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More Funds To Research a Cure for Scleroderma

Messages Sent So Far
Congress, please support this Petition by directing the National Institute of Arthritis and Musculoskeletal and Skin Diseases at the National Institutes of Health to expand research related to scleroderma, development and evaluation of new treatments, research on the relationship between scleroderma and secondary conditions including: pulmonary hypertension, gastroparesis, Raynaud?s phenomenon, and Sjögren?s syndrome. Establishment of family and ?childhood-onset? patient registries. Support for the training of new investigators. Direct the Centers for Disease Control and Prevention to establish a scleroderma public awareness campaign highlighting disease symptoms, prevalence, related conditions, and the importance of early diagnosis.
 
This Petition is very important to patients and family members living with Scleroderma. Thank you in advance for your consideration of this Petition.

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Public Comments (6,963)
Jul 15th, 2017
Joan S. from Athens, AL signed.
Jun 27th, 2017
Carol A. from Columbia, TN writes:
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Please fund!
Jun 27th, 2017
Kimberly F. from Myrtle Beach, SC signed.
Jun 27th, 2017
Mary M. from Bridgewater, MA writes:
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Progress has been made but we need Congress to continue funding research for Scleroderma to find both the cause and the cure.
Jun 26th, 2017
Winifred R. from Boca Raton, FL signed.
Jun 26th, 2017
Sheila R. from Cleveland, OH writes:
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Scleroderma is a horrible disease that affects many of the body's systems. There is hardly a moment that I am not in pain. Please approve more funding for more research for a cure.
Jun 26th, 2017
Someone from Parker, CO signed.
Jun 26th, 2017
Someone from Parker, CO signed.
Jun 26th, 2017
Someone from Port Crane, NY writes:
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My twin sister suffered with this and passed from complications in 1993. At that time, little was really known. Bob Saget (from Full House and Funniest Videos) sponsored/produced a video called FOR HOPE highlighting and trying to bring awareness to his sister and her having this devastating disease. He went on to bring awareness and get money for research.I can remember my sister saying that if a celebrity had this more people and money would be involved. Why not a fund raising marathon (like Jerry Lewis's MD telethon.
Jun 23rd, 2017
Ed S. from Paragould, AR signed.