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Trigeminal Neuralgia Awareness Day - October 7, 2013

Public Comments (88)
  • Jul 25th, 2013
    Someone from Azusa, CA signed.
  • Jul 22nd, 2013
    Someone from Millburn, NJ signed.
  • Jul 15th, 2013
    Someone from Reno, NV signed.
  • Jul 15th, 2013
    Someone from Mount Bethel, PA writes:
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    Having been diagnosed with TN Type 1 in June of this year, I am experiencing first hand the lack of resources, treatment, cure, etc. for this debilitating disease. Awareness is absolutely necessary.
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  • Jul 11th, 2013
    Someone from Pottstown, PA signed.
  • Jul 2nd, 2013
    Someone from Vandalia, OH signed.
  • Jun 24th, 2013
    Someone from Warwick, NY signed.
  • Jun 19th, 2013
    Someone from Brighton, CO writes:
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    Diagnosed at age 26. Remaining positive and hopeful through this live changing disease.
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  • May 28th, 2013
    Someone from Jenison, MI signed.
  • May 9th, 2013
    Someone from Bryant Pond, ME writes:
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    I have been suffering with severe pain from trigeminal neuralgia which has completely ruined my life. Nothing I have tried for medicine has helped long enough to matter. My family is also badly effected by this disease. I am afraid that if I don't get some relief from this pain soon that I am no longer going to have my family so please, please help us. This is not fair to make me beg but I will to get out of disabling pain.
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  • May 9th, 2013
    Someone from Bryant Pond, ME writes:
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    I have been suffering with severe pain from trigeminal neuralgia which has completely ruined my life. Nothing I have tried for medicine has helped long enough to matter. My family is also badly effected by this disease. I am afraid that if I don't get some relief from this pain soon that I am no longer going to have my family so please, please help us. This is not fair to make me beg but I will to get out of disabling pain.
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  • May 2nd, 2013
    Someone from Novi, MI signed.
  • Apr 28th, 2013
    Someone from Russellville, AL signed.
  • Apr 22nd, 2013
    Someone from Del Rio, TX signed.
  • Apr 21st, 2013
    Someone from Danville, IN signed.
  • Apr 18th, 2013
    Someone from Roanoke, TX signed.
  • Apr 16th, 2013
    Someone from Del Rio, TX signed.
  • Apr 16th, 2013
    Someone from Del Rio, TX signed.
  • Apr 16th, 2013
    Someone from Del Rio, TX signed.
  • Apr 16th, 2013
    Someone from Del Rio, TX signed.
  • Mar 20th, 2013
    Someone from Kyle, TX signed.
  • Mar 14th, 2013
    Someone from South Lake Tahoe, CA signed.
  • Mar 12th, 2013
    Someone from Knightdale, NC signed.
  • Feb 26th, 2013
    Someone from South Park, PA signed.
  • Feb 24th, 2013
    Someone from Wichita Falls, TX signed.
  • Feb 23rd, 2013
    Someone from Jasper, IN signed.
  • Feb 22nd, 2013
    Someone from Marianna, AR writes:
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    Please do something to help find a cure for all the pain the people with Trigeminal Neuralgia suffer. It is horrible pain. It is undecribable how much pain they suffer.
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  • Feb 22nd, 2013
    Someone from King Of Prussia, PA writes:
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    After an accident, I was left to suffer with 3 different types of Trigeminal Neuralgia. I'm in my mid 30's and I have lost my life - enclosed, because I'm scared the wind might cause me to have an "attack" in public or walk/talk to much, . Not only do I live my lifeless life inside, I am losing my family, my marriage, my kids and I have no friends. I want my life back - Just because you can't see my pain, doesn't mean it isn't there. I look perfectly normal, but yet the pain I experience 24/7 is inhumane. My Doctors are working hard to get me back to work, my pain is still there... This Pain is not human, there is no relief, sleep is barely a few hours of relief. HELP US FIND A CURE!!!!! Why Do WE Have to Beg ?!?!
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  • Feb 21st, 2013
    Someone from Fairplay, MD writes:
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    The pain is so intense, we suffer and because of the limited amount of treatments we suffer even more. Please help. Awareness, funding, research. We suffer in agony everyday with this pain, that many days we only wish for the end of it all. Love and respect to all the sufferers and their loved ones. This doesnt only affect the afflicted person, but the famly as well. We need help!
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  • Feb 21st, 2013
    Someone from Jasper, IN signed.
  • Feb 21st, 2013
    Someone from Clinton, IN signed.
  • Feb 21st, 2013
    Someone from Dayton, OH signed.
  • Feb 21st, 2013
    Someone from Stoneham, MA writes:
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    Need to find a cure fast!
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  • Feb 21st, 2013
    Someone from Jasper, IN signed.
  • Feb 21st, 2013
    Someone from Grand Haven, MI writes:
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    I'm a TN patient and beg for your understanding and promotion of this painfully neglected topic.
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  • Feb 21st, 2013
    Someone from Wapakoneta, OH writes:
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    This disorder has put me on disability and I'm still on it after many procedures and 2 brain surgeries. Pain has never left from day one!
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  • Feb 21st, 2013
    Someone from West Memphis, AR signed.
  • Feb 21st, 2013
    Someone from Brodhead, KY writes:
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    A horrible condition that needs more recognition..
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  • Feb 21st, 2013
    Someone from East Mc Keesport, PA signed.
  • Feb 21st, 2013
    Someone from East Mc Keesport, PA writes:
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    I suffer from this horrifying disorder
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