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Investigation into Lupron Side Effects (Leuprolide Acetate)

Public Comments (5,065)
  • Sep 3rd, 2009
    Someone from Round Mountain, TX writes:
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    Please stop this medication! I suffer terrible memory problems due to this medication. Please take this off the market!
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  • Sep 2nd, 2009
    Someone from Peoria, IL writes:
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    Please do not allow any more people to suffer from this drug.
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  • Aug 31st, 2009
    Someone from Nashville, TN signed.
  • Aug 30th, 2009
    Someone from Houston, TX writes:
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    My wife has had hot flashes, night sweats, hyperhydrosis, mood swings, memory loss, trouble concentrating, and above all a massive and continuous headache that has permanently affected our lives for the past seven years. All the OBGYN doctors we have seen say that Lupron could not be the cause, but we have searched high and low and made every lifestyle change possible to see if it was something else. It has to be the Lupron!!!! Why is it that in this great country we are allowing this to happen??? Won't someone please help???
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  • Aug 29th, 2009
    Someone from Port Orange, FL writes:
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    I was given this drug while under anesthesia and the only reason I can come up with for getting it is for the money because I had nothing that a reasonable doctor would have prescribed it for. There are thousands of people that have suffered the devastating effects of this drug with no where to turn. We face a powerful, ruthless and criminal drug company. I wrote to congress and to the FDA over five years ago yet nothing has ever been done to stop this poison. Now the tides are turning and you will learn of the women whose lifes were completely and irreversibly changed forever. Where do we turn? There is no one to help us.
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  • Aug 27th, 2009
    Someone from Broad Top, PA writes:
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    This drug has horrible side effects and needs taken off the market!!!!!!!!
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  • Aug 27th, 2009
    Someone from Raleigh, NC writes:
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    So far, I've had it pretty easy compared to others. I had three shots to ease endometriosis pain, and the pain was relieved, but it changed me. I became mean, full of crushing chest pain, it hurt to breathe, every breath hurt from my nose to my lungs, my eyes hurt, and I felt like I was going crazy. It was like I was being dried up, one body part at a time. I don't know how long it will take to wear off, or if I'll ever get back to normal fully. This is NOT RIGHT for a pain reliever, or even for a cure for endo.
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  • Aug 26th, 2009
    Someone from Henderson, NV writes:
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    This drug is highly toxic and was originally approved in 1985 for use in men with prostate cancer and has been proven ineffective for its original indication. See June 2008 JAMA study. See Associated Press Article dated Aug 26, 09, entitled "Prostate Cancer Drugs Risky." This drug has thousands of MedWatch reports over 6,000 in 1999 alone. Further, it does not work for Endometriosis either. It is merely a pain reliever at best, but literally has destroyed the lives of thousands of women with the horrible adverse events. It does nothing else. The questions for FDA is it effective? Hardly, Advil does as much for the pain. Is it Safe? Absolutely not. Do the risks outweigh the benefits. No. If you knew that you could only use it for 12 months in a lifetime and that it caused all of the noted adverse events and the benefit was going to be a little bit of pain relief for only about one year of your life, would you take that risk. Oh course not. FDA do your Job and pull this unsafe and ineffective drug from the market NOW. FYI the drug costs $600 per shot times by six shots that $3,600. If you want to save health care dollars pull this drug or give it a huge BLACK BOX WARNING immediately.
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  • Aug 26th, 2009
    Someone from Philadelphia, PA signed.
  • Aug 26th, 2009
    Someone from Fremont, CA signed.
  • Aug 25th, 2009
    Someone from Cherryville, NC writes:
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    I was diagnosed with endo and under went surgery in Feb. of 09 immediatly after started the Lupron shots. It has been close to six months since my last injection and I am experiencing severe side effects. I have horrible joint and bone pain everyday.. I am only 19 and I feel like an 90 year old. Depression, chronic dry eyes, and personality change have also affected me. The doctor who administered the shot refuses to see me now and wont even discuss the possibility that these sideffects are from the lupron. I don't know what else to do.
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  • Aug 18th, 2009
    Someone from Washington, DC signed.
  • Aug 17th, 2009
    Someone from Tiverton, RI writes:
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    I struggle every day to live normally, it's not easy but I try to beat the side effects every day. Lupron has changed my life in many ways, the intense pain I experienced at first injection of Lupron over 10 year ago is still with me. I am fortunate to have some family support & understanding but feel terribly for folks that have no one to take care of them while suffering awful side effects of Lupron. I hope there are some compassionate people in Congress & Medical Professionals to finally & thoroughly investigate Lupron's toxic & long lasting effects on men & women's health. I support this petition. Lisa Plante (former Dem. Congressional staff person)
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  • Aug 15th, 2009
    Someone from Salinas, CA writes:
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    I support this petition.
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  • Aug 13th, 2009
    Someone from West Roxbury, MA signed.
  • Aug 13th, 2009
    Someone from Indianapolis, IN writes:
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    Horrible drug. Body has been damaged for 10 years now.
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  • Aug 12th, 2009
    Someone from Berkeley, CA signed.
  • Aug 12th, 2009
    Someone from Pocono Pines, PA writes:
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    my daughter took Lupron from age 5-11 for precocious puberty and now has PCOS, Hair loss, weight gain, muscle aches and abnormal paps. she is now 16 and her health is a mess.
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  • Aug 8th, 2009
    Someone from Palos Heights, IL writes:
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    I have had constant pain in the bones in my feet for 8 years with no relief since taking Lupron. It is difficult to walk, run , work. I have been to multiple Drs to no avail they cant find anything wrong. I still suffer from constant muscles aches and pains and have been tested for all causitive conditions. This only started after I started the lupron injections for endometriosis in 2001. I am also a nurse and will never take any "new" drugs since they are not properly tested, nor will I take any vaccines of which I have no idea what is in them. The government does not keep us safe only taking the big payoffs from the big pharmaceutical companies. We the people need you to work for the people and stop taking the big pharma company payoffs.
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  • Aug 5th, 2009
    Someone from Warrior Run, PA writes:
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    this has been nothing but hell on my life im in pain tired all the time anxiety attacks i cant even run and play with my daughter
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  • Aug 4th, 2009
    Someone from Olathe, KS writes:
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    This drug had had devastating effects on my body and mind.....
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  • Aug 2nd, 2009
    Someone from Las Vegas, NV writes:
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    I have not yet got a diagnosis, but after taking this shot, my body is numb and tingling, i have vibrations in my head, and it's making me sick to my stomach. Something needs to be done about this drug, nobody told me this was going to happen to me.
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  • Aug 2nd, 2009
    Someone from Lyles, TN writes:
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    Something has to be done about this drug. This drug takes a toll on these women and it's not right. I know someone who cant have children because of this drug. I promised her that I would spread the word to as much people I can to help sign this and make sure that something will be done about this before more women become victims. Thank You
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  • Jul 30th, 2009
    Someone from Cleveland, OH writes:
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    I took this drug while undergoing infertility treatments and was diagnosed with a tumor on my pituitary gland (accidently discovered) 5 years later. I also suffer from degenerative disk disease that significantly worsened over the last 5 years as well - after taking this drug.
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  • Jul 27th, 2009
    Someone from Grafton, MA signed.
  • Jul 27th, 2009
    Someone from Grafton, MA signed.
  • Jul 27th, 2009
    Someone from Grafton, MA writes:
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    A friend's daughter died from this drug.
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  • Jul 25th, 2009
    Someone from Lexington, GA writes:
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    I feel there may be some politicians who may be getting some kind of benefit. ( this is only my opinion,why else would they turn their backs on the women who went to Congress about this problem. I have research this for four years and have enough research to bring this to an investigation. Why then will no address this problem. Even the media will not look in to this, I wonder why.
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  • Jul 23rd, 2009
    Someone from Carolina Beach, NC writes:
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    This drug has destroyed my sister life. After many years of suffering from the side effect she has just been diagoned with a brain tumor on her pituitary gland which was caused by "LUPRON"
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  • Jul 22nd, 2009
    Someone from Orange, MA signed.
  • Jul 21st, 2009
    Someone from Grafton, MA signed.
  • Jul 21st, 2009
    Someone from Sanford, FL signed.
  • Jul 21st, 2009
    Someone from Greensburg, PA signed.
  • Jul 20th, 2009
    Someone from Richmond, VA writes:
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    investigation needs to be done about lowering potassium levels as well.
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  • Jul 19th, 2009
    Someone from Dania Beach, FL signed.
  • Jul 18th, 2009
    Someone from Marlborough, MA signed.
  • Jul 17th, 2009
    Someone from Fitchburg, MA signed.
  • Jul 16th, 2009
    Someone from Hewitt, NJ signed.
  • Jul 16th, 2009
    Someone from Philadelphia, PA writes:
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    I was never told by my doctor about the harmful side effects and didn't own a computer at the time to look up the info on it. I was in severe pain for months and spen a ton of money on physical therapy and medication to be able to walk again becasuse the medication caused severe muscle and bone aches and pain. I was not able to walk up steps with out crying in agony. I was not able to sleep next to my husband for months becasue the pain was too much to walk up the stairs. I slept on my floor in the living room for months and kept getting the run around from my doctor as to what was causing this when after I had my surgery to remove a cyst and endometriosis I was fine. Then I was given the shot in tow visits and that is when I experienced the pain. I was not able to sit up and be a mom to my son who was on in kindergarten at the time. this shold have never been on the market for women.
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  • Jul 16th, 2009
    Someone from Fitchburg, MA writes:
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    I 100% agree the use of this drug and ALL of it's side effects needs to be re evaluated. The drug has been used for quite some time now. Why are there no long term studies???? this is absurd!!!! The saftey of all women undergoing treatment with this drug is at stake!!!
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