Investigation into Lupron Side Effects (Leuprolide Acetate)
Public Comments (5,065)
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Oct 28th, 2011Someone from Deltona, FL writes:
After having surgery for mild endometriosis,My second Gynocologist recommended Lupron, I researched about the medicine and was aware of some of the side effects. On paper is one thing, but actually dealing with the awful side effects it's no joke. At 33 years old I had to deal with hot flashes, memory issues, dizziness, anxiety, depression and NO LIBIDO. I absolutly regret EVER taking this medication. I am now trying to conceive, cycle never started on its own, so Doctor (same who put me on LUPRON) gave me PROVERA and the side effects of LUPRON are still lingering around my system. No baby yet :( -
Oct 27th, 2011Someone from Houston, TX writes:
I was given 6 Lupron Depot shots 11 years ago and it ruined my health and changed my life forever. Not only did it not work for my treatment of Endometriosis, I am still suffering from the side effects of this evil drug and it has caused damage to every system in my body. There is NO reason this drug is on the market. It has not been proven to be effective for anything and the risks are not worth it. The drug companies paid doctors to use it because they knew how damaging it is. Please help others by taking this drug off the market!!!!!!!!!REPORT COMMENTS
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Oct 25th, 2011Someone from Roseville, CA signed.
Oct 24th, 2011Someone from Olympia, WA signed.
Oct 24th, 2011Someone from Branford, CT signed.
Oct 21st, 2011Someone from Staten Island, NY signed.
Oct 14th, 2011Someone from East Orange, NJ writes:
Had horrendous side effects. This was necessary to stop th ebleeding from my fibroids but the medication nearly drove me insane! I just had a vaginal hysterectomy and I am praying that teh side effects of this drug leave my body really soon!REPORT COMMENTS
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No, CancelOct 14th, 2011Someone from Andover, MA writes:
I have noticed that there are a lot of men who have signed but not left comments. Please do, this is not just about women with side effect problems, men are affect as much. Diagnosed with prostate cancer, had a prostatecomy, two years later PSA came back. I decided to have salvage radiation and was given the option of doing it conjunction with six month (two three month shots) regimine of hormone (lupron) therapy. The thinking is (and there is a national study going on about this) that combining the zapping of the radiation with the starving (no testosterone) of hormone therapy provides a double whammy to any residual cancer. I CHOSE to do both radiation and lupron together. I think now that I made a mistake. I took the second of the two three month shot in may '11. I stupidly thought that all of the side effects would be out of my body by july. they weren't. Now it is October and I am still feeling joint pain, fatigue, major depression, anxiety, memory loss hot flashes, and a whole list of other things. I want to thank those who have described what they are going through here, I thought I was going crazy, especially with the memory loss. I have a pretty sharp mind and now find myself unable to remember stuff that would normally be no problem. That is probably the scariest part. I have been told that if, given the option of dying of cancer vs the side effects of lupron, there shouldn't be a contest. I am beginning to wonder. THIS IS A HORRIBLE DRUG. If I had had any idea that I would be suffering to the extent that I am now, this long after treatment, there is no questions that I would have opted out.REPORT COMMENTS
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No, CancelOct 13th, 2011Someone from San Antonio, TX writes:
I took Lupron one time and it will be my last time it has ruined my life. I am hurting all over from head to toe. I am no longer the active person I was about a week ago I ended up in the emergency room thinking I was going to die. I prayed to GOD to help me live another day for my children.REPORT COMMENTS
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No, CancelOct 12th, 2011Someone from Lakewood, CA writes:
I thought I was going crazy. I haven't been the same since before I took Lupron 3 years ago. I gained 70 pounds that I can't lose, I have chronic fatigue, leg pain, depression, anxiety, and still of course my endometriosis, which lupron didn't help at all. Do I ever get my life back?REPORT COMMENTS
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No, CancelOct 12th, 2011Someone from Lancaster, TX writes:
OMGoodness! I'm so appalled at all of the comments that sing my personal story. I have been telling my husband for years that I am still having the effects from the Lupron even though I stop taking it 5 years ago. I have night sweat and hot flashes, memory loss, muscle aches and two years ago battle breast cancer which resulted in a masectomy. I was breast feeding my last last child and found the lump. I used the Lupron treatment for six months and feel like I am in another body. I even have to fight through low libido. Thankful I have a awesome husband who supports me. Please help get this drug off of the market.REPORT COMMENTS
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No, CancelOct 12th, 2011Someone from Calhoun, GA writes:
Since I have taken this drug 15 years ago I have suffered 2 miscarriages, clinical depression, hot flashes heavier periods night sweats (every night!) and for the past several years I have sometimes severe water retention. Sometimes my eyes are almost swollen shut when I wake up. I was supposed to take 6 shots but after 3 I refused them because they were causing too many phyisical and emotional problems. I will help any way I can and I would be happy to sign...Thanks Debbie KirklandREPORT COMMENTS
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No, CancelOct 11th, 2011Someone from Delaware, OH writes:
This medication does cause long term side effects...I have joint pain head to toe...memory issues...muscle pain...and the list goes on....REPORT COMMENTS
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No, CancelOct 11th, 2011Someone from Staten Island, NY writes:
This drug has destroyed my quality of life!!REPORT COMMENTS
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No, CancelOct 11th, 2011Someone from Farmington, MN signed.
Oct 10th, 2011Someone from Andover, MN signed.
Oct 10th, 2011Someone from Minneapolis, MN writes:
I have been on lupron 2 different times in the last 5 year. And I agree with many others, the doctors tell you it will put you into menopause to restrict the further growth of endometriosis (my condition). What they don?t tell you is that it only buys you time (average time of 18 months) to start a family or get a hysterectomy. The first time I was on it I worked full time and had a 13 year old and a 2 year old. I was so exhausted; I didn?t have time to ?research? what was happening to me, and bounced around to a few drs trying to find relief. I even took my husband so we could learn together that this was a difficult medication to be on. Even then, that was all the drs would say. The second time I was told I needed to go on it; was right after an attempt to have a hysterectomy due to stage 4 endometriosis; the attempt was called ?inoperable endometriosis?. I cried thinking I would have to endure this torture a second time. This time I have spent many hours researching the side effects, blogs, support groups, treatment alternatives and learned what depot lupron really is. It?s a chemotherapy level drug, in my mind it is poison that gives you so many side effects the focus of pain is shared with more than just your uterus during your period, the pain permeates throughout your whole body. It may or may not relieve the pain associated with endometriosis but the side effects are horrific and some times permanent. I have gained a minimum of 30 pounds each time I have been on depot lupron, I suffer from chronic fatigue, night sweats (to the point of waking up with wet sheets) IF I was lucky enough to have fallen asleep, hot flashes, high blood pressure, joint pain, complete and utter exhaustion. Not to mention feeling depressed (suicidal thoughts- I?ve NEVER had before) and this buzzing, blurry- dizzy vision and helmet of fog I have on constantly is enough to bring down the high spirited person I formerly was (I no longer work and applying for disability). I am an educated business woman 38 years old trapped in a body that feels 70 years old. PLEASE think twice before you agree to give the ?FALSE HOPE? depot lupron is to the medical doctors. This condition has shaken my trust in western medicine and having endometriosis would have taken my uterus but spared my life and lifestyle. I have chosen to believe depot lupron would cure me; however it has forced me to keep my uterus and lose my life and lifestyle. Please, please, please do not accept a depot lupron injection for any length of time.REPORT COMMENTS
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No, CancelOct 9th, 2011Someone from Staten Island, NY signed.
Oct 8th, 2011Someone from Charlotte, NC writes:
I am a victim of Lupron Depot that suffers the effects of this vicious drug every hour of my life. I am just 27 years old and I had my first round of Lupron injections when I was around 21 years old. I suffered all the menopausal symptoms my doctor warned me about. However he did not tell me that I would want to kill myself and have extreme weight gain (in a short amount of time). I felt so alone (as I do today) because the doctors made me feel like all my symptoms (especially disabling pain) I complained of were symptoms I was either making up to get pain medicine or they were just in my head. I swore I would never take the medicine again. Two years later after my first round of Lupron and two more laparoscopic surgeries for my worsened Endometriosis the doctor said I had to try the medicine again because I had no other option. By this point I was with another doctor. This doctor told me this round of Lupron would be a completely different experience because he was adding hormone therapy with this round of Lupron. He was incorrect. This was the last time any doctor talked me into taking the medicine that has ruined my life, the last time I saw that doctor, and the true beginning of when I lost myself. While I was on the medicine I was severely depressed. Even though I have always suffered from depression, I have never experienced suicidal thoughts until I was on Lupron Depot. I nor my body was ever the same after taking the drug. My body feels as if it has aged severely, my depression worsened, I have chronic pain, extreme weight gain, muscle/joint pain, memory loss, chronic fatigue. I have lost jobs because of all of these symptoms and more. My life has changed and will never be the same. These symptoms dictate every hour of every day. Today I have gone through four laparoscopic surgeries for the endometriosis. My body and joint pain is debilitating. I can barely work at all. I am in the midst of almost losing my job because I have missed over 10 days in the past month of work. But I surely cannot get any kind of financial help from anywhere because Endometriosis is not recognized as a disabling disease and no one will ever believe that Lupron Depot has everything to do with the severity of my Endometriosis and the body aches and pains. I live a life of loneliness. I feel no doctor believes me about Lupron and the effects it has had on my life. There is no one to turn for help, advice, or even comfort and understanding. Receiving a financial settlement for the ruthless devastation the drug Lupron Depot has caused in my short lived life would be extremely useful and appreciated. However, I am a realistic victim that realizes this drug will probably never give me any justice. If I can get anything out of contacting you all, I would want doctors to take full responsibility for ruining my life and other victims life with a drug they were uneducated and possibly rewarded financial "kick-backs" from the pharmaceutical company. MosREPORT COMMENTS
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No, CancelOct 6th, 2011Someone from San Rafael, CA writes:
This drug needs to be taken off the market ASAP. The side effects are horrible and it doesn't help.REPORT COMMENTS
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No, CancelOct 6th, 2011Someone from San Rafael, CA writes:
This drug needs to be taken off the market. The side effects are horrible.REPORT COMMENTS
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No, CancelOct 6th, 2011Someone from Tucson, AZ writes:
I am still experiencing SEVERE side effects almost a year following the one-time injection of this drug. Although it did help, somewhat, for the reason it was prescribed - my quality of life has been greatly diminished.REPORT COMMENTS
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No, CancelOct 6th, 2011Someone from Portland, OR writes:
I was given this mediciation and was on it for 10 years, all the while the doctors never told me of the possibility of irversible bone loss (have now a T-score of -2.5). My actual doctor told me when they discovered how bad the bone loss was, "you have to decide what quality of life you want; now or later." There needs to be a study on this, the long-term effects, and have doctors make patients aware of them.REPORT COMMENTS
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No, CancelOct 4th, 2011Someone from Salineville, OH writes:
I had the Lupron shot series twice to treat endomietriosis, within the past 13 years. Now I suffer from many auto immune disorders. I recently had a TAH-BSO. If I would have only known in 2000 all the health problems and side affects, I would of just of had the hyterectomy then instead of the Lupron shots.REPORT COMMENTS
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No, CancelOct 4th, 2011Someone from Bluff City, TN writes:
suffered optic nerve damage in both eyes, lost a great deal of vision. still suffer from nerve damage on left side of head memory loss, mind doesn't work the same. suffered this after 3 months of treatmentREPORT COMMENTS
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No, CancelOct 3rd, 2011Someone from Colony, KS signed.
Oct 3rd, 2011Someone from North Las Vegas, NV writes:
I got pregnant directly after my 3rd shot of Lupron and my baby girl was stillborn at 36 weeks, and I almost died too. I had severe hemolitic anemia requiring a blood transfusion and pre-eclampsia. This drug kills.REPORT COMMENTS
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No, CancelOct 2nd, 2011Someone from Hanover Park, IL signed.
Oct 2nd, 2011Someone from Uniontown, OH writes:
One of the WORST drugs i have ever been on. It has only made my fibromyalgia worse and it did not stop the endo from growing. Infact, if anything it made it worse because then i was in surgery 2 a year.REPORT COMMENTS
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No, CancelOct 1st, 2011Someone from Chatsworth, GA signed.
Sep 30th, 2011Someone from Columbia Falls, MT writes:
My son is 12 yrs old and has had lupron injections for over a year now. I have got no satisfying answer or info on long term effects of this drug,REPORT COMMENTS
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No, CancelSep 30th, 2011Someone from Columbia Falls, MT signed.
Sep 30th, 2011Someone from Woodstock, GA signed.
Sep 30th, 2011Someone from Sparta, WI signed.
Sep 30th, 2011Someone from Kingston, PA writes:
I was put on lupron for endometriosis at 29, I am now 31 & have been suffering with joint/arthritic pain, severe abdominal pain, dizziness, confusion, just to name a few. All of these symptoms started after lupron, and are debilitating. This has been going on for 3 years, and drs are unable to find a cause, and have offered no help. Please take lupron off the market!REPORT COMMENTS
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No, CancelSep 30th, 2011Someone from Brookston, IN writes:
We need a CURE and more people who will actually research this horrid disease rather then try and conceal it. We also need understanding of our pain!!!REPORT COMMENTS
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No, CancelSep 30th, 2011Someone from Biglerville, PA writes:
Within three days of taking Lupron Acetate for an IVF cycle I was in the ER with severe pain. I ended up with kidney stones. I did not have a previous history of stones and have had no problems since, nor has anyone in my family have a history of stones.REPORT COMMENTS
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No, CancelSep 30th, 2011Someone from Kaneohe, HI signed.
Sep 29th, 2011Someone from Naperville, IL signed.
Sep 29th, 2011Someone from Wahiawa, HI writes:
I was given Lupron injections for 6 months in 1995 and am still feeling side effects of memory loss, insomnia, anxiety, depression, fibromyalgia, autoimmune disease, and have had to quit my graduate degree level job for the past 5 years and am permanently disabled.REPORT COMMENTS
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