Investigation into Lupron Side Effects (Leuprolide Acetate)
Sign the Petition : 1,643 Letters and Emails Sent So Far
| The purpose of this petition is to warn others regarding the drug Lupron (Leupolide Acetate) mfg. by Takeda/Abbott Pharmaceuticals in the hope that further long-term safety studies are done before it disables or kills more women. This drug was originally marketed to treat prostate cancer patients but now is widely used for the treatment of endometriosis, infertility, fibroids/ovarian cysts and even precocious puberty. Many women are continuing to suffer the side effects long after taking their last dose even though their doctor and the pharmaceutical company states that the side effects should go away within 3-6 months. Side effects include but are not limited to: hot flashes, memory loss, tachycardia, hematura, hypotension, dizziness, insomnia, anxiety, depression, Vitamin D deficiency, constant gnawing bone/joint pain, osteoarthritis, osteopenia, osteoporosis, fibromyalgia, degenerative disc disease, autoimmune diseases, blood disorders, cancer and many others including death and yet not one long term study has been conducted. It is devastating to us that we agreed to take an FDA approved drug under the care of our physician whom we trusted only to find ourselves sicker than you could imagine ---- in pain and unable to get the proper treatment or even believed that Lupron caused our problems. We hereby request that an investigation be undertaken into the short term and long term effects of Lupron on women. We further request that all outcomes and results of such trials be released and published so that both patients and doctors alike may have the benefit of all the information regarding this drug. | |
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Thu., Mar. 11, 2010 4:38 AM link Name not displayed | Fenton, MI
Wed., Mar. 10, 2010 6:09 PM link RICHARD S. | Littlestown, PA
Wed., Mar. 10, 2010 11:25 AM link Angela B. | Littlestown, PA
I was diagnosed with endometrosis 3 years ago, my Dr did the surgery and said I was at Stage 5. I had spent years having pain and other doctors saying nothing was wrong. After the surgery we started Lupron, took it for a year, no problems. Fast forward 3 years I have horrible pain again, muliply cyst, and when they tried to do the surgery I had an allergic reaction and my throat closed. Surgery was cancelled my parents were told how lucky I was to have been there when I had my reaction. Thing is I have had surgery before never had a reaction. Dr suggest Lupron, I had already been out of work because of the pain for 2 wks. I said ok. That night, I woke up with the worst headache of my life, started vomiting, sweating, it was horrible. My fiance rushed me to the hospital they said I was having a reaction to the Lupron. For 5 days I had this headache, and cramps. The headache is gone but it's been 20 days I still have cramps. I have noticed how depressed I have been lately and I wonder that bubbly woman I was disappeared after I took the shot the first time. I am 33yrs old and getting married in Oct, 2010 we want children. I am afraid to take the shot again. Can't congress help us in anyway.This comment has been reported to the site manager. It will be reviewed and removed if inappropriate. Thank you!
Mon., Mar. 8, 2010 1:08 PM link Lori D. | West Springfield, MA
Mon., Mar. 8, 2010 8:50 AM link Tamra H. | Millbury, MA
Mon., Mar. 8, 2010 6:04 AM link Ed D. | Chicopee, MA
Mon., Mar. 8, 2010 12:11 AM link Nicole W. | Feeding Hills, MA
Sun., Mar. 7, 2010 10:29 PM link Name not displayed | West Springfield, MA
Sun., Mar. 7, 2010 10:23 PM link Anna K. | Belchertown, MA
Sun., Mar. 7, 2010 10:18 PM link Alyssa D. | West Springfield, MA
Sun., Mar. 7, 2010 7:42 PM link Name not displayed | New Castle, DE
I've signed this before, and I, like the others are still suffering, but no longer in silence. It is the groups and support of my family, and the lupron family that have helped me through this, while the Drs bury their heads in the sand.My PCP said one time that lupron caused all the things wrong with me, but if you ask him today, in a legal setting, I'm sure he, like all the other Drs will do a complete 180. Drs don't like to go against other Drs.
What gets me is that when Lupron was commiting ins fraud by giving free samples and the Drs were billing insurance companies, and getting lavish trips to get us to take their poison, it didn't take long for the government and legal people to step in then.
I would love to see all the people that are ignoring us, in the FDA, the DRs that are saying it's safe to have these shots, and anyone that works at companies (the higher ups that make the decisions), to be the guinea pigs, let them take the poison.
While each month my health gets worse and worse, I'd love to see how they would handle it, and I also would love to know if they would give this poison to their friends and family. I wonder what is said around the water cooler when one of them brings up that their Dr says they need to get lupron shots.
I would bet any amt of money that they would move heaven and earth to convince that person NOT to get involved with Lupron.
This comment has been reported to the site manager. It will be reviewed and removed if inappropriate. Thank you!
Sat., Mar. 6, 2010 10:14 PM link Name not displayed | Fountain Valley, CA
This drug Is the cause of my chronic pain syndrome aka fibromyoalgia. Before my first injection I did not have these problems.I was 21 that was in 1995! I have suffered daily since my treatment with lupron! I wish i was told that this was all possible side effect I would have NEVER had it as part of mt endometerosis, ovarian cyst treatment! Please remove it from the market! It has caused me nothing but more pain and problems it was no help!!! I so far have sufffered memory loss, tachycardia, hematura,dizziness, insomnia, some anxiety, some depression, Diagnosed Vitamin D deficiency, constant gnawing bone/joint pain, osteopenia, osteoporosis, diagnosed fibromyalgia,diagnosed degenerative disc disease, autoimmune diseases!! This drug is toxic and they do not inform you that these things can happen just that it will stope your mensus!This comment has been reported to the site manager. It will be reviewed and removed if inappropriate. Thank you!
Fri., Mar. 5, 2010 9:16 PM link Cindy Y. | Forked River, NJ
THIS DRUG ABSOLUTELY SHOULD NOT BE APPROVED BY THE FDA....MANY,MANY LIVES HAVE BEEN DESTROYED BY LUPRON!! HOW MANY PEOPLE HAVE TO BECOME TOTALLY DISABLED OR EVEN DIE FROM THIS DRUG BEFORE SOMETHING IS DONE! THIS IS AN ABSOLUTE DISGRACE AND THE FDA SHOULD BE ASHAMED OF THEMSELVES FOR NOT REMOVING IT BY NOW!This comment has been reported to the site manager. It will be reviewed and removed if inappropriate. Thank you!
Fri., Mar. 5, 2010 5:06 PM link Marin K. | Jacksonville, AR
Fri., Mar. 5, 2010 2:11 PM link Gina B. | Mildred, PA
I almost died from endometriosis now I have permanant damage from that drug, because dr's dont often do more than just give it all that I am the 1 in 10 with the disease, does nobody understand my symptoms got worse I had a fullhysterectomy at 35 and now I shake stumble rashes possible for other auto immune diseases not to mention the mentally incapablities by the way used to be a english major, I becamebipolar depressed, anxiety came back full on ptsd all of it then some amplified.This comment has been reported to the site manager. It will be reviewed and removed if inappropriate. Thank you!
Thu., Mar. 4, 2010 10:34 PM link Evelyne C. | Fair Lawn, NJ
My 12 year old has been on it for 8 months and I just took her off. She is cranky all the time, pale, vit. d deficient, complains of deep muscular and bone ache, diarrea and dizziness since being on it. I am very nervous of what the future holds for her.This comment has been reported to the site manager. It will be reviewed and removed if inappropriate. Thank you!
Thu., Mar. 4, 2010 10:31 PM link Jennifer A. | Cedar Falls, IA
Lupron has changed my life dramatically. After nearly a decade of no complex PTSD symptoms, they returned full force after Lupron shots along with mood changes. It's been a year and a half, and I still can't get back to where I was pre-Lupron,This comment has been reported to the site manager. It will be reviewed and removed if inappropriate. Thank you!
Thu., Mar. 4, 2010 7:39 PM link Nathan B. | Saint George, UT
Thu., Mar. 4, 2010 2:21 PM link estelle a. | New York, NY
I was getting ready to get tha lupron injection. I decided to do some research on this drug and due to all the side effects, I refused.This comment has been reported to the site manager. It will be reviewed and removed if inappropriate. Thank you!
Thu., Mar. 4, 2010 9:11 AM link Amy B. | Radford, VA