Content not found
Investigation into Lupron Side Effects (Leuprolide Acetate)
Public Comments (5,065)
-
Jan 4th, 2016Someone from Boca Raton, FL writes:
As I lay here 4/1/16 after my second shot of Lupron, I pray that this drug is pulled from distribution or given with extreme warnings. I was given this due to terrible endometriosis pain. I am 37 years old and now have severe memory loss, horrible bone pain and have been in the ER on Christmas and New years for a horrible neuralgia in my neck and skull. The hot flashes and insomnia are side effects I signed up for and was warned of. I am now barely functioning and am extremely concerned that I will be disabled from the pain I am now in directly due to Lupron. I am frightened. I am a professional in the health field and have gotten no answers to how I can recover from this so called medication. I hope more people reach out and get rid of this drug. I honestly feel that if I die from this drug and it's side effects that my family can sue and at least make them pay for how they have disabled me. Dramatic? Try functioning with pain shooting through your skull and bone pain everyday. -
Jan 4th, 2016Someone from Shrewsbury, NJ signed.
Jan 4th, 2016Someone from Chicago, IL signed.
Jan 3rd, 2016Someone from Marion, OH signed.
Jan 2nd, 2016Someone from Eau Claire, WI writes:
I was given lupron for the treatment of stage IV endometriosis. I was not educated about the risks until it was too late. No more women should receive this drug until there are more long term studies.REPORT COMMENTS
Do you want to report these comments to the moderator for removal? They should be offensive, threatening, a duplicate submission, or spam.
No, CancelJan 2nd, 2016Someone from Mesa, AZ writes:
I am in pain all day everyday, since I underwent 2 yrs of Lupron injections for breast cancer. I can't get up to do anything without taking pain medication. I feel frightened about my future.REPORT COMMENTS
Do you want to report these comments to the moderator for removal? They should be offensive, threatening, a duplicate submission, or spam.
No, CancelJan 2nd, 2016Someone from Clever, MO signed.
Jan 2nd, 2016Someone from Napa, CA writes:
I went through 6 mo treatment for Endo, which did stop period, but very shortly after, I felt like I was 90 when I was only 42.. All muscles got so stiff, I would say like fibro.. I stopped treatment and was in such pain and desparation that I did another 6mo round of the Luperon.. During the second one we added back some estrogen and that helped some, I asked for some progesterone and found great relief of all the muscle stiffness.. After reading found that Progesterone helps the pain of Endo and I stayed on it.. The Endo was controlled well with the progesterone, I should have tried it first.. I have felt like the Luperon aged me so much.. Now at 48, I just found out I have a herniated disc with a huge cyst blocking my nerves to my side.. My back is very degenerated for my age.. I don't think the luperon shots did any favors to my body.. All of you having so much pain still, ask your doctors about Progesterone, it at least gave me back some elasticity..REPORT COMMENTS
Do you want to report these comments to the moderator for removal? They should be offensive, threatening, a duplicate submission, or spam.
No, CancelJan 1st, 2016Someone from South Portland, ME signed.
Dec 31st, 2015Someone from Morrisville, VT signed.
Dec 31st, 2015Someone from Richmond, VT signed.
Dec 31st, 2015Someone from Jacksonville, FL writes:
Suffering with longterm side effects after 6mos of Lupron injections in 1996 for TX of endometriosis. Joint and deep bone pain, tennis elbow, chronic knee pain. I was reassured from my gyn at women care in Warwick that this TX was safe. It's ridiculous and they know and knew it, but I trusted her opinion at the time because I knew nothing about endo, and she admitted the medical community was not clear on how to treat this horrific disease.REPORT COMMENTS
Do you want to report these comments to the moderator for removal? They should be offensive, threatening, a duplicate submission, or spam.
No, CancelDec 30th, 2015Someone from Oklahoma City, OK signed.
Dec 30th, 2015Someone from Philadelphia, PA signed.
Dec 30th, 2015Someone from Spooner, WI writes:
I have suffered with rheumatoid arthritis and other ailments for 15 years. I am now 48 and hate life. I want my life back! I want to be able to rim and play with my grand children. I was on Lupron about 21 years ago. It has ruined my body physically and mentally.REPORT COMMENTS
Do you want to report these comments to the moderator for removal? They should be offensive, threatening, a duplicate submission, or spam.
No, CancelDec 28th, 2015Someone from Manitowoc, WI signed.
Dec 28th, 2015Someone from La Mesa, CA writes:
In 2 years I have taken 15 months of Lupron Depot for endometriosis. The bleeding did stop after about a month of starting the shots. The side effects during the treatment were awful. I know what to expect when I start menopause. I am unsure if the Lupron is the cause or if Endometriosis is the cause for my weak immune system but I get sick much easier than anyone around me and it lasts so much longer.REPORT COMMENTS
Do you want to report these comments to the moderator for removal? They should be offensive, threatening, a duplicate submission, or spam.
No, CancelDec 28th, 2015Someone from Ford City, PA writes:
I've commented before,but would like to again.Every second of everyday, I am reminded of how screwed I am.My life is so over.I had 5 lupron shots,I refused anymore shots, because I could hardly walk.and the pain is excruciating.My doctor told me his plan had been to keep me on lupron for years.Just like the young 17 yr. old girl,I too was told to maybe expect just hot flashes,(as he laughed) that 's about it.He also did a dexa scan before startng lupron,merely a formality,he has never had a patient develop osteoporosis from lupron,but the test is required for a baseline.tonight I was trying to clean & decorate,I have to pay someone to help,I can't do minimal housework. Big strain on finances,since this 50 yr. old registered nurse is now on disability.I cry due to the pain several times a day,I cannot take it.If I'm sitting down& have to get up for something ,such as going to the bathroom or getting a drink of water: I sit up and think , oh ****, I have to put these feet on the floor,man that's going to set me on fire.In other words I dread simply going from a sitting to a standing position.I practiced nursing for 23 yrs. and never came across this kind of pain.I. have had severe pain in the past,fibromyalgia ,endometriosis, etc.and had developed a tolerance for pain.now I actually cry like a baby.i feel especially bad for those that are young. In my case it is only going to go from bad to worse.I am very afraid I may become bedridden in the next one to two years ! I used to describe the severe stiffness as being mechanical,I feel like I'm made from concrete. Lupron was given to me to treat breast cancer,I did not tolerate tamoxafin or arimidex,due to bad muscle & bone pain, but unlike the lupron ,iafter about ten days of not taking the pills the pain was gone.it is almost one year since the last shot of lupron and my bones are thinner and I am getting worse. If Dr. Ellis thinks he did me any favors he didnt.I feel I am part of one of his trials with this drug.i told him from the very begining of all the horrific side effects I was having,even being in such severe pain accompanied by severe stiffness that I FELT PARALYZED. He denied it was the lupron kept me on it.i used the term paralyzed. Who the hell do these doctors think they are? Arrogance,God-like.complex? Merk&i think it was osha list lupron as hazardas,so why is the FDA not doing a damp thing.oh yeah lots of narcotics to do min house work. I hate taking them.one more time, Dr. PETER ELLIS,did not document my horrific complaints.He painted a pic of someone doing well.Is it covering my ass? Is he getting kickbacks? Or am I just a guinea pig? I'm tired of doctors being the only ones getting to write about how an appoint. went.I am being honest.you bet ur sweet*****I am livid, he took my decision away from me by withholding the truth about lupron.He played God &decided I should be on lupron.My life is over,NO QUALITY OF LIFE.STAY TUNED & GOD BLESSREPORT COMMENTS
Do you want to report these comments to the moderator for removal? They should be offensive, threatening, a duplicate submission, or spam.
No, CancelDec 28th, 2015Someone from Shelbyville, KY signed.
Dec 28th, 2015Someone from Crofton, MD signed.
Dec 27th, 2015Someone from Louisville, KY writes:
My doctor want me to do six months of shots to combat my severe endometriosis back in 2013. I lasted through 3 months before becoming suicidal. I refused the last 3 shots and instead switched to Nuiva Ring. Who knows what might have happened if I continued with it like my doctor first wanted. I came very close to jumping in front of a train as it was.REPORT COMMENTS
Do you want to report these comments to the moderator for removal? They should be offensive, threatening, a duplicate submission, or spam.
No, CancelDec 27th, 2015Someone from La Porte, IN writes:
This "temporary solution" that was given for a permanent problem (Endo, Adeno, PCOS) has wreaked more havoc in my body and mind than the original diseases did. I like in debilitating pain, have problems ranging from bone and tooth loss/pain to Deg. Disc diseas and am constantly getting sick. I hate this drug and the way the dr's so careless continue to hand this out with the lie that add back therapy will prevent these symptoms. How can it be that no med professional is accountable for this?REPORT COMMENTS
Do you want to report these comments to the moderator for removal? They should be offensive, threatening, a duplicate submission, or spam.
No, CancelDec 26th, 2015Someone from Fox Lake, IL signed.
Dec 26th, 2015Someone from Wheatfield, IN signed.
Dec 25th, 2015Someone from Bedminster, NJ signed.
Dec 24th, 2015Someone from Elgin, SC writes:
I took approximately 5 Depo Lupron shots when I was in my 40's. I also took Depo Provera for several years in my 30's. I have been off the shots for about 8 years and within the last 6 years I have developed all over arthritis, fibromyalgia and osteopenia. My back, neck, both hips, left shoulder, both feet and ankles hurt to the point that most days its hard to function. The scary thing is that it keeps getting worse. Just wonder if it will eventually get to the point that I'm totally disabled. Read these posts and think twice if you are considering this medication.REPORT COMMENTS
Do you want to report these comments to the moderator for removal? They should be offensive, threatening, a duplicate submission, or spam.
No, CancelDec 24th, 2015Someone from Imperial Beach, CA signed.
Dec 24th, 2015Someone from Reseda, CA signed.
Dec 24th, 2015Someone from Rapid City, SD signed.
Dec 24th, 2015Someone from Rapid City, SD signed.
Dec 24th, 2015Someone from Rapid City, SD signed.
Dec 24th, 2015Someone from Rapid City, SD writes:
I was prescribed this drug out of despiration.My endometriosis journey started at 14 years old. Lupron was prescribed to me at age 19 after 4 surgeries and alternative treatments. We call this the devil drug at our house! My husband was my high school sweetheart and went through all of this with me. This drug changed me in ways I regret. Yes, my pain subsided, but the side effects were relentless and grueling. Until the research is complete, I hope it is taken off the market or given with extreme precaution!REPORT COMMENTS
Do you want to report these comments to the moderator for removal? They should be offensive, threatening, a duplicate submission, or spam.
No, CancelDec 24th, 2015Someone from Sturgis, SD signed.
Dec 23rd, 2015Someone from Tewksbury, MA signed.
Dec 23rd, 2015Someone from Ford City, PA writes:
I've commented before,but would like to again.Every second of everyday, I am reminded of how screwed I am.My life is so over.I had 5 lupron shots,I refused anymore shots, because I could hardly walk.and the pain is excruciating.My doctor told me his plan had been to keep me on lupron for years.Just like the young 17 yr. old girl,I too was told to maybe expect just hot flashes,(as he laughed) that 's about it.He also did a dexa scan before startng lupron,merely a formality,he has never had a patient develop osteoporosis from lupron,but the test is required for a baseline.tonight I was trying to clean & decorate,I have to pay someone to help,I can't do minimal housework. Big strain on finances,since this 50 yr. old registered nurse is now on disability.I cry due to the pain several times a day,I cannot take it.If I'm sitting down& have to get up for something ,such as going to the bathroom or getting a drink of water: I sit up and think , oh ****, I have to put these feet on the floor,man that's going to set me on fire.In other words I dread simply going from a sitting to a standing position.I practiced nursing for 23 yrs. and never came across this kind of pain.I. have had severe pain in the past,fibromyalgia ,endometriosis, etc.and had developed a tolerance for pain.now I actually cry like a baby.i feel especially bad for those that are young. In my case it is only going to go from bad to worse.I am very afraid I may become bedridden in the next one to two years ! I used to describe the severe stiffness as being mechanical,I feel like I'm made from concrete. Lupron was given to me to treat breast cancer,I did not tolerate tamoxafin or arimidex,due to bad muscle & bone pain, but unlike the lupron ,iafter about ten days of not taking the pills the pain was gone.it is almost one year since the last shot of lupron and my bones are thinner and I am getting worse. If Dr. Ellis thinks he did me any favors he didnt.I feel I am part of one of his trials with this drug.i told him from the very begining of all the horrific side effects I was having,even being in such severe pain accompanied by severe stiffness that I FELT PARALYZED. He denied it was the lupron kept me on it.i used the term paralyzed. Who the hell do these doctors think they are? Arrogance,God-like.complex? Merk&i think it was osha list lupron as hazardas,so why is the FDA not doing a damp thing.oh yeah lots of narcotics to do min house work. I hate taking them.one more time, Dr. PETER ELLIS,did not document my horrific complaints.He painted a pic of someone doing well.Is it covering my ass? Is he getting kickbacks? Or am I just a guinea pig? I'm tired of doctors being the only ones getting to write about how an appoint. went.I am being honest.you bet ur sweet*****I am livid, he took my decision away from me by withholding the truth about lupron.He played God &decided I should be on lupron.My life is over,NO QUALITY OF LIFE.STAY TUNED & GOD BLESSREPORT COMMENTS
Do you want to report these comments to the moderator for removal? They should be offensive, threatening, a duplicate submission, or spam.
No, CancelDec 22nd, 2015Someone from Sturgis, SD signed.
Dec 22nd, 2015Someone from Erie, PA signed.
Dec 21st, 2015Someone from Hutchinson, MN signed.
REPORT COMMENTS
Do you want to report these comments to the moderator for removal? They should be offensive, threatening, a duplicate submission, or spam.
No, CancelDec 19th, 2015Someone from Wisner, LA writes:
6 months of shots and 2 months later hysterectomy!! A year later I am still dealing with the side effects of Lupron. If I would have known then what I know now NEVER would I have ever taken those shots. NIGHTMARE that keeps returning. I have aching joints, back pain, hip pain and now aching and knots in my wrist! I am only 37 years old and should not feel like my bones are so weak. I have always been very active and still run everyday. But I pay for it each night and morning.REPORT COMMENTS
Do you want to report these comments to the moderator for removal? They should be offensive, threatening, a duplicate submission, or spam.
No, Cancel
Do you want to report these comments to the moderator for removal? They should be offensive, threatening, a duplicate submission, or spam.