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More Funds To Research a Cure for Scleroderma

Messages Sent So Far
Congress, please support this Petition by directing the National Institute of Arthritis and Musculoskeletal and Skin Diseases at the National Institutes of Health to expand research related to scleroderma, development and evaluation of new treatments, research on the relationship between scleroderma and secondary conditions including: pulmonary hypertension, gastroparesis, Raynaud?s phenomenon, and Sjögren?s syndrome. Establishment of family and ?childhood-onset? patient registries. Support for the training of new investigators. Direct the Centers for Disease Control and Prevention to establish a scleroderma public awareness campaign highlighting disease symptoms, prevalence, related conditions, and the importance of early diagnosis.
 
This Petition is very important to patients and family members living with Scleroderma. Thank you in advance for your consideration of this Petition.
Public Comments
May 2nd, 2016
Someone from Staten Island, NY signed.
May 2nd, 2016
Someone from Rancho Palos Verdes, CA signed.
May 2nd, 2016
Someone from Spotsylvania, VA writes:
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I was diagnosed with Scleroderma in 2011 , it's a terrible debilitating disease ! One which I'd never heard of , until it attacked my lungs . Please support this Bill . We need more funding for research , public awareness , and hopefully a Cure ! ... Thank you
May 2nd, 2016
Someone from Spotsylvania, VA signed.
May 2nd, 2016
Someone from Fredericksburg, VA signed.
May 1st, 2016
Someone from Renton, WA signed.
May 1st, 2016
Someone from Garrisonville, VA writes:
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Someone who is dear to me is dealing daily with this disease. The public barely is aware of it even though there are so many that suffer. Even doctors are out of the loop. The more funding, the more research, not only for a cure, but also to help those who have it, be better equipped to deal with discomfort and affects of the disease. And funding will help with public awareness and subsequently increase private contributions.
May 1st, 2016
Someone from Princeton, NJ signed.
May 1st, 2016
Someone from Montpelier, VA signed.
May 1st, 2016
Someone from Fredericksburg, VA signed.
May 1st, 2016
Someone from Tacoma, WA signed.
May 1st, 2016
Someone from Fort Worth, TX signed.
May 1st, 2016
Someone from Fredericksburg, VA writes:
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My sister is battling SCLERODERMA. It is a hideous disease and more funding is desperately needed for research. PLEASE support this bill.
May 1st, 2016
Someone from Philadelphia, PA signed.
May 1st, 2016
Someone from Glendora, CA signed.
May 1st, 2016
Someone from Fredericksburg, VA writes:
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I was diagnosed with diffuse Scleroderma over 11 years ago. My life HS changed drastically! Most of my internal organ have been affected! This is a horrible disease!! Please help!!
May 1st, 2016
Someone from Dallas, TX writes:
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I was diagnosed with Sclerderma 18 years ago.we need help
May 1st, 2016
Someone from Auburn, AL writes:
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We need more funding for research to find a cure for this debilitating disease.
May 1st, 2016
Someone from Flemington, NJ signed.
May 1st, 2016
Someone from Madison, NJ signed.
May 1st, 2016
Someone from Seattle, WA signed.
May 1st, 2016
Someone from Vashon, WA writes:
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Please find a cure now, I'm on oxygen and don't like my options of chemo drugs that often do not help.
May 1st, 2016
Someone from Minot, ND signed.
May 1st, 2016
Someone from Carbondale, CO signed.
May 1st, 2016
Someone from Denver, CO signed.
May 1st, 2016
Someone from Paradise, CA signed.
May 1st, 2016
Someone from Denver, CO signed.
May 1st, 2016
Someone from Twin Falls, ID signed.
May 1st, 2016
Someone from Petaluma, CA signed.
May 1st, 2016
Someone from Loveland, CO signed.
May 1st, 2016
Someone from Akron, OH signed.
May 1st, 2016
Someone from Scottsville, KY writes:
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I have Scleroderma and we desperately need a cure.
May 1st, 2016
Someone from Toms River, NJ signed.
May 1st, 2016
Someone from Marblehead, MA signed.
May 1st, 2016
Someone from Lutz, FL writes:
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We need more research NOW not later!!
May 1st, 2016
Someone from Middletown, NJ signed.
May 1st, 2016
Someone from Fort Wayne, IN signed.
May 1st, 2016
Someone from Revere, MA signed.
May 1st, 2016
Someone from Macomb, MI signed.
May 1st, 2016
Someone from Brick, NJ signed.
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