First Do No Harm: The DEA targets Physicians who treat their patients pain.

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Some recent comments: these messages are published with permission of the signer.

I'm going to be the sqeakiest wheel there is until this is resolved . This is my health . This is my life on the line . You owe me restitution for all those hours I have been suffering . I want resolution, restitution, and an apology . Not just for me for every one of us you have done this to . The longer you wait the more your going to pay .
You are the abusers , the addicts , you are addicted to abusing power . If you take medicine from us chronic pain suffers , we need to take your power away from you . I cannot say this enough , you are committing a hate crime targeted at people with an illness, chronic pain . This is a hate crime . You are breaking the good samaritan act too by not helping someone in need or help . Fix it !
So police men and women get those jobs because they are actually drug seekers and addicts . They want to get hurt and possible suffer from chronic pain just for the drugs . That's what I am taking from you . Fix this nonsense! Fix it now !
See how asinine your thinking is ? Are people who who served put there blood on the line for this country, you call them drug seekers, addicts , doctor shoppers . No I did not get the chance to join , because of my health but now seeing how you treat us citizens who suffer from chronic pain I'm glad I did not , who would want to protect people like you , not me .
Terrorist see I wrote terrorist so you don't ignore my letters . The brave men and women in the armed forces , the first responders , all who get hurt and maimed do you deny them medicine ? Do you warn them you will not teat here pain after they lay their lifes on the line for are country ? Or you think they serve and do those jobs because the want to get hurt for drugs ?
My pain is at a ten . The only thing I have for it is Tylenol. I'm loosing my hearing I have blood in my urine. I would cut off my left nut if it would help . Do I have an addiction to Tylenol ? No I don't it is all I have . You people are killing me . I do not have access to health care and or medicines to help myself . When I die and they do the autopsy , they will find you with murder , because of this inhumane hate crime you are committing against chronic pain suffers . You are not above the law . Look in the mirror and see your face behind bars , and say hello to bubba for me .
I've stopped looking for doctors to help me because you call it doctor shopping . I don't seek help for my chronic pain because you call me a drug seeker . I'm stuck in fight or flight response , I have pdst, I suffer from severe depression , because of my pain . So how you going to help me ? You helped the alcoholic. Those heroic people in the armed forces ,when they get shot or worse do you deny them treatment on the battle field ? Do you say to them you just got shot or worse because your a drug addict and seeking drugs ? Where are your minds at I did not pick my illness . But you pick my illness not to be treated. That is a hate crime , a crime against humanity .
Let me ask all of you a question . Because you are in office , do you think you are above the law ? You are denying people from getting medical intervention for their illness . We can't just go to the drug store to get the medicine , we are not allowed to grow , poppies , or cannabis . You are preventing every and any way for us to take care of our health issue , chronic pain . You will always have drug addicts. You will always have street dealers . There will always be chronic pain suffers . You are preventing us who do not abuse medicine access to it. You are breaking the law .
So if I go to the street dealer , to get medicine doctors aren't allowed to give me and have a few drinks on top of that , then wreck my car , you would put me in charge of health care people's lives ? Is that how it's done . If your an addict you above the law because of you illness. That is really responsible of you . The world isn't crazy , I am .
You all have failed at your elected posts . You seriously think you belong in office ? I wouldn't let you tie my shoes . If you had one once of compassion you would have sent a doctor to my house . But you compassion , is on addicts, you worry about people who don't seek help for their illness , the drug abusers . The ones who wreck their cars and take out families , parents , children . I sought help for my pain , I was responsible . I never abused anything . I never wrecked my vehicle under the influence . You give this man money to hurt people ? How do you look in the mirror?
The simple fact that he wrecked his car before he got help shows he is irresponsible , and you put him in charge of people's health . Think I'm mad ? You think I'm frothing at the mouth ? You would be right ! Fix this now !
See an addict feels better when they don't do drugs and abuse medicines . A chronic pain suffer feels worse because their body is broken . I have been reaching out for help and everyone refuses. I'm not like are alcoholic friend who wrecked his car then got help . I'm in pain . I'm depressed . I have other health issues that are not being addressed because of you the U.S. government. This is a public record so when everything hits the fan people know I've tried . This is my Health at hand you are committing a true crime to humanity. You all are accountable .
So when my mind finally totally rips in half from my pain , am I going to get the get out of jail card like the alcoholic did . He did it to himself , you people are doing it to me . See the difference ? He should have got help before he wrecked his car not after , I would have put him in jail . I believe in justice , unlike you do .
Yes I went to the psychologist , they said I'm severely depressed and I need to get my pain managed . Doctors have told me my pain needs to be managed . So tell me why my pain is not being managed . Ask the alcoholic. Have you seen the psychologist yet ?
You senator of Pennsylvania , you need to come to my projects and stick a knife in my chest . Do something don't let me suffer . Be a man and look me in the eye and shove the knife in my chest . If you do nothing your as bad as the alcoholic who started this mess . Seeing how you are too scared to confront him , do me in , it's the least you can do . Be a man one way or another . Step up to the plate .
You congressman of Pennsylvania , you need to come to my projects and stick a knife in my chest . Do something don't let me suffer . Be a man and look me in the eye and shove the knife in my chest . If you do nothing your as bad as the alcoholic who started this mess . Seeing how you are too scared to confront him , do me in , it's the least you can do . Be a man one way or another . Step up to the plate .
You are so out of touch with reality you put an alcoholic in charge of medicine . He and people like him are the abusers . I'm not and I'm suffering because of him . That's like putting a kid in charge of a candy store . None of you are right in the head . Any one who let's this happen needs to be out of office .
Three doctors told me to buy cannabis on the street because they where afraid to help me correctly . They wanted me to by cannabis wich is illegal here in PA. On the street with God knows what other chemicals are mixed in it because they where too afraid to loose their license , they should not have their license for being week and afraid of you .
I saw on one of those 60 min. Shows that the the man in charge of dea is a recovering alcoholic. Good for him , but see that's the problem . He is an addict , that is his illness. I suffer from chronic pain . He just wants to take drugs , I don't want to take drugs . His outlook is perverted by his illness . I need medicine to stop my pain . There is no joy in having to take medicine every day to keep your pain at bay . See the difference ? Remember I have had doctors tell me my pain needs to be controlled . His illness just makes him want to do drugs . I'm happy you had help with your illness but you do not belong in a field were medicine and drugs are being handled . That is why in my other letters every one in charge needs to be psychologically evaluated and their medical records should be public . You think everyone is an addict and you are wrong . You broke it now fix it
Let me tell you how I spent my Christmas. I have chronic pain. Pain Management gave me methadone. It doesn't work. It made me sick. It gave me heartburn, made me puke my guts out and gave me zero relief. I slept way too much. Never go to Pain Management. I thought I would get injections and they took my Percocet away which I took only 2-3 days per week and gave me relief. My PCP said he would give me by Percocet back but it had to be left up to the PA-C that gave me the methadone on a daily basis that I couldn't take. The PA-C said she couldn't get me in before 1/4/16. I've been without pain meds for a month now! I don't abuse my Percocet. I've been in chronic pain for a month now and can't function. The PA-C wrote in my record that I am at risk for opiate addiction which is not true. I have to go through the rest of the holidays with out pain meds because of this PA-C. I have documentation. Having Lupus and Fibromyalgia is not fun especially at stressful times in my life. I feel that the heroin epidemic is getting worse due to doctors not being able to give their patients opioids that do not abuse them. This is not good. I'm ****ed.
This has been an ongoing problem for years now and seems to be getting worse. I have had chronic pain for years now and would rather not be on all the meds that make my life livable. Unfortunately with the new rules my doctor, of 10yrs, has told me that they will no longer be able to prescribe the medications that keep me semi mobile. My quality of life has been poor on the low doses I've had to go down to, but now the doctor is being forced to lessen even that. What are people like me, who don't abuse it, over use or sell their meds suppose to do!? I'm at a total loss and know that when this round of medication is gone I will not be able to get out of bed. The. How are my kids to get to school without my DH loosing his job, my house run, or anything else. I might as well not be here, I've become a burden as things are, but it will become worse when the meds are gone. It is none of the governments business what goes on in my dr appointments as long as we are both being responsible and not abusing these medicines.
Please let people with pain live a semi normal life without destroying them. I foresee suicide rates rising due to doctors being forced to withhold medications that allow people to function.
I'm sure the er will get to know me well soon.
This has been an ongoing problem for years now and seems to be getting worse. I have had chronic pain for years now and would rather not be on all the meds that make my life livable. Unfortunately with the new rules my doctor, of 10yrs, has told me that they will no longer be able to prescribe the medications that keep me semi mobile. My quality of life has been poor on the low doses I've had to go down to, but now the doctor is being forced to lessen even that. What are people like me, who don't abuse it, over use or sell their meds suppose to do!? I'm at a total loss and know that when this round of medication is gone I will not be able to get out of bed. The. How are my kids to get to school without my DH loosing his job, my house run, or anything else. I might as well not be here, I've become a burden as things are, but it will become worse when the meds are gone. It is none of the governments business what goes on in my dr appointments as long as we are both being responsible and not abusing these medicines.
Please let people with pain live a semi normal life without destroying them. I foresee suicide rates rising due to doctors being forced to withhold medications that allow people to function.
I'm sure the er will get to know me well soon.
You need to have assisted suicides here in Pa. I'll be the first on the list . My last request , I want the alcoholic to do it . I want him to look me in the eyes and we'll where at it have it televised so the rest of America can see you would kill a person instead of treating their illness . Seeing how he is more worried about addicts , than chronic pain suffers . Yes the scales are tilted . He is putting a priority on his illness instead of mine . That way you wouldn't have to pay me restitution for making me suffer like a dog that has been beatin and tied outside with no water .
Ten , my pain is a ten . You know what really gets my goat . You have the nerve to do interviews , go on holiday , while we suffer . When I used to work and if I goofed of as much as you people do I would have been fired . When you have a job to do you get it done . Your so busy goofing off it sways your judgement . You don't deserve to get paid , as for that just the honor of serving should be payment enough . This is people's lives you are playing with . What do you have to say for yourselves ? Who was the genius that put a recovering alcoholic in charge ? Do you see the madness of this ? No one should have to suffer like this , nobody . Are you that disconnected with reality ?

Christ is born ! Glorify him !
Enjoying your holiday ? I'm not I'm in pain . Pain dose not take a holiday . Remember us at your Christmas gatherings .
As far as the war on drugs go , to fix that problem , you need to get a campaign going and tell people they will get a big reward for ratting out the drug dealers . This isn't for the people who do the drugs it's directed at the people within the main drug dealers group because if they could sell out their bosses and get legal money for it the drug war would be over . Money is the motivator . That greed that makes people sell drugs is your weapon . Don't take this out on chronic pain suffers . We where diagnosed and need to be treated . Remember I left the last pain clinic because of the way I was treated , I'm not a seeker nor an addict . Just because a doctor gives you medicine for pain does not make them a good doctor . I want treated with respect and dignity as much as I need the medicine I will not be treated in an inhumane fashion. It's not doctor shopping it's finding a true doctor .
I saw on one of those 60 min. Shows that the the man in charge of dea is a recovering alcoholic. Good for him , but see that's the problem . He is an addict , that is his illness. I suffer from chronic pain . He just wants to take drugs , I don't want to take drugs . His outlook is perverted by his illness . I need medicine to stop my pain . There is no joy in having to take medicine every day to keep your pain at bay . See the difference ? Remember I have had doctors tell me my pain needs to be controlled . His illness just makes him want to do drugs . I'm happy you had help with your illness but you do not belong in a field were medicine and drugs are being handled . That is why in my other letters every one in charge needs to be psychologically evaluated and their medical records should be public . You think everyone is an addict and you are wrong . You broke it now fix it
Just read that email below and think about this . I'm writing in English. These are the people at the wheel . Really ?
Dear Mr. Greorge G. :

 

We recently received a message from you; however, it is unclear from your message what bill or issue you mean to discuss. If you re-submit your request or contact our office at (202) 224-6324, I will ensure that you receive a response from the Senator.

 

Sincerely,

Josh Dubensky

Correspondence Manager

Office of Senator Robert P. Casey, Jr.


P.S. If you would like to respond to this message, please use the contact form on my website: http://casey.senate.gov/contact/
Another of many many reasons the government needs to stay out of healthcare.
So this is how it works . You can make a diagnosis using magic , so who taught you telepathy . I mean who gave you your magic license with your doctors degree? If this isn't the very meaning of malpractice I must be an elf . I don't trust or respect doctors anymore because of you . I'm in need of medical treatment and I have no where to go . I'm a dead man walking here . I want restitution for all this evil nonsense bestowed upon me. You have harmed me physically and mentally . You have taken my freedom away . You have all caused harm . You need to fix this. You started this . I wasn't looking for trouble you put it on my health . I have mandatory health care for what ?
You have never met me . Believe me when I tell you this you don't want to meet me . You need to be in jail so called doctors for cdc, dea fda, . You are calling me an addict, a drug seeker, you are making a prognosis on me , and I never sat on your table . You never kicked my tires . Who paid you to end your career . Are you really that bad of doctors this is the only way you can make money , by hurting people . Who ever issued you a medical license need to be in jail too.
Let me tell you folks in congress....how dare you...You! who seem to know little or nothing about pain and suffering....there are worse things than being dependent (and responsible) on pain medication. Such as, not being able to bend to put your socks on, not being able to sit and watch a movie with your children, or not being able to walk the block to the mail box and back, forget about taking your best friend for a walk etc etc. Now for the particulars....I had a pneumonectomy (removal of my left lung) (carcinoid tumor not due to smoking) half my thyroid removed ....botched by Dr. Ithoughtiknewwhatiwasdoing, had meniscus repaired in both knees, and recently (Sept 2015) a total hip replacement w/complications. I have had back problems from jobs I worked when I was young (all documented) and migraines (only 2 to 3 times a year). I served in the USMC 68-70 and U.S. Army from 80-81 (medical discharge). I didn't ask for these health problems....just stuff that happens....however, I have tried going without pain medication and my quality of life was 75 to 85% limited (Even tried medical pot...but it didn't work for my pain). In other words ... I could do very little. I am fortunate to have a family Dr. that understands this and helps. But many are being refused or not given enough meds to help. I hear (60 min) that people are trying heroin from drug dealers on the street because they can't afford pain meds or have been refused....WHAT! You need to rethink this problem (real or media bandwagon hype) and go visit some real people with real health problems. I am a retired teacher of 20 plus years with a Masters in Education and a minor in Psy. If you want to get an intelligent solution to this situation (not problem)....go to the Universities and let some people that have degrees in something other than "The law" work through this. My nickels worth.
Those so called doctors , making these asinine prognosis, have not evaluated any one of us on this petition . Are they psychic doctors as well . You people are in big trouble . Think of your stupidity , no I said think of your stupidity, there you go ! Now fix you evil ways . Stop the abuse .
My advice to you think twice before you call someone in need of medical care a drug seeker. Words hurt don't they ? Just as bad as being denied medicine for your illness, not even close . Fix this !
I'm tired of hurting sick people , I need to go to Hawaii, and take a break from all that hard work . Let me see turned off the stove , payed off the pretend doctors. Time to enjoy the holiday .really?
Hey look at me I'm playing with Jerry sienfeid , I hurt sick people , aren't I great ? No your not great you are an imbarasement to the American people . So , how much did you pay those pretend doctors? Is that why you have to moonlight with Jerry sienfeid, to pay them off ?
You pick on us the sick . Because you can't win your little imaginary war on drugs . You would hurt the already injured , you are not men , you can't even be good bullies , you fight with a pen . How much did you pay those sell outs who pretend to be doctors ? Do you pay off their student loans ? Who do you think your fooling ?
How Farr would you like to take this . My pain level is at a ten I'm loosing my hearing from all the Tylenol I'm taking , I'm stuck in fight or flight response , guess what I've never been one who runs from a fight . The difference between me and you I fight for the right reasons . You hide like cowards when you hurt someone . You bump and run . You have learned that from the terrorists. You are not Americans you do not belong in the United states . You all need to be deported , exiled.
If you did this to us your own people ? What did you really do to **** off the terrorists? You did something ? It takes at least two to play . If you are this evil to us U.S. CITIZENS , WHAT DID YOU REALLY DO TO THOSE PEOPLE ? WE IN AMERICA REALLY WANT TO KNOW .
Seeing how we can think are pain away , we can think all those other things away too . Like high blood pressure , diabetes , broken bones etc. So who needs doctors . I for one am not going to pay taxes because the politicians can think food in their mouths , they can think their car payments . They can think their kids through college . See how easy it is utopia . The budget will straighten out when the politicians don't get paid, all we have to do is think real hard and all are problems will go away . What are you people two years old grow up . These people making these asinine regulations need to be correctly physiologically evaluated . DON'T TREAD ON ME ! I WILL GO DOWN FIGHTING !
these pharmeceutical companies are out of control prices and profits are out of control the people oversea them is out of control,how much profit do you want and you let people diecause they can't get them!see two friends this year can't even get drugs to help them through chemo cause companies admit not enough profit!cancer could be cured or patient have more peaceful death or could fight longet,maybe even cured,so t his country sickens me anymore healthcare is out of freaking control!
This is heartbreaking. I'm a chronic pain sufferer and yet I force myself to live in pain until it becomes too unbearable (about once or twice a year) and go to pain management and jump through all of their hoops only to be treated as a drug seeker and be denied pain meds. What I find so sickening and hypocritical is we've all but stopped putting murderers on death row to death via lethal injection because they e sometimes suffer for a minute so it's been deemed cruel. Seriously? Yet we will deny millions who suffer all day every day in excruciating pain. How is this humane? Now many are choosing suicide because there is no quality of life and no hope that there ever will be. I explore you to spend one hour with a suffer and see for yourself.
I would love for Congress spend a day with my intractable pain! It is hell, and all my Doctor is doing is helping me live a life with less pain. Shame on all of you!!!
I would like to know who it is that is in charge of telling/distinguishing whether or not I am in pain...motorcycle accident at 60 miles an hour and theres doctors that are refusing to treat me just for simple fact "it's bad for me" well so is pain.
I have already prepped my adult children. I don't want to die, but my debilitating cycle of pain and depression from failure to legitimately receive vicodin, the only thing that has ever worked, had forced me to soon make the choice that "death is better that no quality of life at all". This is the alcohol prohibition all over again. I am on disability and get $650 per month, how am I suppose to live on that?! Doctors want to do nerve blocks at 5k (medicare & I pay 20%) a pop every few months, with no guarantees, but a $50 per month script is out of the question, when it makes me able to work and support myself. I may be strong, but some times being strong is knowing when to give up.
I have suffered with chronic pain since I was 5 years old. I am now 51 yrs old. I have Charcot Marie Tooth disease, a hereditary neuromuscular disease similar to MS. I have peripheral neuropathy, scoliosis, degenerative disc disease, arthritis, fibrous dysplasia of the temporal bone, and many, many, herniated and bulging discs in my neck and back.
I've had both of my feet totally reconstructed because the disease put me in a wheelchair at age 32. I am walking thanks to God and a great surgeon but I suffer with horrible chronic pain all over my body. I had a neck fusion in December 2014 and 4 months after my neck fusion I was hit head-on by a drunk driver causing MORE herniated discs in my neck AND back.
I've been through years and years of physical therapy and injections. They don't work. The ONLY thing that helps my chronic pain and allows me to live somewhat of a life and take on responsibility is opiate medications. I am NOT an ADDICT, but I am dependent on pain medicine to LIVE LIFE and function on a daily basis. I am sick and tired of being treated like a drug addict by so many doctors who do NOT understand or know ANYTHING about my disease.
My current doctor KNOWS me, he knows I am a "tough case". HE prescribes what I need. BUT between he and my pharmacists we have run into MANY problems since the CDC and DEA stuck their noses into all of this. THEY are NOT doctors. Our doctors know us, and KNOW HOW to treat us patients. LEAVE THEM do their jobs.
Stop threatening doctors and pharmacists licenses because they are prescribing what we patients NEED to LIVE and function.
I challenge ANY government or politician to LIVE in MY SHOES for a WEEK. Even a DAY... and they will UNDERSTAND.
I did NOT ask to have all of these diseases and illnesses, I did not ask to be hit by a drunk driver, I would GIVE anything to LIVE a NORMAL HEALTHY life. A life WITHOUT chronic pain and suffering.
Get YOUR NOSES out of our LIVES, STOP this INHUMANE activity. We are HUMAN, we are chronic pain patients who deserve to TRY to LIVE a semi normal life just like YOU DO every single day. Let the DOCTORS be DOCTORS and do their JOBS. The government is pushing pain patients to the STREETS and SUICIDE. YOU are the problem, not the chronic pain patients, doctors, or pharmacists. YOU, our government are the problem.
To the depts. that breed these new doctors and specialists that come from our country, read one of statements that your own people have stated in " Regulations.gov survey CDC-2015-0112 " from a dr.eugene koprowski md. He has stated that instead of meds for relief, the system should be using physical therapy and mind over matter techniques to control even the worst of pain if I understand correctly. For one thing, its next to impossible to say to the body " I have no pain, please go away". The mind can do much but not that for any length of time. Physical therapy will actually put you in traction on many of the exercises they wish. Like we don't want to move around and try to fit in like the rest. I will comment on him later on the govt site. He is living on another planet...if he is not, wait until he has problems with the superior body he may have. He will, and that is a fact. And I hope the ER hands him a copy of his stupid and ignorant writings. I have seen 3 doctors comment on the govt site and makes me believe at times they are pushing this. It's an uphill fight that I can see. Like to know what school you came from. Washington is my guess. But this is just my under educated butt speaking here.
I have been on pain meds for several years for Osteoarthritis and it has taken me from a walker to at least to where I can function without the pain and aid of a walker. I think what the government is doing by telling the doctor how and who to treat is wrong!!! I worked in the medical field for over 20 plus years and we knew who the pill seeker were plus the insurance companies would alert us as well. After seeing my pain doctor yesterday for him to tell me I'm not a candidate for chronic pain management was a total shock and has thrown me into a deep depression because I can see what is coming, back to the walker and maybe a scooter just to be able to go to the doctor who can't treat me anymore. I say the government needs to get out of the medical field and let the doctors that have the schooling and the background treat their patients. The doctor's are not stupid but the government is because they didn't spend most of their lives in medical school. SO GOVERNMENT GET OUT OF THE MEDICAL FIELD!!!
Anyone remember , shock treatments, lobotomy, ice water baths , eugenics? I do . This is where doctors come from . History is repeating itself . Why don't you break my fingers for writing this letter that you are too busy to read , we'll your at it rip out my teeth . If you know a crime is happening and you do nothing your as bad as the criminal . This is abuse . A hate crime . This is inhumane. Fix this . I'm not asking I'm telling you fix this . This is as bad if not worse than Pennhust.
End political agendas let debilitating pain be treated...
12-22-2015
I heard the same thing at my appt. on Monday. My doc says his hands are tied. I have RSD from an accident and have been disabled since 2004. I was on way too much and decided 6 years ago to go down on dosage myself. My pain level is at a 6 most of the time- just enough where I can still get some things done but not feeling groggy. I know what it's like to go without, I end up just sitting all day, I can't stand the pain in my legs. I am baffled. Why would they take the only bit of life I have away? Who ordered this? I am very responsible with my medications. I am sorry other abuse it, but ??? It will cause me very much unnecessary pain? Because someone has an idea? I'm sorry, but if taking away a pain medication for the reason of others abusing it is ethical than I read the wrong hippocratic oath. With no alternative beside the pain meds, I just don't see how a Doctor could sleep at night? It makes no sense to me. None.
Why are you trying to kill us? Why are you hurting us? I thought the entire point behind being a doctor was to help, not harm people?
As my government you are taking away my doctors ability to HELP me.
I have chronic pain. I will always have it. Without my pain medicine I cannot get out of bed. I crawl instead of walk. I can't shower. I can't do ANYTHING that YOU take for granted.
You're punishing legitimate pain suffering patients. Why?
We are here. We will ALWAYS be here. We aren't going away. Instead of allowing us to get the medical help we need, you are going to force us to seek out other avenues.
Do you not understand that we are beyond the help of Tylenol, Ibuprofen, physical therapy and acupuncture? Do you think we haven't gone down thise roads? Do you believe, for ONE moment we enjoy the stigmas, the flat out hatefulness we endure as chronic pain patients? Do you understand that because of YOUR treatment of us, we are treated like absolute hell? Like we are terrible people because our bodies have betrayed us?
I would.not wish what I endure 24/7 on anyone. But I sincerely wish all of you there could, for 1 single day, feel it so y ou could understand. It is humiliating to have.to ask your child for help to shower. I'm 41 years old and must do this, ask my 18 year old for intimate help.
You are adding.to that humiliations. As you force me to take less and less needed pain medication you are causing more and deeper depression. Will YOU be attending all the suicide funerals YOU have caused in your "wisdom"? Will you testify in court that YOU took the meds away from a chronic pain patient so they sought relief elsewhere?
I doubt it.
Shame in you.
Well we suffer you have nothing better to do and go to Hawaii , and play with Jerry sienfield . You call yourself a president ? This is how you want to be remembered . We in chronic pain have no joy , no fun , no sleep nothing but pain . You are not a leader , you are an embarrassment to The United States Of America . You are in office act like it . Fix this abuse now .
I was "diagnosed" with rheumatoid arthritis about 10 years ago. However, two years ago, I was admitted into the hospital because of FUO ( fever of unknown origin...104) and was given a new diagnosis. AOSD. Adult Onset Stills Disease. I went , as far as pain management, from the occasional ramadoss to a Fentanyl Patch!!!!!!!!! This disease is a nightmare. Anyone who suffers from this disease knows that when the dragon rears its ugly head, we have to be ready for battle. The pain associated with this disease is out of this world. I CANNOT describe the pain to make a person understand. It is something that a person has to experience for themselves. God forbid....I wish this on NO ONE!!!! And to think....the lovely DEA and CDC who are "all powerful" now with their control. So....I think it goes without saying....when a person is truly in pain, these mess that some of us have to , unfortunately, take....JUST TO GET OUT OF BED....do not do for us what they do for the abusers. We should NOT be treated like addicts!!!! Do you think that we want this for our life? That we LOVE walking into the pharmacy only to be greeted by the occasional staff personnel (with an uneducated mentality of a "holier than thou shame on you , you LOSER, addict, druggie" ) and being looked down upon? I have had this happen many many times. I have left a Walgreens pharmacy in El Paso, Texas CRYING MY EYES OUT!!! Literally, crying my eyes out!!!! Do you think it makes me PROUD to have to fill a Fentanyl patch prescription? And for people to try and shame us even more and treat every single person as though they are an addict??? SHAME ON YOU!!!!! SHAME ON YOU SHAME SHAME!!!!!!!!
I have long term pain as a result of having cancer and have already felt this kind of treatment. If you are not going to treat the pain then you need to open up the option of right to die for people with chronic pain. Thinking of having to live with this chronic pain with no other options is not tenable.
The reason why PAIN MEDICATION IS CALLED PAIN MEDICATION is for a reason. How can anyone know what another person is going through? Who are YOU to judge me or anyone else? Is it fun having ME and ALL OTHER PAIN SUFFERS wanting to jump out the window or have no quality of life because YOU LIKE PLAYING GOD??
Just because you are supposed to be leaders don't mean I will follow . It's because you cannot do your jobs right in the first place that is making you hurt legitimate chronic pain suffers like me pay your tab . You are week minded people who do not know right from wrong . Some day this story will hit the news then when the rest of America finds out number two will hit the fan and you will pay the price . Take heed , fix this misuse of political power the longer it takes the worse it's going to be for you .
Why don't you just reopen Pennhurst ? You think you would learn from the past you Nazi wannabes . Just fire up the gas chambers . You are the most inhumane example of elected officials of all time . I'm going to find a witch doctor and have them curse you and all your family line for eternity .
For 8 years, on a steady pain medication regimen, I was able to continue my job as an educator to Middle School students with mental health issues. For 8 years I was able to tend to my daughters needs. I was still in pain but I was able to push myself to give my daughter and my students the all I had. I paid my taxes, I was a contributing member of society. Now I am a statistic, a problem. I am treated like a junkie and every aspect of my health care appointments are focused on reducing my medication. Last week I had to leave my job on a medical leave of absence so I would not be fired for excessive sick days. I have to choose between work and getting my daughter to school. I can no longer do both because I cannot get out of bed some days. At one time my medications helped me manage this. I had some quality of life yet the politicians see my reductions in medication as a triumph. I am not feeling very triumphant as I head to the disability lawyer to discuss the options I have left. I feel victimized and alone. I only wanted to be well enough to be proud of the life I was living. I only did did what my doctors said I should when they cared about my chronic pain. I cannot help but think that a few months in my shoes would change the minds of the powers that be, whoever they are.
This tendency by the medical profession is sacrosanct according to feedback from pain sufferers. It happened to me with one narcissistic doctor who could not make a non-opioid approach work. Since this early beginning I have been subjected to a more enlightened approach with caring and concerned professionals (read educated not opinionated). When I objected to the first Doctor he called me a "rouge." I am.
PAIN LIKE A CANCER CONSUMES EVERY BIT OF LIFE OUT OF YOU . THERE IS NO JOY NO HAPPINESS NO SLEEP ONLY PAIN . YOU STUPID MONKEYS MAKING LAWS AND JUDGING PEOPLE HAVE NEVER BEEN IN PAIN . YOU ARE AS BAD AS CHRONIC PAIN , YOU DON'T KNOW WHEN TO QUIT . AN EYE FOR AN EYE .
All too often, because I don't look disabled from my pain, I am cast off as a PITA (Pain In The Ass) Patient. Doctors in Southern Oregon discriminate regularly against unseen disabilities, refusing to sign Long Term Disability Attending Physician Statements, and even firing the patient if the patient questions their Provider. Mine's been in place 19 years and it appears female doctors, P.A.s, R.N.s, etc. are the worst culprits of Discrimination against Disabled persons, especially if that disabled person is another woman and shows no visible signs of Disability. Even though I gave proof through all the documentation I could possibly have released from prior doctors to these new ones, they turn a blind eye on the Disabled at 61. Who is going to hire anyone who has not worked in 19 years at the age of 61? It's ludicrous!
In war we don't intentionally blow the whole camp up and kill innocent people that may be alongside the "bad guys", just to get them. That's the easy but inhumane way of doing it.
What is going on here now is to kill or suffer all just to get rid of the abusers. But I see little hope in sight when dealing with the insane laws that only an unbalanced mind could have created. But to see evil as this and do nothing would make me the same as they that do it. On a doctors visit when you are sometimes asked if you could harm others I hope you remember the horrors you have created, knowing it will hurt the young and old. The sick and disabled. It affects all.
This effort by the DEA is beyond irresponsible! People that have documented cases are being turned away or treated like drug addicts! Suicide rates are going to soar in the near future when people have no options! Shame on all of you!
We have to come together on this issue, we need reform not rejection. I can no longer take the humiliation and discrimination, it breaks my heart every day to wake up in pain. But, I do wake up and I will get up and they can't knock me down anymore. I will fight them until the day I die, and that's what they are waiting for. People unite lets fight together, fists held tight as one. Lisa Keys
Will be in chronic pain until I die and that could be within 2 yrs!
I live in pain everyday. I take the least amount of pain med to get through the work day. they have already taken most of my pain meds already. if they take the rest i will have to go on disability cuase i won't beable to work!
All I can say is living in pain is hell and can't find help. Sure I can do heroin like a junkie would but I'm not a junkie I have a reason for going to a doctor and saying I need something for the pain I can't walk sit lay down stand without wanting to scream and just cry.(disk disease. Djd through all my joints. Sciaticia scoliosis carpal tunnel and a really good case of mrsa to boot from these gods called doctors. All I want is to live a little bit of quality life to be able to sleep more than two hours sitting up to have sex. To be human.
Was shot 6 times and beat I have 11 ruptured disc, titanium right metacsrpal, shot in the heart, 12 yrs ago, 4 to torso, 2 to my hand by a woman who I never met. Was living in Texas, I'm from Louisiana. I have PTSD, and Dr. Cut me off and have me tramadol. It does not work! Migraines almost everyday! Weather changes I know 4 days before, without the weather channel. I hurt every single day and taking away my 7.5 hydrocodone 3 times a day is not like I'm Dr. Shopping!!! Can't even get into pain management on medicaid, nor can I afford to pay. No help from the epidural shots, I hope you feel what I do every day 24/7 365......
I'm 65yo, female and have had 17 major surgeries & numerous minor ones since my 20s. Have spinal stenosis, and major bone/joint problems. I have metal knees, right hip, right ankle, both wrists, and titanium wire holding my lumbar spine together (3 surgeries there)! I have suffered from full body pain all my life, which they now call Fibromyalgia. Otherwise, I'm physically healthy (no heart or other such probs). Fortunately, my current Doctor of several years is the understanding sort. We have gone through various pain meds that work for awhile, then not so much, even at increased doses. So we start over. I'm now back on oxycodone, which is working to a point, but at a lower dose than either of us would like. Why? Because the Clinic where he's employed WON'T ALLOW HIM to give me more than a set amount of opiods per month! So if I take what I need, I'll run out too soon and have to do without for the rest of the month! Sometimes, it's not the Doctor's fault. It's the SYSTEM. They think we're all addicts or dealers or whatever. Anything but Human Beings in need of surcease.
I was absolutely furious when I picked up my medical records from dr. Nancy Erickson of Pembroke Pines, Florida. I have had RSD for five and a half years and the diagnosis was solid: Cleveland Clinic Florida as well as University of Miami both diagnosed me with RSD. More specifically, I have CRPS type 2. Type 2 simply means that your nerve damage was picked up by the nerve conduction study and the EMG.

Imagine picking up your medical report or your medical records from a doctor whose primary diagnosis of your condition is opiate abuse disorder? I was livid. How would that affect my ability to find a pain management doctor willing to take me on as a patient for my real medical condition? Since I only saw her 3 times I simply did not mention that she was ever my doctor and found a different doctor to refill my implanted pain pump. This type of diagnosis for a legitimate chronic pain patient can be devastating. What if she were my doctor for 2 years? There would be no way for me to omit those medical records and I probably would not have a doctor treating me for RSD today. I will not mention his name since he is my current doctor but I'm not exactly thrilled with the treatment I received over the last year under his care. I can't even imagine how many physicians have done this to their patients. But I can imagine the implications of it and how soul - crushing such a diagnosis can be. Who will be there to stand by the patient and say to the doctor no Dr you've got the wrong? Who indeed.
I am not a drug addict, but my dr refuses to prescribe anything stronger that 7.5 norco. I have a screw pushing into my nerve bundle by an arrogant surgeon whose head was to big for a room. Thankfully I am a medical marijuana state and I can control the rest of my pain that way, which is not by my preferance.
There is such a huge difference between dependency and addiction I have heart problems does that mean I'm an addict for my heart medication ?
I've been saying it for a long time now, The CDC has FALSIFIED THEIR OVERDOSE DEATHRATES TO FIT THEIR AGENDA!!! Please reference the article on painnewsnetwork.org page under the article regarding fentanyl. What a nightmare the CDC has caused for all legitimate chronic intractable pain sufferers across this country!! They admit that the statistics are wrong! That they took it upon themselves to lump all deaths as one, if opiods are found in someone's body, regardless of where it came from, legally or illegally, it was listed as an prescription overdose death. They have lumped all heroin deaths and morphine related deaths as well. What about the number od suicides from legit patients who took their lives due to inadequate pain relief? Another prescription overdose death when the death certificate should say it was death due to inadequate pain relief!! How many of them deaths were when alcohol or other illicit street drugs were mixed!? They don't dare break that down do they!? NO,,.. They FALSIFIED STATISTICS TO FIT THE GOVERNMENTS AGENDA TO CREATE MASS HYSTERIA. THE MEDIA, DEA, FDA , CDC AND THE GOVERNMENT HAS CREATED MAJOR CAUSE FOR CONCERN WHEN THERE ARE INNOCENT LEGITIMATE CHRONIC INTRACTABLE PAIN SUFFERERS WHO CAN NO LONGER HAVE THE LIFE SAVING MEDS THYAND NEED TO MANAGE THEIR PAIN!!!! THE CDC NEEDS TO ANSWER TO THIS HELL THEY THRU MOST OF THE LEGIT PATIENTS IN TO!! A class action lawsuit should be started asap for the negligence by the CDC , for INTENTIONALLY FORCING PEOPLE TO SUFFER IN PAIN! NOONE SHOULD BE MADE TO SUFFER WHEN THERE ARE MEDS THAT EASE THE PAIN. SHAME IN ALL OF YOU! I SURE HOPE KARMA BITES YOU ALL IN THE*****AND YOU WILL KNOW WHAT ITS LIKE TO SUFFER IN PAIN, PAIN SO BAD YOU BEG GOD TO TAKE YOU LIKE I DO EVERYDAY. HOW ABOUT THE GOVERNMENT RETRACT THEIR RIDICULOUS STATEMENTS ABOUT OPIODS BEING THE NUMBER ONE CAUSES OF DEATHS, HOW STUPID DO YOU THINK WE THE PEOPLE ARE!?!? ALCOHOL AND TOBACCO FAR EXCEED THE OVERDOSE DEATH RATES AND YET YOU DO NOTHING BUT PROMOTE MORE AND MORE OF IT. YOU OWE THE CHRONIC INTRACTABLE PAIN SUFFERERS AN APOLOGY, YOU OWE US MONEY FOR THE INTENTIONAL PAIN AND SUFFERING YOU ARE CAUSING TO LEGIT SUFFERERS AND THEIR FAMILIES, YOU ALL NEED TO COME OUT WITH A STATEMENT TELLING THE PUBLIC HOW WRONG YOU ALL ARE AND HOW YOU ALL FALSIFIED THE DEATHRATE TO FIT YOUR AGENDA! SHAME THE **** ON ALL OF YOU!
I've had chronic pain all my life from endometriosis until I had a complete hysterectomy in 1997. 8 months later, and after I was in a minor car accident, I developed fibromyalgia, so, a life time of chronic pain. The fibromyalgia beats it all tho, childbirth, excruciating pain from endometriosis, a ruptured disc in my lower back which was able to recover from with intensive therapy and NO surgery. I never took any prescription pain medication until a few years into firobmyalgia, even with all those conditions and 3 surgeries for endometiosis. Opioid therapy helped me at a low dose for 12 years, I never developed a tolerance, never suffered from any other side effects from it either. I abandoned it on my own in October 2014 with the new opioid regulations, I could not put myself through the trauma of the possibility of it being not prescrived suddenly. I've found an herb that is helping but not near enough and does not give me enough pain relief to be active (gardening, walking, do something after my 8-10 hour work day) so, more weight gain! Those of us with no insurance and who cannot afford the Unaffordable Care Act ($460 a month and a 5/6 thousand dollar deductible) cannot afford all these therapies, injections or pain management specialist even IF we wanted that (which I don't). Opioid therapy was a safe (without all the scary side effects of the newer and also unaffordable with no insurance drugs), inexpensive way for me to manage the debilitating, daily pain of fibromyalgia.

What is happening currently in this country to the human beings living with daily chronic pain is cruel and inhumane, we treat animals better.

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