First Do No Harm: The DEA targets Physicians who treat their patients pain.

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Some recent comments: these messages are published with permission of the signer.

I was a longshoreman, hit by an 20,000# truck,without protection. I flew about 30 ft. skidding on concrete. in '04. work-comp put me thru rigorous testing,& re-hab. I had 2 leave fl. move home 2 pa. with family 2 help care 4 me. since I move in jan 2010 I have seen 5 pain mgt drs. i'm 56 & never held my grandchildren. I made a mistake in Jan. .05 nan. of pot. first in 29 yrs. @ x-mas. my dr. can't take me back.I have tbi, ptsd, spinal, vertigo, whiplash, can't walk more than 50 ft. can't shop. saw 3 pain dr's since.Jan. non could treat me. An anesteologist can practice pain mgt. I ALSO FEEL I would better in God's hands...
I'm a 75-year-old veteran and retiree with post herpetic neuralgia I describe as a blowtorch trained on my left testicle. Can even one "expert" explain how the nation's addict problem will be solved by making it impossible for me to obtain the strong pain relievers that keep my chronic pain at reasonable levels?
My pain is not excruciating, but it is constant. When you are in constant pain, even at low levels, it becomes impossible to function and live life normally. It gets to the point that you cannot think, talk or even eat. I finally found a GOOD physician who combines several types of therapy, injections and low doses of pain medications and I can actually function and WORK again. I follow the rules, I don't abuse my meds & I do not rely on them alone for relief, but I am treated and am made to feel like a criminal, thief and addict when I walk into a pharmacy. There is clearly a problem that needs to be addressed, but it's more difficult for legitimate patients who obey the laws to get medications than it is for abusers who are still getting them on the streets. You have solved NOTHING.
I live with bilateral sciatic pain every moment of my life. If I forget myself and sit too much-as in longer than 15 to 30 minutes total per day-I end up in bed for weeks. Bending forward is not something I do. I have a set of doctors that do not want to confirm the existence of ruptured discs in my lower back, let alone suggest a real possibly curative treatment(surgery). I truly cannot tolerate many medications-among which are NSAIDs, steroids and-ironically most opiate based pain killers, yet-I have been treated as some sort of drug craving loser. I run my own business, and it isn't easy-especially since I have lost so much mobility. The current fad in medicine that is punishing those that suffer is the most deplorable thing I have ever seen. Even though I can't take narcotics-I certainly would like to see suffering people that can tolerate them get them. How about a crack down on people that are addicted to power for a nice refreshing change in our stale media misdirected society?
ive personally talked to the dea medicare my percription med company and they all say the same thing doctors are the ones who write the scripps and their the ones in charge of our pain medications...... its the ole three card monte trick folks, my pain doctor 3mo. ago cut my pain meds in half an yet this month he did it again and further more reduced my meds in strength in half as well. i was involved in a car accident in 1989 i broke the first 5 verts. in my neck and dislocated my hip, im in severe agony and due to my weight i would have to have several hip replacement in my life costing medicare 100,000s of thousands of dollars.. president obama had said on many occasions that if grandma at 90 yrs. old needs a hip feplacement i would be better off to keep her meds, well what happed to that theory, i thought my doctor was doing this to me becouse we just do get along, but after reading online this is happening to thousands of us. whats going on. please someone explain this to me' whos doing this to us and why?
ive personally talked to the dea medicare my percription med company and they all say the same thing doctors are the ones who write the scripps and their the ones in charge of our pain medications...... its the ole three card monte trick folks, my pain doctor 3mo. ago cut my pain meds in half an yet this month he did it again and further more reduced my meds in strength in half as well. i was involved in a car accident in 1989 i broke the first 5 verts. in my neck and dislocated my hip, im in severe agony and due to my weight i would have to have several hip replacement in my life costing medicare 100,000s of thousands of dollars.. president obama had said on many occasions that if grandma at 90 yrs. old needs a hip feplacement i would be better off to keep her meds, well what happed to that theory, i thought my doctor was doing this to me becouse we just do get along, but after reading online this is happening to thousands of us. whats going on. please someone explain this to me' whos doing this to us and why?
I have been told by a doctor "unfortunately you fall into the category of someone who needs pain medicine, but you're not going to get it". WHAT?!
I wish all the politicians that started this had the pain I have in their testicles.We would find out really quick that chronic pain is real and that it should be treated!
Stop acting like a Banana Republic Dictator and allow our honest pain to continue to be treated. I was a medical rep.for 28 years selling to hospitals the powerful I.V.pain meds used only in hospitals. We introduced the PCA and epidural pain pumps in the 1970's. Patients didn't abuse them,conversely, when in charge, used only half the typical doses,because they WERE in charge with-in prescribed dosing limits.
My wife and I are retired now and in our late 60's-both suffering from different painful conditions. Your time might be coming also, stop this madness, and let our doctors treat us as you would want to be treated.
I suspected all along they had a class on how not to treat patients. It is a rare find to have a doctor even ask what is wrong, and now they are not going to mask the symptoms anymore with pain relief medications. Haven't we eliminated any reason to have them. IS this the fix for the health crisis in this country?
Our government is terrible to allow this to happen. It is hard enough to live on half the pain medication I need, but if you take it all away you will be the cause of my death.
i was born in the 60s and im dying my pain is to much to handel and my doctor to afraid to help me hes cut me off all my pain medications and i am suffering, this is not the same world i grew up in what the happenend to our country democrat repblican makes no difference we have lost, period ! we live in a kartrashian world, a world where rappers biggie smalls annd tupoc both murdered ywt we know the killer, why arent they on death row like the label who had them killed, or at least in jail, how does tot mom get away with murdering her baby, ang what about zimmerman taking the life of travon martin, and he walks, wheres the justice, there is none, just like us the people living in agony and dying, and for us on social security who have no food to eat by the middle of the month what can we expect, nothing from strippers to tattoed freaks, from parents being there childs friend instead of being a parent, and in a country where every child seems to have add and excuse one after another failure after failure and do let me get started on bulling, havent we all been bullyed and yet been the bully. look all of us that are suffering have to be strong, lets ask our goverment to do the same help us with these awful doctors and help relieve some of our pain, as the worlds best country we have alot to catch up on lets start to regain what we once had common good..........
I don't understand why the DEA is forcing doctors to not treat chronic pain. As a result I am now on Soc Sec Disability, I had to retire before I could get full benefits, I had to go on Medicare, I can't go to school anymore. I've lost all my social contacts, I can't drive, my marriage is deteriorating and most importantly I'm no longer a productive member of society. I didn't ever get "high" on my pain meds they simply reduced my pain level from 9 to about 5. My pain is 24/7. When I try to sleep it wakes me up. It also keeps me from getting to sleep. Consequently the insomnia aggravates my sleep apnea, which worsens my heart problems and diabetes. All of this has lead to a deepening of depression that will lead to only one alternative. Please help.
Suffering from pain is Not living! The American Dream now consists of lots of diseases with no dedicated medications, pain and then death. Why? Doctors are barely treating us for the documented illnesses we do have. Why? You have to beg for tests when you clearly have nodules etc. Why? They want to wait for 6 more months and see if you have a little cancer? Why? Unfair treatment for chronically ill patients. And I'm one of them, playing guessing games with my health with these so called Drs. Why? What has happened to our healthcare? I asked for an Advil when I went to the ER because I was in so much pain and the reaction was like I had asked for a narcotic. Why? I'm in a lot of pain on a daily basis, for 28 years. I have Sarcoidosis and a lot of other health issues. I have not been on pain medication but I'm noticing as you get older and are sick you really could use it. I'm afraid to ask and I do not need an addiction but its not good to take Advil everyday either and its not really working anymore. Studies also show pain has an affect on your heart. The DEA should be focusing on known pill Drs., drug dealers and all the drugs coming from Mexico. A lot of pain is probably coming from the food we eat and chemicals in the environment. How could we come in contact with over 3000 chemicals a day and be healthy with no pain? To eliminate a lot of diseases the FDA should be attacking all the chemicals in our food and environment and then the DEA would have more time to target drug dealers and drug cartels. I'm hoping Congress will hold hearings with those of us who are chronically ill, our families and friends so they will be informed on the affects of pain in our lives. One size does not fit all. We are not T- shirts.
It's not fair watching someone you love suffer because their doctors are too afraid to do anything...
I just want my pain treated. That's
all.
I just want my pain treated. That's
all.
Most of us Chronic pain patients have a diagnosis of some sort. We are only seeking pain relief and their is very little drug Abuse in these cases. Our bodies have to handle a constant prescribed intake of Meds and cannot handle large doses at once. Please just allow us the dignity and respect we deserve to have the treatments we need.
I was given Adhesive Arachnoiditis and RSD causalgia by a first time student doing my myelogram for her first time. I am now sentenced to a lifetime of the most severe chronic pain that one can endure. A "doctor" did this to me and now I have trouble with getting proper pain treatment.
I did not ask to be given chronic pain by health care providers and as result do not deserve under treatment. I quit all treatment six months ago to prove dependence a made up state of mind. Pain medication does a specific job where pain exists and only those who suffer severe pain understand this concept. Experience of pain is knowledge no doctor can learn in books and no legislator has the right to remove the life sustaining right of quality of life if they have never experienced chronic pain themselves.
I have an incurable disease of the spinal cord meaning intractable pain for the rest of my life. Without the aid of my pain medication my quality of life would not be sufficient to live.
Fibromyalgia, Sarcoidosis, neck and lower back spinal stenosis, osteoarthritis, etc
I have finally found a compassionate, certified pain care physician and a helpful pharmacist who wants to work with my doctor. But I know many who are unable to do so and are being turned away by doctors and pharmacists. The war on pill mills has been won, and now the DEA is waging war on patients. It is time to stop this uninformed nonsense and let doctors and pharmacists treat their patients.
I am a victim of all of these examples in the petition. Tell me: Do you know what it's like to be in such severe pain from a hardened disc fragment sticking through your spinal canal that your have to literally bite your lips so hard in order not to scream when you simply move.....yet be told by a doctor's office that,' yes we could help you, but we're just not going to' ?????
Do you know what it's like to BECOME disabled because, somewhere EARLY ON in the development of your ruptured disc, somebody along the way felt compelled by the DEA's stranglehold to label you as a red flag that follows you around so indiscriminately that it literally affects the healthcare you receive....for TEN YEARS??
That lack of basic healthcare, such as listening to me with no preconceived negative image, is what caused my "Failure To Diagnose" situation for so many years that I literally developed Cauda Equina Syndrome from an undiagnosed and UNTREATED ruptured disc! The kind of scenario that, according to medical literature here in the western world, really does not happen anymore as we have the ability and means to prevent it....kind of like Polio.
In case you have not seen the direction of my statement, allow me to spell it out for you:
The DEA's, and therefore the Government's, activities and agenda actually CAUSED me to become disabled with a condition that, according to medical literature, should never have happened. Allow me to repeat it as it bears repeating; Cauda Equina Syndrome due to Failure to Diagnose an easily treatable ruptured disc that developed into a hardened disc fragment that stuck in the spinal canal and destroyed nerve roots. And the sad thing is, the inability for me to receive a simple diagnosis and treatment plan did not happen with just one healthcare provider. This happened with multiple providers. Simply because a label in a medical file, which is inspired by the fear of prescribing pain medications, can follow a person/patient around for a significant amount of time.
Do you know what it's like to beg for help from the healthcare providers, who are supposed to help you, when you are lying in bed unable to move, control your legs and have your digestive system & bowels "shut down" from loss of control, but yet be intentionally NOT adequately treated by those healthcare providers??? Imagine calling the police because you have a dangerous intruder in your house with a gun, and yet have the police tell you in so many words that, yes, they can help you, but they are not going to.
Do you know what all of this is like??
Well I do.
I was the VICTIM of Work Comp who could stop your medicine cold turkey while they "reviewed" you case!! That practice literally almost killed me, and it was not the withdrawal part. I had a full system crash, electrolyte depleted, high bp's and almost stroked!

These Drs cannot just decide one day NOT to treat you any longer! I have seen it over and over and it is a very dangerous practice!! STOP THIS!!!
Law makers shouldn't hammer down on physicians that prescribe pain management drugs to their patients. Law makers are scrutinizing legitimate in pain patients and their physicians. Large BIG name pharmacies like CVS, WALGREENS, ETC.. scrutinize belittle the chronic in pain patients and make it harder for the patient to fill their scripts. Making the patient go to the "Mom & Pop" pharmacies to get their scripts filled and these places charge enormous amounts of money to get the medication needed. These pharmacies should be monitored they are popping up everywhere. Majority don't take the patients insurance making the patient pay out of pocket.
Law makers shouldn't hammer down on physicians that prescribe pain management drugs to their patients. Law makers are scrutinizing legitimate in pain patients and their physicians. Large BIG name pharmacies like CVS, WALGREENS, ETC.. scrutinize belittle the chronic in pain patients and make it harder for the patient to fill their scripts. Making the patient go to the "Mom & Pop" pharmacies to get their scripts filled and these places charge enormous amounts of money to get the medication needed. These pharmacies should be monitored they are popping up everywhere. Majority don't take the patients insurance making the patient pay out of pocket.
Do I want to have to take opiods? No, but they are a way for me to be able to continue being a contributing member of society. I can work... without my pain meds, I would be on disability. What sense would that make? Anyone who cannot understand this has never experienced the pain I have... the kind of pain that brings tears to my eyes while just breathing too deeply. I'm glad you don't understand this kind of pain, I just wish those that make the decisions felt it for just a few minutes... or had the ability to have empathy for those of us that do. I should not be punished because some people abuse the drugs I take to be able to function.
I have Arachnoiditis due to getting ESIs Steroid Epidera Injections that are NOT approved to be injected into the spine. Because of these injections my life will NEVER be the same again, like so many other people diagnosed with Arach. This ALL could have been avoided, but NO let's inject people with non FDA approved drugs, but then take away the meds that help them. Do I want to take opiods? NO!!! If I could have my old life back, I would gladly flush the pain meds I have in a minute and never look back, but I can't do that, as these meds are the ONLY thing that helps me get out of bed to do the "mundane" things in life people take for granted, such as laundry, walking dogs, WALKING etc. People that want to take these meds away or label us druggies, have NEVER either 1-experienced the kind of pain chronic pain that makes you want to die! Or 2-never had a loved one who has severe chronic pain. Are there people out there purely looking for a high, YES, but if you have records stating your illness in depth, don't punish us. This just irks the crap out of me!!
It is sad that our DEA has decided to treat the chronically ill with severe pain under the treatment of legitimate Pain Specialists with so much disdain as to withhold their pain meds. The govt cannot control illegals, our borders, terrorists, drug addicts, drug dealers, but they can control me because I am legit. Does that make sense to any American?
I have red bone marrow transformation and plasticity in my spines bone marrow , possible cancer many herniated discs , multi bulging , so pain full down the left side , right, left hip ,neck ,head aches sciatica, many dehydrated disc s, osteoarthritis creates severe stenosis in my lower back , neck and center back the pain is constant it never stops and becomes unbearable , I was denied my pain medication for, 2 months the pharmacists at many locations did not want to fill my legal pain medicine prescriptions , they said I did not meet protocol I sat on the couch on fathers day at 4 am with a pain level around 9 in a pain scale 1- 10 unable to sleep and no pain relief hoping my daughter would not wake up and see me crying and knowing I would not be able to do a daddy ,daughter thing for the day , with my pain medicine I would be semi functional I would be able to ride in the car and maybe we could of went window shopping because that is what a dad and daughter do sometimes , and also I can work a little and be able to pay my bills , In that 2 month time I walked into the ssi building and thought about signing for my disability for with out the proper pain medicine I will no longer be able to work and be self sufficient I will be come a burden on our government and the people that care about me and I do not wish that , and also many pharmacist have also treated me badly like a criminal when I am hurt , I was taught when I was young that ,that is what health care professionals ,police ,and government do is help people when they are hurt , or do they treat a person as a guilty criminal before they know the facts ,I do think that .if you are in pain management you should be able prove you are hurt , with today mris and such technology it is a small thing to ask a chronic pain sufferer with degenerative disc disease or another condition and that way the doctor and patient can keep up on the patients condition , I also think if a doctor writes a prescription it is to be honored at any pharmacy and they do not have the right to change milligrams or quantity if the pharmacy does not have the medicine they order it and must be dispensed , to the pain patient in 48 hours not the bs they are pulling now ,the suffering that is being caused by a lot of the parties involved in the dispensing process of the pain medicine needed to a chronic pain patient is appalling and I would not let a animal suffer this way my list is simple 1 need to have the doctors running a pain management treatment center must be a board certified pain management doctor all of them , certified and X amount of time to complete training , if not enough doctors well they go get training or get out , 2 all patients must have proper mri with in 30 day s and prove they are hurt 3 all pharmacy s must be able to dispense pain medicine ,no stereo typing ,no this is what you get or nothing or we do not want to carry this medicine o
I have Adhesive Arachnoiditis, 1st diagnosed in 2009. I spent years looking for a Dr to treat me without invasive procedures that WILL make my condition worse. The Dr I have is still pushing me towards invasive procedures, every visit. The medicine he does give me now causes an allergic reaction however the reaction is better than the pain. My primary care Dr is concerned about the reaction, but not enough to treat me with other medicines. If I could afford to leave the country, I would. I served in the military, love the USA, but hate the torture of daily, constant, incurable pain. All I hear and read on the news about pain medicine is that no one should take it long term. Guess what? I DON'T want to take it, but there is nothing else that relieves the pain. The current atmosphere in the medical community is so hostile towards people like me, that I spent years in CONSTANT pain. during those years there were several months that I stayed in bed suffering. I had given up and decided that all I could do is wait for death. There needs to be a wholesale change in the way people with chronic pain are treated. It needs to be made clear that if medicine is the only safe way to give us a semblance of quality of life, then we should be given medicine. Also, Epidural Steroid Injections need to be outlawed. there are at least 10 "pain clinic doctors" in my town that do nothing more than spinal injections that are not approved by the FDA or the drug manufacturer (of the steroids).... and only one that will consider treating with established pain medication that everyone knows works. If a doctor ended up with intractable pain do you think he would be able to get medication? Of course. They know how dangerous those injections are. As far as the DEA and state police putting pressure on doctors and threatening them into not treating people like me.... I hope you all end up with the same disease and get to feel what I feel for the rest of your life. Not just until you have learned how wrong you were, FOREVER!
I am 61 years old and have never been arrested or commited a crime yet I am treated like a criminal and drug addict all because I seek pain relief for the incurable spinal cord disease I have lived with for over 15 years. The DEA has made it so hard to find a doctor in the state I have lived in my whole life that I am forced to travel halfway across the United States to get treatment. every 90 days. Suicide is my only option and my wife and I agree that when it is no longer possible for me to get pain relief I will travel to Oregon and request euthanasia from a doctor there.
As a chronic pain sufferer (neck and lower back, knees-from work and mva) it is upsetting to be labeled a drug addict. I do not want to take these meds! No neurosurgeon I have gone to has given me another option. It annoys me that in 2014 there aren't man options for treating pain, or some injuries. We knew a long time ago this was going to be a big population, and many, many sick people. So why wasn't the medical community prepared? (aging population from baby boomers)
I would like to put every member at the DEA, and the people putting this into the law of any form, into my body at this exact moment. I want you to feel the pain and every joint of my body, I want you to endure 25 surgery, I want you to learn to walk and talk again after a stroke, I want you to sit there every night and pray to God that He gives you some type of relief from pain because the DEA and they're wonderful little medical cronies that they call politics shouldn't be involved in medicine! For human being not cattle we don't need VIN numbers like vehicle. If this passes its going to kill people! If this doesn't open people's mouths, emails, and eyes then I don't know if you have a heart, just saying.....may God have mercy on my soul because I would never want anyone to endure what I'm having to endure right now at the hands and the very statement that I am reading and the doctors that are affected by them! Have a great evening!
1st, I was harmed by several Dr.'s that SWORE TO DO NO HARM!! Then I get sent to a Pain Management Dr. that would switch my meds every month throwing my body into the worst turmoil of my life.. I actually had to go into her office w/ full blown Flu, in my pajamas!! I have been harmed by Dr.'s that said that ESI's were safe... Epidural Steroid Injections can cause you to live a lifetime full of the worst pain imaginable.. The steroid Depo-Medrol is not & never has been approved by the FDA for Injections into the Spine!! That is what causes ARACHNOIDITIS!! which is severe inflammation & scar tissue that surrounds the Arachnoid Nerve that runs the full length of the Spine!! It can never be fixed/cured.. All that can be done to help is giving Opioid Pain Meds to the patient!! NOW the DEA wants them stopped? God Help Us if they succeed!!
As a person who suffers from chronic and system sarcoidosis, including neurosarcoidosis, I have changed from a healthy active person who practiced law for 31 years into a person who suffers from varying degrees of pain 24/7. I agree that drug addiction needs to be combatted but not at the expense of people who suffer from debilitating pain. Based on my research, the DEA's new regulations have gone too far. Doctors should not be afraid to prescribe. Pharmacies should not be allowed to refuse to fill legitimately issued prescriptions simply because they do not agree with a doctor's decision. One cannot swing the pendulum all the way to the other side and proclaim it's necessary to do so to keep addicts from getting their hands on pain meds. Addicts will aways find a way. The pendulum needs to find a center position that protects legitimately ill pain patients while punishing the abusers or better yet, providing addicts with better and more comprehensive opportunities for rehabilitation. Had you told me six years ago that I would be diagnosed with an orphan disease that causes chronic debilitating pain leaving me unable to work and requiring me to apply for and receive SSDI I would not have believed it. Without appropriate pain management I'd be virtually bedridden with absolutely no quality of life. A balance needs to be found. Attempts to stem the tide of addiction in ways that cause those legitimately in need of pain medication to suffer is not the answer.
In effect the DEA Registration has become a Letter of Marque and Reprisal and doctors have essentially been conscripted to enforce the letter of marque. I would add that among the skyrocketing deaths from heroin, there are virtually no chronic pain patients,,,,,only addicts. The DEA has failed miserably to stop the scourge of addiction but it has succeeded mightily in imposing a life of exceeding misery among their wrongfully marqued targets.
I am nearly 67 years old and I was diagnosed with Arachnoiditis, a rare disease which involves the clumping of nerve roots from L4 to S1. There is no cure for this progressive, debilitation Neuropathic disease which over time causes scar tissue, herniated disks, CES, damage to major organs, neuropathy, and spreads throughout my whole body and mind, from head to toe, front to back, inside and out. The only so called treatment is Pain Management. And Yes I think of suicide daily because that is the only sure thing that will relieve my pain. How can you people be so very cruel to even suggest withholding anti-inflammatory pain medication and other medications used specifically to treat Nerve Pain?????
Doctors should not be able to treat their patients in a way that makes them sicker than they are. Palliative care for victims of chronic pain must continue to be available for those who need it in the strengths in which they need it.
The DEA has no right in my medical records or in my doctor's offices.
My partner has degenerative disk disease and no doctor in the US is willing to perform surgery on him. He has done all kinds of alternative treatments, but the only thing that keeps him from being bedridden is very high levels of opiate pain medicine. We tried to fulfill a lifelong dream of moving cross country, only to find he could not find any doctor to treat his pain because of their fear of the DEA. We moved from Seattle to Montana to find reasonable care, but the doctors there wanted to take him off his medicine completely and use their magical "mind over matter" philosophy. My possessions are still in Seattle, I had to leave the best job I ever had and am now unemployed and homeless after searching the country for pain relief for my partner and we are back where we didn't want to be, just for a doctor who is willing to treat him. No Americans should have their freedom so greatly infringed upon as we have. Punishing those in pain for the actions of unsupervised kids is foolish and deadly. The "unabusable" pills that the pharmaceutical companies have been pressured into making for the DEA cause pain and ulcers in their patients who have to use them. Stop victimizing those already in pain. Stop putting them through the trauma of being treated like criminals if they want to stop hurting.
i have a pain management doctor in business for over 30 years.He was reffered to me someone very reputable.I am self pay because of accident settlement finished .I have had only 1 prescription filled in the past year and had to change my occupation or stop working completly.This is an outrage and someone needs to be held responsible

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