Add Narcolepsy/Idiopathic Hypersomnia as a qualified disabling condition in the Social Security Blue Book.
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May 10th, 2016Someone from Milwaukee, WI signed.
May 10th, 2016Someone from Lansing, MI signed.
May 10th, 2016Someone from Gallatin, TN signed.
May 10th, 2016Someone from Evansville, IN signed.
May 10th, 2016Someone from Athens, OH writes:
I am a PhD student with narcolepsy and am researching narcolepsy.May 10th, 2016Someone from Milwaukee, WI signed.
May 10th, 2016Someone from Kokomo, IN signed.
May 10th, 2016Someone from Milwaukee, WI signed.
May 10th, 2016Someone from Belmont, NC signed.
May 10th, 2016Someone from Lansing, MI signed.
May 10th, 2016Someone from Topeka, KS signed.
May 10th, 2016Someone from Racine, WI writes:
I was diagnosed with Narcolepsy 15+ years. A few years after my diagnosis, it became physically unsafe for me to continue working as a medical assistant. A job I absolutely loved. Since then, I have been fighting for disability benefits with little to no progress. About 3 years ago, I hired a lawyer to help with the process. After being denied twice, I finally got word this week that I will receive an appeal in front of a judge. I pray for a good outcome for all of us fighters out there.REPORT COMMENTS
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No, CancelMay 10th, 2016Someone from Charlotte, NC signed.
May 10th, 2016Someone from Omaha, NE signed.
May 10th, 2016Someone from Fort Thomas, KY writes:
I suffer from idiopathic hypersomnia which has devastating life effects the same as narcolepsy and should be included as such.REPORT COMMENTS
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No, CancelMay 10th, 2016Someone from Gastonia, NC writes:
Narcolepsy is not only dangerous but is also extremely disabling. I'm surprised to learn it is not recognized as such.REPORT COMMENTS
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No, CancelMay 10th, 2016Someone from Belmont, NC signed.
May 10th, 2016Someone from Gastonia, NC signed.
May 10th, 2016Someone from Berkley, MI signed.
May 10th, 2016Someone from Belmont, NC writes:
My daughter struggles with narcolepsy!! It has been very difficult for her to attend college.REPORT COMMENTS
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No, CancelMay 10th, 2016Someone from Waukegan, IL signed.
May 10th, 2016Someone from Waukegan, IL signed.
May 10th, 2016Someone from Reading, PA signed.
May 10th, 2016Someone from Davidson, NC signed.
May 10th, 2016Someone from Denison, IA signed.
May 10th, 2016Someone from Las Vegas, NV signed.
May 10th, 2016Someone from Long Beach, CA signed.
May 10th, 2016Someone from Pennsburg, PA signed.
May 10th, 2016Someone from Tipton, IN signed.
May 10th, 2016Someone from Phoenix, AZ writes:
I've just been denied SSDI, I have been out of work since May last year. None of the combinations of medications have been able to put me back into the working force. I'm so deep in debt because I bought a house and a car that I can't continue paying on because I thought I would be working the rest of my life. I need ssdi, I have suffered for years with multiple symptoms of narcolepsy with cataplexy, including sleep paralysis, hypoagogic hallucinations, night terrors, day terrors, automatic behaviors, insomnia, and I have even hurt myself in my sleep. I was told by my boss not to fall asleep at work but that is like asking someone not to sit in a wheelchair when I don't have the symptoms under control. Please add this debilitating illness to ssdi.REPORT COMMENTS
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No, CancelMay 10th, 2016Someone from Madrid, NY writes:
After 20 years of misdiagnosis I finally found answers. I am a narcoleptic. It ruined my marriage, many of my friendships, I have missed our on many major events in my life as well as my daughter's. I almost lost my job, one I love and enjoy. Currently I am functioning well on medication, however at some point, that will not be the case. Please add narcolepsy to the blue book so people will finally recognize this completely debilitating disorder as a real disability. I'm not lazy or just tired. I have no control over my symptoms. Believe me when I say that no one "wants" to give up and draw SSD. What we want is the ability to support ourselves and try to live reasonably normal lives.REPORT COMMENTS
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No, CancelMay 9th, 2016Someone from Warren, MI signed.
May 9th, 2016Someone from Kalamazoo, MI writes:
Narcolepsy is a chronic, degenerative neurological disorder. Its adverse affect on primary systems translates to devastating physical, psychological, cognitive, social, & emotional effects for those afflicted. It's a life-sentence of randomly imposed helplessness; unpredictable vulnerability. Minimally, it steals your energy; more often it strips you of so much more: time, memories, intellect, abilities, self-reliance, confidence, independence, and freedom. What would you do if your brain stopped working? Who would help you?REPORT COMMENTS
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No, CancelMay 9th, 2016Someone from Jonesboro, AR signed.
May 9th, 2016Someone from Chicago, IL writes:
This is a condition that impacts me personally, making it challenging to go about day to day activities. I live in fear that someday I will no longer be able to work due to this condition.REPORT COMMENTS
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No, CancelMay 9th, 2016Someone from Royse City, TX writes:
Please add Narcolepsy with cataplexy to list of illnesses for SSD.REPORT COMMENTS
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No, CancelMay 9th, 2016Someone from Chicago, IL signed.
May 9th, 2016Someone from Fort Wayne, IN signed.
May 9th, 2016Someone from Longwood, FL signed.
May 9th, 2016Someone from Crofton, MD writes:
I was diagnosed with Narcolepsy about 9 years ago. The only good thing is that it won't kill me but it is a day to day battle. Please help us!REPORT COMMENTS
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