First Do No Harm: The DEA targets Physicians who treat their patients pain.

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Some recent comments: these messages are published with permission of the signer.

This is such an important issue. Yes, there are people who are truly addicts, but there are so people with real, unending, life-altering, debilitating chronic pain. We should not be made to pay for the crimes of those who abuse the system by a blanket declaration or policy that prevents physicians (who go to school for years, and we trust with our lives) from exercising their own independent professional judgment and doing their job.
Have a difficult time with doctors and substance abuse nurses that do not think my pain is so bad. It is like a knife in my head at times.
I have three rare diseases, Microscopic Polyangiitis (a life threatening rare auto-immune vasculitis), Lipoedema, and possible Dercum's disease. These illnesses cause debilitating pain, leaving me unable to function, work, keep up in school, or even walk or enjoy my life. Pain medication helps me live a normal life. Because of this behavior of targeting doctors and pharmacies instead of targeting the people who are selling these drugs illegally, I have not had pain relief for a month. In desperation I took NSAIDS (Non-Stereroidal Anti Inflamatories) like advil, aleve, etc. It almost killed me as I suffered an increasingly common life threatening reaction called NSAID-induced Bronchospasm (a severe asthma attack caused from NSAID drugs). Yes the NSAIDS worked for the pain, but they almost killed me. And guess what? Until I can get some pain relief I Will keep trying to take them, because I am tired of not living life. I am 37 years old. I should be working and enjoying life. Instead in pain all the time, I sit in the house and watch others have fun with life out my window. If I die from the NSAIDS then maybe it will wake these doctors up to the need to not ignore chronic debilitating pain. At this point the risk of death is not as scary as living a life where I can not do anything besides sit there all day. I have becomes desperate for pain relief. I encourage you to change your policies on pain control medications so people like myself do not suffer needlessly, and put thier lives at risk to simply have a few wonderful and beautiful pain free moments. Thank you for listening. If you need information my email is on the petition. Thank you.
I am one of these chronic pain patients and I feel that my right to humane medical attention is being robbed because the DEA targets CHRONIC PAIN patients doctors for prescribing a medication that is medically necessary in or for me to function. It is the addict that should be targeted not us with medical proof and documentation that we need this medication until the end of our lives. I have to have a third surgery on my cervical spine due to the last surgery not healing and the screws are out. I could be paralyzed from the neck down if I don't have the surgery and if I have the surgery it could happen during the procedure. I feel either way I may be screwed. Please take this serious because there are a lot of voters out here that need your help.
I have been in pain for about 6 years I had acdf surgery multi-level 4-6 with instrumentation IT TOOK 5 Years to find a doctor to find out why I had this 5 year headache... Finally found a good ole Midwest Dr, who believed me, about the pain he made a few diagnosis's finally his staff convinced him I was a drug seeker JUNKIE so he ordered me to have an MRI which I gladly jumped at, come to find out 2 ruptured disc's in my neck impinging on my spinal cord, was immediately referred to a wonderful Neurosurgeon ONE OF THE BEST he took care of me, headache gone but arm pain remains we discussed at length what was up with the shoulder and arm and he is one of the top neurosurgeons in the country and he knew it was not my neck I live in Pain! I beg for relief Weekly-bi weekly I have surgery but im not sure it will help??? if its a brachial plexus injury which I do believe it could be IM IN BIG Trouble without pain meds I am unable to do simple things like laundry, gardening, house keeping had to take a LOA from work, because I just cant sit there for more than 45 minutes. I hope I will find a Fix (not in drugs, but on a forever basis to not need them) But Im just a drug seeker IM not I do admit that sometimes when the pain wakes me and I have had my limit for the day which was 8 hours earlier I will take it, so I can get some rest... On another note I don't think the DEA is really all the fault here there unenforceable threats MAY BE! But I have never met anyone in the DEA or FDA that wants Dr's to not treat their patients with kindness compassion and at least make their lives comfortable I have only heard they want the pill mills people selling their pills to real JUNKIES! and for patients to be responsible in the matter of locking them up! so kids or visitors do not get them... Im ok with that.... I have also never met a DEA or FDA Represenative that believes in pain contracts, or if you are in dire pain, to not take an extra one or two here and there. pain is unpredictable good days/bad days they get that I put the full brunt of this epidemic on New Dr's and Pharmacists there have been many Pharmacists here that have been arrested for running Drug dealing out of their respective Stores WELL DUH! now all other pharmacies believe that those pharmacists were set up by the pain patients HONESTLY! someone needs to do something... most pharmacists here do not know how to count. or even dispense medicine now they have some power given to them to question a dr I guess if it s a combination that might kill someone SURE INTERVENE But, just because someone takes NORCO doesn't mean they are a junkie, or will become one EVER. it is pretty much impossible to be addicted to a schedule III drug. schedule II I don't know cant take perc's make me meaner than a junkyard dog take the pain away but the emotional side effect not so good for me.. schedule III works most of the time and if it doesn't I will be ok take a sebatical for a day a
I have a degenerative autoimmune disease and can no longer function. Narcotic pain medication allowed me to do housework, moderate exercise and socialize. I was weaned off and am essentially bedridden. Never abused or took more than prescribed. I'm 51 and feel like my life is over. Thanks.
For those of us that live with horrible pain everyday, we need a doctor that will treat us for it. Doctor's shouldn't have to be afraid to care for and treat their patients!!
No one should suffer!
I wish that when I was in the apex of my Chronic Daily and Hemiplegic Migraine which I have 24/7, I had the ability to place my hand on the doctor or pharmacist's hand and let them fell what I feel, what I live with day in and day out. I wish they understood, that my entire world, with very few exceptions, is in my house, because I spend nearly every waking moment there trying to control my pain with the very small amounts of pain medicines I'm allowed and nothing else to help me. I wish they could feel my humiliation when I'm sitting there listening to them tell me just to lose weight, get off my medications and think happy thoughts and all my pain will disappear. Which is right after they tell me what a horrible addict I am, and my migraines are due to my pain meds, then they turn around and offer me a prescription for Marijuana, which is so much worse than what I'm on. I'm also allergic to just the smoke, when I smell it on other people's clothing. With a note here, the exception about my migraines is, that I wasn't on any pain medicines when I was four years old. That was when these migraines began. I also wish they understood, that I'm not asking to be pain free, just to lower my pain to where I could function again, if only I could even go out long enough to attend a church service, go to a movie, or even celebrate my wedding anniversary's with my husband. I dream of a day when I can see my four year old granddaughter playing in the park, or have her first pony ride.
I am afraid, that unless attitudes change about treating pain, I will probably die alone in my room when no one is here to help me. If things stay the same, this is the future that will be waiting for me.
This is not just a war against physicians treating pain in Texas. The DEA is aiming at the pharmacists as well. I realize that most people don't have a relationship with their pharmacist but I do and they are facing legal sanctions for filling opiate prescriptions. It's a sad place we've reached when a physician cannot practice medicine and a pharmacist cannot do their job for fear of reprisals. It's bleak out there for those of us who depend on this medication for some semblance of a quality of life.
Unfortunately, FEAR is the motivating factor for all of us. When did this become no longer we the people but we the government.
it a joke , the dea involved in legal pain medications. we all suffer in silence trying to get by with a couple of good hrs in a week that with medications without it madness, life is not worth living this need to stop please stop meddling in dr -patient affairs-Pharmacies wont fill my meds for no reason WHAT KIND OF COUNTRY HAS AMERICA TURNED INTO??????
Everyone in this st*pid country that suffers from chronic pain should FLOOD every ER everyday and refuse to pay the bill unless the pain is controlled. Why should we have have to pay outrageous prices to get no help at all. Someday maybe it will be the fools running around trying to ban everything that need pain meds, or better yet let them watch their kids suffer for years with no relief.
The USA is becoming rUSsiA, when the government dictates what medications doctors, or patients take. Now you can drink all the alcohol you'd like, and die from that! Just don't drive!!
My son's pain medicine is $2000. a month out of pocket. He has been denied treatment by doctors because of no insurance. Then after finding a doctor and paying $500 for the visit, they may or may not keep you as a patient. Doctors are afraid to even take new patients. even if you have MRI's to prove you are in pain. Then after the doctor, he has driven hours and hours to get his prescriptions filled. This causes him more pain. From one pharmacy to another and hours of driving.. If you make any waves they drop you and will not fill the prescription. Even getting a receipt for your medicine is hard to do. If you don't have a receipt you can't get reimbursed if you have insurance. My son who is only 36 was in a car accident, he does not like taking pain medicine, but he can't even get out of bed in the morning with out it. Who do you have to be to get help? Yes my son has talked of suicide. If he does I will just have to understand why, right. Well at least I can tell those who ask me why this happen, that he was not an addict or nor was it an overdose. He died from the pain that he has been in for the past 8 years. So Congress where are you when the people you represent need your help?
I want to be the voice. Who do I need to approach first?
The Government must stop the DEA from practicing medicine. Legitimate Chronic Pain Patients all across this country are needlessly suffering because of the actions of abusers. True Pain sufferers are the casualties of the DEA's New "War on Drugs". They are losing the fight with Marijuana, so they have moved on to Pain medication. This must stop now. Please stop the DEA from killing and taking the quality of life away from true pain sufferers.
After having surgery 2 weeks ago for cysts in my armpit, i was told that i could not go to er for additional pain meds. I am on pain management for a prior back injury. I had gone to the er because my invision had swollen and i was in terrible pain despite taking my regular pain med. I contacted my surgeon who told me to call the er and see if they would write me a script for additional pain med but when i called them they told me they had just spoke with my surgeon and he suggested they not give me anything further. What is this world coming to when u r shunned for needing pain medication. This is totally uncalled for.
My husband committed suicide 8 years ago. He was repeatedly denied pain meds for years was" labeled" and treated badly. He was in a accident when he was 22 lost his leg and had almost every bone in his body broken. He turned to alcohol ......Thanks Congress for the pain Myself and our Daughter is Still feel because he is not here to share our lives with us. So glad You know what is just and right.
I have been in pain constantly for 2 years with bilateral carpal tunnel syndrome. I was treated for 4 months with Norco whic helped greatly but was then told I could no longer have medication because it's "habit forming." So then, does pain become my lifelong habit?
My sister is also going through this torment. Her doctors just literally "abandoned" her. Left her to suffer chronic back and neck pain, suffering from numerous aliments, now even edema. It's a disgrace to allow this to happen to people who are in constant pain. The government blatantly lied to get this bill passed, constantly reassuring that the chronic pain patients would not be effected and would get the proper care they needed, period! Where do you draw the line between taking care of the ill versus controlling them. It's an all too familiar story within our new world. What the doctors & politicians are doing is immoral, unethical, and cruel. It's a total thoughtless disgrace. Thank you very much, I cry every night for my sister. Never thought a good doctor would turn their back on someone in pain. This is very wrong.
This problem has gotten so bad that suicide is now a pain relief option.
I have 3 herniated disks, piched nerves, diabetic nueropathy and I'm sick and tired of being treated
like a drug seeker/addict when all I want is to not be bed ridden!!!!!
I a being treated like a criminal.
All because I want pain relief
I was hit by a drunk driver in 1983. Since then I have had 6 hip replacements and 1reconstruction. Through the years I developed severe lower back pain and I can't pronounce all the names for it. I was told that I could not have surgery or I would end up in a wheel chair. I also have a problem with my neck and was told no surgery because I would not be able to hold my head up. After every surgery that I have had which is over 15 in the last 30 years, I was given pain medication for a few weeks and that was it. I didn't need more, my pain was gone. Now I'm 56 with very high blood pressure and heart disease. I put up with the pain for years until I decided to see a pain management doctor. I have been on medicine for my pain for over 2 years now and I am doing more with my life than I was able to do long before my last surgery. I was and still am having trouble filling my prescriptions. I even got so frustrated with it that I just stopped going. Now I am able to fill it, but I don't know how long thats going to last. Help me understand why I have to go through this at my age because someone else decided they wanted to use medication the wrong way. Why doctors and scientists created these medications to help people and now because someone decided to misuse it, we have been told we can't. I was told tens ago that the only thing for me was pain management, I thought it was another form of physical therapy, so I didn't check into it bcause I had already gone through a year of it. Had I known it was to take this medicine, I would have at least had 10 years of walking and sleeping without pain. All the people with Muscular Dystrophy, Cerebral Palsy, Cancer and many others. Do you really think these people care about what you or I think of them, when they wake up every morning if they went to sleep that night with so much pain. They are looked at like drug addicts, that is so wrong in so many ways. WHY.
5-24-14 PHYSICIANS BEING THREATENED WITH THE RED FLAGS & INCONSISTENT RULES OF THIS NEW SYSTEM. I was a member of the health care community for many years before a medical condition retired me. I personally know physicians who feel very threatened with losing their license or their practice. All because they are doing what they have taken an oath to do. Doing what they have gone to school to do. Some of these esteemed physicians have ran private successful practices for years with zero issues. They have practiced smart yet compassionate medicine. These same physicians are afraid to ask questions. Afraid of being targeted. It is a witch hunt. I have never seen anything like this & I was around when HMO's came into rule. And lest we forget the patients... I know there are patients who abuse the system. I have read the stats on the number of opioid scripts in TN. If these numbers are true, then it is terrible. But as I have heard commented. These rulings are throwing the baby out with the bathwater. What about the true long term pain patients? What are we to do? Without & suffer? This ruling in Tennessee as I have read it, these guidelines that all physicians are to adhere to. All versions, which, may I say are all different in language & threshold numbers. Has one common message. All long-term pain patients must either do without relief, which for some, means no quality of life or normal existence. These patients must leave their primary doctor, which in some cases is a long term/ long documented medical history. They must now be funneled thru a pain management clinic. And may I add the long term pain patients medical history, even if meticulously documented, DOES NOT MATTER. When you are flagged in this system, that history means nothing. It seems to me that these Pain Management Clinics stand to benefit the most from these regulations. And I have not even touched on the pharmacists, especially the small town drug stores. They are targeted & forced to accept unfair limitations. And they are the ones who must stand behind counter & look into the sad hollow eyes of a patient they have dispensed meds to for years, living in their community,knowing well their ills, and tell them they either cannot fill their script or they do not have the proper numbers of meds to fill it. It seems to me someone with some common sense needs to step into this whole mess. Because from my view, the common sense & decency are illusive in this matter.
Thank you for your time, your patience and hopefully positive changes you are able to create for us survivors.
I'm 36 now... Happily Remarried now with four children, which in 2012 at age 34 we finally delivered our lil Blessing ... She was born most incredibly Sweet. I had all four natural deliveries and always shied away from any form of anything in my body that wasn't naturally healthy.
She is my fourth Blessing, as I had three children with my Ex Husband if 15 years. Although happily our brand new Daughter was my Second Husband's first and only child. He wasn't supposed to conceive, which he eagerly tried for 8 years with his Ex-Wife. We were ultimately Blessed and also in awe when we were told.
He also works at our local Justice Center and loves it dearly. We LOVED our lives, until sadly, four months after our Daughter's birth, I went to have a dental extraction in a Tampa, at an out patient surgery center.
Which that day is just one more haunting one for our Family.
I suffered cardiac arrest, due to their negligence, which they didn't even know I was dead for the first 4 minutes, then another 4 minutes they diligently worked on me doing CPR. I suffered 8 minutes of anoxia brain damage ( lack of O2) with so many memories lost, along with much more...SO much Worse.. They lied and covered their mistake up.
I began having severe migraines the first time in my life just two day's after, which we found out were partially TIA's and seizures,then along with the severe body pains of this very active happy woman who used to smile daily and ran nearly 3 miles each morning. And severe neck and spine problems the next week. It was worse..
Then in Sept 2012..Just 3 and half weeks after that mundane surgery day....My Stroke at age 34! No one could of imagined,as I worked at this Hospital, too! And even was sent home days prior to that,cause of my age being so young.. They learned it can and did happen though... It was due to severe inflammation, cause my right carotid artery was inflamed from ALL the damages I went through.. I was vomiting and couldn't move my left side, along with my my face slumping and words jumbled.My head hurt so immensely and with a new baby.. This shouldn't happen.. we were supposed to be happiest! The nerve damage I live with from them saving my life that day was incorrectly performed. I now , for the REST of my life have bad nerve damages from my C-1 down to my T-2 and my head tilts from cervical dystonia, caused by an overdose of general and local anesthesia How Horrible.. I was beautiful...
Then two day's after my stroke I suffered a seizure following a EEG in the Hospital.. wonderful. Yes.. more brain damage there, along with more agony for our Family, as I couldn't use my left side, speak from not only the stroke's damage, yet the damage from that surgery's intubation to my vagus nerve in my throat, which I still have issues eating these day's. Along with a fractured rib from that CPR then and what he
I'm 36 now. Happily Remarried with four children, which in 2012 my Blessing was born. She is my fourth and my Second Husband first and only. sadly four months after her birth I went to have a dental extraction in a Tampa out patient surgery center, which that day is just one more haunting one for our Family. I suffered cardiac arrest,which they didn't even know I was dead for the first 4 minutes, then another 4 minutes they dilgiently worked on me doing CPR. Worse.. They lied and covered up. I began having severe migraines and then TIA's, alng with body pains and neck problems the day's after, then in Sept 2012..My Stroke. Cause by severe inflammation,cause by right cartoid arerty inflammation, nerve damage from performing CPR incorrectly and damage from my C-1 down to my T-2. Horrible.. Then two day's after my stroke I suffered a seizure followoing a EEG in the Hospital. Yes.. more brain damage, along with more agony for our Family as I couldn't use my left side, speak from not only the stroke's damage, yet the damage from that surgery's intubation to my vagus nerve, along with a fractured rib from that CPR and entire body pain cause I suffer central nerve damage, along with migraines, and so much more new medical issues. I will NEVER work in the medial Field again and help others I once had.. It's been nearly 2 years now and since then we have to drive ALL over God's creation in our County to make an attempt to have the one thing that makes my life more at ease..My pain medication's. I have nice, kind and thoughful Doctor's who are legit, yet always have that bad feeling when I am observed from every Pharmacy, as my regular Pharmacy isn't always given their orders,due to our DEA's strict emotionally abusing Laws. I feel my life has already been a pure Hell since then and One thing I would love to do is go back, although I/we cannot, so I suffer crying and agony, especially when I'm not able to have my legal rpescriptions filled, which are never on time and I stretch out fearing that day before, or when I am told "no.. Sorry they haven't come" Or even better.. " go to another Pharmacy".. passing the buck, right?! My situation could always be worse, yet I feel more saddened at many other people within my Community who may and are suffering much worse. I've even given up my prescription when another customer and I went to have ours filled around the saem time and ONLY a short amount left, so I was the first one to drop off my prescription and truly.. I had several left and offered my order for them.. why should it have to be this way DEA? You have honest hard working good, decent people out here and we all do understand how you must feel, yet have to back off some and see it from our eyes..Our children's eyes when I can't go for walks in the evening now.. It took me months to walk,talk, move again and make sense of my words.. and I struggle at times still, although I try and do my best, so I have now have more emotional problems from trying to
It is just a shame that people that are really in pain, can not get there pain medication, due to all the people that are abusing the system. That is unfair to use regular citizens that truly need pain relief, and doctors don't wanna help us, because of the abusers out there that so called doctor shop!!!
I suspect the labs and doctors are now using multiple drug tests at every visit as a lucrative revenue stream. Combine that with having to schedule an appointment every two months when my doctor in my home state only wanted to check me every six months, and my pain doctor pushing expensive spinal injection procedures which - from an impromptu waiting room poll - seems to help only about one out of ten patients, I feel many pain specialists are more concerned about making as much money as they can with the least amount of effort, rather than actually helping their patients. I don't know what waiting rooms others are in when they talk about "doped up zombies," the patients I see in my doctor's office are primarily either on walkers, hunched over, or - like me - can't sit more than 10 minutes before needing to change position or walk about. I'm tired of being treated like a drug addict by the public, and a gold mine by my doctor!
I dread the day that I lose my caring and compassionate doctor to retirement. I suffer from chronic pain from multiple PROVEN medical issues. I cannot function on a daily basis unless I am on pain management. I believe that patients who are seeing one doctor for pain management need to be left alone. I believe that there needs to be a central database to be able to identify patients who are "Dr. Shopping" as there are people who are taking meds for the wrong reason.
I just lost my doctor who is an incredible, caring and compassionate doctor I've ever known. Even though her practice is grown so much, she isn't making enough profit to continue. I am terrified of not being able to find a new doctor that really hears what I have to say and seen all my body has endured and care about the pain that controls every minute of every day. I'm alive because she wants the best for me. How do I find a new doctor who isn't afraid to treat me with meds that make life tolerable. I have a right to be given pain meds. I DO NOT abuse them, but I do survive with them. Anyone have suggestions?
Medicine is supposed to be Scientific! People are suffering every day and considering suicide because they are denied Pain Medication! This is getting worse. Doctors need too be educated about pain, they are unaware or the numbers and statistics of addiction. I ma tired of our health Policy being dictated by ignorant politicians, and doctors who repeat old wives tales. MY life is ruined because my pain was not taken seriously! I have nerve damage that significantly impairs my life, because A Dr. who I found out later had a drug problem decided a ruptured disc, was "All in my head"!
My Current Pain Management Doctor, Perhaps the only Accredited PM Physician in the State has told me "Never argue with the ignorant"! I am so tiredof being judged, accused, and denied care. Due to my "All in my head diagnosis" I am now a cripple! In Pain every single minute of every day! This should be criminal! Our State Pharmacist is not too bright! We have a a high rate of Heroin addiction here, it has nothing to do with legitimate pain patients. Heroin is easier to get than pain meds. They won't address allof the negative esocial issues that lead ot addiction or provide treatment. Instead they focus on Legitimate pain patients, low hanging fruit! Causing us unspeakable pain and distress. This would be considered torture in any civilized society, yet every day legitimate patients are denied pain meds. Women and minorities are more likely to be ignored and denied medication!
I have been in pain managment for 10 years and recently the state mandated reduction of the amount of medication (200 mg morphine ) means I am in constant pain. My pain was being controled on my previous amount of meds, now the state says that is too much and so I suffer. My quality of life is just existing. I can no longer do any of the things I enjoy, I rarely leave my house.i have considered moving to a state that at least has an intractable pain law, that actuallt allows its doctors to treat pain.
I do not have pain issues, but my life is still turned upside down by this broken system.Where I live is a drug haven because these people - that's right I actually said people as in humanbeings-have no other real options to treat the pain they live with.It is 2014 and we are acting like it is the middle ages and that no one has enough smarts to take a pill when they need it. This is also happening with other MEDICINE s too.If you have heart problems, diabeaties, and anything real I wish you luck.God be with you all.
No human being should have to suffer from chronic pain through his or her life time nobody knows their pain except the one that's in pain no doctor should have his hands tied as long as he is treating his patient in good Faith.
I have been in pain 15 years.I finally had meds that really helped but they got pulled.I had surgery with the promise my pain would be treated 2 days ago.this morning my doc said to stop taking them.2 days post op and I am setting here crying. I wish I could be healed and if I can not get that then they should put me out of my misery.it's not fair to anyone that takes care of me or my kids that don't have a mom anymore.I hate all these docs and hope and pray they get all the pain that they say we don't have...actually from the dea down to the orderly.I wish all the bad karma you inflict on you. May you get all you deserve.
I just can't believe after being a chronic pain sufferer since 1999 and finally getting a somewhat quality of life and some Faith and confidence in myself that it's all changed and I have no hope anymore and I do believe there will be more deaths from suicide from people tired of being in pain 24/7 than the dumb*****druggies that have put us in this situation that we are in now! Such a TRAVESTY.....it has to change!!!

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