Investigation into Lupron Side Effects (Leuprolide Acetate)
Public Comments (5,065)
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Mar 8th, 2011Someone from Winter Park, FL signed.
Mar 7th, 2011Someone from San Antonio, TX writes:
I was given Lupron for about 3 years and have been off it for 4 years. I am still suffering from several side effects such as hot flashes, memory loss, sinus bradycardia, dizziness, insomnia, anxiety, depression, Vitamin D deficiency, constant gnawing bone/joint pain, osteoarthritis, osteopenia, osteoporosis, fibromyalgia, degenerative disc disease, autoimmune diseases, and blood disorders.Mar 4th, 2011Someone from Iron, MN writes:
I have only had 1 shot of Lupron and am amazed at what it has done to me. I have had headaches every day, neck/back pain, joint pain, depression, just to mention a few side effects... I am definitely not myself. I will not get another shot and support this petition to take Lupron off the market!REPORT COMMENTS
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No, CancelMar 3rd, 2011Someone from Melbourne, FL signed.
Mar 3rd, 2011Someone from Las Vegas, NV signed.
Mar 3rd, 2011Someone from Bellevue, KY signed.
Mar 3rd, 2011Someone from Bowling Green, KY writes:
This drug should be Banned FOREVER!.REPORT COMMENTS
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No, CancelMar 3rd, 2011Someone from Little Rock, AR signed.
Mar 3rd, 2011Someone from Little Rock, AR signed.
Mar 3rd, 2011Someone from Seiling, OK signed.
Mar 3rd, 2011Someone from Castro Valley, CA signed.
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No, CancelMar 2nd, 2011Someone from Evansville, IN writes:
This drug has made my daughter's life a misery. The "minor" side effects are dizziness, hot flashes, night sweats, weight gain. The serious side effects are horrific: severe depression, severe insomnia, panic attacks (the drug wrecks the adrenal glands), delusions, memory and concentration problems, joint pain and migraines. This drug is a menace, it ruins lives and should be investigated and removed immediately!REPORT COMMENTS
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No, CancelFeb 28th, 2011Someone from Kingman, AZ writes:
In January of 2010, I was diagnosied with endometriosis. I had tried all the treatments I could, but nothing seemed to work. My doctor suggested the best treatment would be Lupron. He said the treatment would "kill" my endometriosis and I would no longer have to worry about the pain. I thought Lupron was a god-sent! It sounded too good to be true - I was right. It had been the worst thing I could have ever put in my body. My doctor order a treatment of 6 months of Lupron. At 23 years old, I'm now having to deal with: 1.) Muscle and joint pain. I can no longer stand or walk for long periods of time. I'm constantly having pains in my joints and some days I can barely walk. Some days the pain is so bad I can barely drive. AT 23 YEARS OLD!!!! 2.) I have gain an increase in hypertension. Since taking lupron, my blood pressure has skyrocketed. I haven't changed my diet nor my exercise, but my blood pressure continues to increase! This is very scary for me! 3.) I was told I would gain 10 pounds of weight at the most - I have gained about 50lbs. I diet and exercise every day, yet I still gained all this weight. I wasn't expecting a 50lb weight gain!!! 4.) Emotionally - I don't feel like me at all. I'm constant depressed, angry and full of axienty. Which is not like me at all! I always wanted to go out and do things with my husband - now, I have no desire to go places I used to enjoy. I no longer have the desire to eat my favorite foods. I no longer am able to determine what I want anymore. Its so frustrating because I literally have no desire for anything. At 23 Years of age!!! This is just to name a few items from a huge list of symtoms I'm going through. I was only told I would have mood swings, a little weight gain and an increase of pain for the first month. My pain has NOT subsized, I gained 50lbs and emotionally I have no clue who I am! I'm a completely different person than I was two months ago!! PLEASE - Pull this off the market! So many women are sufferring because of this drug. Our doctors are providing us information that isn't true due to the pharmacy which produced this drug. More investigation and study needs to be done on Lupron before another women goes through the pain and suffering this drug has provide many before her. I hate would had to hear another women suffer or even die from this drug! PLEASE TAKE LUPRON OFF THE MARKET!!!REPORT COMMENTS
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No, CancelFeb 27th, 2011Someone from Jacksonville, FL signed.
Feb 27th, 2011Someone from Antioch, TN writes:
Lupron caused me to have Dystonia and I only had one injection. There is no cure for this painful neurological disorder and the government often fails to recognize it as a disorder. It is a progressive disorder and will only get worse. As painful and dibilitating as Dystonia is (I twist at the neck and waist and often lose the ability to use my hands and have muscle spasms so severe it looks like a seizure), it is the least of my worries. The lupron also caused my pituitary gland to stop functioning normally and inturn my thyroid stopped working and regardless that I was eating 900 calories a day and exercising 6 days a week (as I had gained 75 lbs in the first four months after the injection) I couldn't lose the weight. I have to get medication altered monthly to keep the pituitary gland functioning. I also have to get tested for Multiple Myeloma, osteoperosis, brain tumors, and ovarian cancer annually and Diabetes, Vitamin deficiencies and heart murmurs every 6 months. My physician is fighting to get handicap placards for me but the local government feels that because I can still work, I don't need them and yet walking is daily chore. Lupron is liquid Satin in a bottle--decieving and full of lies and hurt. It was administered to me after having an ovarian cyst removed. Now the ovarian cysts are worse than they were before surgery. Imagine your daughters, cousins,wives and yes even husbands suffering from this. The list of problems goes on and on and I'm finally at the point where I stopped crying everytime I found out something else was being added to the long list health issues. The kicker,I was told I would only suffer from hot flashes and cold sweats. Those two never happened. Please pull this off the market. While so many people suffer,no attorney will help us. A general idea of medical costs--I received the lupron injection in June of 2008 and was diagnosed with Dystonia shortly after. From June to December 31 of that same year, I spent more than $10,000 is medical treatments and I had stellar insurance. That was just the portion I paid out of pocket.REPORT COMMENTS
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No, CancelFeb 25th, 2011Someone from Silverdale, WA writes:
A medicine that is supposed to change lives for the better, changed mine for the worse. I took two, 3 month shots of Lupron for suggested endometriosis and have suffered worsening health conditions since. Some of these include suspected diabetes, extreme weight gain, liver disease, kidney stones/infections, joint/muscle pain, breast/lymph lumps of possible cancerous nature and worsening depression/anxiety. I feel like I have lost my life. PLEASE, for the sake of all of us suffering from this drug, take the time to hear our pleas and take them seriously. We are good people trying to improve our quality of life, but this drug has done anything but that. Help stop it from ruining more lives.REPORT COMMENTS
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No, CancelFeb 25th, 2011Someone from Westminster, CO signed.
Feb 25th, 2011Someone from Las Vegas, NV signed.
Feb 25th, 2011Someone from Missoula, MT writes:
This is NOT ok!!! Lupron Has taken my life from me !! Fix this Do somethingREPORT COMMENTS
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No, CancelFeb 15th, 2011Someone from Delphos, OH signed.
Feb 15th, 2011Someone from Delphos, OH writes:
This medication has ruined my life. I am a 28 year old nurse (currently off on medical leave) and after the second dose of lupron I suffered from an onset of new health problems and worsening of hypertension, arrythmias, weight loss, lymphocytic colitis, fibromyalgia, interstitial cystitis, endometriosis, migraines, degenerative joint and disc disease, adrenal insufficiency, depression/anxiety and fatigue. I'm currently awaiting tests results regarding blood disorders/cancers. NOBODY should experience what I have been through in the past year and this drug should be pulled from the market.REPORT COMMENTS
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No, CancelFeb 13th, 2011Someone from Collins, MS writes:
I have not taken the Lupron myself but I have been effected personally because I have watched my beautiful wife of 13 years suffer through and from the Lupron. This is a horrible drug and should be pulled off the market and some help should go to these amazing ladies like my wife that have had their lives destroyed by this poision.REPORT COMMENTS
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No, CancelFeb 13th, 2011Someone from Mantee, MS writes:
I do not have this personally, but my daughter is suffering for the side effects. I have seen her suffer so many different things because of taking Lupron. I think Lupron should be banned.REPORT COMMENTS
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No, CancelFeb 11th, 2011Someone from Seattle, WA signed.
Feb 9th, 2011Someone from Vidor, TX writes:
I was put on Lupron Depot also for endometriosis last April. I took 2 shots and started experiencing extreme migraines and bone pain, especially in my hip. Did no good for my endo, and ended up having a complete hysterectomy in June. I continue with hip pain and now it is my back. Many doctors visits and medications, I just seem to get worse. I sure wish I was more aware of all the long term effects and did not just take my doctors word that I would just experience some hot flashes. I regret it everyday when I wake up hurting and go to bed hurting.REPORT COMMENTS
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No, CancelFeb 7th, 2011Someone from Washington, IL signed.
Feb 7th, 2011Someone from Washington, IL signed.
Jan 31st, 2011Someone from Phoenix, AZ signed.
Jan 29th, 2011Someone from North Providence, RI writes:
To those that have commented with their positive experience with Lupron: That is all find and dandy and I am happy for you that you have been blessed to not experience side effects from this drug. However, many, many, many people have suffered SEVERE side effects and even death from this drug. Just because it helped you temporarily is not reason enough to keep a potentially lethal medication on the market. These consequences are real, and there are thousands and thousands of people who have had their lives ruined by this drug and for what? Temporarily "relief" at best. There are no long term benefits of this drug for endometriosis. Often times the resurfaces with a vengeance. The only people benefiting from this drug are the pharmaceutical companies and the many doctors that got a nice little bonus for prescribing it!REPORT COMMENTS
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No, CancelJan 24th, 2011Someone from Medford, NJ writes:
This is my third round of Lupron for endometrosis. The first time I was on it was in 1998 for 6 months, the second time was in 2003 for 9 months and this time it has been 1 year. I have had hot flashes, but they were nothing compared to the pain I had from the endometosis. This has been a wonderful drug for me. I think everyone responds differently to medications. I have several friends that have been on the injections as well, and never had any problems other then the hot flashes. The FDA should not take this drug off the market, as it is very helpful for some people.REPORT COMMENTS
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No, CancelJan 23rd, 2011Someone from Bismarck, ND signed.
Jan 20th, 2011Someone from Kenosha, WI writes:
Dear FDA and Congressional Health Care Oversight, I'm a patient who was receiptient of two injections of Lupron Depot 3.75mg IM in Oct and Nov 2010 to treat endometrosis. After reading the patient liturature insert and aware of mfg requirements for drugs, I was appauld of the sever side effects that I had experienced. My symptoms (in addition to the normal hot flashes) ranged from migrane headaches, body aches, blurred vision, mood swings so severe I became violent and memory issues and pain was so bad I got no more than 3 hours a sleep a night. I immediately contacted my doctor and he told me that he would stop the injections as what I was experiencing was very concerning. I had to even take sleep medications to help me get through the nights, which did not even help. It is now January and I'm still experiencing side effects. I ended up reviewing the clinical studies and number of patients and was appauld that this drug could be approved with such limited data. The drug did not treat my endometroisis, so now have to take other medical interventions, so in attempting in trusting drug manufacturing to due effective research and clinical studies, I have no faith in the medication and would never recommend it to anyone. Lastly, an Abbott drug representative had the nerve to tell the nurse that "There is nothing wrong with the drug, the patient must not have endometroisis", this was elevated to both the doctor and a compliant was filed with Abbott Laboratories in Chicago IL in December, of ethical violations and as of date no recourse has been made. It is very important that all warnings and side effects so be listed and a patient should be monitored if these are "high risk".REPORT COMMENTS
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No, CancelJan 8th, 2011Someone from Hopewell, VA signed.
Jan 5th, 2011Someone from Huntersville, NC writes:
I was given a lupron injection just under two months ago for the treatment of fibroids. It has been a nightmare since. I'm struggling with many side effects including frequent migraines, including a type that wasn't familiar to me (A-typical migraines) that cause studering and lack of mental clarity. I'm also having vision, joint pain, sex drive and depression issues - none of which were present before the injection.REPORT COMMENTS
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No, CancelJan 4th, 2011Someone from Laguna Beach, CA signed.
Jan 4th, 2011Someone from Gig Harbor, WA signed.
Jan 3rd, 2011Someone from Laguna Niguel, CA signed.
Jan 3rd, 2011Someone from Eccles, WV writes:
i have took 3 injection i hurt in my hip really bad had to get injrctions in my hip i gain weight was depress had head ache loss my sex life moody my bones ache all over i was tired all the time didn't have patients i was told i had fibromyalgia i had hot flashes so bad i couldn't sleep i had to take vitamin d i feet hurts so bad it need to be took off the marketREPORT COMMENTS
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