First Do No Harm: The DEA targets Physicians who treat their patients pain.

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Some recent comments: these messages are published with permission of the signer.

Living in constant pain from a degenerative disease makes everyday simple tasks almost unbearable. Things such as showering, dressing preparing meals are difficult. Worse is being treated like a drug addict when all you are doing is trying to maintain some resemblance to a normal life. I don't drink alcohol or do illegal drugs and have been on same dosage for 18 years. Please recognize that lots of people suffer with chronic pain and a lot of us are labeled addicts for simply trying to have a life
I am a 33 year old who is an above knee amputee. The original surgeon messed me up and now have severe nerve damage and bone spurs that continue to grow. My only option is surgery every 6-9 months and pain medication. I was finally getting some relief being prescribed pain medication. I went back to work started feeling almost normal again until my pain management dr decided to cut my medication by more than half because of DEA guidelines. It is a struggle to keep my job with the intense pain I experience and has negatively affected my life by me not being able to do anything after I struggle through work but take off my prosthetic and lay in bed. I feel as if I am not getting pain "management" but withdrawal management. They prescribe be just enough to keep me hooked and coming back to refill but not enough to even take the edge off my pain. I have never taken a pain pill to get "high". I take my meds how they are prescribed but they are loosing their effectiveness. I am going to loose my job and be on government assistance due to the lack of pain management. Is this what the DEA wants? Another free-loader on everyone else? I refuse to be that man. I would rather die than have to accept handouts. I think people who are actually in need of pain medication should join together and file a class action lawsuit against DEA and doctors who refuse to help their patients regain what minimal normalcy they can with pain medication.
i am 60. I have CPS (chronic pain syndrome). I have severe OA throughout my body. I have had to have joint replacement surgery because of OA. Everyday exercise helps...but I live with pain everyday. Without opiod pain medication, my pain would be debilitating. An orthopedic doctor looking at my lumbar MRI this week smugly told me that pain is just part of life and that I just need to get used to it. In an angry tone, he told me that I should not be taking any opioids at all because I would become (or already was) just another addict. He slammed my primarily care physician for giving me Percoset and insinuated that he was probably just a pill pusher). He told me I could do rehab, and walked out.
This is the new face of American medicine. If you suffer from chronic pain, you are shunned by doctors and labeled as a junky. God help those of us with chronic pain, because modern medicine has the ability, but not the desire to control pain. I am sick and tired of doctors abusing sincere patients in pain. I am not just a lumbar spine. I am not just a cervical spine or a hip or a knee. I am not just a collection of body parts with a different medical specialist for each part. I am a person! I am a whole person! I am a human being!
We who suffer are calling out to you for help.
Who do you think you are to put people who live with pain every day to take there pain meds away number one if you are a constant pain patient you need you meds it's ok.what makes it not ok when a doctor retired. Or just stops treating a person that's where the problem come in I am 65 I hurt every day and for you to take away what helps me live a normal life it's wrong it's sad that one person can do this.what needs to be done is quit saying withdraws won't kill you because they can.that's where the schooling needs to be not taking away
I find that the quality of my life has fallen greatly because of physicians relutance, and sometimes refusal, to treat my pain with the proper medications.

They continously prescribe alternative medications which have proved harmful to my system in the past

I was recently berated by a PA who told me that I couldn't come in and attempt to tell them how my health should be managed. This person continued until I was in tears.

I do not "lose medication" and ask for more. I have only once asked for a higher level (5 mgs to 7.5) and after using this medication for a week, asked to be placed back to the lower dosage.

My pain is real, severe and continous. I only ask that I be allowed to control it to a point where I can function on a daily basis.

Before the new laws I actually hardened, golfer and walked about a mile per day. These days because of the extremely limited number of pills allowed, I am lucky to be able to get up, take care of my pets and do minimal housework.

When switched to the alternative drugs before I broke my ankle, the next time I broke my shoulder and I also suffered a mini stroke due to the fact that my body does not respond to these chemical alternatives.

We work our whole lives and now the doctors and our own government wish to take what we have left.
More and more of the elderly are dropping out of society. We no longer want to be with family and friends, we don't participate in activities and we are sinking into deep depression. Our only alternative now is to die and I'm beginning to believe that this is exactly the outcome the government wants.

In pain and in our later years, we should be allowed some comfort and the ability to control the worst of the pain.

Something needs to be done before many of us decide death is best or the alternative medications do it for us.

Thank you.
as many other signers I have osteoarthritis, knee replacement, degenerative disc disease, herniated and calcified discs in lumbar back, lost use of two fingers right hand, cervical arthritis, and new diagnosis of bilateral hip degeneration, no cartilage left on left knee. I had Spurs removed from lumbar spine in 1999 to alleviate nerve pain in sciatic nerve. I have been on pain medication since 1999, never filled early, never doctor shopped, and never abused. The pain medication allow me a minimal amount of normalcy, minimal. I have not been working since 3-16 related to inability to stand greater then one hour, difficulty sitting for any length of time, and spasms. I have been referred to a pain clinic. I asked my PCP about Ohio's new medical marijuana laws and was told in no uncertain terms that he will not be prescribing. Super. 17 years of narcotics have been fine though. I agree we have a horrific problem in the country which WAS CREATED BY PHYSICIANS IN CONJUNCTION WITH THE PHARMACEUTICAL COMPANIES. Now that people are being cut off their solution is heroin and death. Stop abusing the citizens of this country, citizens through no fault of their own developed repetitive motion injuries and hereditary problems by removing their lifelines.
May 5, 2016
lSomeone from Memphis, TN writes:
People will find other means of medication or worse, end their lives because of chronic pain.
SOMEONE FROM SAN JOSE - CONTINUED FROM PREVIOUS POST:.... but over the past 3 wks, all my painful issues have returned, and the gabba isn't helping...neither are the 800 mg Ibuprofin's Kaiser prescribed. Also bad for kidneys on a long-term basis, per another Kaiser physician who warned me earlier this year - not my PCP or Pain Mgmt folks.

SERIOUSLY; this is the solution for me going forward? The past 3 wks I've spent every night lying awake in pain all night; lying around all day -- I understand I needed to stay off ankle so it heals properly but the rest of my unresolved pain issues have remained consistent. I was told I could expect the pain to get "better", i.e., that my brain might be experiencing "hyperalgesia". BS. My pain is exactly the same, in the same places it was BEFORE I started the Oxycontin; i.e., back, knee, arthritis, neck/shoulders, etc. If I am to believe the "hyperalgesia" theory they're hanging their hats on now-a-days, why didn't I experience new pain to random areas of my body? Why ONLY those known areas diagnosed by my doctors therein???

In summation, I am HUGELY concerned about my future health or lack of quality of life. I try to stay positive; I've never abused drugs nor have I ever been an addict. Kaiser knows this. I've passed random urine testing too. WHY SHOULD I BE RECEIVE THIS TYPE OF TREATMENT OR LACK OF PAIN MANAGMENT HELP with what WORKED for me in the past??? I plan on contacting Kaiser's PMP folks on Monday and tell them I continue to suffer with debilitating, unresolved long term pain and ask them to release me back to a PCP who will re-prescribe. WHY should people like me, who have always complied be left with NO workable solution for pain? I also suffer from Fibromyalgia; I have read Opiods are not considered helpful for that disease, but they helped me. I had quality of life; I could help my elderly parents; I could move without feeling the intensity of the pain I suffer with now (typically 7-8 out of 10 every day). That wears your down, physically and emotionally. My legs and body feel so heavy at times, I feel like I've been walking in sand for hours. I just have to go lay down. But these same doctors don't feel I'm disabled....no one willing to write that report either. I guess I should start thinking about other ways to relieve my pain in future? How long do you think people like me, who have always been strong minded, tough and independent can go on, day in and out, like this? BTW it's no 4:29 am and I'm still up, awake - my shoulder joint/neck areas are killing me, the oestoearthritis in my fingers is hurting already; my lower back is seizing up, and soon as I stand up my knee and ankle will plague me with more pain. Maybe I should run out to the liquor store? Even the strongest willed people who have never abused anything can be broken down by this type of constant pain...and for what? Is this what you really want for your senior citizens; the baby boomers who've paid
Those who do not learn from history are doomed to repeat it.

Does anyone remember the 18th Amendment to the Constitution? Prohibition? Because that worked out so well for us.

I am a patient with multiple chronic illnesses which cause intractable pain. I have been on opiate pain medication for 12 years. I take my medication as prescribed. I do not abuse or sell my medication. I use the same Doctor & the same pharmacy every month. But every time I try to pick up my prescriptions, I'm treated as if I'm committing a criminal act.

Every time I leave the house with my prescriptions I risk arrest for possession. Every time I get behind the wheel I can get arrested for driving under the influence.

I am not a criminal. I do not break the law. Neither does my doctor in prescribing these medications.
I have unresolved, long term pain with documented medical diagnosis from Kaiser in Northern CA due to: 1. Total knee replacement 2011, 2, Osteoarthritis 3. Degenerative Disc Disease + Neuropathy in low back 4. 2001 Anterior-Cervical Fusion w/titanium disc surgery which has left me with painful neuropathy across shoulders ever since 5. Scar tissue pain after Breast Cancer Stage IIB partial mastectomy + RAD trtmt, 6. Overuse of Left Shoulder most recently diagnosed + total joint replacement recommended by Board Cert. Ortho Surgeon AND 2 herniated discs in neck (again) from trying to help a family member past year who is non-ambulatory, 180 lbs dead weight, off the floor. I am in constant pain, every single day.
My PC physician put me on Oxycontin in 2011; time-release 20mg x 2 per day. I did experience break through pain, esp. when 10th hour rolled around while I was sleeping at night; pain would wake me up as well as the physical withdrawal symptoms. I explained all this to my PCP; always been honest with him and even voluntarily showed him my Oxy Rx I'd bring with me when I'd see him, so he'd know I was never abusing my pain meds. I'd be scared to death I'd run out and really be up a creek. I've never even thought about abusing them; I'm not interested in getting high...just out of enough pain to have some quality of life and be able to function daily without having to go lay down every few hours in miserable pain.

In March 2016, this PCP suggested, out of blue, it was time I got off the Oxycontins and referred me over to Pain Management Program - he cited the length of time I'd been on them as the reason and assured me he knew I had never abused them. In tears and scared to death, I reluctantly agreed to work the program - I successfully tapered off and took my last Oxy on wk 3. 2 days before I finished I fell (on wet tile floor) and rcv'd my first sprained ankle (at age 60). I had it x-ray'd; looked at by Ortho dr. NO pain pills for me, even though I sat there complaining of HUGE pain; yes, I fell very with leg bent where top of my foot was under me and bruised/skinned on top of foot, clearly. I never called the Pain Mgmnt Folks; I had stopped the pills and I was not able to drive (my right foot unfortunately) to their required 3 wk daily "meetings" where I understood I'd learn new "techniques" to manage my pain, breathing techniques, etc. First they suggested "Effexor" for me - I said no (WAY too many side-effects) and then "Cymbalta" - another no. I'm not willing to destroy either my liver or kidneys because Kaiser thinks it's a better solution. I disagree after reading up on these ridiculous psychotropic poisons. I tapered down with the help of another more common drug I researched online and suggested to them, i.e., gabapentin. That took the edge off the withdrawal symptoms well enough to make it somewhat easy to taper off Oxy's with. I continued taking it as they recommened, for the forseeable future, but over the p
These new rules are forcing good people to suffer and will end up creating a demand for illegal drugs on the street! Way to stop the war on drugs, all you law makers are idiots and should have to suffer a day in my shoes!!!
These new rules are forcing good people to suffer and will end up creating a demand for illegal drugs on the street! Way to stop the war on drugs, all you law makers are idiots and should have to suffer a day in my shoes!!!
You have no idea what it's like till you become consumed with pain that leaves you feeling awful for life my meds. we're taking away bcz the doctor was doing his job but they took away his pain prescription for a year everyone from that office suffered. Maybe the folks that make these laws should walk in our shoes.
This assault on the rights of pain patients to obtain the vital narcotic medications that allow us to live and function as well as possible given our own individual circumstances is a HUGE VIOLATION OF OUR CIVIL RIGHTS AND THE RIGHTS WE ARE ASSURED OF IN THE UNITED STATES CONSTITUTION!!! It is unethical to TORTURE PAIN PATIENTS BY EITHER LIMITING THE DOSAGES THAT CAN BE PRESCRIBED PER PATIENT or by ELIMINATING THESE DRUGS FROM USE BECAUSE A SMALL SEGMENT OF THE POPULATION BECOMES ADDICTED TO THEM!!!! Our pain treatment allow may of us to work and interact with other people and enables us to have a better life than we would have without them. We comply with all the rules and regulations that are set down when these medications are prescribed and are monitored on a monthly basis by a Physician or other Health Care Professional for the duration of our treatment. We sign pain contracts, submit to urine testing. In most States, we are in a computer database to make certain we are not getting prescriptions from more than one pain practice and/or pharmacy. There are also unbreakable prescription bottles with combination lock tops that are available that would also limit the access of these medications to only the patient that they are prescribed for. The use of these bottles is not currently mandated in the United States but it should be. This action along with the other rules currently in place as set up by our pain practitioners would allow another layer of protection for those that ar most vulnerable(children and teens). It is important that we as a compassionate and intelligent society realize that elimination of the use of these drugs for severe pain is not a realistic or needed goal. To even attempt the elimination of these drugs and to let people suffer inChronic undertreated or untreated severe pain is a National Disgrace. The only thing that this will accomplish is an increase in the use and sale of illegal drugs which is already creating a crisis of overdose deaths and deaths due to drugs being combined with other substances to increase the profit margin or even with the intent to inflict harm on people. It is safer for society as a whole if we continue to have our pain treated within the safety of our medical care system. If the USA will be forcing pain patients to take very large risks to treat our pain it would be much safer still to just place this medication on store shelves without any regulation whatsoever. A very limited availability not only increases the HAZARDS OF OBTAINING PAIN TREATMENT ON OUR STREETS but guarantee that the drug cartels and the dealers will soon be getting extremely rich and the healthcare system will be overloaded not only with addiction issues but with the increase in Emergency Room Visits due to tainted drugs. IS THIS REALLY THE BEST WAY TO HANDLE PAIN? I DO NOT THINK SO!!! We need to treat pain effectively and intelligently. This is best done by our doctors that have taken care of us for decades since
Can someone help me find where on "Human Rights Watch.org" is anything that pertains to us? Thanks
I vehemently disagree with the federal regulations, as well as the doctors who agree with the regulations, against legal use of prescription drugs...some of which are not specified as non-narcotic.
People, including the elderly are having their civil and human rights denied. When physicians, nurses, pharmacists, and those without chronic pain make decisions for those who do live in constant pain, it is a criminal violation, and should be treated as such. I believe a class action suit should be filed immediately! We have been publicly humiliated long enough. These regulations are NOT stopping the drug abuse problems we see around the world. They are only abusing the victims.
Decades long sufferer of Fibromyalsia, ruptured discs and bursitis. Pain meds recently cut to nearly nothing and cut abruptly so fighting withdrawls now. We have to fight this insanity. We are not addicts, we have sickness just like MS, diabetes etc...STOP REFUSING OUR MEDICAL CARE it is against our rights.
Someone has now labeled me a drug addict instead of a chronic pain patient. This insanity must stop!! I cannot walk without pain medication--if this ridiculous way of thinking continues, I will soon be an invalid. STOP THE WAR ON PAIN MEDICATION!!!!!
Someone has now labeled me a drug addict instead of a chronic pain patient. This insanity must stop!! I cannot walk without pain medication--if this ridiculous way of thinking continues, I will soon be an invalid. STOP THE WAR ON PAIN MEDICATION!!!!!
I am a Chronic Pain Patient with Degenerative Disc Disease and Cubital Tunnel Syndrome. I'm on Disability due to the above: retired in 2006 from Aviation Engineering, since I was denied Teleworking by my Directorate. I receive a pension from the Office of Personnel Management, as well as Social Security. I'm one of the lucky one's. Congress keeps slipping Bills in, that have been approved, which denies us, as taxpaying Americans to receive the necessary medications, treatments, physical therapy. Our rights to proper medical care, medications, and treatments are getting cut every year, while those of us with private insurance, our premiums go up, and our out of pocket expenses increase. People on the Exchange are getting worse treatment than those on SSD/SSI. I've met my Congressman, written to the "Ways and Means" of my state; in addition the "Ways and Means Congressional Website." Nobody is listening. While Congress see's an increase in pay every year, those of us on benefits see very little of a COLA, some years zero. There are enough Americans with legitimate diagnosis, like me, that are being Discriminated due to our medical conditions, this is out of our control. We are at the mercy of our Pain Management doctor's; which Congress, CDC and Surgeon General are currently attacking, without cause. The numbers they have been given, are over inflated. Chronic Pain Patients take their medications responsibly. All the Government is doing right now, with just this years Bill's that have been passed, is padding the pockets of the Illegal Drug Dealers who sell our medications on the street. More legitimate patients, will eventually be following these illegal routes, if Congress keeps going. Our civil rights, medical rights, are being violated. PITA has the right's for Animal Protection. Patients do not. We are at the mercy of the next Law that Congress passes. This has to stop. The government would have to answer to a Class Action Law Suite; since they answer to little else. There are several places that peopled can go to, email or write a letter in order to petition the courts for a Class Action Law suite against the federal government for this. One is Human Rights Watch the other is the ACLU.
I am an under treated patient that is ignored and shoved to the next pain clinic to be poked and prodded. Listen to your patients!!! I PRAY for death most days because of my pain and loss of strength! It is NO LIFE to live this way.
URGENT!! PAIN WARRIORS IF YOU HAVEN'T SEEN THE MSNBC SPECIAL WITH THE US SURGEON GENERAL AND THEIR FAKE OPIOD EPIDEMIC. I SUGGEST YOU DO! THIS EVIL PERSON WHO CALLS HIMSELF A DR, THE UNITED STATES SURGEON GENERAL FOR GOD SAKE HAS STATED ON NATIONAL TV THAT HE HAS THE POWER TO REMOVE ALL OPIODS AND IS SENDING MILLIONS OF LETTERS OUT TO ALL DOCTORS, DENTISTS, EMERGENCY ROOM, ETC. STATING/WARNING TO NOT PRESCRIBE OPIODS!! PLEASE GO TO FACEBOOK AND SEARCH : US SURGEON GENERAL. THE PAGE WILL COME UP AND PLEASE LEAVE YOUR COMMENTS UNDER HIS PAGE! HE STATES THAT IT IS A FACT OPIODS DO NOT HELP US WHO SUFFER IN CHRONIC PAIN BUT HAS NO EVIDENCE TO BACK IT UP! THERE ARE MILLIONS OF US WHO HAVE BEEN ON OPIODS FOR YEARS WITH SUCCESS! WE MUST STOP THIS PROHIBITION OF OUR LIFE SAVING MEDICATIONS!

YOU CORRUPT POLITICIANS HAVENGONE TO FAR! WE ARE HUMAN BEINGS, LAW ANIDING CITIZENS OF THIS GOD DAM COUNTRY AND WE HAVE HUMAN RIGHTS TO MEDICATION! YOU WILL NOT GET AWAY WITH WHAT YOU ARE DOING! YOUR CONTINUED PROPAGANDA THAT YOU FEED THE PUBLIC WITH YOUR LIES, HOW DO YOU PEOPLE LIVE WITH YOURSELVES!? ACCORDING TO THE CDC TOP TEN CAUSES OF DEATH FOR 2014 , OVERDOSES DONT EVEN MAKE THE TOP TEN, BUT TOBACCO AND ALCOHOL DO!! ALL THE BLOOD ON YOUR HANDS FROM LEGITIMATE PAIN PTS WHO TURNED TO SUICIDE BECAUSE OF YOUR ACTIONS, I HOPE THEIR SOULD HAUNT YOU FOR THE REST OF YOUR LIVES
I'm on SSD. I've had 4 lumbar surgeries and fusion. 2 plates fusion and 8 screws on my cervical spine. Went to pain clinic for injections on lumbar to avoid another lumbar surgery which would include Rods. My family physician and the pain clinic cut me off my medicine abruptly. I'm almost 55 and can barely walk sometimes. This is ridiculous. Why do I get thrown in the same pot as drug addicts? I need an attorney
My nightmare started over 35 yrs ago, maybe more. They have already cut my pain med down to 3 percocets a day, barely touches any pain. But if I complain, well we all know what will happen. I just moved to a new st and my new dr hasn't requested my records yet, it's been a month, he doesn't care, I need those pesky blood tests as I have lots of issues. Already wrote up a list for hubby, so if something happens, he knows who to go after. This is total ********!
Our intelligent educated civilian Doctors do not need a bunch of lackey government losers looking over they're shoulders!
It is unfair to punish people that are in chronic pain, that take their opioid medication responsibly, for the actions of those that do not. This would be akin to taking automobiles away from everyone because of those that drive drunk. It's not fair and it's not right. This needs to change. We are #PatientsNotAddicts and we need to start being treated as such.
The concept of fiduciary duty, if taken seriously as it should, requires physicians to heed this call. Since 2000 the Joint Commission has maintained patients have the right to proper assessment and management of their pain. This should be noncontroversial; it is flat-out unethical conduct which violates the standards of the profession. For those unaware, see the Chin case (California, 1998 or thereabouts) for an example of legal recourse for patients.
This is outrageous! I suffer from multiple myeloma, thyroid cancer, and severe osteoporosis. I suffered a burst fracture in my L2 because my bones are so brittle. My primary care physician retired. I have been on narcotic pain meds for years. Narcotic pain meds give me quality of life that I wouldn't have without them. I would have to give up work. I'd would lose my home, and be unable to provide for me and my children. Now I'm forced to get my meds through other doctors who seem reluctant to give me anything and they make me feel like a common criminal. Doctors are so afraid of the government they just tell patients no. Leaving us who need these types of medications to suffer because of this over reach of government. This disgust me to the core and angers me beyond belief!
Deplorable! I took the young person who I care for who is like a son to me to his new Primary Care Physician today. He has a rare genetic brain disease known as Fahrs Disease, Parkinsons, Gait and Balance Abnormality, Generalized Dystonia throughout his body and he is Autistic. His physician saw that the Neurologist prescribed Hydrocodone for pain and Ativan for anxiety and she blew a gasket! She told this young man that he was going to be a "druggie" and that the medication would cause him to "loose his mind" and he would never be able to walk, etc. The Neurologist obviously thought there was a medical need or he would not have written the prescriptions. The Primary Care Doctor, Ms Lee stated that she refused to write any narcotics for any of her patients as she was not a "pain clinic" and did not want to have any problems with the authorities citing the CDC as one of the authorities she was frightened of having trouble with. I told her we could switch to a different Neurologist but that the other Neurologist had told me that the Primary Care Doctor was suppose to write all prescriptions for the patient. After I told her this is when she told me that it was ok to have 2 Neurologist. Anything was ok as long as she did not have to write Scheduled medication prescriptions. She even had the nerve to tell me that the patient needed "professional" care instead of the care of his Caregiver/Advocate/Friend/Attorney-In-Fact because I dared to stick up for him and his right to be treated with medication that would help his pain and anxiety problems. It is clear to me that this Physician cares more about herself and her medical license than she does for the patients she is treating. She would rather a patient stay in pain and take Tylenol than to have prescription medication IF she is the one who has to write the prescription. This kind of behavior is DEPLORABLE and is causing great harm to patients. I thought Doctors were suppose to help/treat/care not harm, humiliate and horrify patients. Someone please....stop the madness! Scheduled Medication was developed to help those who need it and there is no reason why any person should be forced to suffer in pain when medication exists to treat them.
Obviously this new cdc rule is not the best way to restrict access of prescription pain meds to drug addicts or people taking pills to get high.
I take my meds to survive and function as best I can. With the technology we have today why can't we use it to track people filling scripts to often, from many Drs. Let's use a fingerprint to track them The people such as myself that have obided by every rule happily are the true people being affected.
I have gone to 1 pain management facility, take.regular urine tests to make sure I am Taking all drugs as perscribed aND nit sEllington them or ta king to many. I have has 37 surgeries. Many n knee surgeries aND fin all a toral knée replacementl, 4 back surgeries fusing multiple levels in my low back. 3 surges in 3 weeks because the surgeon gave me a staph infection in my spine around the metal hardware and in the bone as well as placed the metal hardware up against a nerve. I have major scar tissue in my knee and back. I have many herniated or bulging discs even in 3 levels of my neck all causing massive pain. I have been unable to work at all for the last 8 yrs. I suffer from depression because of all of this as well as massive anxiety if I leave the house. I am on a lot of different medication. It took awhile to find out what worked, how often to have certain procedures to help with pain and scar tissue. I am on a pain patch I change every 2 days. I found out instead of a 1 week grace period to pick up I now have 2 days. I went to fill opoid meds and was told I could only get 1/2 the amount I have been taking. The meds I take mean that I can be out of bed for a few hours to hang with my children and grandson. This new law is hurting many people. Even when I see a dentist or any Dr. and they offer me pain meds I refuse only letting my pain management Dr
To be the only dr in charge of pain related meds. I have several other medical condition that are affected by these new rulings. They are hurting the good people. I would like to file some sort of complain or ruling with the many docume, people affected. People needing Marijuana have a card why can't we do something similar. If you are on certain specific meds for a specific amount of time or longer it needs to be from a pain management center that moniters you regularly. We'll have a card with our hard copied scripts with watermark and show id. I think we do most of these steps already. This way it makes it harder for the right group of people. How can we fight back. Soon I'll be to exhausted fighting pain. Please help. I'll do what I can to be heard.
Thanks for reading my long long plea and suggestion.
Lorrie S
Phoenix AZ
This is outrageous! I suffer from multiple myeloma, thyroid cancer, and severe osteoporosis. I suffered a burst fracture in my L2 because my bones are so brittle. My primary care physician retired. I have been on narcotic pain meds for years. Narcotic pain meds give me quality of life that I wouldn't have without them. I would have to give up work. I'd would lose my home, and be unable to provide for me and my children. Now I'm forced to get my meds through other doctors who seem reluctant to give me anything and they make me feel like a common criminal. Doctors are so afraid of the government they just tell patients no. Leaving us who need these types of medications to suffer because of this over reach of government. This disgust me to the core and angers me beyond belief!
I think it is a shame that we are told what we can and can't take.no one knows your pain.i have two chichildren and a single mom I do CNA work where I hhave hurt my back doing my work trying to provide ffor my family.i have also been in two wrecks where I have hurt my knee and kneck.with out my medicine I would not be able to work and provide for me and my kids.there father does not work and I do not get child support.before I was treated for chronic pain I laid on my couch for three months could not get up and cried I was at the point I wanted to kill myself.i have since been able to go back to work and work a full time job.if they keep closing paim clinics down in our area then it just hurts us who really needs it.and plus addicts will always find away to get it some how another.so please as a single mother I beg please help keep the ones who truly need the help of chronic pain management available for us.i don't know what type of situation that can be done but it's not fair to ones who does need it
I'm a person who has a ruptured nerve in my lumbar spine. Scar tissue grows into the rupture. Have had two back surgeries 17 years ago. The second one was to attempt to fix the rupture. The only way I've been able to stay out of the emergency room and live a decent life with moderate pain is by taking time released pain medication.Along with other medications to treat nerve pain,muscle spasms. I see a pain specialist. He is part of a pain treatment group of specialist. I gladly take urine test to prove I don't take any other meds or more then prescribed. None of that matters now. Yesterday he told me I will have to cut my time released pain meds in half .Because of the DEA regulations.I don't know what I'll do. I see the writing on the wall. I can only see horrible unlivable pain in my future. I'm glad my children are now grown so that I will not be a burden to them. The addicts will still be addicts and seek heroin and overdose. We the law abiding citizens in chronic sever pain will pay the price for the addicts.
The changes made to pain management has dramatically affected my life, I suffer day in and day out with severe chronic pain , my pain gets so overwhelming that it effects my quality of life my ability to carry out normal daily activities. I am not the only one that suffers, my family does as well having to watch me live in pain, not be able to get out of bed, do simple daily chores or work or take part in my children's and grandchildren's lives. This has also caused doctors to profile their patients and they are treated unfairly. I don't want to take these drugs but I need them to be able to be somewhat functional in my life. I have had two back surgeries and now have a back fusion and stenosis in the level above my fusion along with other back issues, my pain is real, I can understand if you have no documented or do not have a pain causing illness to be cautious but those of us that do should not have to suffer because of the irresponsible actions of others. I worked hard all my life sometimes having two jobs at a time along with taking care of a family and now that I can't doesn't mean I'm lazy ,a faker, a liar, a drug addict it means I'm in severe pain and I am going to the doctor for help to relieve some of my pain so I can somewhat live my life.
These changes have affected my Quality of Life horribly! I am a tax paying, law abiding citizen that has never caused any problems in my country. Why is it that you have made the choice to take away some of the pain medications I NEED? These changes should NOT affect the chronically ill in any way! I could understand if people who violated the law regarding the medications were affected; but I am NOT one of them! I am not a Junkie or Drug dealer. I am just a CHRONICALLY ILL person and that is verifiable through my medical files. It is wrong that you have taken away the medication I NEED! Now my quality of life is affected in a bad way! Do what's RIGHT-- allow me my RIGHT to the pain medications I NEED!
My voice will be loud and clear until you do! This is just WRONG!
These changes have affected my Quality of Life horribly! I am a tax paying, law abiding citizen that has never caused any problems in my country. Why is it that you have made the choice to take away some of the pain medications I NEED? These changes should NOT affect the chronically ill in any way! I could understand if people who violated the law regarding the medications were affected; but I am NOT one of them! I am not a Junkie or Drug dealer. I am just a CHRONICALLY ILL person and that is verifiable through my medical files. It is wrong that you have taken away the medication I NEED! Now my quality of life is affected in a bad way! Do what's RIGHT-- allow me my RIGHT to the pain medications I NEED!
My voice will be loud and clear until you do! This is just WRONG!
I am a combat-disabled veteran that has broken my back twice, hurt my hip, and has been blown up. Now my doctor has lowered my meds. I am 44 years old and I now have no life. I spend a big portion of my days in pain and in bed. My marriage is suffering as well as not being able to do anything with my child. This insanity should not be happening and it needs to stop. If a doctor feels their patient should have medicine then they should be able to treat them.
I'm sure I'm only one of millions who are victim of the DHE and government overreach. Who is fighting this injustice? Ok so there is a drug epidemic. Who is protecting us? The ones who are actually in pain? My wife is in the close minded damaging care of the neurological community that stereotypes everyone into the same group as "narcotic" medication does not help migraines. Well my wife's are caused by a "mechanical" bone problem that exists in her neck, it's NOT chemical and she has NEVER had a "rebound headache". They have let her scream and writhe for TWO FING DAYS!!! Trying all they're witch doctor remedies that do NOTHING!!! IT IS A CRIME WHAT THE GOVERNMENT HAS DONE HERE!!! They are forcing doctors to do harm every day and trust me as I watch my wife suffer hour after hour, day after wretched day. It's doing harm. Who is fighting for us?
Somewhere in all of the advances through modern medicine, the fact was lost that while our life spans are being extended when they would have been cut much shorter even as recent as 50 years ago, that extension of time left on earth comes at a price that's being ignored! Euthanasia for humans is not legal but would be so much more humane than allowing us to live in excruciating pain daily when there are ways to offer some form of relief to allow us to achieve some sort of quality of life. It's not easy for our loved ones to sit back and watch us in pain every day knowing they cannot do anything about it.
I have had chronic pancreatitis for over 11 years. In that time it has never gone away. My pain meds are the only thing that allows me to live some semblance of a life. Even with my meds I still have pain but I can at least get out of bed. I have been responsible and work closely with my pain mgmt Doctor. Don't punish me because others aren't honest or responsible.
I am a chronic pain patient who was abruptly denied refills on my pain meds. I had to enter a rehab program and have been off opioids for over two years. I also am a medical marijuana patient. The marijuana makes life tolerable, barely. I have been seeing psychotherapists for over two years. I have to talk myself out of suicide daily by deliberately thinking of my grand children. When I was taking opioids my life was not like this, I had a volunteer position, I was able to visit family and do errands. I no longer can do these things. Chronic pain is something that is frustrating because no one believes you. How would you like to spend your life with it just being tolerable?
Each time a bill is introduced it never mentions ensuring people in need of medicine should get it. It's always written with one focus, to restrict. I went 3 years undiagnosed for chronic right side abdominal pain. It was constant scrutiny until a doctor found the crushed nerve at T-10, T-11, and T-12. I take Neurotin and a Narcotic and am always compliant. There is a dark storm for the future where the media has demonized these medications and the patients to the point where people in this country will soon be receiving no medication they need. I take my medicine to be a part of the world not to check out of it. Wait till you or a family member is in chronic pain and they are told to go exercise and take advil. The test to use is the absence of imaging tests, procedures, or physical therapy and a history of pain medication. If you have a history of imaging, visits, procedures, and other treatment then that's someone trying to battle out of pain. Sadly, the only analytic they use is the count of prescriptions. That's a vacuum, look at the whole picture. Doctors went to school for 10 plus years and they are listening to law enforcement officers who got a bachelor degree.
I have been on pain management for about five years. The pain management doctor I go to now, and have been seeing for the past three years, has told me that he HAS to drop my dose of pain medication by 33% because of a letter he received from my insurance company. I have been asking him to raise my dose for two years now because I continue to experience pain to the extent that I am extremely limited in my daily activities.
I went 3 years undiagnosed for chronic right side abdominal pain. It was constant scrutiny until a doctor found the crushed nerve at T-10, T-11, and T-12. I take Neurotin and a Narcotic and am always compliant. There is a dark storm for the future where the media has demonized these medications and the patients to the point where people in this country will soon be receiving no medication they need. I take my medicine to be a part of the world not to check out of it. Wait till you or a family member is in chronic pain and they are told to go exercise and take advil. The test to use is the absence of imaging tests, procedures, or physical therapy and a history of pain medication. If you have a history of imaging, visits, procedures, and other treatment then that's someone trying to battle out of pain. Sadly, the only analytic they use is the count of prescriptions. That's a vacuum, look at the whole picture. Doctors went to school for 10 plus years and they are listening to law enforcement officers who got a bachelor degree.
I went 3 years undiagnosed for chronic right side abdominal pain. It was constant scrutiny until a doctor found the crushed nerve at T-10, T-11, and T-12. I take Neurotin and a Narcotic and am always compliant. There is a dark storm for the future where the media has demonized these medications and the patients to the point where people in this country will soon be receiving no medication they need. I take my medicine to be a part of the world not to check out of it. Wait till you or a family member is in chronic pain and they are told to go exercise and take advil. The test to use is the absence of imaging tests, procedures, or physical therapy and a history of pain medication. If you have a history of imaging, visits, procedures, and other treatment then that's someone trying to battle out of pain. Sadly, the only analytic they use is the count of prescriptions. That's a vacuum, look at the whole picture. Doctors went to school for 10 plus years and they are listening to law enforcement officers who got a bachelor degree.
People (or "Zebras") like me with Ehler's Danlos Syndrome, where there is NO cure or even a true treatment, depend on pain medication for a quality of life. Ehler's Danlos is a connective tissue disorder. It causes severe bone, muscular, and joint pain. We have problems with every system of our body. Some of them are Postural Orthostatic Tachycardia Syndrome, Mast Cell Activation Syndrome, ruptured ligaments and tendons, torn muscles. And with Vascular Type, a death sentence from aneurysm(s). We have EXTREME pain. Ever dislocated a joint? It's painful. Very painful. We deal with that EVERY day. It is hard enough trying to even find a doctor to take on an Ehler's Danlos patient much less having the government breathing down an MD's neck.

Medical Doctors have earned the degree and right to prescribe. Not allowing them to treat the patient accordingly, is causing harm. Their first oath is to cause no harm. They should not be held accountable for someone else's choice to overdose and/or mix those drugs with alcohol and/or illicit drugs. If someone wants to kill themself, they will find a way to do it!! Inadequate pain control will only cause the suicide rate and illicit drug use to go sky high. Being in Uncontrolled chronic pain changes a person. I saw this during my ten plus years practicing as a nurse and now, I see it in myself due to EDS, a horrible genetic condition there is NO cure or treatment for.

I have a feeling this will only cause worsening of the situation. And I can't help but feel there is a bigger agenda here with this being the beginning. I
Workers' Comp patients are denied medications regularly and there's nothing done about it. Our whole system is terribly corrupted and must be made right.
My doctors have defamed me and caused irreparable harm to me and my family and it continues. My doctors don't work for me nor do I pay them so they never listen to me or help me in the way I know they can. They are stuck on THC in my blood test that I did not give them permission to take. Then they use it against me and claim I am selling my Norco on the street. I am an honest hard working man who was making $60,000 per year and had $1,000,000 in assets. Now it is all gone and so is my marriage and family. And I lay here in pain wondering who might help me with my back and neck. Since June of 2010 I have been bedridden and my doctors tell me flat out "what do you want me to do? I don't know what I can do for you. There is nothing I can do for you." Well, I can get that for a lot less money so Kaiser Permanente will no longer be my friend. They will be my enemy by their own doing. Now they will lay in the bed they have made.
I am living in severe chronic pain. The narcotics allow me to have some quality of life. You don't seem to care about anyone but yourself. With you forcing doctors to not prescribe, sufferers like myself will have to make an important decision- "Do we rot away in bed, unable to have some quality of life, do we look for drugs on the street, or do we end life instead of suffering & rotting away needlessly?
My doctors have defamed me and caused irreparable harm to me and my family and it continues. My doctors don't work for me nor do I pay them so they never listen to me or help me in the way I know they can. They are stuck on THC in my blood test that I did not give them permission to take. Then they use it against me and claim I am selling my Norco on the street. I am an honest hard working man who was making $60,000 per year and had $1,000,000 in assets. Now it is all gone and so is my marriage and family. And I lay here in pain wondering who might help me with my back and neck. Since June of 2010 I have been bedridden and my doctors tell me flat out "what do you want me to do? I don't know what I can do for you. There is nothing I can do for you." Well, I can get that for a lot less money so Kaiser Permanente will no longer be my friend. They will be my enemy by their own doing. Now they will lay in the bed they have made.
My chronic pain does not make me a criminal. Washington has no right to get between a patient and their doctor. Stop criminalizing and hurting people who are doing all they can to live a normal life!
My 25 year old son has intractable pain, 24/7 unrelenting, caused by a congenital back problem. He is on opiate pain medications which make his life bearable. He does not get "high" from them, and always takes them as prescribed. They allow him to function better, at least be able to get out of bed. Without treatment for his constant pain, I don't think he would survive.
I have major back pain for 20 + years, Have M.S.for the past 8+ years. I need my pain medication in order to get out of bad each day,.
The Veterans Administration has jumped into the band wagon of not treating their patients who are suffering from chronic pain. It seems their policy fits all pain sufferers when every individuals are different. How can veterans who have suffered so much for this country gets turned away from the very institution that is suppose to take care of them? It is just not right for doctors to stop giving out pain medication cold turkey. This is not right for the physical and mental well being of their patients. We are not all abusers of pain medications and that should be considered in whether to stop or continue the prescription. There has to be a balance. If only it is possible for these doctors and policy makers to suffer the same type of pain we go thru then they will understand our world and not so quick in stopping our pain meds. I just bet that Congress and the rich will have no problem getting their pain meds when they need it while the common people have to suffer this indignity of being labeled an addict before the facts are considered. I just pray that it will not be too late when there is mass suicide of veterans due to this new DEA guidelines being implemented without consideration or exception. This will be on their head.
I tried to end my life and sad to say was unsuccessful.They locked me up and did not really treat my pain.They took my freedom away and lied to me. They said they would find me a pcp and get my pain managed. I'm still in pain they wanted to keep me locked up,treat me like an addict. I have nerve damage I'm in pain denied medical intervention. They did not even clean and address my wounds from my failed attempt. This is not health care this is inhumane. When your in so much pain and no longer want to live your treated like your crazy , guess what , I'm not . I refuse to be treated as an addict, I refuse to be called mentally ill for a physical disability. My constitutional rights are being violated . My human rights are being violated .
I don't have much fight left in me.....being treated like an addict when I've always used my medications responsibly to treat the pain that I'm in.....I don't know what to do any more. The whole pain management situation is so degrading. I spoke up against it, and now I've been cut off. Pray for me.
USA low on opoids after large USA consumption
I never wanted to be a pain patient. I had huge plans for my future. I worked since the age of 13 even though I was born with scoliosis that kept me from being able to participate in school sports/activities. I was a computer network engineer and mother who owned her own business by 24. I was then hit by a drunk driver. Being young and naive I thought I would bounce right back from the whiplash and be fine, never thought it would affect me down the road. IT DID! Now with a failed cervical fusion behind me, left shoulder impingement, carpal tunnel, fibromyalgia, arthritis, an SI tear, disc degeneration, TMJ, migraines.... I have spent at least the past 14 years in pain management. I finally had to quit working in 2010 and just 2 months later my husband broke his back in 3 places while on the job. I was lucky to always have great doctors who kept both me and later my husband as comfortable as we could be. Our most recent doctor was recently shut down (5 days before we were due to see him) for ignoring "guidelines" and continuing to give his patients the best quality of life they could have. I went through the terrible pain and withdrawal of being without my prescribed doses and trying to stretch my meds until I could find a new doctor. I WAS "lucky" enough to finally find a doctor to see me 3 weeks later and was so relieved until he handed me my scripts for 1/6 my dosage of pain meds because that's "all the law allows for anyone not in end of life cancer". What? That isn't the truth. If it were a LAW and not a recommendation then the pharmacy wouldn't fill more and the insurance wouldn't pay for it. Even when I had patient assistance through PURDUE, the drug manufacturer, they would fill 5X more daily dosage and that was only 3 months ago. I get only my ER meds now, nothing for breakthrough pain, only the weakest of the 3 muscle relaxers I was taking (my 2 for bedtime were cut out). My husband is still laying in bed in pain waiting to find a doctor that will treat him. They are telling him he will have to go through an in-patient detox program before they will even see him. He took less medicine than I was on and has had nothing in 2 weeks so how much more detoxed do they want him to be? None if this makes any sense. How can the government get away with scaring our doctors away from treating us like human beings? I am raising my 3yo grandson and trying to take care of my husband who is usually the one taking care of me. I now wake up in the morning (if I sleep at all) and just want to die. That isn't me. I have always enjoyed life, even through the pain. But I can't watch my husband like this and I can't continue with no hope that I will ever get a minutes relief again. Who is allowing all these rules/laws to be made by people with no experience with severe intractable pain? I take my meds responsibly, I don't drink, I have never failed a drug screen, I have never gotten medication that I shouldn't from another doctor, when seeing doctors th
I'm only 23 and have had many accidents, injuries, and illnesses in my life. I never was prescribed pain medication until a year ago following a severe kidney infection and sepsis that occurred at the same time as a mid-back injury. They were giving me Dilaudid in the hospital and it barely quelled the pain. I wasn't even "out of it", in fact, my mother told me I was behaving more normally once they gave it to me. Upon discharge they prescribed 600mg of ibuprofen. Ibuprofen is a NSAID which is known to cause kidney damage, which I did not want any more of. I asked for any other type of pain relief, and they prescribed three days worth of Percocet. Still in extreme pain, I graciously accepted this and was told if I still had pain when the prescription was finished they would prescribe more. Well, three days later on a Sunday evening I'm still in excruciating pain and we return to the hospital, where I explain my situation to the nurse and Doctor. My mother was with me again, and she also had heard my doctor tell me that I could receive additional pain medication. The way the doctor reacted was truly disheartening. You would have thought I was asking him for a prescription to go drown kittens. He told me "You're young. You can't be in that much pain still. Take some Motrin." So I explained again what the other doctor had told me, and also that when I had taken the Motrin/ibuprofen, it actually made the kidney pain much worse. He begrudgingly wrote another three day prescription. Knowing that it would be nearly impossible to get anything more, I had to ration out my supply of medication to one tablet at night so I could get w small amount of sleep. This only made it last for a couple extra days, and I spent the days and nights crying in pain, laid up in bed unable to work and hating every minute of life.

The pain was gradually getting better but I still had flare ups of severe pain. Now, bear in mind that when I was initially hospitalized I was told that if I had waited a couple hours more I could have died. Yet, I walked myself into the emergency room that day and according to the report I was calm at that time. In severe pain. Yes, I have a high pain tolerance. But this doesn't mean that I am not hurting, or even close to dying! The ER Doctor I saw this time was more understanding. Hooked me up with IV fluids for the continued dehydration, nausea medication since I was in so much pain I couldn't eat and felt sick to my stomach, and morphine for the pain. I didn't even fall asleep from the pain medication. After checking my blood and urine, I was told that everything was functioning normally and maybe I was having back pain from the injury prior? He sent me home with a prescription for Tylenol with Codeine. I again had to ration this out to the times I was in so much pain I couldn't even get up.

That was all in June/July last year. In August I went to visit a friend's farm and was thrown off a large horse and landed hard on my back. Didn't
Moreover, this sort of administratively enacted morality based medical care and the rescheduling of painkillers has quietly caused the United States to see a huge surge in haroin use. Then the government acts like they can't figure out why a haroin epidemic kicked off in this Country, right around the time they rescheduled painkillers. It's as if the government prefers to make Mexican Cartels rich, and the population in danger of street drugs; instead of the money going to well regulated, well taxed, and well know pharmaceutical companies from America.

Ultimately, one really must question the true right of any government to tell you what you may or may not put in your body. Telling some one what they may or may not do to or for their own body reeks of Thirteenth Amendment Violations! Ownership is measured by control. That is the legal standard, and has been forever. Now, if the government claims to have a right to control our bodies by penalization of the ingestation of any substance, this does then create a ugly situation whereby the government claims ownership of your body. Ownership of anothers body is unlawful according to the 13th Amendment. At the same time, if a drug were made in a state, and stayed with-in that State the Federal government has can say about it. The idea that a clause designed to make sure that commerce flowed smoothly between the states unimpeded by tax and toll as a product placed into the stream of commerce makes its way from one state to another somehow grants a mythical right to regulate any commerce that has a cumulative-effect on the economy as a whole, is one that is very far fetched and betrays the true purpose of the commerce clause and the reason it exists.
Something has to give, please let our doctors do what they have been trained to do.
After my physian retired from practice I've been in limbo for a year and a half trying to find a Dr to help me.Ive almost given up its disgusting and costly dollar wise and mentally.
Suicide due to real chronic pain should not be the only relief. Doctors should not be threatened for prescribing whatever needs to be prescribed to help their patients live without pain. It's a disgrace to patients with chronic pain.
I have been on pain me for chronic back pain and arthritis plus I have fibromyalgia and anxiety from all the harm the doctors are doing. I'm at my wits end my doctor retired and I can't fins ant pain clinic or doctor to treat me. They won't even talk to me like I'm a human being. My doctor retired because of all this the bureaucratic crap he was at retirement age anyway and decided to just get out of it before they try to come after his license and make him look like a bad guy for treating people like people. I don't know what to do I'm losing all of my pain medication because of Congress I have a two-and-a-half-year-old son that I can't take care of because I can hardly get out of bed without my medication I'm sick and tired of being looked at like I'm a criminal because I want to live and enjoy my life with my children. 5 months ago I was on a regimen that worked very well for me I was up I was mobile I was taking care of my house my kids making dinner on a daily basis taking my son out to play for walks doing everything a good mom should do but because of all these new laws they're taking me off of all of my medications and now I can hardly walk I can't get out of bed most days because when I get up I'm in tears. The last pain doctor I saw told me to go to a methadone clinic for my pain(advanced pain management in beaver dam wisconsin ) everyone knows that methadone clinics do not treat for pain they only treat you if you tell them you're an addict, yes because I've been on my medication for so long I may be addicted yes but I am not an addict I take my medication as prescribed and it has helped me to raise my son for 2 years and now because of all this bureaucracy I have to have nothing and feel miserable and not be able to have any quality of life. This is killing me. When people start committing suicide maybe then they'll realize what they're doing is completely wrong because they're hurting good people people that need this. I've run the gamut I'm a massage therapist I've done physical therapy I have done everything doctors have told me to do and the regimen that I found finally started to work for me I lost 35 pounds in 4 months I was feeling good and now that they're taking me off of my meds I'm just continuing to get worse and worse and there's nowhere for me to go there's no help I'm scared and I'm lost

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