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More Funds To Research a Cure for Scleroderma

Messages Sent So Far
Congress, please support this Petition by directing the National Institute of Arthritis and Musculoskeletal and Skin Diseases at the National Institutes of Health to expand research related to scleroderma, development and evaluation of new treatments, research on the relationship between scleroderma and secondary conditions including: pulmonary hypertension, gastroparesis, Raynaud?s phenomenon, and Sjögren?s syndrome. Establishment of family and ?childhood-onset? patient registries. Support for the training of new investigators. Direct the Centers for Disease Control and Prevention to establish a scleroderma public awareness campaign highlighting disease symptoms, prevalence, related conditions, and the importance of early diagnosis.
 
This Petition is very important to patients and family members living with Scleroderma. Thank you in advance for your consideration of this Petition.
Public Comments
Aug 18th, 2016
Someone from Modesto, CA signed.
Aug 18th, 2016
Someone from Levittown, NY writes:
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Please do what you can to bring greater awareness and research for this horrible disease!!!
Aug 18th, 2016
Someone from Levittown, NY signed.
Aug 18th, 2016
Someone from Schenectady, NY signed.
Aug 17th, 2016
Someone from Fishkill, NY signed.
Aug 16th, 2016
Someone from Danbury, CT signed.
Aug 16th, 2016
Someone from Fishkill, NY signed.
Aug 16th, 2016
Someone from Fishkill, NY signed.
Aug 15th, 2016
Someone from Gardiner, NY writes:
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I have just been diagonised with this horrible disease. I have heard about it in the past and didn't really know what the disease was about. I am so shocked that their is so little knowledge or cure for this disease. I have read more about the lacking of funding being given to this disease.
Aug 15th, 2016
Someone from Warren, OH signed.
Aug 14th, 2016
Someone from Decatur, IL signed.
Aug 14th, 2016
Someone from Cresskill, NJ signed.
Aug 14th, 2016
Someone from Hanna City, IL writes:
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Please help with this disease! We need a cure!!! It is very painful and dibillatating!
Aug 14th, 2016
Someone from Peterson, IA writes:
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I have a good friend fighting this horrific disease. Please, take the time and fill it out, we could find a cure for this! It's painful to know she struggles day to day and some people don't realize how bad it is because she looks fine and still works. Pray.
Aug 14th, 2016
Someone from Greer, SC signed.
Aug 14th, 2016
Someone from Fredericksburg, VA signed.
Aug 14th, 2016
Someone from Westgate, IA signed.
Aug 14th, 2016
Someone from Niantic, IL writes:
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Please help us who can no longer help ourselves. This disease along with others is close to a cure but like other orphan diseases pharmaceuticals are not interested without funding. Checkout the Angels of scleroderma page to learn more about our struggles or watch a you tube video from the scleroderma national conference to learn more. Thank you
Aug 14th, 2016
Someone from Granville, IA writes:
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I am also one that is suffering from this disease that mine had progressed quickly from being diagnosed with raynauds in February of this year and scleroderma of march and here it is august and I have to do chemo to get it under control so please help us that have this disease please understand what we are living with and just not ignore this people like me are struggling everyday to try to live and work and we don't get no support from government the insurance companies fight us to help cover the pills how do you think we feel when the government supports people that plain just don't want to work and they get assistance well what about us with this disease please read about this disease and talk to people that have this including myself and see how we have to live day by day sincerely jody mcqueen
Aug 14th, 2016
Someone from Melbourne, FL writes:
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I have scleroderma for 11 year. Please help us, thank you and God bless you all.
Aug 13th, 2016
Someone from Youngstown, OH signed.
Aug 13th, 2016
Someone from Hanover, PA writes:
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Please be the voice standing with all that suffer this debilitating disease called "Scleroderma ".
Aug 13th, 2016
Someone from Salem, OR writes:
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I am effected by CRST Scleroderma also. Please help.
Aug 13th, 2016
Someone from Saint Petersburg, FL signed.
Aug 13th, 2016
Someone from Versailles, KY signed.
Aug 13th, 2016
Someone from Shelbyville, IN signed.
Aug 9th, 2016
Someone from Chicago, IL signed.
Aug 8th, 2016
Someone from Clinton Township, MI signed.
Jul 19th, 2016
Someone from Harrisburg, PA signed.
Jul 18th, 2016
Someone from Fredericksburg, VA signed.
Jul 18th, 2016
Someone from Woodford, VA signed.
Jul 17th, 2016
Someone from Scranton, PA signed.
Jul 17th, 2016
Someone from Fredericksburg, VA signed.
Jul 17th, 2016
Someone from Fredericksburg, VA signed.
Jul 17th, 2016
Someone from Henrico, VA signed.
Jul 17th, 2016
Someone from Ruther Glen, VA writes:
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In have scleroderma and hope that you will expand research related to this mysterious disease. Everyday we live with it knowing it will not get better. This petition could change that for future patients! Thank you!
Jul 17th, 2016
Someone from Manassas, VA signed.
Jul 17th, 2016
Someone from Fredericksburg, VA signed.
Jul 17th, 2016
Someone from Fredericksburg, VA signed.
Jul 17th, 2016
Someone from Fredericksburg, VA writes:
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PLEASE find more research to find better treatments and a cure for SCLERODERMA.
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