from Palm Harbor, FL writes:
None of these side effects were disclosed to me and since taking it I've been diagnosed with fibromyalgia, I have constant joint pain, and severe vitamin D deficiency. I feel betrayed and want my life backREPORT COMMENTS
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No, CancelApr 23rd, 2016Someone from Philadelphia, PA writes:
Omg...I had numerous injections and simply thought the multiple agonizing symptoms were a result of aging over the years. Please do not tell me that this drug LUPRON is the culprit all of this time.REPORT COMMENTS
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No, CancelApr 22nd, 2016Someone from Calhan, CO writes:
I am outraged to know pharmaceutical companies are allowed to distribute drugs that have had no long term studies done. My daughter has had 2 of these injections and has been terribly ill. Her side effects continue long after when they were suppose to end. I am pleading with you to approve the long term study. Treat this decision as if it were your own daughter who has been injected with this drug. Thank youREPORT COMMENTS
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No, CancelApr 22nd, 2016Someone from Saint Louis, MO signed.
Apr 21st, 2016Someone from Winchester, CA signed.
Apr 21st, 2016Someone from Canonsburg, PA signed.
Apr 21st, 2016Someone from Drexel Hill, PA writes:
The regret of taking this drug has set in. I can't describe how upset I am with my doctor for not giving me all of the facts about it. And of course myself for not doing enough research prior to the injections. The side effects while taking it, let along the post effects are heartbreaking. Please take it off the market.REPORT COMMENTS
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No, CancelApr 21st, 2016Someone from Seattle, WA writes:
I was prescribed this awful drug when I was 16 and then again at 21 for severe endometriosis. I'm now 27 and have had a hysterectomy due to the endo. My doctors are currently, and have been for years trying to figure out my widespread pain, and many other issues. I believe this drug had horrible longterm effects on me that make it impossible to diagnose what's really going on. I honestly believe this drug robbed me of my childhood. I feel much too old for only being 27. I was not told ANY of the risks, nor that it was a form of chemo. :( -Victim of LupronREPORT COMMENTS
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No, CancelApr 20th, 2016Someone from Dorchester Center, MA writes:
I have 2 rounds of the 6 month Lupron injection for endometriosis and fibroid tumors and less than 10 years later I suffer from chronic pain, chronic sciatica and bone loss and memory loss not to mention the chronic fatigue that goes along with it. I wish I had known these were the long term side effects were a possibility but the doctor never even suggested these long term side effects. More research is needed before this drug ruins others lives.REPORT COMMENTS
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No, CancelApr 20th, 2016Someone from Ford City, PA writes:
I had lupron to treat cancer,u shouldn't say it's ok for life threatening conditions.u must first look at quality of life,I have no quality of life.who wants to be in bed all the time.i miss out on family outings ,cause I can hardly walk due to pain.the best part is lupron supposedly only decreased the risk of my cancer returning by a lousy 8 %.but I was manipulated into taking that drug. I have a few ideas why , but don't want to accuse anyone.i am a nurse. I now find I didn't even need that drug.my estradial was 22,far into menapause.my ovaries where shriveled up,they couldn't even find one thru tests.it would have made more sense to monitor my estradial lev than give me such a powerful poison. It just doesn't make sense.a question my dr. wONT Answer.the best part is I asked my dr. To do a baseline estradial lev.i refused anymore shots after5 due to ,multiple debilitating health problems. He wanted me to take it for 5 years.i went from being very athletic to feeling 90.it makes me angry when I see elderly people in much better shape than me..I have debit snxiety,depress.fast bone loss,the list is endless.sometimes death can be a welcome thing when u are in excruciating pain.i know several women who refused hormone thera. Ten yrs ago and are fine today,but that's rolling the dice.i consider taking lupron one if not the biggest mastakes of my life..I will never allow myself to feel so Iil that I assume my dr. Is looking out for me. He wasnt.REPORT COMMENTS
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No, CancelApr 19th, 2016Someone from Bradenton, FL signed.
Apr 19th, 2016Someone from San Francisco, CA signed.
Apr 19th, 2016Someone from Falls Church, VA signed.
Apr 18th, 2016Someone from Basking Ridge, NJ writes:
I was given Lupron for fibroid treatment. Only one shot changed my life. It caused me high blood pressure, body aches, palpitations, insomnia, join pain, back pain, heel pain, severe hot flashes, brain fog & constant fatigue. The worst part, I was still bleeding & had to go for surgery to treat the fibroids. After 6 month I started feeling a bit better, but still not back to normal. It shouldn't be given for fibroid & endometrios treatment. I understand if a patient is being treated with cancer, may be they can weight the benefits & risks, but for someone who doesn't have a life threating condition, it's brutal to treat them with this!REPORT COMMENTS
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No, CancelApr 18th, 2016Someone from Spokane, WA signed.
Apr 18th, 2016Someone from Spokane, WA signed.
Apr 18th, 2016Someone from Spokane, WA writes:
I was on this drug for 4 years (on & off). This drug made me so sick! It NEVER even helped my problem and ONLY made it worse!! I am still dealing with the effects of this drug and my last shot was in December 2011! Still suffer horrible hot flashes, horrific headaches, crappy insomnia, major bone loss, etc...This POSION needs to be taken off the market so no other women and children suffer! If I knew what this POSION really was, I NEVER would have EVER put it into my body!REPORT COMMENTS
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No, CancelApr 18th, 2016Someone from Webster, NY writes:
This drug made me so sick. I was told I would have hot flashes and night sweats NOT All of the other issues I had leaving me bedridden for weeks after my treatment. Unable to work, care for my kids, I was devastated by the horror of this poison.REPORT COMMENTS
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No, CancelApr 17th, 2016Someone from Evansville, IN signed.
Apr 17th, 2016Someone from El Paso, TX writes:
I can't let other girls suffer what I did...REPORT COMMENTS
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No, CancelApr 17th, 2016Someone from Valhalla, NY writes:
Androgen ablation therapy is not only dangerous but it ruins lives. People are not the same after administration of these types of drugs. If a drug was designed for cancer, it should ONLY be used for friggan cancer. Isotretinoin/Accutane was designed as a chemotherapeutic agent, yet since it clears acne, it is given out like candy. But be careful because you're not getting that candy on Halloween from a friendly neighbor, it's more like dermatologic pedophile candy delivery - That******Is Poison. Chemo drugs are POISONOUS.REPORT COMMENTS
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No, CancelApr 16th, 2016Someone from Ronkonkoma, NY writes:
I am a 31yo single female with No kids. I'm sure you are thinking that sounds like a great life you are only responsible for just you & those you choose to care about, but there is a catch.... At 16 yrs old, I was a HS senior on the path to early graduation and graduated 6mths early in January of 2002. With asperations of a year off, then off to school for nursing to be an RN. I began having female issues far more then the normal or average normal female has....extreme pain/cramping on a monthly basis, mood swings, fatigue, & back pain. I spoke with an OBGYN (@ 16 with no parental consent other then for the surgeries for hospital protocol) after a few tests he recommended a laparoscopic procedure to locate & if located remove scar tissue for endometriosis. After that I was put on a medication called lupron. I was given a choice between that and depo shots and because my Aunt who I most resemble, as well as (up to this point) had the same medication reactions with. Had a major reaction to the depo shots on a very large scale, which included hospitalization, my only other option left was lupron. From what I was presented and discussed with my Dr. I was given the impression they were both birth controls. I was on the medication for 3mths (and even remember the Dr. Giving me a script from other another persons name (shots were given in the office every mth) after 3 mths i was informed my ins wouldn't cover any more shots and was put on oral birth control. Over the next few mths I started having issues with my neck and shoulders I spoke with my regular Dr.(GP), at the time. She said it was likely just growing pains because my breasts were getting larger then most & it was putting more strain on the muscles and I needed to work out the muscles to support them. As well as the change to being on my feet 6 hrs a day after school, at pt jobs. Towards the end of the year 2000 I was the rear driverside passenger in a vehicle that was rear ended at a red light. Following this event I started to have more issues with my neck and shoulders as well as my lower back. I was put on mild medications, such as Skelaxin and/or anti depressants. I was told to take Advil 600mg - 800mg as needed (not knowing the effects they can have on the stomach). Through no fault I had nerve testing done, which showed nerve damage to the shoulder/upper back. I had MRIs which showed an L5-S1 herniation & a bulging disk in my neck. A follow up later showed c2-c6 are bulging disks. I had a repeat laproscopic surgery in 2003 with 3 mths of lupron & again in 2006. Following the 2006 surgery I was put on lupron again for an even longer period of time. At this point i was having such issues with pain I had to leave my job. By 2007 I was still in agony. Was out of work and had to move in with my father and boyfriend just to survive financially, because I to this day have been unable to get disability (i have a lawer that just got involved with helping out with this.) While waiREPORT COMMENTS
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No, CancelApr 16th, 2016Someone from Mascoutah, IL writes:
I used Lupron for endometriosis on numerous occasions for years. My first treatment started in May 1993 and was for about a year. I used it so much that, when I used it for a round of IVF, it was difficult to get it to suppress my system on 1999. The final time I used it was about 10-11 years ago when I used it for endometriosis and it failed to work but gave me just the horrible side effects. Today, I suffer from "brain fog", migraines, elevated rheumatoid factor, vestibular problems, depression, anxiety, widespread body aches, nerve issues, hot flashes/difficulty tolerating heat, severe & numerous allergies, & the list goes on. It seemed as if each time I took Lupron my health worsened & being off of it entirely has not improved my health. This appears to be a toxic drug and should be further evaluated for long-term effects.REPORT COMMENTS
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No, CancelApr 15th, 2016Someone from Savannah, GA writes:
4 years later and the side effects continue. There are not any lawyers who can help with this as BIG PHARMA is hard and expensive to sue for personal damage unless a MDL (multi-distrcit litigation) is filed, and there is not one yet. Side effects include: suicidal tendencies, memory impairment, cognitive function deficits including attention and concentration, energy decreased to not be able to do simple everyday tasks as easily as pre-injection, inability to hold down a full-time job as pre-injection, stress, anxiety, panic attacks. My life and livelihood has been dramatically affected. Please find a way to help those of us who have been affected and please remove this drug from any further destruction of lives. We need a recourse from this FDA approved drug that our medical system can not reverse its effects, and we are left "stuck" living a new "normal" that is not normal at all.REPORT COMMENTS
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No, CancelApr 15th, 2016Someone from Spruce Pine, NC signed.
Apr 15th, 2016Someone from Fairfax, MN writes:
I received monthly Lupron injections from 2002-2007 for treatment for breast cancer. I continue to suffer from what doctor's have decided is Chronic Pain Syndrome. My worst problems are the continuing body aches and joint pain and with that depression and anxiety. It is never ending. If I would have known that this would be my life after cancer treatment, I would have chosen a different method of treatment.REPORT COMMENTS
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No, CancelApr 14th, 2016Someone from Sedona, AZ writes:
This drug is poison. Ruined my quality of life.REPORT COMMENTS
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No, CancelApr 14th, 2016Someone from Bristol, CT signed.
Apr 14th, 2016Someone from Forest Park, GA signed.
Apr 14th, 2016Someone from Glen Burnie, MD signed.
Apr 13th, 2016Someone from Nashville, TN writes:
I have continued to suffer what I believe is long term memory loss due to using lupron and depoREPORT COMMENTS
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No, CancelApr 13th, 2016Someone from Port Orange, FL signed.
Apr 13th, 2016Someone from Chester Springs, PA signed.
Apr 13th, 2016Someone from Amissville, VA signed.
Apr 13th, 2016Someone from Sneads Ferry, NC signed.
Apr 13th, 2016Someone from Sneads Ferry, NC writes:
I was treated for this in 2007 and I missed 10 days of school after every shot. My mother sat and had to reteach me how to walk . I stopped the drug after 3 shots. Now I'm facing body pains and anxiety and just being sick all the time it feels like I live at the doctor. Please for all the women and CHILDREN they gave this to me when I was only 7 years of age not even knowing if it would do anything to my future and it has please sign this and help us warn people about the long term effect and then have a voice because we didn't .REPORT COMMENTS
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No, CancelApr 13th, 2016Someone from Hamden, CT writes:
I took this product i believe it was in the year 2011. Before that i was a relatively healthy person. Now I am a mess! It started that a few years after treatment i went to a health fair in my state and they had a screening for osteoporosis. My levels suggested that i had it and pretty bad. The next week i went to my doctor and they laughed in my face. No one that young has it. 5 years have passed and i have never been so sick. I have fibromyalgia, arthritis, a rare bleeding disorder, anxiety issues. The list goes on and on. This drug has ruined my life. I am currently filing for disability because i am in just pain all the time. Please PLEASE stop this drugREPORT COMMENTS
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