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Lupron, Leuprolide needs to be taken completely off the market immediately with out delay until "Protection Law" is implemented!

Public Comments (1,082)
  • Apr 24th, 2019
    Someone from Green Lake, WI writes:
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    I was on Lupron for 18 months but about four weeks ago I declined my next injection. I stopped all treatment for my advanced /aggressive prostate cancer. My Urologist said I would have about two years to live without treatment or three to five years with treatment. I told him I would rather die then to take mote treatment. What's amazing is the three different Urologist I've had since my Dx not one of them offered any information on the poison they were about to give. For past five weeks I've been going through a detox but so far mo joy. I truly believe if each of these doctor's meed to take Lupron for 18 months like I did, they would stop prescribing toxic posion. I feel my life has been destroyed. I now have cronic fatigue, bone loss and and at high risk for fractures, short term memory loss, cardio issues plus other issues.
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  • Apr 21st, 2019
    Someone from Pooler, GA writes:
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    My daughter was put on Lupron at the age of two up until she was thirteen years old and received a injection every month . I was told she may develop arthritis when she is older but this is not even close to all of the problems she is having .If I had only known the truth back then I would have never signed a consent form or ever started the treatment .
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  • Feb 13th, 2019
    Someone from Tucson, AZ writes:
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    My joints haven't stopped hurting since I got the shot. Now my SI joints are shot... and I have sleeping issues and I can't believe my doctor wasn't forthcoming as what she was putting into my body. Because she believes this is a good drug.
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  • Feb 28th, 2018
    Someone from Oregon, OH writes:
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    This is by far not the cure for endometriosis! The Dr who recommends this don’t tell you it’s chemo therapy! That the side effects are awful! Nausea , vomiting, headache, fatigue, body pain, joint pain, chills, they also can’t promise your endometriosis won’t come back! Because after all there is NO cure for endometriosis! This stuff is poison and as a wife and mom I can hardly function 3 weeks first shot! Swollen eyelids as well! This isn’t helping but hurting us more!
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  • Feb 24th, 2018
    Someone from Auburn, AL writes:
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    This drug has ruined my body and my life! SOOO dangerous!!!!! PLEASE please take it off the market before another person takes it!
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  • Jan 23rd, 2018
    Someone from Atlantic, IA writes:
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    This drug ruined my life. They never told me it was a chemotherapy drug or even related they said it was the only thing that would get rid of endometriosis. I could not walk for 9 years afterward. Please, I beg you to never ever take this drug. I am in pain everyday of my life and do not qualify for any financial help. I work and my husband works 5 jobs. I had all kinds of issues even after my first shot which I told them and they assured me it would go away after I stopped the shots! It never went away. I just had surgery in June for endometriosis and that did more than Depo lupron ever did for me. I shrunk an inch and a half and I was down to 110 lbs, could not walk, roll over in bed, shower, get dressed, etc by myself. My husband had to help me do everything. Now I have memory issues and cognitive issues as well. But no one will own up to this or apologize. I at least deserve an apology from the sob who did this to me and I was suppose to be able to trust.
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  • Dec 11th, 2017
    April B. from Roosevelt, UT writes:
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    This drug ruined my life I was 21 when I was given this drug I am now 36 and I live my life in pain everyday the long term side effect this drug has made my life a living hell
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  • Dec 11th, 2017
    Someone from Austin, TX writes:
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    This horrendous drug almost killed my then 13 yr old daughter. Now at 18 She is ridden with life long side effects from this poison. NO ONE should ever have to be exposed to this nightmare. If we had known we would have NEVER given our daughter this poison to “treat” Endometriosis.
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  • Dec 11th, 2017
    Vikki L. from Staten Island, NY writes:
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    This drug destroyed my life , this is not an exaggerated comment - by all means it's an understatement
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  • Nov 23rd, 2017
    Barb B. from Ford city, PA writes:
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    Just a comparison, the FDA reported over1,000 deaths related to Pradaxa, and approx 10,000 bleeding problems. The television is full of advertisements to sue the pharmaceutical maker of this drug. Lupron has been linked to well over 1,000 deaths also , and several thousand complants of lives destroyed, yet no publicity??? The attornies aren't touching this. Someone in a powerful place is behind this. I'm livid, had people in authority done the right thing, and pulled this drug, myself and others would have never received it.
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  • Nov 11th, 2017
    Marion B. from Palm Coast, FL signed.
  • Nov 10th, 2017
    Barbara B. from Ford city, PA writes:
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    Lupron did not put me into menopause, the iv chemo did that. That is why I should never have gotten the lupron. After thr chemo, I felt great. After lupron, I felt l it aged me 25 yrs.i am so stiff, feel like stone. I have debilitating pain. I have chronic urinary tract infect. I must use an estring, even though it is contraindicated because I had oestrogen fed cancer, I now have a resting heart rate of 150 bmp. I never smoked always an athlete. I have inflam arthritis that has deformed some of my joints.The last three things I've mentioned are genetic. My mother had all three . She got them in her 70s. I got them in my late 40s to 50 yrs old.I was in above average shape before lupron. The list of problems is endless. Memory loss and central obesity are extreme. My belly looks like I'm 8 MOS pregnant. So the cover up has begun. All the doctors I complain to about lupron, LIE about things on their office notes.They think I'm going to sue the doctor that gave it to me, because I should have never got it .I had been thru menopause, clearly. Help. I can't stand feeling so badly.
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  • Oct 21st, 2017
    Gen A. from Redondo Beach, CA writes:
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    lupron was also used for early puberty in children. yes lupron needs to be discontinued.
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  • Oct 20th, 2017
    Lisa M. from Westminster, CA writes:
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    I was given this drug almost 30 years ago. I had 9 injections. I finally got scared when I heard the nurses arguing over who had to give the shot. They were afraid for themselves and for me! My doctor said it was safe and any side effects like bone loss were temporary. It was prescribed for endometriosis to stop my periods. It never did. So they just wanted to give me MORE. My bones are dust, my muscles ache and are on fire. I have chronic ibs. I am a shell of who I used to be. This drug is POISON. I am outraged that it is still being used at all. If I knew then, what I know now I would never have consented. It does not cure endometriosis, and it poisons the body. It is a disgrace that nothing has been done to protect people from this drug in the 30 years since I took it.
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  • Oct 18th, 2017
    Andrea W. from Rock Hill, SC writes:
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    Sudden food and med allergies. Severe allergic swelling of face and hands, hives and welts coverING body.
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  • Jul 21st, 2017
    Someone from Jamestown, NY writes:
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    Lupron has given me panic attacks, loss of control of my bowel movements, exhaustion and itchy skin.
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  • Jul 8th, 2017
    Someone from Clever, MO signed.
  • Jul 8th, 2017
    T H. from Clever, MO signed.
  • Jul 7th, 2017
    Someone from Clever, MO writes:
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    This drug has taken my physical and mental Heath and has left me totally disabled for 17 yrs! Inhumane and total negligence by the Drs who failed to disclose that these injections were "Chemo" a toxic drug meant for terminal prostate cancer for men had I had the opertunity and understanding of what was to come... PAIN AND SUFFERING ATTACK OF PERSONAL CREDIBILITY AND ABSOLUTELY NO SAFETY NET FOR HELP fr medical community,doctors , Attornies or soc sec... SO SAD SO WRONG for what was normal active and happy women. This drug has sucked the life out of my body and sole... Little Hope left Barely hangin on via pain and mind Major Drugs to just survive Please HELP US!!!
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  • Jul 7th, 2017
    Someone from Clever, MO writes:
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    This drug has taken my physical and mental Heath and has left me totally disabled for 17 yrs! Inhumane and total negligence by the Drs who failed to disclose that these injections were "Chemo" a toxic drug meant for terminal prostate cancer for men had I had the opertunity and understanding of what was to come... PAIN AND SUFFERING ATTACK OF PERSONAL CREDIBILITY AND ABSOLUTELY NO SAFETY NET FOR HELP fr medical community,doctors , Attornies or soc sec... SO SAD SO WRONG for what was normal active and happy women. This drug has sucked the life out of my body and sole... Little Hope left Barely hangin on via pain and mind Major Drugs to just survive Please HELP US!!!
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  • Jul 7th, 2017
    Someone from Clever, MO writes:
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    This drug has taken my physical and mental Heath and has left me totally disabled for 17 yrs! Inhumane and total negligence by the Drs who failed to disclose that these injections were "Chemo" a toxic drug meant for terminal prostate cancer for men had I had the opertunity and understanding of what was to come... PAIN AND SUFFERING ATTACK OF PERSONAL CREDIBILITY AND ABSOLUTELY NO SAFETY NET FOR HELP fr medical community,doctors , Attornies or soc sec... SO SAD SO WRONG for what was normal active and happy women. This drug has sucked the life out of my body and sole... Little Hope left Barely hangin on via pain and mind Major Drugs to just survive Please HELP US!!!
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  • Jul 7th, 2017
    Someone from Clever, MO writes:
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    This drug has taken my physical and mental Heath and has left me totally disabled for 17 yrs! Inhumane and total negligence by the Drs who failed to disclose that these injections were "Chemo" a toxic drug meant for terminal prostate cancer for men had I had the opertunity and understanding of what was to come... PAIN AND SUFFERING ATTACK OF PERSONAL CREDIBILITY AND ABSOLUTELY NO SAFETY NET FOR HELP fr medical community,doctors , Attornies or soc sec... SO SAD SO WRONG for what was normal active and happy women. This drug has sucked the life out of my body and sole... Little Hope left Barely hangin on via pain and mind Major Drugs to just survive Please HELP US!!!
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  • Jul 7th, 2017
    Georgette S. from Hollidaysburg, PA writes:
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    I am currently receiving Lupron injections for breast cancer, because I was pre-menopausal, and unable to take Tamoxofin. The side affects from this medicine are terrible, mood swings, swelling, irregular heartbeat, cold/hot, headaches, irregular bowel movements, unbelievable joint pain, aches, insomnia like I have never experienced, and forgetfulness to the point I think I am going crazy, just to name a few. Weight gain, my breasts are so swollen, and I just feel terrible overall, everyday.
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  • Jun 17th, 2017
    Someone from Ford city, PA signed.
  • Jun 17th, 2017
    Barbara B. from Ford City, PA writes:
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    I would like to know,why so many other drugs with less harsh side effects have been pulled off the market.Yet, lupron is responsible for over 1000 deaths , and has destroyed people's health, that they can't get out of bed, much less work. When will we have enough signatures ,?when will lupron be off the market.?when will we be compensated? When will those responsible be held accountable? There has been cover ups, deceit, lies , and manipulation.WHEN WILL JUSTICE BE SERVED? I was an athlete and an RN that worked 12 hr shifts. Now I am in bed a lot. Luckily I got disability. But the truth is, I must return to work, I cannot support my family on the disability check.Yet I can't work. what am I to do. Help? I've already lost my house to foreclosure. Just to name a few problems caused by luporon: severe pain in muscles and bones, very stiff. I have severe short memory loss, bone loss, autoimmune diseases.Severe bladder problems,severe shortness of breath, chronic low vit D , chipped teeth, decrease in vision, Central obesity, that now predisposes me to heart disease and diabetes , Fat redistributed, worsening disc disease, serious depression and anxiety. I've lost muscle mass, weaker, fatigue easily. I would want to die if it weren't for my children. I feel as though I've aged 25 yrs.i was perfectly healthy prior to lupron.im angry that this is still dragging out. if this was taken off the market 10 yrs ago I would never have got it. My oncologist lied to me and manipulated me in to taking this drug., I call that criminal. God bless all that are suffering. My heart goes out to you, I ask Jesus to heal you.
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  • Jun 17th, 2017
    Barbara B. from Ford City, PA writes:
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    I would like to know,why so many other drugs with less harsh side effects have been pulled off the market.Yet, lupron is responsible for over 1000 deaths , and has destroyed people's health, that they can't get out of bed, much less work. When will we have enough signatures ,?when will lupron be off the market.?when will we be compensated? When will those responsible be held accountable? There has been cover ups, deceit, lies , and manipulation.WHEN WILL JUSTICE BE SERVED? I was an athlete and an RN that worked 12 hr shifts. Now I am in bed a lot. Luckily I got disability. But the truth is, I must return to work, I cannot support my family on the disability check.Yet I can't work. what am I to do. Help? I've already lost my house to foreclosure. Just to name a few problems caused by luporon: severe pain in muscles and bones, very stiff. I have severe short memory loss, bone loss, autoimmune diseases.Severe bladder problems,severe shortness of breath, chronic low vit D , chipped teeth, decrease in vision, Central obesity, that now predisposes me to heart disease and diabetes , Fat redistributed, worsening disc disease, serious depression and anxiety. I've lost muscle mass, weaker, fatigue easily. I would want to die if it weren't for my children. I feel as though I've aged 25 yrs.i was perfectly healthy prior to lupron.im angry that this is still dragging out. if this was taken off the market 10 yrs ago I would never have got it. My oncologist lied to me and manipulated me in to taking this drug., I call that criminal. God bless all that are suffering. My heart goes out to you, I ask Jesus to heal you.
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  • Jun 2nd, 2017
    Casey W. from Jackson, WY writes:
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    This list of side effects that I have been plagued with is tooo long to write. So, what I'll say is, it's poison it has done irreparable damage to my mind and body!
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  • Jun 2nd, 2017
    Someone from Broken Arrow, OK signed.
  • Jun 2nd, 2017
    Lisa M. from Westminster, CA writes:
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    I was given Lipton for Endometriosis, back then off label use. I was given extra because it did not work as intended, i.e. It did not stop my periods. What it did so, is leave me with Fibromyalgia type symptoms and crumbling bones in my 40's. If only I had been warned. If only I had known. I quit taking it when I heard the nurses arguing over who would give me the POISON shot! My first clue that it was dangerous. My health has been ruined, forever.
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  • Jun 2nd, 2017
    Alicia B. from Austin, TX writes:
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    This drug is criminally dangerous to keep giving to unsuspecting women and children. My hip and neck and jaw are all damaged and I have fibromyalgia symptoms continuing 2 years past my last lupron injection. And my symptoms are mild compared to some.
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  • May 19th, 2017
    Leslie C. from West Springfield, MA writes:
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    This drug destroyed my health, my marriage and my future! Please make it harder for others to be given this medication! Knowledge is everything! No patient should be given this drug without full disclosure of its harmful, life altering side effects!
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  • May 8th, 2017
    Someone from Nacogdoches, TX writes:
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    I was put on Synarel for severe endometriosis. For 30 years subsequently, I have suffered every day with crushing pain and fatigue, of which, I cannot truly and adequately describe, since it is baffling, all-intrusive, and life-killing. I struggle with glandular disorders, deficiencies, allergies and sensitivities, non-refreshing sleep, and all manner of disturbances, just to name a little of what I go through every single minute of every single day. I have been effectively taken out of life. Within the healthcare system, I have been treated like a liar, a pariah, a mental case, a guinea pig, a dumbass, and a near criminal undeserving of the smallest amount of dignity, much less relief from a massive, cascading "syndrome" of physical problems. Labeled with trash diagnoses, we, the woefully de-energized, have to fight for any semblance of care and understanding. The doctors and drug companies and insurance fiascos take our money, tell us some b.s., and leave us to a fate much worse than death. I reiterate: much worse than death. It is neverending and much too much. We are brave and tough people - nobody could live this way without a ton of character and fortitude. We are your mothers and your daughters, and we are suffering. Please help us.
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  • Apr 27th, 2017
    Gregory K. from Mountain City, TN signed.
  • Apr 27th, 2017
    Gregory K. from Mountain City, TN signed.
  • Apr 27th, 2017
    Cheri F. from La Vergne, TN signed.
  • Apr 27th, 2017
    Norris G. from Jamestown, NC writes:
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    Truly a Poison and it WILL change your life! Never, Never take it. Doctors won't tell you enough to make an informed decision. They'll give minor side effects but hide the real life-changing trouble to come. What ever happened to their oath not to harm? For $$$ some of them will throw you under the bus and you and your family will suffer for life.
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  • Apr 25th, 2017
    Someone from Atlanta, GA writes:
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    BALONEY
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  • Apr 25th, 2017
    Someone from Atlanta, GA writes:
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    BALONEY
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  • Apr 24th, 2017
    cheri l. from Ringtown, PA writes:
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    husband was diagnosed with prostate cancer and was told by his urologist that it was a testosterone inhibitor. Never a word said about being a chemo drug. Just took second shot and he has been in hell since. Severe muscle and joint pain, can hardly make it to work, many other side effects. Why weren't we informed this was a chemo drug??? We should be allowed to sue for the false information and the damage this drug has done to my husband and our marriage
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  • Apr 22nd, 2017
    Roy M. from Warner Robins, GA writes:
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    This drug was injected into me two times by my Urologist. Not one time did he inform me of the horrific side affects that I would have to endure.
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