Investigation into Lupron Side Effects (Leuprolide Acetate)
Public Comments (5,065)
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May 14th, 2016Someone from Ford City, PA writes:
If these issues are addressed in the future, I am not only volunteering to speak out about the issues involving lupron ; I am requesting too. Thanks and God bless. -
May 13th, 2016Someone from Winchester, VA signed.
May 13th, 2016Someone from Newark, OH signed.
May 13th, 2016Someone from Winchester, VA signed.
May 13th, 2016Someone from Berryville, VA writes:
I was given two shots (six months) back in 2002 after my second laparotomy for endometriosis (now Stage IV). T he Lupron was "supposed" to put me in menopause and destroy the endometriosis. Needless to say, I've had a total of 5 surgeries, complete hysterectomy, no ovaries, no hormone replacement therapy, and my gyno tested my estrogen levels back in August 2015 (the same surgeon that did partial hysterectomy and referred me to Professor from Hopkins for additional care). He bet me (joking of course) that I had ZERO estrogen and even remembered me 12 years later (because I was in his "top 10 most complicated cases, ever"). Lovely award...haha The endo produces its own estrogen in my body and continues to grow. Ive had a bowel resection, intestinal restrictions bc of the Stage IV endometriosis, and almost lost my bladder at 30 years old, still fighting this at 41. Not only did this HORRIBLE treatment not work, it's destroyed my body. I now suffer from several very painful DX's that are a resullt of this therapy. Quite possibly the AI (dx) and and having zero immune system may be directly related to Lupron. I share my story ONLY because you may know someone thinking about this treatment. Please reconsider. It ruins your bones, teeth, joint pain, memory loss, and I have met several women throughout the years facing this treatment. Please sign and pass this along. One day your life may be forever changed due to following your doctors orders. I was only 25 years old. It stole my life from that point on, physically. Many BlessingsREPORT COMMENTS
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No, CancelMay 11th, 2016Someone from Ford City, PA writes:
I had just commented a few days ago,but forgot a few things .I am a registered nurse and don't claim to know everything, but I do know i had a huge deterioration in my health during and after lupron. To the lady that says gabapenton makes her mind feel foggy, just know lupron has been known to cause severe fogginess,forgetfulness, and moodswings per many people that have been on it..I too was on lupron to slow down estrogen production. i had estrogen fed breast cancer,.so to all u ladies that take lupron for that or if ur about to ,listen up. I requested that my oncologist do a baseline estradiol level, not a plain estrogen level.thats the specific lab these doctors want to keep low. There is a difference, between the two labs.My level was rock bottom low at 22.a man's normal estrogen lev can go up to37. I refused lupron after five shots, cancer or not,I couldnt take it anymore. i went from feeling like a 25 year old athlete to feeling 90yrs. Old..my oncologist thought my estradiol level might skyrocket because i refused to take anymore lupron shots and increase the risk of cancer returning,I had my pcp check it at least three times, it remains at 22.so had i listened to my oncologist i would have been taking those shots for another four and a half years. All im saying ,is get the blood work to check if the estradiol is even high, mine wasnt,the shame is i never should have even been made to take it in the first place.chemo made me menapausal..LIES & MANIPULATION ??? ARE KICKBACKS STILL BEING GIVEN TO THESE DOCTORS? I EVEN GOT A COPY OF MY OFFICE NOTES, THE DR. LIED. HE ESSENTIALLY PAINTED A PICTURE THAT I WAS TOLERATING LUPRON. I WANT TO KNOW WHAT THE HELL THATS ALL ABOUT? . my doctor should have checked estradiol levels monthly, instead of giving me such a powerful drug.I couldn't take it anymore,severe depression, sobbing from the time I got up until I went to bed.major problems walking due to excruciating pain, the list is endless..thank GOD for my pcp treating my pain and being an all around angel.,many doctors do not treat pain adequately.I have developed too many health issues to mention.I did not have Internet access when starting lupron.my oncologist. has an outstanding reputation,so I thought he'll take care of me. He said worse thing that could happen was hot flashes.he denied knowing lupron was a controversal drug,says he never heard the negstivity.so I had brought him multiple articles about lupron being poison,for someone dispensing lupron to patients u would have thought he would have showed interest in the articles.NO HE DIDNT.He left them on the counter didn't even put them on his clipboard.once again dismissed my complaints. uninterested.I've noticed when I want answers he shortens my appointment time.I am so miserable my life is destroyed. I often speak of doctors practicing medicine,or experimenting on patients, they need to at least be honest about side effects. Well dear friends,I hope GOD lessens ur burdens and blREPORT COMMENTS
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No, CancelMay 10th, 2016Someone from Falmouth, ME writes:
I was on it for over six years as part of a preventative treatment to try to keep my estrogen driven breast cancer from coming back. It's been almost two years since I've been off of it and need information in long term effects of long term use of this drug. I'm having issues and believe it goes back to this drug but can't really know for sure if they won't make the data availableREPORT COMMENTS
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No, CancelMay 10th, 2016Someone from Marysville, CA writes:
It's been one month since I had a one time injection of Lupron to rule out endometriosis. I can say that this medication has made me depressed and irrational to the point I want to divorce. Also, I am chronically fatigued/tired no matter how much sleep I get. My anxiety has worsened as well.REPORT COMMENTS
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No, CancelMay 10th, 2016Someone from Desoto, TX writes:
I had to take this medication due to severe fibroid tumors, and now my ankles snap with a sharp pain when I walk. I also have a severe case of Peripheral Nueropathy and with that burning hands and feet, I take Gabenpenton for nerve pain and this causes foggy brain and loss of memory. I am at a point were I am showering twice because I can't remember if I washed my back, face and legs. I am a total mess and for a living I used to be an administrative assistant/secretary, now I am nothing but someone struggling to walk across the room due to the aches in my joints, and I can no longer type due to the burning in my hands. I am 51 years old and I took injections of Lupron when I was 46 until I was able to have surgery to remove the fibriods. I have had the above illnesses, including obviously depression, since those injections.REPORT COMMENTS
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No, CancelMay 9th, 2016Someone from Mesa, AZ signed.
May 9th, 2016Someone from North Las Vegas, NV signed.
May 9th, 2016Someone from Ford City, PA writes:
The mere fact that there haven't been any long term studies on the side effects of lupron on the human body ; is alone eough to have it pulled off the market immediately.yet it continues to be given to the unsuspecting public. This is in spite of Abbott lying that they did these studies, their punishment? They continue to get rich marketing this poison. lupron to the unsuspecting public., especially with several thousand complaints, including death and destruction of one's health.I'm seeing many more consumers catching on that someone with very deep pockets or in a high place is pulling all the strings.THIS LUPRON PROBLEM PUTS ME IN MIND OF THE EXPERIMENT DONE ON OUR BLACK MILITARY FROM 1930'S TO 197'0'S.They to were mislead and not given the facts.the gov knew they had syphillus,never told them. They spread it not knowing they had it. The gov just wanted to see its effects after 40 years , eventually they found pennicillin.was the antedote,but withheld that knowledge for decades..practicing medicine experimenting with medicine.in the Tuskegee university experiments the black military were lied to.Only they had pcn the antidote fore these men and left them go untreated for decades.would the greatest country in the world do such atrocities to anyone,let alone men putting their lives on the line for their country? OUR GOV ISNT ACTING QUICKLY ENOUGH,THERE ARE LIVES AT STAKE DR. REDWINE'S RESEARCH NEEDS RELEASED, BEFORE THE RESEARCH ACCIDENTLY GETS DESTROYED.OUR RIGHTS ARE BEING VIOLATED! WE HAVE THE RIGHT TO SEE RESEARCH THAT WAS DONE WITHOUT SOMEONE LYING ABOUT IT.YET THE RESEARCH THAT WAS CONFIRMED TO BE BASED ON LIES WE CAN SEE THAT. OH HOW I WISH I COULD GO BACK TO THE DAY I WAS GETTING MY FIRST LUPRON SHOT AND KNOW THEN WHAT I KNOW NOW. .REPORT COMMENTS
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No, CancelMay 8th, 2016Someone from Los Angeles, CA writes:
This drug has changed my life forever. It is now 2016 and I am STILL suffering from the side effects of this disgusting drug and it was given to me in 2005! These doctos have done nothing to acknowledge my horrific experience and it was not even worth taking because I continued to suffer. As a result of this drug i've had MORE pain and MORE horrific periods because of the hormonal alterations to my body and literally could not go anywhere when I was on my cycle. It gave me MORE fibroids and MORE problems and unimaginable pain from the heavier cycles. I was only 27 when that doctor ruined my otherwise very healthy, youthful body. I cannot begin to tell you how I have regretted every part of listening to that doctor who seemed more concern with my fertility than anything.REPORT COMMENTS
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No, CancelMay 6th, 2016Someone from Egg Harbor Township, NJ writes:
Will I ever be the same post Lupron? This drug robs innocent people of a healthy life. I would have rather lived with the endometriosis pain, than the pain I'm in every day. Please take it off the market!REPORT COMMENTS
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No, CancelMay 5th, 2016Someone from Lancaster, CA signed.
May 5th, 2016Someone from Campbell Hall, NY signed.
May 3rd, 2016Someone from Cincinnati, OH writes:
This is mind blowing! If they have no problem giving the drug to people they should have no problem releasing the data. How many times will greed be permitted to trump the health and safety of human beings?REPORT COMMENTS
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No, CancelMay 2nd, 2016Someone from Lyndonville, NY signed.
May 2nd, 2016Someone from Portage, IN writes:
how could this still be on the market? who is getting paid off, i have server depression, headaches, body aches, total glumness,loss of memory, cant concentrate, hot flashes, sweats fatigued total weakness , and several othersREPORT COMMENTS
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No, CancelMay 1st, 2016Someone from Dallas, TX signed.
Apr 30th, 2016Someone from Statesboro, GA signed.
Apr 30th, 2016Someone from Colorado Springs, CO signed.
Apr 30th, 2016Someone from Clarksburg, WV signed.
Apr 30th, 2016Someone from Modesto, CA writes:
I was on Lupron shots in my 30's for extremely painful endometriosis and infertility problems. I trusted the doctor and didn't research it. The side effects then we're a pain (MAJOR hot flashes and headache) but nothing compared to the long term side effects I continue to experience. I have osteoporosis which DOES NOT run in my family. I'm in constant pain. I can't move at all without my spine crackling. I have been on meds for the osteoporosis but they aren't helping. I feel like my bones are disintegrating and I'm afraid I won't be able to move as I get even older aND nit be abe to work. How will I live then? I'm having problems with my teeth and have had to have several crowns and root canals. I think I have 2 more molars starting to go bad. Lupron is a poison and needs to be off the market!REPORT COMMENTS
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No, CancelApr 30th, 2016Someone from Charleston, WV writes:
I have been on Lupron for 3 months. After my third shot, this treament (poison) has proved much worse than my illness. I had no idea it would cause such exhaustion and joint pain or depression. This shot is ruining my life. Should not be on the market.REPORT COMMENTS
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No, CancelApr 30th, 2016Someone from Charleston, WV writes:
I have been on Lupron for 3 months. After my third shot, this treament (poison) has proved much worse than my illness. I had no idea it would cause such exhaustion and joint pain or depression. This shot is ruining my life. Should not be on the market.REPORT COMMENTS
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No, CancelApr 29th, 2016Someone from Seattle, WA signed.
Apr 29th, 2016Someone from Bedford, TX signed.
Apr 28th, 2016Someone from Salisbury, MD writes:
It was recommended to receive depo lupron in 2005 for Uterine Fibroids instead of surgery. So I respected the opinion of my surgeon and received the recommended time of depo lupron. I had a thriving career, and now I have been through hell. Homeless, bankruptcy, and unable to support myself like I was. I had even filed for SSDI and was denied. I have had several of these conditions now. I believe mostly due to in part of the depo Lupron. Not nearly enough studies was done on it, and it should be stopped. Thank you.REPORT COMMENTS
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No, CancelApr 28th, 2016Someone from Longview, WA signed.
Apr 28th, 2016Someone from Ballston Spa, NY writes:
I don't even know where to start. I could write a novel-oh so dramatic, I know. I guess I'll start with the Doctors who bullied me and betrayed my trust. It took 4-5 years of complaints before they even took notice. Before diagnosis, ultrasound, or going for surgery, they put me on Lo Loestrin Fe. Within hours of my first pill, I started having more frequent palpitations. I have mild MVP with regurgitation. I thought maybe it was just acting up. For 4 days, I had constant palpitations, chest pains, vertigo, shortness of breath, migraines, nausea, fatigue, loss of appetite....when it finally occurred to me on day 4 that the pill could be the culprit, it was a Saturday so I called the emergency hotline. The nurse told me to stop taking it immediately. When I told my NP, she said "hmmmm, well that's weird. I've never heard of that happening. Well I guess we can't do that so we'll have to do some ultrasounds". She actually had the nerve to pre-amptively address the commercials about Lupron lawsuits and compared them to a check she got from a lawsuit against a shotgun manufacturer! Completely unrelated and I didn't even bring up the lawsuit commercials-she did! She was on damage control as of day 1. Jump to 5 months later(August 2013), I had lapro and Lupron. The doctor said I would go into temporary menopause and have MILD hot flashes and mood swings because that's what happens when women go through menopause naturally. He said I might gain 20-30lbs. He said that they had to give me Lupron or there'd be no point in doing surgery because "there's no way we'll get it all". They said they would give me Lupron at the end of the summer for better comfort with the hot flashes. They told me it's sometimes used IN CONJUNCTION WITH chemotherapy drugs for some cancers. Never once did they ever tell me it IS A CHEMOTHERAPY DRUG! Every doctor and NP at that office downplayed the side effects and promised me as soon as the duration of the shot is over, I would be getting back to my old self. I joked and said "maybe I should stay off the internet when it comes to Lupron". They agreed-big surprise there, huh? There was nothing mild about the side effects. I became suicidal-sometimes would think "maybe I'll just keep driving straight, hopefully I don't wake up tomorrow". Hot flashes every 10-15 minutes for 6-8 months before they finally started to space out. I was supposed to get 2 3 month injections but was fired 2 months into the first round. They started pushing me into the second shot over the phone until I told them I lost my job and hence my insurance. Then they gave up so quick! Battle easily won. I had such severe anxiety, I lost weight. I was 5'6" and 120lbs, I dropped down to 105lbs. And no, I've never wanted to be skinnier. The boss who fired me was ****ed because I had no appetite for the expensive Swedish cake his wife bought for his new partners baby shower. Also ****ed I didn't come in on my day off, unpaid, for the open house he threw for the new paREPORT COMMENTS
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No, CancelApr 27th, 2016Someone from Lancaster, MA signed.
Apr 27th, 2016Someone from Carpentersville, IL signed.
Apr 27th, 2016Someone from Nashville, TN writes:
Im suffering......i was not informed that any of these terrible side effeffe was even a possibility. I took this during IVF. I guess I would have done anyrhing to get pregnant....shots every day for weeks...only to get pregnant with twins....and lose them at 9 weeks. Now i suffer from severe mood swigs...hot flashes...bone pain .REPORT COMMENTS
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No, CancelApr 27th, 2016Someone from Mascoutah, IL writes:
I used Lupron for endometriosis on numerous occasions for years. My first treatment started in May 1993 and was for about a year. I used it so much that, when I used it for a round of IVF, it was difficult to get it to suppress my system on 1999. The final time I used it was about 10-11 years ago when I used it for endometriosis and it failed to work but gave me just the horrible side effects. Today, I suffer from "brain fog", migraines, elevated rheumatoid factor, vestibular problems, depression, anxiety, widespread body aches, nerve issues, hot flashes/difficulty tolerating heat, severe & numerous allergies, & the list goes on. It seemed as if each time I took Lupron my health worsened & being off of it entirely has not improved my health. This appears to be a toxic drug and should be further evaluated for long-term effects.REPORT COMMENTS
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No, CancelApr 26th, 2016Someone from Olathe, KS writes:
I was prescribed Lupton after having surgery for endometriosis. I only got one injection. But my life has not been the same since. My doctor also told me that this could help me get pregnant. But I have not had a period in over 6 months so that will be very hard. I went into a deep depression, having anxiety attacks, uncontrollable insomnia, and chronic pain all over my body.I have been diagnosed with rheumatoid arthritis, osteoarthritis, And fibromyalgia. There was an x-Ray done on my knees and my doctor told me he has never seen a 29yr old with knees as bad as mine. And he has seen 60 year olds with knees better than mine. Lupron was the biggest mistake in my life. And now I can't work and hardly leave my house at 29yrs old. Please do not take this drug.REPORT COMMENTS
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No, CancelApr 25th, 2016Someone from Clarksville, TN signed.
Apr 25th, 2016Someone from Olympia, WA writes:
Had undiagnosed pain that came and went with my cycle. Dr. recommended lupron. Told me it would put me in menopause with hot flashes but pain would be gone and side effects would be gone a few months after shot. Had first 1 month shot to test it out. Lots of hot flashes and absolutely zero sex drive, but thought I could deal with it. Had 2 more 3 month shots. It's been almost a year since last shot - pain is still around, still mostly not interested in sex and just found out I have moderate osteoarthritis in my knees. I just turned 38 and found out I have a disease that generally effects older people. My new dr. thinks it's probably from the lupron. I was rushed into my decision to start lupron and wish I could have had more time for research to make a big decision - short term pain relief (which didn't work) and the strong likelihood of a degenerative disease that will keep me in pain for the rest of my life. I would have chosen differently.REPORT COMMENTS
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No, CancelApr 25th, 2016Someone from Greensboro, NC writes:
Age: 18- had a 3-month length lupron shot, was suppose to get another at end of 3 months, before I was given the shot I was diagnosed with endometriosis. Come to find out the Dr. didn't do a required pregnancy test and gave me the shot. Bled heavily every day for the 3 months, severe pain in my abdomen still. Thought it was from the endo, went back for next shot and told Dr I had a water balloon feeling, nauseous, abdomen pains, he gave me an (Oh Crap) look then said he was going to give me a urine test. Come to find out I was 18 wks pregnant that day. I was a few wks pregnant when he gave me the shot. Lost a twin, my boy that survived is now 10. He's Autistic and Epileptic. I have Fibromyalgia (diagnosed shortly after getting shot), Chronic back pain, permanently damaged nerves in back, sciatica nerve is damaged, nerve endings in left leg damaged, showed signs of osteoporosis...all these found out within past 10 yrs. Took awhile with different Drs, even had to have a total hysterectomy at age: 22. Chronic migraines, severe hip problems (bone and muscle wise). That Dr never told me any of these side effects except that I would have hot flashes and night sweats for duration of shot. I am a 60 yr old inside a 30 yr old. Just turned 30 yet I feel like I hit my sixties. That Dr disappeared shortly after us finding out I was pregnant. No one should go thru this kind of pain. Feel like a fricking lab rat shoved to the corner of the cage to live out my life after being experimented on. Sorry for long story.REPORT COMMENTS
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