First Do No Harm: The DEA targets Physicians who treat their patients pain.

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Some recent comments: these messages are published with permission of the signer.

I ask myself how doctors can look at someone obviously crippled with pain and do so little. I was care-giver to my brother who had crippling Psoriatic Arthritis and Ankalosing Spondylitis. And today, my partner has spinal degeneration. I can confirm the stigma around chronic pain management. Patients fear to ask for help, or even bring it up. Doctors hope patients WON'T ask, and get very nervous when you do. My Partner's Primary Care Doctor tells him to talk to specialists. The specialists are so conservative in their treatment of pain that someone reporting chronic pain (from a known painful medical condition) at a level 7 or 8 WITH medication, is treated in a manner that does nothing more to alleviate it. While the pain is not being reduced, the pain medications ARE reduced. As a patient, or care-giver we're afraid to bring it up...afraid of being labeled as trying to get drugs for abuse. Doctors are afraid to prescribe for fear of scrutiny by regulators. So...because about 16k people die from opioid overdoses each year in the US, millions* suffer debilitating, life-crushing chronic pain that is not adequately treated because doctors fear for their careers. It's morally wrong. it needs to change. I am not insensitive to the problem of prescription drug addiction. But it's wrong for so many to suffer so much to protect a few. There should be medical ways to determine the difference, and EVEN IF someone in chronic pain IS dependent on pain medication, the doctors need to help manage their health as they do with ANY ongoing medications. Not take the medication away, or refuse to prescribe it. THIS forces people in REAL pain to "doctor shop".
*Chronic Pain = 100 million Americans (source: Institute of Medicine of The National Academies)
Diabetes = 25.8 million Americans (American Diabetes Association
Coronary Heart Disease = 16.3 million
Stroke = 7.0 million (American Heart Association)
Cancer = 11.9 million (American Cancer Society)
I ask myself how doctors can look at someone obviously crippled with pain and do so little. I was care-giver to my brother who had crippling Psoriatic Arthritis and Ankalosing Spondylitis. And today, my partner has spinal degeneration. I can confirm the stigma around chronic pain management. Patients fear to ask for help, or even bring it up. Doctors hope patients WON'T ask, and get very nervous when you do. My Partner's Primary Care Doctor tells him to talk to specialists. The specialists are so conservative in their treatment of pain that someone reporting chronic pain (from a known painful medical condition) at a level 7 or 8 WITH medication, is treated in a manner that does nothing more to alleviate it. While the pain is not being reduced, the pain medications ARE reduced. As a patient, or care-giver we're afraid to bring it up...afraid of being labeled as trying to get drugs for abuse. Doctors are afraid to prescribe for fear of scrutiny by regulators. So...because about 16k people die from opioid overdoses each year in the US, millions* suffer debilitating, life-crushing chronic pain that is not adequately treated because doctors fear for their careers. It's morally wrong. it needs to change. I am not insensitive to the problem of prescription drug addiction. But it's wrong for so many to suffer so much to protect a few.
*Chronic Pain = 100 million Americans (source: Institute of Medicine of The National Academies)
Diabetes = 25.8 million Americans (American Diabetes Association
Coronary Heart Disease = 16.3 million
Stroke = 7.0 million (American Heart Association)
Cancer = 11.9 million (American Cancer Society)
THIS INSANITY NEEDS TO STOP--POWER TO THE PEOPLE--PEOPLE SHOULD NOT BE LABELED AND HUMILATED FOR SICKNESS--PAIN AND NEEDZ FOR RELIEF.-F --THIS DRUG WAR--BIG SHAM~!!--GET OUT OF THE DOCTORS*****AND DEA -NEEDZ TO GO AFTER THE METH LABS--AND HEROIN --LEAVE OUR PAIN MEDICATIONS ALONE AND--LET OUR DOCTORS TO DO THERE JOB...MY AMERIKA MAKES ME SICKER..NOW MORE THAN EVER---WE ARE GOING BACKWARDS NOT FORWARD.-FOLKS THAT HAVE PAIN SHOULD NOT BE JACKED AROUND..GETTING OLD SUCKS--THE DRUG PROBLEM IS YOU HAVE FORCED LEGITIMATE PAIN SUFFERS TO THE STREETS --FOR THERE PAIN RELIEF....AND THEN WHEN THEY DIE YOUR STATICS DO NOT SAY --SUICIDE -BECAUSE OF LACK OF PAIN CARE-AND MEDICATIONS THAT WORK...ALOT OF THESE NEW DRUGS ARE FAR WORSE THEN WHAT WAS MADE IN THE 5Os-60s -70s.......these medications have been time tested ---STOP THIS INSDIOUS ********--AND GOVERMENT -DEA --LEAVE OUR DOCTORS AND ALL RELATED ALONE~!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! so help us god----
THIS INSANITY NEEDS TO STOP--POWER TO THE PEOPLE--WE MUST FIGHT FOR OUR RIGHTS--THE GOVERMENT AND DEA NEED TO GET OUT OF THE PEOPLES ASS-DOCTOR`S ASSES AND GO WORK ON THE METH LAB BUSTS--OH--THEN THE DEA WOULD HAVE TO DO A R
EAL JOB--WTF--AMERIKA--THE WAR ON DRUGS IS A SHAM AND TOTAL WASTE OF TAX DOLLARS
To whom it may concern: I bet no one who came up with these new laws sitting at the round table in chronic pain. None of your close family and friends couldn't possibly be suffering. I want my quality of life back. I'm tired of unnecessary sufferings at the hands of someone else. If you want to play with a life let it be yours not mine.
I have complex regional pain syndrome. I spend 100 percent of my day in pain. I get treated like a criminal because of this. Doctors, pharmicists question me with no regard to HIPPA. I have been called a drug addict in the middle of a cvs pharmacy waiting room. This insanity has to end.
I am so sick of feeling like I have to beg for one hydroco per day. I have cirrhosis and cannot take any thing but for pain. The DEA is turning Doctors into enemies of patients that have pain
I am a grown woman and I resent being told what I can and cannot do for myself.
As I sit here and write this post, I am in a lot of unnecessary pain and feel very upset with a system that has the responsibility of keeping folks well. Understand that constant pain can break even those with a very high tolerance to pain after awhile. Affecting the spirit, taking away the joy of life and making a person wonder if life is even worth living... A system that claims to protect and keep folks well has changed the kind hearted person that I once was into someone with a nasty attitude and despite the pain, not a single tear in my eye because I had to get use to it... To cry only makes it worse. So, whoever pushed this law through, trust me it will backfire on you because your body can feel just like mine. 5 long years of this... almost every day, they see my left side swelling, see that my blood pressure is high, see that I went from 172 lbs. to 104 pounds and still losing because the pain won't allow me to eat or keep anything down. I am angry and do not want to be in my own presence because I do not like the person that I have become. Struggling to keep that tiny microscopic flame, representing my desire to live, burning. This law is probably responsible for the deaths of many... Because this country has "illegal drug issues" the good must suffer and this is not morally or ethically correct. Yes, I am angry and expressing my thoughts and at this point I have nothing else to lose. Now, the tears are coming for the first time... How many others are going through what I am going through and how many others will face this in the future? Will it be your child or grandchild, parent or best friend? Will you stand in a hospital room and watch a loved one cry in agonizing pain or can you turn your back and walk out? One persons overwhelming physical pain affects each of their loved ones. What about this law, pointing the finger at a doctor who has taken an oath to heal but, must watch a patient deteriorate emotionally, psychologically and spirtually as well as physically. The real drug issue is not being addressed because drugs are still sold on street corners and drug addicts still buy them. I do not see any logic in monitoring those that specialize in monitoring... Something is wrong with this picture...
I have been sick for 19yrs,Bedridded for 8 I finally was able to have some semblance of a life with the aid of certain pain medications.I did not look to get sick!I come from a hard working middle class family.we owned a small business.pd lots of taxes over 32yrs,yet now im being treated like a criminal because my doctor has decided after 15yrs with her ,to stop treating the pain of her patients. Now I cant get certain medicines that were made to treat pain[NOT DRUG ATTICS] Its amazing that people are more worried over drug attics than sick people?Why does man have to pervert and rule everything ?Does anyone believe scarring doctors and denying pain medicine to the sick is going to stop drug addiction? Everyone should look into when the dea started cracking down on medicine and doctors ive read it happened over a budget report around 2000 that the budget didn't fit the arrests, if that's the reason [money and power] well that is then pure evil. and sick.with pot going mainstream I guess another target was needed! Well please move on to something else, innocent good people who suffer so much are now suffering even more. Chronic Pain never goes away, Horrible pain is like being tortured 24 hrs a day. Medicine can help at least make life more bearable. Give sick or chronic pain suffers a chance at some type of life.How can this I still feel a great country, do this to its people. How have we gotten so turned upside down. It seems evil rules and we react to it even to the point of hurting good. How does this make any sense? Some things cant be controlled or won or cost to much. Taking medicine from the sick to try to prevent bad people from doing bad things is NOT the answer.
At 22 I was told I was a prime candidate for neck and lower back surgery due to the degree of disc degeneration within my spine; as well as many other factors. My quality of life was terrible- basically get through the day and try to hide my pain & suffering. I was poked, prodded, given shots, you name it, but I refuse to be cut on until it's my only option left. I regained my quality of life when I was prescribed a combination of medications that have helped subside my pain to the point where I can live my life on an everyday basis without being miserable. I have been working with my pain clinic for a few years now and even though I legitimately need these medications, I have been treated very rudely by many people & scrutinized by pharmacists and the techs. The rude under-the-breath comments about how I'm young, etc. is ridiculous- the people who judge me have absolutely NO idea the extent of my condition, nor what I've gone through. The scrutiny has become even worse due to the DEA "tightening down" on medication that SO MANY legitimately need. A trip to the pharmacy shouldn't be so deeply depressing & a visit to the doctor shouldn't be a monthly waiting game. All of this bc the DEA may just decide to make it even harder once again for patients to be treated in the manner that works/has been effective for them...all while making doctors worry constantly instead of doing what they are there to do- treat their paitents in an effective manner that works for both of them.
I don't know how much longer i live like this. 2 not at faulf
The only doctor I've ever met in the State of NJ that had an ounce of compassion for people who are in chronic pain, with no hope of a surgical or rehabilitation for their pain, has finally become a full victim of this unjust society. Thank you DEA, doctors who are more concerned about their license than their patients, politicos who stopped getting the checks from the pharmaceutical companies, you've finally forced me into withdrawal after 9 years. Now I have two herniated discs with arthritis and no pain medicine. Well, the detox has gotten to the PAWS stage, and now I have to apply for disability. I cannot sit for long periods of time, which my career requires. I cannot lift or bend without assistance, and without the pain medicine I cannot stand straight and walk any longer than from the house to the car. I hope the government doesn't fight my disability application or I'll be homeless. Our country should be ashamed of itself. Too bad I can't get a job in Canada.
My fiancÚ has a severe ear infection that is causing her debilitating pain, so we went to the doctor to get antibiotics and something to relive the pain so she can function, well she ended up having a severe outer-ear infection that is spreading to her jaw, her ear was so swollen that the otoscope had to be forced in her ear causing her to cry, I've never seen her in so much pain and when she asked for something to relive some of the pain, the doctor said that he is sorry but under new law they are being strictly regulated, so she is still suffering and the ibuprofen that was recommended is not making even the slightest difference in her pain, so I decided to do a little research on these "laws" and I have just stumbled across this petition, and now looking back on it I belive that this physician was being over cautious with these regulations to not get penalized by the DEA's ridiculous new law, so I figured I will contribute to this petition considering not only my situation but for others that I'm sure have worse experiences with these new laws.
The gobvernment has taken the ability of good doctors to treat the whole person and caused good people to suffer at the hands of these money grubbing pain clinics that Do Harm to their patients. It also gives the valid pain management doctors a bad rap
This outrageous and barbaric system as well as the disgusting profiteering at the expense of those suffering, must stop now! Shame on those who can't see what's really happening here. This war on pain patients is perhaps the lowest in all of human history, completely without precedent, and never contemplated in even the most ruthless and bloodthirsty tyrannies of yesterday.

I live with chronic pain. I see multiple doctors and specialists for multiple issues. I only get pain medications from a single doctor to try to comply with laws as best I can. I live in pain. I have multiple spinal injuries, damaged stomach, blood disorders, IBS, and more. I've had multiple surgeries on different issues. I've found the best combination for pain relief is NSAIDs with low dose narcotics. However, the internal damage caused to my stomach from NSAIDs makes this combination unreliable for long periods of time. Because of my pain, I have been treated poorly by other doctors, pharmacists, clinics/hospitals, family, friends, and pretty much everyone that doesn't understand the difference between chronic pain sufferers and drug abusers. With the reclassification of Norco, I have seen a large increase in discrimination, medical bills, frustration, time away from work, etc. Have these new policies stopped drug abusers? I doubt it. They always find a way. Twice now I have had pharmacists talk my doctor into canceling prescriptions causing me additional visits just to have the scripts written differently. Doctors are running scared. Doctors should be able to treat their patients as they see fit; and NOT as the government dictates. What is happening to our freedoms? They are slowly being taken away and now pain patients are suffering even more. My healthcare costs have doubled since the Schedule changes. How am I supposed to afford treatment? How can I keep my job when I have to take more and more time off?

If the system doesn't improve, I don't know what I'll do. I'm tired of feeling persecuted by a system that takes my money, forces me to fight tooth and nail for pain relief, and then treats me like leper. How can we make this better? Please try to come up with a plan that doesn't treat normal chronic pain sufferers as addicts. I'm tired. So very tired of it all. Thank you for taking the time to read this.
I live with chronic pain. I see multiple doctors and specialists for multiple issues. I only get pain from a single doctor because God forbid I'm using these issues to shop for pain meds. That's a different issue. I was already treated poorly by other doctors and pharmacists and clinics when they see I take pain meds. With the change of Norco, I have seen an large increase in discrimination. I now see my primary care doctor who writes the pain scripts many more times a year. I have other doctors I see, but now this means even more time away from work and more healthcare expenses. This Friday, my doctor wrote a script for Percocet to get me through a rough pain flare up. The pharmacist talked my doctor into canceling the prescription and meeting with me again to issue Norco. This happened Friday afternoon, and I was unable to reach my doctor afterwords to find out what happened. So, I have to schedule another doctors visit, miss more work, suffer extreme pain all because the pharmacist (I assume) scared my doctor from writing a pain script. I've had to go to the ER before for pain shots. My copay is $250. My doctor copay is $25. My insurance only covers 80% of costs after I meet my $3,000 deductible.

My point of my story is that the system is flawed. I try to follow the letter of the law for pain control but between the expense, loss of work, and plain old trauma from discrimination is making it very hard to cope with life. If the system doesn't improve, I don't know what I'll do.
I have personally seen how the reclassification of hydro from Schedule lll to ll has caused a great deal of hardship on a family member who had a great relationship w his Pain Management Dr. For years but the Dr. Moved out of state and now the new Dr. That took over, cut his meds and insists on surgery and billed over 400.00 for a simple Dr. Visit. In which he has to go every single month. It's affecting his work. And it kills me to see him struggle. He could go on disability but wants to work 10 hours a day. But now must suffer. This is absolutely inhumane, unjust and cruel.
Is the DEA bound by the Do No Harm oath? I already know that they CAN be sued and I can see an attorney just waiting for the exact moment to pounce on this, because there are thousands upon thousands of pain patients not getting the medications they need. You continue to take down the bad guys, NOT create a new rule where tens of thousands of chronic permanent pain patients also can't get to these much needed medications. I'm not talking about the common guy whose shows up at the ER with temporary pain. I am referring to chronic pain patients who will be disabled for life. I remember a quote from someone with the DEA saying "This new law shouldn't change anything for the patients who really need it". Oh really? I could have slugged the person who had the nerve to say that. You think you know me? You don't and you didn't think this through. I can jump through hoops if I want my much needed Norco. I can drive the 90 mile round trip to the spine center every month, because I would have to get three written scripts with "Do Not Fill" dates on them. I'd have to pay for an office visit each time. That's IF that scenario would work. The PA and the Dr. would have to be willing. If they were a little scared, I could go every month and get a new script. I haven't tried yet and I meet all the criteria to continue with Norco. So, let's say that's fine. I already know I could do one of those scenarios. Problem is, the nightmare doesn't end there, so I'm using Tylenol 4 which does not work. Pharmacies are so freaked out now, they're telling patients that they're out of the medication or they only order so much per month and its first come, first serve. Are you bloody kidding me? I hate rocking boats and I hate confrontation, so I decided to try Tylenol 4 instead of putting myself through all that. I was functional with my Norco and was fine for years. Same pharmacy for years. No problems for years. Went back to work part time. Now? I am home on disability. I hold onto the walls to walk. I do not sleep. I have terrible bone graft pain. When you lift up my shirt, you do not see a normal back with normal looking skin. The skin on my back is a deep dark red with several streaks of burn marks covering the entire lower half of my torso from having a heating pad on myself several hours per day, with pain so bad, I don't even know when I'm burning myself. I am so weak from pain I have taken a hundred steps backwards and am no longer part of the decent life I had before this. This is the problem the DEA never looked at seriously. You cannot change a law and scare hard working and caring doctors. You cannot intimidate pharmacies all over the country. I am not a criminal nor an addict. I have never and would never sell my precious medications. I WILL however, help ANY attorney in any way I can for a huge class action law suit against the DEA. Now, my pharmacy is out of Tylenol 4.
Is the DEA bound by the Do No Harm oath? I already know that they CAN be sued and I can see an attorney just waiting for the exact moment to pounce on this, because there are thousands upon thousands of pain patients not getting the medications they need. You continue to take down the bad guys, NOT create a new rule where tens of thousands of chronic permanent pain patients also can't get to these much needed medications. I'm not talking about the common guy whose shows up at the ER with temporary pain. I am referring to chronic pain patients who will be disabled for life. I remember a quote from someone with the DEA saying "This new law shouldn't change anything for the patients who really need it". Oh really? I could have slugged the person who had the nerve to say that. You think you know me? You don't and you didn't think this through. I can jump through hoops if I want my much needed Norco. I can drive the 90 mile round trip to the spine center every month, because I would have to get three written scripts with "Do Not Fill" dates on them. I'd have to pay for an office visit each time. That's IF that scenario would work. The PA and the Dr. would have to be willing. If they were a little scared, I could go every month and get a new script. I haven't tried yet and I meet all the criteria to continue with Norco. So, let's say that's fine. I already know I could do one of those scenarios. Problem is, the nightmare doesn't end there, so I'm using Tylenol 4 which does not work. Pharmacies are so freaked out now, they're telling patients that they're out of the medication or they only order so much per month and its first come, first serve. Are you bloody kidding me? I hate rocking boats and I hate confrontation, so I decided to try Tylenol 4 instead of putting myself through all that. I was functional with my Norco and was fine for years. Same pharmacy for years. No problems for years. Went back to work part time. Now? I am home on disability. I hold onto the walls to walk. I do not sleep. I have terrible bone graft pain. When you lift up my shirt, you do not see a normal back with normal looking skin. The skin on my back is a deep dark red with several streaks of burn marks covering the entire lower half of my torso from having a heating pad on myself several hours per day, with pain so bad, I don't even know when I'm burning myself. I am so weak from pain I have taken a hundred steps backwards and am no longer part of the decent life I had before this. This is the problem the DEA never looked at seriously. You cannot change a law and scare hard working and caring doctors. You cannot intimidate pharmacies all over the country. I am not a criminal nor an addict. I have never and would never sell my precious medications. I WILL however, help ANY attorney in any way I can for a huge class action law suit against the DEA for not allowing lifetime pain patients to get their much needed medications. How DARE yo
Is the DEA bound by the Do No Harm oath? I already know that they CAN be sued and I can see an attorney just waiting for the exact moment to pounce on this, because there are thousands upon thousand of pain patients not getting the medications they need. You continue to take down the bad guys, NOT create a new rule where tens of thousands of chronic permanent pain patients also can't get to these much needed medications. I'm not talking about the common guy whose shows up at the ER with temporary pain. I am referring to chronic pain patients who will be disabled for life. I remember a quote from someone with the DEA saying "This new law shouldn't change anything for the patients who really need it". Oh really? I could have slugged the person who have the nerve to say that. You think you know me? You don;t and you didn't think this through. I can jump through hoops if I want my much needed Norco. I can drive the 90 mile round trip to the spine center every month, because I would have to get three written scripts with "Do Not Fill" dates on them. I'd have to pay for an office visit each time. That's IF that scenario would work. The PA and the Dr. would have to be willing. If they were a little scared, I could go every month and get a new script. I haven't tried yet and I meet all the criteria to continue with Norco. So, let's say that's fine. I already know I could do one of those scenarios. Problem is, the problem doesn't end there. Pharmacies are so freaked out, they're telling patients that they're out of the medication or they only order so much per month and its first come, first serve. Are you bloody kidding me? I hate rocking boats and I hate confrontation, so I decided to try Tylenol 4. I was functional with my Norco and was fine for years. Same pharmacy for years. No problems for years. Went back to work part time. Now? I am home on disability. I hold onto the walls to walk. I do not sleep. I have terrible bone graft pain. When you lift up my shirt, you do not see a normal back with normal looking skin. The skin on my back is a deep dark red with several streaks of burn marks covering the entire lower half of my torso from having a heating pad on myself several hours per day, with pain so bad, I don't even know when I'm burning myself. I am so weak from pain I have taken a hundred steps backwards and am no longer part of the decent life I had before this. This is the problem the DEA never looked at seriously. You cannot change a law and scare hard working and caring doctors. You cannot intimidate pharmacies all over the country. I am not a criminal nor an addict. I have never and would never sell my precious medications. I WILL however, help ANY attorney in any way I can for a huge class action law suit against the DEA for not allowing lifetime pain patients to get their much needed medications. How DARE you take my life away from me.
This outrageous and wholly barbaric system of servitude, as well as the disgusting profiteering at the expense of those suffering, must stop now! Shame on all those immoral and ignorant fools, in their debauched hypocrisy, who can't see what's really happening here, and may you reap your own sorrows without compassion soon. This war on pain patients is perhaps the lowest in all of human history, completely without precedent, and never contemplated in even the most ruthless and bloodthirsty tyrannies of yesterday.
my neurologist referred me out to a pin clinic to advise how to treat my pain caused by multiple sclerosis pain compounded by arthritis of the spine and herniated disc. Most pain from MS though because arthritis and herniated disc didn't show up until years later after the pain started. The pain office did test whereby needles were put into the areas that hurt while I was attached to a machine. They were somehow able to determine where and how much pain I was in that way. After years of treating my pain, the neurologist sent me back to pain management. This is b/c the rules were changing and now I would have to go once a month, sign a pain contrat, get urine analysis, random pill counts, etc. I was with same pain clinic for about 7 years when my doctor had to take prolonged leave. He had a covering doctor there; a new one almost every month. Most of them had no problem writing my rx after examining me and seeing my history. One doctor decreased me to only allow me to take my rx every 4 hours instead of every 3 which was the way it was prescribed to me for years b/c my pain spikes up after 3 hours. I had to learn to live with some extra pain but didn't have a choice. Last month I found out my original doctor is not coming back for 5 years. The new doctor that was there who I only had just met and saw for about 5 minutes, saw what I was taking and referred me out for a second opinion to Kessler rehabilitation center. He said in all honestly he had been accused of over-prescribing in the past and would not give me my rx again without the pain doctor at the rehab center agreeing to what I was taking to cover his you know what. Why would he send me to a rehab for a second opinion and what rehab center is going to agree to give me a narcotic? I never asked to be put on narcotics and after years of trial and error with things that didn't work or had bad side effects, I finally found a doctor to give me something in a high enough dose to get back my quality of life back. The last 7 years have been a blessing compared to life prior. Even with the narcotics the neurologist was giving me, the dose wasn't high enough to give me QOL. I am not sure what I will do if they take my pain medication away. If they have an alternative that works that doesn't require a narcotic I am all ears but I have been told my pain is from the cns and no needles in the back/or PT or exercise will fix that. I know, these things I tried first. I tried chiropractic, massage therapy and sports injury doctors in the beginning. I found no relief there. I was flat out told by my neurologist and the pain management doctor that narcotic therapy was my only recourse of action for any kind of Q.O.L. and that I could expect to take them for the rest of my life. Basically, the doctors made my body "dependant" (meaning I will withdraw if just pulled off or decreased quickly) on narcotics that DO work for me as a legitimate sick person with a disease. And now, the doctors do not want to prescr
my neurologist referred me out to a pin clinic to advise how to treat my pain caused by multiple sclerosis pain compounded by arthritis of the spine and herniated disc. Most pain from MS though because arthritis and herniated disc didn't show up until years later after the pain started. The pain office did test whereby needles were put into the areas that hurt while I was attached to a machine. They were somehow able to determine where and how much pain I was in that way. After years of treating my pain, the neurologist sent me back to pain management. This is b/c the rules were changing and now I would have to go once a month, sign a pain contrat, get urine analysis, random pill counts, etc. I was with same pain clinic for about 7 years when my doctor had to take prolonged leave. He had a covering doctor there; a new one almost every month. Most of them had no problem writing my rx after examining me and seeing my history. One doctor decreased me to only allow me to take my rx every 4 hours instead of every 3 which was the way it was prescribed to me for years b/c my pain spikes up after 3 hours. I had to learn to live with some extra pain but didn't have a choice. Last month I found out my original doctor is not coming back for 5 years. The new doctor that was there who I only had just met and saw for about 5 minutes, saw what I was taking and referred me out for a second opinion to Kessler rehabilitation center. He said in all honestly he had been accused of over-prescribing in the past and would not give me my rx again without the pain doctor at the rehab center agreeing to what I was taking to cover his you know what. Why would he send me to a rehab for a second opinion and what rehab center is going to agree to give me a narcotic? I never asked to be put on narcotics and after years of trial and error with things that didn't work or had bad side effects, I finally found a doctor to give me something in a high enough dose to get back my quality of life back. The last 7 years have been a blessing compared to life prior. Even with the narcotics the neurologist was giving me, the dose wasn't high enough to give me QOL. I am not sure what I will do if they take my pain medication away. If they have an alternative that works that doesn't require a narcotic I am all ears but I have been told my pain is from the cns and no needles in the back/or PT or exercise will fix that. I know, these things I tried first. I tried chiropractic, massage therapy and sports injury doctors in the beginning. I found no relief there. I was flat out told by my neurologist and the pain management doctor that narcotic therapy was my only recourse of action for any kind of Q.O.L. and that I could expect to take them for the rest of my life. Basically, the doctors made my body "dependant" (meaning I will withdraw if just pulled off or decreased quickly) on narcotics that DO work for me as a legitimate sick person with a disease. And now, the doctors do not want to prescr
For the last 4 years I have been seen by one of the most compassionate doctors I've had the pleasure of being treated by. He Remembers your children's names, your pets names, your conversations from your last visit, of course all your health concerns and on top of that he was ready for all the DEA protocol roll outs far in advance of the deadlines. What happens to this great doctor? Based on 2 fraudulent tips ( he recently fired two rude employees ) and I'm sure the other tip was from a friend or relative of there's yet he wasn't allowed to know why they came to inspect him. Well the inspection was just an excuse for a raid. They found nothing suspicious yet still took his records, his DEA license to fill pain meds yet let him keep his general practice, and see those patients and prescribe their meds. This is another case of the DEA ACTING LIKE THE GESTAPO AND Discriminating against chronic pain suffers and good doctors! ALL I CAN HOPE IS THAT SOME DAY THEY ALL SUFFER PAIN LIKE US...... but then again it's the DEA they get there drugs off the criminals they steal them from. It's not a coincidence that there's a crackdown on pain meds and our troops are guarding poppy fields in Afghanistan. Google some info on our troops and poppy fields. It's Iran-Contra all over again. This time they are going to take away our pain meds, hope we turn to heroin, then fill the privatized prisons with slave labor! And no I'm not crazy...there's plenty of info on the Internet!
Can't type well due to arthritis in hands (and knees and hips). Have a long story with multiple conditions and full disability. Same dose of meds for over 3 years which has lost effectiveness due to tolerance. MD suggests $100,000 surgery, which I have no means to pay for...meanwhile I am losing what little mobility I still have. This is inhumane.
This is Barbaric!
(See Dr. Marcola article: Anti-inflammatory causes inflation! ) I've suffered greatly for no good reason! And have had my kidneys shut down. MD stands for moral degenerate!
PLEASE PLEASE RETHINK AND REDO this insane restriction for people who REALLY LEGITIMATELY NEED pain management. My elderly mom has to live with a cracked spine because there is NOTHING they can do. Are you mean absolutely inhumane people to do this to doctors and patients just trying to get thru life because of the people who took advantage????? Find a better more humane effective way to deal with the problem but how can this department be so cruel to the people who ACTUALLY LIVE IN PAIN????
Our way of life has been compromised. Freedom is an illusion. We need to wake up and RISE!!!
I have been on a opioid since 2007. last week my dr. said the d.e.a. is prohibiting any and all narcotics from being written by his office. I was referred to a pain management dr who took all of 3 minutes to say sorry guy, I cant help you, GOOD LUCK!?!?!??!? so now I have no way to receive the medication that has been working flawlessly for 8 years. I don't know if I will be able to continue working? I might understand the d.e.a. restricting new patients, but 8 years strong with no miss haps??? I do not think so. I hope we can ban together to make things right!!!
I an 56 and have had osteoarthritis in my spine since I was 16. Since then it has gotten progressively worse and the back pain also affects my legs. I suffered for years on otc meds and finally around 2001 I found a warm and compassionate Dr who listened and cared. She not only experimented with many different combinations of meds to help me, but she also diagnosed me with fibromyalgia.Unfortunatly,after being with her about 15 yrs, a few years ago she went into a boutique type of practice that I couldn't afford and had to find a new Dr, What a nightmare!! At this point I was also diagnosed with rheumatoid arth, and my back has progressed to degenerative disc desease. This new Dr started out filling my scripts, that I was on for years. Then the hammer came down on my entire life...THE DEA! All of a sudden after a year with her, she and her rude and disrespectful nurse, who intrcepts all ability to speak to the Dr, decide to fabricate a reason to terminate me from the practice! I couldn't even do anything to defend myself. I was also red flagged throughout the entire network of Drs. I had to find another Dr that right away said she was going to wean me over a few months off of the pain patch I was on. Now that Im almost weaned, in agony beyond words, cant get out of bed,and my ability to be a semi productive disabled housewife, no longer exists. When I asked her now that Im almost weaned off of the patch that she didn't like, what she was going to switch me to......she said oh no, I don't prescribe pain meds!!! Now all I can do is cry in pain, and also because I don't think theres anyone out there to help me out of this hell.....thanks to the DEA....
This very serious problem that legitimate pain patients endure in not being able to reliably obtain necessary medicines prescribed to them by highly qualified physicians. Being a young chronic pain patient has brought many huddles in my every day life. Not only do I seek a physician who will treat me as a person but also help me figure out to treat or at least control my condition. I have lived in chronic pain since the age of 18yrs old. After I went under my first major spinal cord surgery. Today I have had surgery three times and only getting worst. The aftermath of these surgeries have only added more pain and disability. Please Senate, Congress, DEA help us legitimate chronic pain patients and physicians find a happy medium!
Very well said and this petition covers just about all of the points of this very serious problem that legitimate pain patients endure in not being able to reliably obtain necessary medicines prescribed to them by highly qualified medical doctors. No one, not even a pharmacist, is able to determine what kind of medical condition a person has just by looking at or profiling them. Doctors, pharmacists and patients need to work together. It is mind boggling that our government will spend millions of dollars on the upkeep and care of deliberate drug addicts while legitimate patients are abandoned by the country they have served and paid taxes to all of their functional lives. To force people that already have surmounted unimaginable physical and emotional damage to live in pain and to be made to feel ashamed for their conditions is an outright crime.
hello, doctors in mich are refusing to see me because I take narco? that was prescribed! for over 20 years due to a severe auto accident.as they are afraid of losing there jobs? what about the disabled?? I am scared of the withdraws & pain. nobody cares any more. Thanks dea!
I am 68 yrs old with no criminal record..not even a traffic violation, yet I'm treated like a criminal because of chronic pain..it's a long list, all spinal issues. The pain is real and completely debilitating, yet my medicine has been cut by over half. I'm ready to go..tired of this hell every minute of my life. Thanks, DEA
Who is profiting from this insane law? Get the government OFF MY BODY!
I am a chronic pain patient, My Dr does a pretty decent job at trying to treat my pain. However he is afraid to give me more pain meds because of the DEA and insurance companies. I was hurt on the job and Sedgwick claims told my Drs to stop prescribing me Oxycontin because they didn't believe that I needed it, so my Dr said that he needed to start weening me off it. I said to him what am I going to do for pain? He said I don't know but that what the insurance company wants, I asked him are they Drs? seriously are they the ones that are treating me, I said to him do you think I need my medication and he said yes I do, he says you are in pain! All of my medical evidence points to me needing to be treated for my chronic pain. And I am not saying that I can't be treated for something else besides oxycontin but for and insurance company to be telling Dr how to treat their patients is crazy! And Dr said DEA is also cracking down Drs as well and I said I understand that but you can't leave patients in pain. My Dr did not listen to Sedgwick claims and did fill my script and medicare is covering my medication which I have a $120.00 co-pay.
I am 43 years old and injured my back in 2005. I have been in chronic pain ever since. Due to New laws from DEA it is hurting Ppl like me who do not abuse my pain meds or been addicted. Without the pain meds I could not even get out of bed. Something needs to be done to help us instead of hurting US bc other drug addicts abuse the system and make us the chronic pain suffers pay for their actions,.
I am 43 years old and injured my back in 2005. I have been in chronic pain ever since. Due to New laws from DEA it is hurting Ppl like me who do not abuse my pain meds or been addicted. Without the pain meds I could not even get out of bed. Something needs to be done to help us instead of hurting US bc other drug addicts abuse the system and make us the chronic pain suffers pay for their actions,.
I'm a 56 year old disabled nurse due to failed back surgery . Just 6 years ago I was working and looking forward to my"golden years". It now causes pain just to shower. My pain management doctor is doing the best he can to help me with procedures (none have provided relief) and opioid medications which, due to restrictions, are not enough to allow me to do very much. I would neverseek medications elsewhere and would rather be in pain. I have thought that perhaps I would no longer suffer if I weren't alive but would never commit suicide due to my beliefs. Please help me to get the relief that I need. My pain is so severe that opioids and heating pad are the only things that help. Thank you very much.
Stop taking away my quality of life! Stop offering me medications and procedures that are more dangerous & costly than the simple pain meds that DO work. Stop making me worry that I won't be able to work until retirement. Stop making it difficult for me to bathe myself, dress myself, prepare a simple meal, clean my home, etc. Stop opening doors to pain mgmt. clinics who are there to humiliate me and treat me like a drug seeker. I am not a LTDU - I am a chronic pain sufferer, and I did NOT ask for this to happen. I was obeying the law, and my husband was practicing safe driving habits when we were rear-ended by a driver who told the police she wasn't watching traffic. I didn't want 3 surgeries in less than 3 years, with the last 2 happening in 2014, rendering me in more pain than ever. Stop allowing pain management to treat me like they treat non-compliant patients and make them treat ME and not go by a chart that says if I have this disease give this certain drug. MAKE THEM TREAT US AS INDIVIDUALS AND GIVE US BACK OUR SAY IN OUR CARE - AND REMEMBER WHO SAYS ADEQUATE TREATMENT FOR PAIN IS A BASIC HUMAN RIGHT.
There are legitimate people living everyday in this country with chronic pain and I am one of
them. Not everyone gets addicted to pain medications and for the few that have, they do not outweigh the people who live with chronic pain and you really do need these medications to
live a normal life, pain free. Please stop tying the hands of our doctors and our pharmacists by telling them not to prescribe or fill our pain
medications. Also please stop profiling people at
the Pharmacies when they show up with the
prescriptions for pain medication. Thank you.
3/9/15;
Folks, don't be fooled. These people making the decisions WILL get their pain medications. They have name recognition OR an employee badge with their name and govt agency name on it. Don't think for one second they will suffer if they are ever in need of pain relief. These posts go to YOUR respective senator and the POTUS. They care not what inconvenience they cause for they will not go without. That's why it's so easy for them to make blanket decisions based on 576 letters. Even 100,000 drug overdoses pales in comparison to the 100 + millions of chronic pain sufferers that this is affecting. In the grand scheme of things...we matter not.
I know there are issues.......SHAME ON YOU FOR AGAIN TAKING OVER PEOPLES LIVES WITH NO HEART OR CONCIOUS OF THE OUTCOME...I PRAY THIS COMES FULL CIRCLE RIGHT TO YOUR LAP...ONLY THAN YOUR HEART AND MINDS MIGHT UNDERSTAND...riiiightttt
I too, live in pain and have found relief with pain medication. It has allowed me to take care of my daily responsibilities that I know I would not be able to do without pain relief. I am not a criminal or drug addict, I am a human being. It is cruel and demeaning to judge others when you don't know their pain and suffering.
I feel victimized as a disabled person that also has severe pain. Am now required to visit the dr. every month for the one pain medicine I receive ($65.00 each visit), pay for each month instead of every 3 months delivered through the mail ($$ adding up) and given drug tests at the doctors office each time I go in. Excuse me, but I believe that I am not a criminal and yet am treated like one and paying for being treated like this also. This is discrimination of the disabled and chronic pain suffers. No one else is subjected to this type of treatment. Now along with all the other diseases I suffer, I'm also getting an anxiety disorder because of this. DEA needs to let the doctors treat us and not have us subjected to a classification of drug dealers, drug abusers, etc. The laws need to change for our betterment, doctors & patients!!
I have done Auto Body work all my life, a rough job and it take a toll on my body and lungs,I have severe chronic back pain,Toxic neuropathy from painting cars and breathing body filler plastic for 50 years but yet I'm treated like a drug addict and have a hard time getting my pain under control.I'm an American Grandpa and suicide is not an option !
i'm 55yrs old i have had manual labor hard working jobs my whole life. people tell me i work like a man. i am female and weigh 110lbs . i have 3 herniated disks in my lower back both knees bone on bone, both hands have ganglia cysts from osteo arthritis, hips and shoulders are really starting to go. i've been on hydrocodone10mg for years, taken as directed. i asked my dr. who's a pretty good guy, if i could have something stronger. i could tell he was nervous and said he didn't want me to become addicted. i'm like what? these letters have helped me and i'm sick of being treated like an addict as well can't smoke pot because it's illegal in n.y. and so i get drug tested even though my dr. doesn't care if i do for pain.this whole thing sucks!
I am not a criminal, but paiin management and dea sure treat me like one. They don't get problem fixed, yet won't provide pain relief. Had 2 rods, ten screws inserted in neck to fuse 5 vertebrae, lower back been fractured 3 times (WAS horse trainer). Neck fusion 2 yrs ago, still very painful...been tellin pain mngmt for 2 yrs back is worse each month. They STILL have done nothin. I am so saddened by our so called wonderful government, how they treat people like us who r in too much pain to function. Maybe we could be out in work force contributing to their salaries with our taxes...but they prevent us from being able to do so. Hang in there folks, something has to crack eventually...maybe when the government fools can't get pain relief due to their own idiot rules, maybe then someone somewhere will listen. The rest of us are just screwed cuz no one hears us. WE ARE NOT CRIMINALS! Dogs get treated better...if you let your pet suffer pain you get prosecuted! Why are our elderly made to suffer? Why are we? Please help

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