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Demand Custom Cranial Prosthesis Insurance Coverage

Public Comments (279)
  • Jun 16th, 2016
    Someone from Chicago, IL signed.
  • Jun 9th, 2016
    Someone from Chittenango, NY signed.
  • Jun 8th, 2016
    Someone from Eastpointe, MI writes:
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    This is a big concern that leads to low self esteem and mental illnesses. I can't see how they don't feel this is a medical necessity. Not every person can deal with having no hair, for some it ruins their entire lives. People can be cruel, pointing, laughing, staring is very distressing for someone to deal with every single day they leave their home. No one should have to deal with that in less it's by choice and they're secure living without hair.
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  • Jun 1st, 2016
    Someone from Denver, CO writes:
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    I am 33 years old and lost all of my hair in August of 2015 to this disease. When a woman has a mastectomy, insurance is required to cover reconstruction. The woman is losing a part of her identity and reconstruction is there to help her get that piece of her identity back. Why is the same concern not given to alopecia patients? Losing your hair (eyebrows and lashes included) is traumatizing. Your face is the first thing every person sees, and more importantly it is what you see. It is completely devastating to look in the mirror and witness your identity slip away hair by hair. Since follicular reconstruction has not been invented yet, purchasing a cranial prosthesis is the only option for us. This can be thousands of dollars in addition to the ridiculous costs involved with attempting to treat alopeica. This is completely absurd and it's time insurance companies step up to the plate to cover this simple item. One well made wig can be the difference between going into public depressed, emotionally scarred and embarrassed and going into public confident, strong, and empowered!
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  • May 31st, 2016
    Someone from Des Moines, IA signed.
  • May 31st, 2016
    Someone from Bel Air, MD writes:
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    In addition to her not having hair for most of her life, my sister has had to endure many other problems related to an autoimmune disorder that causes alopecia. She does a great job of looking "normal" with various wigs and prostheses that she has been able to afford, and I have seen the look on her face when someone notices her "new hairdo". Nonetheless, the cost of the prothetics is sometimes insurmountable for someone who earns a middle-class living, is trying to raise children, and is trying to maintain on one's own. Like it or not, appearance means everything in life - in the workplace, in social settings, etc. Having hair for some people is a "crowning glory"....this serves a purpose for mental health; emotional well-being; and social health. When I hear that cranial prostheses are not covered by medical insurance, I am reminded of a "MASH" episode where a young black man refused try to be rehabilitated and wear the leg prosthesis made for him - the chaplain figured out why - the prostheses was white and did not fit with his identity. Everyone should be entitled to the best our medical field can offer - to put forth their best identity - and no be penalized for needing the cranial prosthetic for a verified medical need.
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  • May 27th, 2016
    Someone from Nottingham, MD signed.
  • May 26th, 2016
    Someone from Memphis, TN signed.
  • May 26th, 2016
    Someone from Cordova, TN signed.
  • May 25th, 2016
    Someone from Philadelphia, PA signed.
  • May 22nd, 2016
    Someone from New York, NY signed.
  • May 20th, 2016
    Someone from Plainfield, NJ writes:
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    I know many woman (and men) who spend thousands of dollars on covering up a medical disability. The insurance companies should look at this as a medical supply. -Nyrisha
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  • May 19th, 2016
    Someone from Glenview, IL signed.
  • May 13th, 2016
    Someone from Gentry, AR signed.
  • May 13th, 2016
    Someone from Santa Rosa, CA signed.
  • May 13th, 2016
    Someone from Brooklyn, NY signed.
  • May 11th, 2016
    Someone from Uniontown, OH writes:
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    I have alopecia universal and am being denied any reimbursement for a cranial prosthesis. I work in healthcare so it is important to look my best when taking care of patients. It' s a shame that even though I work in healthcare, my insurance company does not recognize alopecia universal as a disease.
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  • May 11th, 2016
    Someone from Wyandanch, NY signed.
  • May 11th, 2016
    Someone from Wyandanch, NY signed.
  • May 4th, 2016
    Someone from Tustin, CA signed.
  • Apr 29th, 2016
    Someone from Sherwood, AR writes:
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    I am a 32 year old female in Arkansas. I have suffered from Trichotillomania since age 15. I am now at a point where I cannot leave my house in most cases unless I feel comfortable wearing a hat or if it's even appropriate for a hat or head covering. I haven't been able to work in the office since last year due to my very noticeable bald spots (that are only getting worse). I see a Psychiatrist numerous times a year and a therapist on a consistent basis. If cranial prosthesis were covered under my medical plan, I would feel comfortable in my skin, for once. I would be able to go back working in the office when I want and not worry about the wind blowing or going swimming, as these scenarios only make my spots very visible to the public. My depression and anxiety have since gotten worse than ever before. I recently had to check myself into a behavioral health hospital mostly because of this. It is starting to cause me to have social anxiety. It seems as though allowing this to be covered would only help and possibly save money considering all of the doctor visits so many people have to go to just to get drugs to make them feel better or have a therapist tell them what they already know doesn't work for issues such as mine. I don't make a lot of money and cannot afford this on my own. This NEEDS to be addressed and passed! I am sick of staying home, making excuses not to attend birthday parties, family events, weddings, swimming, riding roller-coasters, etc. just to stay in my house while my husband and 7 year old daughter go to these functions. You obviously have NO IDEA what it is like to no leave your house. When you do, you take hours just to make sure what little hair you have left will stay put and look decent enough just to go to the grocery store. It is awful that something like this would not be covered, though many plans cover weight loss or weight loss surgery?! I understand that. However, I do not understand how that can be covered and this cannot. There has always been people suffering from hair loss due to some sort of medical condition but only recently, in the past decade or so, obesity has become a huge issue because people (not all people - I realize many people also have medical conditions not allowing them to lose weight or they gained so much weight as a child due to bad parenting that they get so big, it is almost impossible to lose the weight and especially the flabby skin, if it's lost) are not motivated enough to exercise and/or eat right but then again it does seem to cost quite a bit more to eat healthy than eating unhealthy foods. Cranial Prosthesis NEEDS to be COVERED by ALL insurance medical plans!
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  • Apr 21st, 2016
    Someone from Los Gatos, CA signed.
  • Apr 18th, 2016
    Someone from Las Vegas, NV signed.
  • Apr 18th, 2016
    Someone from Las Vegas, NV signed.
  • Apr 18th, 2016
    Someone from Costa Mesa, CA signed.
  • Apr 16th, 2016
    Someone from Ontario, CA signed.
  • Apr 16th, 2016
    Someone from Irvine, CA signed.
  • Apr 16th, 2016
    Someone from Irvine, CA signed.
  • Apr 14th, 2016
    Someone from Ontario, CA signed.
  • Apr 14th, 2016
    Someone from Rancho Cucamonga, CA signed.
  • Apr 14th, 2016
    Someone from Ladera Ranch, CA writes:
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    This is an autoimmune condition that carries psychological ramications as well and should be covered by health insurance so people can get the best treatment available.
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  • Apr 13th, 2016
    Someone from Costa Mesa, CA writes:
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    Please consider this as a medical need! At any age this can effect an Alopecia patient not just physically but mentally and needs to be covered! Help change the lives of Alopecia sufferers by providing them with the coverage for a cranial scalp prosthesis.
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  • Apr 3rd, 2016
    Someone from Costa Mesa, CA signed.
  • Mar 19th, 2016
    Someone from Middle River, MD writes:
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    These prosthesis need to be covered for the patients!
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  • Mar 12th, 2016
    Someone from Huntsville, AL signed.
  • Mar 9th, 2016
    Someone from Cerritos, CA signed.
  • Mar 9th, 2016
    Someone from Revere, MA writes:
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    This will help numerous sufferers cope with every day life. I can attest to this as I suffer from Alopecia Areata. Please add to Massachusetts.
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  • Mar 6th, 2016
    Someone from Monroe, WA signed.
  • Mar 1st, 2016
    Someone from Lincoln, NE signed.
  • Feb 1st, 2016
    Someone from San Antonio, TX writes:
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    Please add to Texas residents.
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