Urge the CDC to take action against surging unexplained disease
Public Comments (2,563)
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Aug 26th, 2016Someone from New Orleans, LA signed.
Aug 26th, 2016Someone from New Orleans, LA writes:
No pesticide work on these parasites / pest. The Government will Not step in until it affects one of them or their family member.It's coming soon...Aug 25th, 2016Someone from Falls Church, VA writes:
I'm not sure what can be done to stop these terrible infestations of microscopic blood eating disease carrying organisms, but something needs to be done prior to said organisms adapting to be immune to the solutions discussed on this website,REPORT COMMENTS
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No, CancelAug 25th, 2016Someone from Mount Hope, WV signed.
Aug 24th, 2016Someone from Fargo, ND writes:
The questions are, Why are we fighting this thing? Why are we writing to Congress? What kind of medical system do we have? Well, the answers to these questions are very simple: We are fighting these Mites because we have a stupid medical system. We are writing to Congress because we have a stupid government. And, the answer to the last question is the same as the answer to the first question. We know our medical system is stupid because we spend trillions of dollars of Health Care and the World Health Organization ranks us 72 in the world. We know our government is stupid because no one, from governor to president, has any training to manage the most powerful country in the world. Does it all make sense to you now?REPORT COMMENTS
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No, CancelAug 24th, 2016Someone from Austin, TX writes:
This disease is so isolating because no doctor will listen. My two little girls and I have had it for for over 3 years. We have fought it with all sorts of anti parasite supplements, as well as treating our house and laundry with orange oil, clove oil and borax. Definitely feel like we have some semblance of a life back, but still experience many symptoms. I feel we contracted it from chickens We bought the chickens from a store that we later found out had a bird mite problem. I believe that the store used a product called "BalEnce" was as a miticide. This product contains an entomopathegenic fungus called "Beauveria bassiana ". Great for getting rid of mites. The problem is if the mite bites a human with this fungus, then the fungus can then infect the human. This kind of fungus happens to be a favorite snack of collembola. So in the end it is the collembola we are fighting, not the bird mites, which were the initial vectors. As we have based our treatment on this theory, we have seen great results.But we still aren't 100%, because we are a family of 5 and it is hard to maintain any kind of strict protocol for very long without getting totally burnt out. We sure could use some support from the medical community. Thank youREPORT COMMENTS
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No, CancelAug 23rd, 2016Someone from Lake Jackson, TX signed.
Aug 23rd, 2016Someone from Rexburg, ID signed.
Aug 23rd, 2016Someone from Houston, TX writes:
Sharon A: TCM is Traditional Chinese Medicne - a Chinese medicine doctor. Katie A: Has your search turned up anyone "good enough" in Houston?REPORT COMMENTS
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No, CancelAug 23rd, 2016Someone from Las Vegas, NV signed.
Aug 23rd, 2016Someone from Duncan, AZ writes:
PLEEEEEASE! WHAT DOES CIM/TIM STAND FOR ????? HUH?HUH?HUH? WHAT???????GEEZUS IM SO FRUSTRATED W H A T? I even googled it. WHAT DOES IT MEEEEAN?????????😠😬REPORT COMMENTS
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No, CancelAug 23rd, 2016Someone from San Diego, CA writes:
I will be honest, I didn't believe in "morgellons", still don't believe most of what I hear about it. That was until last week when I pulled one of these things out of my leg, body and all, and filmed it moving. They are a parasite that has been found to like people with Lymes disease. Find a CIM/TCM that specializes in parasites, and make sure they are really good at what they do. If there isn't one in your area, drive/fly/bus to someone. They are the ONLY people who can help. The 2015 Nobel Prize for medicine went to three parasite researchers. http://www.nature.com/news/anti-parasite-drugs-sweep-nobel-prize-in-medicine-2015-1.18507 I am dealing with uncountable numbers of parasites and parasitic diseases. At 35 years old I have been suffering for 25 years. Western medicine doesn't know how to handle this yet, however parasites have been treated in China for over 10,000 years. This is another good read. http://www.acupunctureintegrated.com/articles/parasites-and-parasitic-diseases Western medicine is starting to catch on, but it is going to be a long time. Save yourself the time and disappointment, and find a CIM/TCM immediately before things get worse. And trust me, they only get worse.REPORT COMMENTS
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No, CancelAug 22nd, 2016Someone from Westminster, CA signed.
Aug 22nd, 2016Someone from Aurora, CO signed.
Aug 22nd, 2016Someone from Saranac Lake, NY writes:
This is devastating to my family and I.I have lost all contact with family and friends do because they gear of getting bugs. My sons and I suffer acne.hairless skin lessons and white thick stuff in hair. I've had my children taken because medical professionals thought I was crazy. We need help. PkeaseREPORT COMMENTS
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No, CancelAug 22nd, 2016Someone from San Diego, CA writes:
Debbie in KS. You are not alone. My experience over the past three years is strikingly similar to yours. My prayers are with you. I think answers will be cominv very soon. Warm eevards from san diego ca.REPORT COMMENTS
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No, CancelAug 22nd, 2016Someone from San Diego, CA writes:
Debbie w from kansas. I have this too for the past three years. Im 52 male in san diego. I think i have figured out the cause of this. Im seeing a new id doctor this afternion. I am hoping if i can vet this xoctor to support my conclusiins to present my evidence and conclusiins to the cdc by the end of tbis week.i am 99 per cent sure that i am correct and will do everytging i can to make sure that the information gets the attention and publicity necessary so that this ibhumane practice of sunmarily labeling people with this infection as delusional comes to a close and urge the medical community to not engage in such rrckless conduct in tbe future. I hope and pray that im corrrect foe the sake of everyone sucfering tbrougg this hell. I want my lice back. I deserve that as do all of us who have suffered and still suffer from this parasitic infection. I dont think its mites in my case. I hope to share wy conclusions with everyone soon if i am correct. I think we have reason to be optimistic that this disease will be much better undwestood and treated in the next few weeks. Keep fivbtinv this disease. We will beat it. I know it in my heart. The delusional ones are the doctors who have so wrongly labeled those of us inflictes with this parasite as delusiibal. I think the day of vindication is almost here. My understanding and conpassion goes out to all fellow succerersw. I wish everyone better days ahead. Stag tuned.REPORT COMMENTS
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No, CancelAug 22nd, 2016Someone from Murrells Inlet, SC signed.
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No, CancelAug 20th, 2016Someone from Merritt Island, FL signed.
Aug 19th, 2016Someone from Ojai, CA signed.
Aug 19th, 2016Someone from Bellevue, WA writes:
Please please CDC listen to these people. THIS IS REAL!!! I don't have this but have a friend who rents my house in arizona. She found a leak in the roof in a back room off house. Every time she would go in there to get things she would get bit. She didn't connect the bites to that room at first...... Until she brought out some stored clothing. She put them on started getting eaten up by these bugs. She even sent photos to me of little tiny white see through type worm crawling out from the tip of her finger. Her legs and arms are scarred from the mite. She also was having problems with mice and squirrels getting in under the house. Between the water leaks creating mold and fungus and that attracting more mites along with the mice and swuirells she is being eaten alive. She was able to get rid of them several times but they kept coming back every months. As a result of this I can't even legally sell my house without disclosing this mite issue. This affects all if us. It's going to start affecting YOU!!!! Listen do something. Start education to the local county vectors office and entomologist so that these people aren't being turned away labeled as crazy. They are not. This is so sad. You should feel shame.REPORT COMMENTS
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No, CancelAug 19th, 2016Someone from Los Angeles, CA writes:
Rotenone is only dangerous if you massively inhale it or inject it intravenously but rubbed on the skin isnt so bad and it has been used for generations. It works better than permithrin and at a decently high percentage 5% or more it would likely work to get these monsters off our scalp. Yet it has been systematically pulled off the shelves leaving only lame-o permithrin as main option. Perm works ok on body but isnt cutting it for scalp. Does anyone have an Agriculture license so they could get rotenone (used as a fish toxicant) at higher percentage? These things have travelled down the hair follicle shaft deep into my scalp and it's a nightmare. We are teetering toward an all out epidemic for sure. I cant live this way and something that packs a heavyweight punch needs to be available to us. This has ruined my life and i can't last much longer.CDC please recognize what is happening.REPORT COMMENTS
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No, CancelAug 19th, 2016Someone from Knoxville, TN signed.
Aug 19th, 2016Someone from Westminster, CO signed.
Aug 16th, 2016Someone from Birmingham, AL signed.
Aug 15th, 2016Someone from Fort Worth, TX writes:
I believe mites (in my case Ornithonyssus bacoti) are the cause. A national awareness of this prevalent problem is the first step. An effort to control these parasites is needed, especially in hot and humid states, like Texas. Without a wealthy income, and a significant amount of sick-days, these parasites devastate the lives of the afflicted. Government assistance is needed!REPORT COMMENTS
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No, CancelAug 15th, 2016Someone from Wichita, KS writes:
Government offices, private sectors & medical specialities, need to conscientiously put themselves on the same mental / emotional level as sufferers who/whom are dealing with this horrible affliction. Ask yourself two querys: 1.)If it was yourself or a close family member(spouse, child, parent(Grand-parent)), Would You Do Whatever It Took Through The Act Of LOVE To Help The Sufferer??? If Your Response, Honestly, is YES...Then Think LONG and HARD About Your Act Of Cruelty You Are Demostrating By Pointing Fingers, Speaking Hurtful Words and Turning A Blind Eye(do to lack of knowledge on YOUR Behalf) and Most Of All, The LACK OF LOVE and COMPASSION. 2.)Put Yourself in the shoes of the patient/sufferer. Would You Want To Be Treated The Same??? If Your Answer Is NO... Then It Is Time To Stand Up For These People and FIGHT BESIDE US!!! Rise Above Your Own Selfish, Ignorant Ways and Help By Working Beside Us Against This Act Of "Crime Against Humanity". The Last And Final Question I Would Ask You To Ask Yourself. WHAT WOULD JESUS DO??? Sincerely, fellow sufferer since 2012, Seeking Justice Against This "Crime Against Humanity" through Biological Chemical Warfare... Every Day We Get A Chance To Wake Up To Start A New Day Is A Second Chance; if You Choose To See The Opportunity, To Make Better Decisions. LET'S START CHOOSING TO MAKE THE CORRECT, TRUE, HONEST & COMPASSIONATE DECISION TO LIVE BY THE HEART & NOT BY THE MIND. ALLOW YOUR HEART TO DEFEAT THE MIND. THE MIND CONTROLS EMOTIONS, AS WELL AS OTHER BODY FUNCTIONS. I AM SAYING THIS: SPEAK AND DO FROM THE HEART NOT FROM THE MIND;FULL CONVICTION OF LOVE & COMPASSION. THANK YOUREPORT COMMENTS
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No, CancelAug 15th, 2016Someone from Oskaloosa, KS writes:
I was so happy. Until June 2015 when my world turned upside down. I had horrible hives for two weeks then one morning I woke with lesions literally covering my body. Over a year later, they are still there. Little larvae things come out of my skin, my nose, my mouth, I feel them crawling in my ears, my teeth fell out and they were gorgeous teeth. I feel like I have aged 25 years in the last year. My hair has literally turned silver/white. It didn't grow like that, it literally lost it's pigment. I lost 74 pounds first three months. Constant gut aches diarrhea, sleep 30 hours up for 30, I have been sicker than a dog. They are in my eyes. My blood sugar has never been over 80 as I'm diabetic until this hit a year ago and it has stayed at 300 with all the insulin I can withstand. I could go on. My cat was sick as well. I have fibers and all kinds of weird artifacts coming out of me. For the love of God someone help us. Help me. I never wanted to die so bad in my life and I'm only 52 and a new grandma but I haven't seen her because I'm so afraid I'll pass it on. PLEASE IS ANYONE OUT THERE???? God help us. Oh God help us!REPORT COMMENTS
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No, CancelAug 14th, 2016Someone from New York, NY writes:
The building at 298 East 3rd street, New York has complaints of bug bites. Upon visiting a friend, I was informed the managing agents carry this infestation from tenant to tenant. It has gotten so bad, most tenants will refuse repairs, rather than deal with what these people are contaminating everyone with. The man travels back and forth to Pakistan several times a year and should not be operating with the public, as he views this as normal living. Someone needs to step up their game because this will become a major epidemic if it is not so already. The medical board seems to place some gag order on their doctors telling patients they are crazy, and there is nothing there. Who knows what diseases will be passed on to the public if this continues to go unchecked. I have noticed a larger than normal population of mange on wildlife. Rats. mice, squirrels, etc. There are many leaks in the building that have never been repaired. This is not the American way to live.REPORT COMMENTS
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No, CancelAug 14th, 2016Someone from New York, NY signed.
Aug 14th, 2016Someone from Duncanville, TX writes:
Please help! This is a real issue. I have had this issue since 02/2015. I threw away all my stuff and still having problems ,REPORT COMMENTS
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No, CancelAug 13th, 2016Someone from San Antonio, TX writes:
Maybe common mold has evolved , I noticed most people who have the original infestation in they're social circles all come from moldy homes like myself , and then the mold attracts all mites and micro bugs to us , along with visible bugs like ants , gnats , Arthropods , anything attracted to mold ...REPORT COMMENTS
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No, CancelAug 12th, 2016Someone from Mount Dora, FL writes:
For 30 years I have worked as an electrical engineer designing and testing circuits for this great country. Graduating with 2 college degrees from one of the hardest colleges in the nation was something to be proud of. Shortly after my 52nd birthday, last April 2016, I called my boss to let her know that I would not be in to work due to what looked like a spider bite. I expected to be back to work the next day. Now it is 5 mos later and I have not been back to work. The bites spread all over my legs and water filled blisters as big as silver dollar dollars formed. Each blister had a spider in it. My hair came out in the tub and it had cocoons, spiders, cat hair, and red synthetic doll hair glued into the back of the scalp. I am not a redhead. My antique doll collection looks like something has messed up their wigs. The dolls are locked behind glass and it had been a mystery. My scalp skin was coated with some yellow epoxy like material and it felt like I was tapping a football helmet when I tapped my head. The spiders were some sort of mange mite that pulled fibers and hair into the hair follicles. These mites were also building mounds on my cats. While driving my car I felt something pulling my hair. I looked into my review mirror and saw several strands of hair being pulled into the scalp. I shaved my head and discovered pimple like sores all over it. At this time I started feeling bugs inside my feet. They stung, dug inside my heel, and leaked yellow sticky fluid which attracted other bugs. My feet started to swell and go numb. They felt like they were full of worms. Imagine my surprise when a worm crawled out of a hole in my right foot. I took pictures of the worm and googled my symptoms: swollen belly, abdominal pain, gas, explosive diarreha, skull base headache, worms in stool, stiff neck, dizziness, passing solid undigested food. The GI doc said he could not do a colonoscopy until I was cleared with an infect disease doc. The infect disease doc said that they could not see me until the primary doc did a skin scraping. The primary doc said that I needed to see a psych since I had DOP. She said that a dermatologist would do a skin scraping. The derm said that it looked like hookworm but she couldnt do a skin scraping until I got on psych meds. During this time I moved out of my apartment due to a swarm of screw worms. My 4 sick cats were euthanized. I noticed blood spots in their eyes. One cat had eggs along the edge of his eye. I would have done anything to save them but was too sick. The hookworms laid black eggs in the foot bath. I rinsed out the foot bath and put it in my car. While driving, there was a swarm of black specs in the car. These simply melted right into my skin. Each one of these was a package containing a folded spider, white worm, and something which I believe is a phorid fly. The infestations, reinfestations, and constant cleaning are a drain. I spend 100-300 a day on disposable supplies for detox baths, laundry, and cleREPORT COMMENTS
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No, CancelAug 12th, 2016Someone from Herndon, VA signed.
Aug 12th, 2016Someone from West Yarmouth, MA writes:
The 2008 CDC research on Morgellons was not conducted using standard research protocol. The results are meaningless and the actions of the CDC were unconscionable.REPORT COMMENTS
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No, CancelAug 12th, 2016Someone from Rosenberg, TX signed.
Aug 12th, 2016Someone from Spokane, WA writes:
I am scarred from head to toe. I feel the biting These are in my ears & eyes. Even though there are obvious physically voidable sores. I can't get help. They are not even attempting to help. Can you imagine almost five years of this. There are many many people suffering here in this United Stares. Some intervention is necessary. I'm convinced that because of a weakened immune system & being forced to fight to get out of a mold, bird infested bed bug infested home. The HUD ZPrigram finally came out and saw the holes drilled by the dozens in the ceiling. Finding too that there were multiple leaks throughout the slumlords rental and that the hot water heater was leaking and running 24/7. I was released from My lease. The fridge went out too and for the final month I had none. The landlord was angry at me getting out of the lease and refused to replace it. The month of July that year I was infested with bugs and no refridge ration. No advocacy nor enforcement has left me to suffer needlessly. My health has deteriorated rapidly. Multiple duseases are exacerbated by the unhealthy filthy home that section 8 approved wrongly. I was told it ought never to have been approved. Too late. I'm suffering constantly. I was diagnosed with cancer. I believe it's tied to this nightmarish infestation. Whatever has infested me has made me its permanent residence. Please have mercy on the great number of us that are in horrid discomfortREPORT COMMENTS
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No, CancelAug 11th, 2016Someone from Columbus, OH writes:
I too, have been dealing with this for over a year, they are in my teeth, on my skin, my head is an itchy nasty mess, in my vagina, and bottom...they are everywhere. I have tried everything. Everyone thinks I am crazy, my dentist just re did fillings prob 6, and within literally 3 days it is needed again. If follows me and is worse at night. I hve open sores, white lilttle and white bumps under the skin. This is the worse thing that has ever happaned to me and I want CDC to take this serious...what if it happens to you or if your child or loved one gets it...stop it before it gets more out of control, it is already getting there...\ columbus, ohioREPORT COMMENTS
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