Lupron, Leuprolide needs to be taken completely off the market immediately with out delay until "Protection Law" is implemented!
Public Comments (1,082)
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May 28th, 2015Someone from Minneapolis, MN writes:
If this drug is so harmful why keep it on the market? Look at everyones lives and who it has affected. Role reversal IF this was to happen to one of your family members what would you do?? Better yet after hearing about these poor families would YOU prescribe this to them..THINK ABOUT IT ..Look at ALL the side effects ( lifetime side effects)...??THINK ABOUT IT AND I WOULD HOPE NOT!!!!!! -
May 28th, 2015Someone from Osseo, MN signed.
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May 26th, 2015Someone from Mesquite, TX signed.
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May 26th, 2015Someone from Brooklyn, NY signed.
May 25th, 2015Someone from Mesquite, TX writes:
In April or may of 2001 I was diagnosed with endometriosis by a laperscopy. They burned it off and I started started the lupron shots. I was to receive this shot every month. After my second shot I had a major change of personality and aphasia. When I went in for my third shot I told them about the aphasia and short term memory loss. The lady left the room and then came back and told me I would not be receiving the shot anymore. The change in personality got better but not completely and the aphasia and short term memory stayed. It's nearly 14 years later and I can't even use an automated phone system. I can't remember what button to number to push. I ask the same question 3-4 times in a row because I can't keep the answer in my head. Sometimes I ask the same question over and over again and I forget I even asked. When the kids were little I couldn't even remember why I put them on punishment, I would have to ask a different kid to remind me. People get frustrated taking to me. I can't come up with simple words like "cup", I have to describe what it looks like or its function. People say "I do that all the time", no you don't!!! I get lost driving all the time. We have lived at the same house for ten years and still can't map out A B C. Home being A, B being destination and C being anywhere except home. If I try to get anywhere that isn't straight from home I'm a mess. So I can't figure out my part of town but I remember the cities I lived in before the shot. I can drive in those areas and not be lost but once I get back to this part of town I get all turned around. I have broke down and cried because I was lost and frustrated because I hate my brain. I feel stupid and look stupid asking the same thing over and over. My depression has taken over. I have anxiety attacks before driving and during driving.I don't remember a lot of the kids childhood because a lot of it didn't make it to my long term memory because my short term memory is messed up. I get irritable because I can't perform simple tasks or remember what I was looking for or what I was trying to say. I had to quit work in 2002 because I couldn't talk to my customers without repeating myself over and over because I didn't remember I had said that already. I was a hairstylist, I would have to stop in the middle of a sentence because I would lose a word I needed to finish my sentence. I would ask how my customer how short they wanted their side burns and they would tell me and it wouldn't stick and I would ask again 3-4 times. I got a lot of s range looks and I know they thought I was on drugs. That caused my anxiety to skyrocket and I would panic at the thought of work. I loved doing hair, I had to quit. There is a lot more ways it has ruined my life, cost me a marriage, strife with my kids while they were growing up and a lot of memories I will never get to remember.REPORT COMMENTS
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No, CancelMay 24th, 2015Someone from Dallas, TX writes:
Had horrible time with 150 mg casodex daily for 7 months with dry skin, finger nails splitting, sleep problems, lack of energy, stamina , etc. Now on lupron and still with hardly any energy , stamina, and not sleeping well. Apparently both drugs block or eliminate testosterone which makes it very difficult to function. Have tried chiropractor, accupuncture, energy drinks, vitamins, and minerals, all to no avail...very difficult situation.REPORT COMMENTS
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No, CancelMay 23rd, 2015Someone from Naples, FL writes:
The headaches, body pain, weakness at all times, mood swings, upset stomach. These symptoms are no joke and to make it even worts, people think you are just being "dramatic" .. This is chemotherapy in the form of an injection and the side effects are real. I can't wait for my uterine fibroid to be removed and get the Lupron out of my system if at all possible. More honesty, research and communication from our doctors is needed before embarking on this crazy journey which is supposed to make us healthier. Not only we; the patients, are paying the price but also our families.REPORT COMMENTS
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No, CancelMay 17th, 2015Someone from Tacoma, WA signed.
May 16th, 2015Someone from Saint Johns, FL signed.
May 16th, 2015Someone from Lake, WV signed.
May 16th, 2015Someone from Kalispell, MT signed.
May 14th, 2015Someone from Clinton, NY writes:
I was on Lupron, it made me feel crazy and I wanted to kill myself. I think it's a horrible thing to be on and don't recommend it to anyone, if I could I sue for the damage it did I would, it caused alot of stress on my marriage.REPORT COMMENTS
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No, CancelMay 12th, 2015Someone from Folsom, CA signed.
May 12th, 2015Someone from Folsom, CA signed.
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May 11th, 2015Someone from Brick, NJ signed.
May 8th, 2015Someone from Delmar, DE signed.
May 7th, 2015Someone from Mildred, PA writes:
I started it in 1998 until 2005 and suffer all the side affects No veins or teeth and lots more as well! in 2006 I moved to pa used it to show the doctor i can handle menopause which is done now, That is a long time and lots of it! Thanks for poisoning me to the point where no man including my husband can even be near me!REPORT COMMENTS
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No, CancelMay 6th, 2015Someone from Fort Lauderdale, FL writes:
LUPRON USERS BEWARE! I've been on Lupron (Leuprolide) injection for four months now and I've suffered horribly from side effects. I started Lupron at my Doctors recommenddation right after my sixth surgery in January 2015. First the side effects were mild, well I should say expected not mild really and I told myself to hang in because the benefit will be worth it. This is the side effects month one and two brought. Extreme pain first shot (worse than surgery) Hot flashes Nose bleeds Extreme tiredness Breast tenderness Body-aches Bone-aches Trouble sleeping Backache Complete emotional meltdowns (uncontrollable) Cloudy urine Nausea Indigestion Mental Fog Mood Changes Numbness in hand that goes up arm Clammy skin Weakness Loss of interest in sex Constipation Night sweats (changing up to 4 times a night) THEN, my doctor put me on "add-back" NORETHIDRONE which helped reduce the severity of side-effects and he also prescribed Zorvolex for inflammation. Please avoid Zorvolex it brought its own group of side effects increased indigestion and nausea, weight gain (5 lbs), constant stomach, ringing in my ears, lightheadedness, swelling of extremities, vertigo. I stopped mid-March once I realized these side effects were new and caused by Zorvolex. I did notice less pain from endo at this point and vowing to push through it because the benefits of Lupron were supposed to worth it I took my forth injection in April. Two days later I broke out in hives then the chest pains started. Chest pains were faint then grew worse to the point I couldn't deep breathe and clammy skin increased which lead me to the ER thinking I was having cardiac issues. A full cardiac work up was done and my chest pains was ruled "unspecified". They also did x-rays of chest and abdomen, urine and blood. They found I had a UTI (another know side-effect) and released me with pain medicine for my chest because the cartilage in my chest cavity was "inflamed" according to the doctor and antibiotics for the UTI. At this point I became on the fence about the benefit of this medication. Inflammation in my chest cavity is serious stuff and other than Endometriosis Flag, I've been "healthy as a horse per say". Four days later I woke up in the middle of the night with a horrid headache. It felt like my heart beat was pounding out of my right temple area. I took IB and tried to rest 6 am I was up again, took stronger pain med and hoped it would end. By 9 am I was throwing up and could walk straight nor tolerate light. My husband brought me to the ER. We spent the entire day there and after four different kinds of pain medicine, a CAT scan and my FIRST EVER BONE TAP, they ruled my headaches "unspecified". And told me I was absolutely healthy (they took 4 values of liquid from my spine and tested for just about everything possible) Again, they ruled out everything life threatening and released me with yet more pain medicine to keep headaches under control. PS Avoid Bone TREPORT COMMENTS
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No, CancelMay 6th, 2015Someone from Los Osos, CA writes:
i am on my 3rd month of lupron injections and just discovered that my sudden, extreme bone and joint pain, my chronic headaches, significant hair loss and weight gain are all common side affects to the drug therapy. i was never informed of these side affects. when my doctor recommended I take Lupron as treatment for my uterine fibroids, I immediately asked what it would do to me and what were the side affects. I was told that Lupron would chemically induce menopause and the side effects are night sweats, hot flashes, vaginal dryness, and general menopausal symptoms; however, since I am 51, I am likely already experiencing whatever menopausal side affects that would be otherwise caused by the drug, so it is likely I would experience little to no change with the treatment. i then asked if Lupron was a hormone and was told "no", Lupron is an "anti-hormone". 3-months later, I am suffering with a gamut of symptoms I had never been forewarned about and to top it off, now I am finding out that many women who have suffered similar experiences later discover their side effects to be irreversible.REPORT COMMENTS
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No, CancelMay 6th, 2015Someone from Los Angeles, CA signed.
May 4th, 2015Someone from York, PA writes:
Used for my cancer treatment. The cancer is being handlef, but the rest of me is being destroyed by luprone. The fatigue and muscle pain is 24 hours a day. No more for me I'll take my chances with cancer. I have no life to live because of lupron.REPORT COMMENTS
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No, CancelApr 30th, 2015Someone from Lyndhurst, NJ writes:
Lupron was given to me by my Dr about 5-6 years ago to help with my endometreosis. Back then there wasn't so much info on it like there is now. My Dr told me the worst things that could happen to me were hot flashes, night sweats and possible bone loss m- basically pre-menopause, but this was the best solution for my issue and only people with this issue will feel 100% better and I would feel no more pain or have periods. So what was not to like? And if my Dr was prescribing it, what should I be afraid of? So I got the 3 month shot. After 6 months and I felt ok without any noticeable symptoms, he decided since it works, I should stay on it. I was on it for almost 3 years!!! Then I lost my insurance and went off the shot for years. My endo did come back and I had my second surgery about 3 years ago. I went back to him and he decided to put me back on Lupron and said I tell all my patients this is THE BEST thing to take if you have endo. and I hate having to convince them this is the best way to go. So he put me back on it. I decided to call the Lupron hotline and ask a few questions. Do you know that they told me there were NO studies done on people returning to the shot or long term studies of effects on a person's body?? But it is the best thing to take for my issue. I went back on it because I didn't have any issues previously, that were linked to the shot. Well this all changed. By my 2nd round of shots, I noticed that I was having a hard time walking, foot pain when I woke up, my hands would be severely clawed & painful and I couldn't move them. It felt like the blood wasn't flowing to them. I developed severe joint pain, groin pain, back pain which I didn't attribute to Lupron at the time, diagnosed with peripheral neuropathy, pre-diabetes and my blood work always comes. I even had bouts of my left leg going completely numb and I would fall! I thought something is really wrong with me it didn't cross my mind it was the shot. I went to WAY to many doctors and nobody could tell me what was wrong and not one of them attributed my symptoms to Lupron. I honestly don't know if these doctors are aware of the significant issues this drug brings out of people. I am losing my hair, brittle nails, stomach issues, bowel issues, GERD, constant infections. I even had my tonsils removed because of constant infections! I get dizzy a lot and the worst part is that my memory is getting worse and I feel I have cognitive impairment. Best part is I just turned 40. I am so angry that my doctor put me on this drug. I have been on it the second round for over a year!! Now that I did more research I found so many more people that had this drug ruin their lives!!! I am not the only one and I would never with this on anyone! It's horrible. And here my doctors kept telling me I was healthy and fine and my blood work results never came back the same! We need to get together to form a class action lawsuit!!! Get this drug off the market. Plus they lied to get the drug oREPORT COMMENTS
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No, CancelApr 30th, 2015Someone from Peoria, IL signed.
Apr 27th, 2015Someone from West Nyack, NY signed.
Apr 26th, 2015Someone from Syracuse, NY writes:
Lupron is Absolutely the worst drug. My body has hurt in ways I never thought possible. Someone please help those of us who have taken it and make it so that those yet to take it can't. Stop the manufacturer from killing or bodies.REPORT COMMENTS
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No, CancelApr 26th, 2015Someone from Cambridge, VT signed.
Apr 26th, 2015Someone from Lewisville, NC writes:
Lupron is absolute poison and should be reevaluated by the FDA for it's long term, PERMANENT side effects!!!REPORT COMMENTS
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