First Do No Harm: The DEA targets Physicians who treat their patients pain.

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Some recent comments: these messages are published with permission of the signer.

Recently,(Today) I found out from my Dr., (who was furious) that Subutex can now only be prescribed for "Pregnancies and Allergic Reaction to Naloxone". I take Subutex for Chronic Pain and have been since the VERY FIRST R&B studies and trials of which I was on. I had adverse reactions to the Naloxone from taking Suboxone on and off.
I have just learned that the "DEA" has stopped Subutex for pain and is enforcing Suboxone upon patients and for me, with no Insurance (and no, "Obamacare" does not cover Buprenorphine) Suboxone is $394 whereas Subutex was $145. This is a malicious move perpetrated by the DEA. I work in IT Security, so via the DarkNet/DarkWeb (whatever U want 2 call it), anything can be bought online and for infinitely so much less expensive. So why does the DEA persist to police our Doctors and the target Buprenorphine? This is a massive redundancy. They likely have an ulterior motive. Probably now that Marijuana decriminalization is widespread, they are trying to drum up work to keep their jobs & continue to fight the "War on Drugs" = War on US Citizens. Either way, I am happy to sign this petition, because the DEA needs to stay out of it altogether. Bottom line, the DEA is unconstitutionally manipulating us, and I do not want another dangerous chemical messing receptors in my brain. It's time to fight the DEA. They are waging war on us, so we must fight back.
I have had 6 surgeries in the past 18 months trying to repair bulging and herniated discs in my neck and lumbar spine. None have bee successful and I am now losing the use of my left arm as a result of the last surgery. I stay in constant pain. I am 63 year old and I am no longer able to work because of the failed surgeries, DJD, Severe arthritis of the spine, spinal stenosis, and radiculopathy. Where I live only the small local owner pharmacies are carrying any form of pain medication. The second notation in the Patients Bill of Rights states that you have the right to have your pain managed. It further states that you have a right to be treated with dignity and respect and not be harassed. All of these rights are being trampled on by our Government because THEY cannot control illegal drug use/abuse. As with most other things in the government today the minority or Americans make decisions for the majority of Americans.
I have had 6 surgeries in the past 18 months trying to repair bulging and herniated discs in my neck and lumbar spine. None have bee successful and I am now losing the use of my left arm as a result of the last surgery. I stay in constant pain. I am 63 year old and I am no longer able to work because of the failed surgeries, DJD, Severe arthritis of the spine, spinal stenosis, and radiculopathy. Where I live only the small local owner pharmacies are carrying any form of pain medication. The second notation in the Patients Bill of Rights states that you have the right to have your pain managed. It further states that you have a right to be treated with dignity and respect and not be harassed. All of these rights are being trampled on by our Government because THEY cannot control illegal drug use/abuse. As with most other things in the government today the minority or Americans make decisions for the majority of Americans.
Recently (Today) found out from my Dr., (who was furious) that Subutex can now only be prescribed for "Pregnancies and Allergic Reaction to Naloxone". I take( nay "took") Subutex for Chronic Pain and have been since the VERY FIRST R&B studies and trials of which I was on. I had adverse reactions to the Naloxone. I just learned that the "DEA" has stopped Subutex for pain and is enforcing Suboxone. For me, with no Insurance (& no, "Obamacare" does not cover Buprenorphine). So Suboxone is $394 whereas Subutex was $145. This is a scam perpetrated by the DEA. I work in IT Security, so via the DarkNet/DarkWeb (whatever U want 2 call it), anything can be bought and for infinitely so much less expensive. So why does the DEA persist to police our Doctors and the target Buprenorphine? They have an interest. Probably now that Marijuana legalization is widespread, they are trying to drum up work to keep their jobs & continue to fight the "War on Drugs" = War on US Citizens. Either way, I am happy to sign this petition, because the DEA needs to stay out of it altogether. Bottom line, the DEA is unconstitutionally manipulating us, and I do not want another dangerous chemical messing receptors in my brain. It's time to DOA the DEA.
I was diagnosed five years ago with severe osteoporosis and osteoarthritis. I was 45. I am also worried about patient rightts to pain management. I have contemplated what I will do when I cannot live on only antiinflammatories and have any quality of life. I need medical help not a mental health therapist. The condition of my bones is equivalent to an 80 year old.
I pray something changes for chronic pain patient rights. I am not optimistic about the poor quality of my life. I never dreamed this would happen.
God bless you all.
Is it to much to ask that my doctor be allowed to treat me with proper medications?
This whole situation is why it is time that "we the people" take back the powers we granted the federal and state governments, kick off the 2nd Continetal Cogress and re-order our democracy. We are at a point where the current government structures have overstepped their responsibility to those they serve - the US citizen. The increase of autoimmune disease (which I suffer from) is so misunderstood that millions of us go undiagnosed for years. Then when we finally get the proper diagnosis we find out that 1. No one really knows that much about them even though several of the top selling drugs are for AD. We have to do are own research due o the current structure of our Heath care system that only focuses on the symptom and medication to suppress them. 2. Pain is frequently a by,product of AD. Nerve pain. So to have any quality of life we have to have pain medicine and for long term - usually the rest of our life. Then because suburban white people are OD on pain meds they illicenty purchased or have turned to herion, the several million of us who need the meds for quality of life cannot get them. Yes there are several chronic diseases that are not cancer and have no cure they are Autoimmune Diseases! 3. And if that ain't enough the link between Autoimmunity and genetics is the crappy proceeded food that is full of sugar , GMO, and other preservatives all approved by the same idiots who are trying to stop millions of people from having a quality of life that is just barely living. I have never seen more propaganda that comes out of the CDC, the DEA, and the FDA to try and cover their tracks of guilt. The war on drugs is a war on humanity pure and simple. You have to be a complete moron and ignorant of history to believe prohibition is the answer. Some people have overdosed on opiods. It's sad. How many have did in the War on drugs since Nixon signed it into law in 1971. How are we doing in this war? It's all about money not logic. Like I said our current government model can no longer handle the needs of the people now. It's time to make sweeping changes now.
PS If you did not know try this on for size. Any one in medicine or the government who says that no one knew of the consequences of potential addiction is a liar. The first drug laws put into place were for morphine. It was mixed with booze and sold as laudlum. A new company called Bayer synthesized a new version of drug from opium. It had no addiction problems and was ready to roll out to the American citizens. Ahh but what to call it? Something catchy like "Herion". That's right herion is a marketing name from Bayer. Unfortunately it turned out to be stronger than methadone and incredibly addicting. This was before the turn of the 20th century. Opium has been used for 15,000 years to relieve pain and even used to subdue an entire nation (Great Britain and China - the opium wars). The effect and addiction have been known.
This is very true and so unfair.Not every person in pain is a drug addict. I do go to a pain clinic and let me tell you; that Dr. Is so hateful. This is why so many people try to get medications other ways.Because if your in pain and there is proof you are in pain (ex-rays MRI etc); it should be easier to receive pain medication.
People including most doctors do not understand the difference between addiction and physical dependency. Often people on prescribed opioids develop a dependency due to many things. Often the dependency occurs due to our own genetic makeup, such as being an ultra rapid metabolized. In my case because of genetics I never should have been prescribed an opioid. The only thing that could happen did happen. I built up a tolerance and because I was left on them for over 8 yrs my body was dependent and my brain receptors will never be the same or recover. Now I will be on methadone for the rest of my life because this is the only way I can have any kind of normal life. Nothing about this is black and white.
There are few people in the medical field who understand the field of addiction, dependency, and pain management. And I most definitely blame the Drs who prescribed dilauded to can ultra rapid metabolized and then turned their back on me.
Shame on all of you in this field!
Because of the Drug wars it cost me my life. The doctors looked at me as drug seeking so I didnt get the proper care I should have. NOONE LISTENED TO ME. when I was telling them there was a problem with the surgery. I know my body. I dont abuse drugs!!!! Get it thought your goddamed head. I only use what I have to get though the day. Noone wants to be on these drugs if you do your nuts. if I could sue all the drug abusers I would do it. I dont care about their rehabilitation. Why you might ask its not because I dont care I do. But I am paying the price with the loss of my life my Job my hobbies traveling and everything else. All because the doctors didnt listen and now your threatening what gets me though the day. Why dont you tell the truth. But the doctors got away with it all of them and You helped them do it. Then can ruin a Taxpayers life his reputation and everything they worked for and they dont have to listen to the person pain. I didnt even get a I am sorry from the doctors that did this. and this is retirement well I want no part of it anymore. I am sick of being in pain everyday.
Ridiculous I am in constant cronic pain and its blatently seen on mri's why, yet I have to deal with drs not wanting to prescribe the only thing that gets me through a day. Every proceder I've had has cause more pain, and the non narctic pain meds are fricken worthless with worse side effects than the hydrocodone.
The restrictions on pain meds are actually hurting the people who need them. Also its clear to see that the restrictions have caused the heroin epidemic to soar. People are losing their lives to try to live with pain. Obviously this is not working!
I was hit by a car in 91, I was 6 years old. I flew 70 ft and landed on asphalt.. I was airlifted to shands hospital in Gainesville Florida.. When I was 11 I started having back pain. I'm now 31, I have osteoarthritis, degenerative disc disease, bulging discs, severe muscle spasms, and hashimotos disease.. The only thing that helps my pain is Valium and it seeing to b impossible to get any help legally so I am forced to self medicate.. It really ercks me that people that have nothing at all wrong with them can get all the meds they want and sell them but yet I am stuck living in constant pain..I wish I could sue these doctors..
Waiting on 2 knee replacements its been months since I heard from my surgeon. I am virtually a prisoner in my own home. No pain meds or not even a return call. Also neck and back surgery. I can barely walk. What can I do?
I have suffered from serious debilitating "intractable" pain from an epidural gone wrong during childbirth. It took years of testing and doctors and specialists to treat my pain. I was hospitalized with my vitals off the charts and they feared I would have a stroke if given imitrex my non narcotic migraine med. The shooting pain down my leg to through my foot and around my toe, takes my breath away and is beyond any most can comprehend.. (we call it dr strangelove) This whole DEA crack down on pain patients is the cruelest abuse in the medical field I have seen! CAUSE NO HARM! That means you don't leave people in pain forced to have injections to avoid narcotics which are invasive and should be last resort as well!!! You are killing people. I believe you don't care at all. I was abused through family court which was systematic abuse as well. We have become a shameful country.
BTW: I own an insurance agency since 1990 so I am no slacker. I did lose most of my business to the 4 year legal debacle in family court and I pretty much GIVE UP! THANKS as I see how little is being done to correct ANY of the harm caused. I request cyanide in our water to just get it over with. What''s it going to take to back the hell off of people with pain that ARE NOT street addicts and want a quality of life? This?
Opioid therapy was the ONLY therapy that worked on my disabled dad, who was unfortunate enough to have a disease that deteriorated his hip joints by the time he was 35. Surgeon botched up on the first one (both sides), which he AGAIN botched the second time. It took 4 years to find another surgeon who would even touch him.

By the time he was 60, he had underwent at least 9 hip surgeries (I lost count after 9) on one side, 2 on the other. Unfortunately, by this time, infection (from the first surgery on) was so deep within his wound, there was nothing they could do. For over 25 years, he was given low dose oxycodone that he could take 4 times a day for the pain. Each surgery he endured, the pain became worse, but thankfully the steady flow of low-dose oxycodone helped lessen his pain.

DEA crackdown (around 2010/2011?) scared all of the doctors in our area, so they quit prescribing them. You see, it was almost impossible to load him into the car on a search for a more compassionate doctor, as each car ride hurt him more and more. The last 5 years of his life was a daily torture. No longer able to get adequate pain relief, his body finally broke down even worse due to the chronic, unrelenting pain in his hips. He became wheelchair bound, high blood pressure, sometimes spiking into extremely dangerous territory (huge stroke risk - due to the pain), severe diabetes (including the nerve pain some experience, along with huge opened wounds on his lower legs), on oxygen 24/7, feet, ankles, and legs swollen 3 times the normal size, taking 19 different medications. With all of those medications, there was not one that helped take the edge off his pain.

I watched my dad have the ability to bathe himself, cook himself a meal, have the ability to roll out to the deck for fresh air, put his shoes on and tie them, change his own clothes, ride in a car (once in a while), spend time with his grandchildren, etc while his pain was controlled by oxycodone. When doctors became too scared to treat his pain with long-term opioid therapy (which was PROVEN BENEFICIAL for HIM), those activities I listed above were no longer an option for him, as he was in severe 24/7 pain and given no relief.

The final straw was the day he was admitted into our local hospital for a week due to the infection set deep within his surgery wound. (This wound now had a drain where for 5 years, it drained - at times - large amounts of green, foul-smelling pus). This was four weeks prior to his death and one week prior to being placed on hospice care. Seeing him lying in the hospital bed, moaning in pain, then hearing the nurse tell my mom, "The doctor does not want to give him anything stronger than what he's getting (tramadol, which was NOT controlling his pain) because he fears he could become addicted," I realized the horrible consequences this "war on opioids" has created for the innocent pain sufferers.

For the last FIVE years of his life, he had NO QUALITY OF LIFE. For FI
In this country people are held accountable for their errors. So why is the CDC, DEA and you scum in Washington not heing held accountable for FALSIFYING THE OVERDOSE DEATHRATES!? The CDC ADMITTED to using FALSE DATA when recording the deaths, FALSE DATA that was made to fit the DEA and governments agenda. You all are accountable for the thousands of deaths by suicide from chronic intractable pain sufferers whose only option YOU gave them was suicide to escape the pain! The CDC, DEA and all of you in government are a DISGRACE to this country! Are you proud of yourselves for the INTENTIONAL HARM, PAIN AND SUFFERING YOU ARE CAUSING INNOCENT LAW ABIDING CITIZENS TO ENDURE!? You all have ZERO rights to dictate to me and the millions more of LEGITIMATE CHRONIC INTRACTABLE PAIN SUFFERERS HOW TO TREAT OUR PAIN! Lumping everyone under two categories, cancer and non cancer pain is barbaric! Each individual has different DEBILITATING CONDITIONS, CONDITIONS THERE IS NO CURE FOR. WE ALL TOLERATE PAIN DIFFERENTLY, WE ALL METABOLATE MEDICATIONS DIFFERENTLY. NOONES BODY IS THE SAME, AND YET YOU ALL FEEL ITS OK TO LIMIT EVERYONE TO THE SAME DOSE. You all are responsible for the heroin epidemic. You all have blood on your hands from the many suicides from innocent law abiding citizens who are chronically ill and had nowhere to turn. It's bad enough to exist in excruciating pain 24/7, on top of it we are stigmatized as addicts, degraded, belittled, treated like criminals because we are chronically ill. I am not responsible for someones kid who CHOSE TO GET HIGH AND ABUSE PILLS, SO WHY THE F*** AM I BEING FORCED BY THE DEA, CDC AND YOU MURDERERS IN GOVERNMENT TO EXIST IN AGONY!?!? What the F*** kind of country are you running here!? NOONE SHOULD HAVE TO EXIST IN AGONY WHEN THERE ARE MEDICATIONS THAT EASE THE PAIN. NOONESHOULD BE SHAMED, NEGLECTED, ABUSED, MISTREATED AND DISCRIMINATED AGAINST BECAUSE THEY HAVE DEBILITATING CONDITIONS, CONDITIONS THERE IS NO CURE FOR AND YET ITS HAPPENING EVERYDAY. YOU ARE FORCING LEGITIMATE PATIENTS TO THE STREETS FOR RELIEF OR WORSE KILLING THEMSELVES DUE TO INADEQUATE PAIN RELIEF!! We, the people of this country have RIGHTS! WE HAVE THE RIGHT TO HEALTHCARE, THE RIGHT TO MEDICINE TO EASE OUR PAIN, THE RIGHT TO PRIVACY, THE RIGHT TO TREAT OUR PAIN ANY WAYWE SEE FIT, THE RIGHT TO BE TREATED WITH DIGNITY AND RESPECT, THE RIGHT TO PURSUE HAPPINESS, JUST TO NAME A FEW. And yet the CDC, DEA and all you a**holes running this country are VIOLATING OUR RIGHTS EVERY DAY! The CDC admitted to using FALSIFIED DATA WHEN RECORDING THE OVERDOSE DEATHS, FALSIFIED STATISTICS THAT WERE MADE TO FIT YOUR ADDICTION DRIVEN AGENDA!! WE ARE NOT ADDICTS, OR PILLSEEKERS, OR JUNKIES. WE ARE LEGITIMATE PATIENTS WITH MEDICAL RECORDS TO BACK UP OUR PAIN!! You all have left LEGITIMATE PATIENTS WITH NOWHERE TO TURN. DOCTORS HAVE TURNED THEIR BACKS ON US IN FEAR OF THE DEA. OUR LIFE SAVING MEDICATIONS HAVE BEEN LOWERED TO INEFFECTIVE DOSES THAT LEAVE US IN AGO
I've been going to to the same PCP for around 5 years. I am disabled. I've lived most of my life batteling severe anxiety, panic attacks, depression, etc. for the last 20 years my lower back has gotten severe. I have herniated discs in l4, l5, DDD, other things that start with an S that I can't recall how they are pronounced. I have strong evidence for all this. Cat scans, MRI's, I've had shots, radio frequency, physical therapy, chiropractic adjustments, deep tissue massages. For years my Dr has been giving me 3 or 4 pain pills a day, and i was receiving 2 0.5mg of Xanax a day. In August I go to my appointment like I do every month and my Dr informed me I had to choose which one of those I wanted to keep cause the Dr said the DEA was making Dr.'s do that cause of so many over doses. I informed my Dr that I was sorry for the people and families that's happened to but how is that my fault? I've passed ALL my drug screens, I do not abuse my meds. My Dr said that is true, she knows I don't abuse my meds but that her hands were tied. I had a couple minutes to decide which one I wanted to keep. Hard decision I had to make. I chose to keep my pain meds. Now I am having a terrible time trying to stop the Xanax. I didn't no how hard that would be. And of course my body is depended on the Xanax also. It's frightening, I tremble & shake, can't sleep, twitch, panic attacks, depression. My disability was largely based on severe anxiety mostly but also chronic pain. I have fibromyalgia & arthritis also. I'm having a hard time without my nerve med. I want them back. This is not right! I think the DEA should lift whatever they have done to make Dr.'s do this. I'm in my mid 50's. All I need is my nerve med back and my quality of life will return back somewhat better. I'm scared every month when I go to the Dr I'm going to lose my pain med next! I didn't receive disability for nothing!!!!
I've had chronic back for three years. I'm had 3 epidural, they sent me to physical theropy twice and both times sent me back to the doctor because they said there was nothing else they could do for me. Been to chiropractors, have nerve studies done in both of my legs which found nothing. They got me on a low dosege of pain killers which half the time they don't help. I'm 35 years old and doctor told I'm to young to have surgery which I don't won't anyway but doctor admits I have fast rapid deteriorating disc in my lower back and it's going to get worse every year. He also told me to get use to pain and deal with it. My legs and feet go numb but they have no answer to why. I'm outta work half of the time, house chores get put on hold and most important, I can't play with my kids. It's physically, mentally draining and very stressful!
Sad day in this world when pain relief is denied bc it would look funny if I wrote a script different then the other patients.. So now doctors classify everyone as having the same pain level... These new laws are affecting everyone who have "TRUE" pain bc they are afraid it will send a flag up to some state agency.... It's a sad day for the people in pain and worse for our healthcare system...
ditto to all these anecdotes describing pain symptoms more desperate and eloquent than my own!!!!!!!!!!!!!! I'm a spiritual AVATAR who advocates for decriminalzing drugs entirely!!!!!!!!!!! it is not a CRIME! at my first opportunity I shall report GOD's view on the subject. the issue is one of society's mores and not one of criminality.
ditto to all these anecdotes describing pain symptoms more desperate and eloquent than my own!!!!!!!!!!!!!! I'm a spiritual AVATAR who advocates for decriminalzing drugs entirely!!!!!!!!!!! it is not a CRIME! at my first opportunity I shall report GOD's view on the subject. the issue is one of society's mores and not one of criminality.
With chronic pancreatitis, adhesions from 7 abdominal surgeries, and lupus I am in desperate need of pain medications. The laws and fear that have been laid upon my doctors has destroyed not just my life but my children's also. How dare you do this to us chronic pain sufferers. Every person in need of pain medication is now labeled a junkie. The embarrassment just having a pain script filled is ridiculous. You have caused the Heroin epidemic and should be held accountable for it.
People, like me, who suffer from Fibromyalgia, are being destroyed physically, mentally, and emotionally by laws that are telling doctors how to treat their patients. You're making them fearful, which denotes the entire purpose for them to be doctors.

Epidurals are considered "pain management", but they are damaging to young women.

Teach doctors to be aware of addictive behavior, but do not tell them how to treat their pain patients. You are affecting the overall quality of life of millions, which leads to surgery, suicide attempts, and sometimes, death by suicide because the pain is so excruciating and no one is willing to treat and help. It's deplorable.
Congress derives its' authority from the consent of We, the People. We have the right to defend ourselves against disease and pain. We do not consent to you, the Congress, limiting our power in any way, shape, or form, to defend our own personal health. Some of us willingly gave our health, and our lives, for this country. That was a gift to the country. It is not a gift to you, the Members o Congress. The fact that some of us gave our lives for the country, is not a declaration that you, the Members of Congress, earned, deserved, or have any reason to demand, that more of our blood be spilled. We do not consent to your Drug War. We do not consent to your attacks on our doctors. We do not consent to your attacks on our right to spend our own money to buy our own medicine to relieve our own pain. We do not consent to you, the Congress, imposing a tax upon any funds we, the people, spend to pay for our health care.
My wifeís plight.

23 years ago in her 20ís got MS, was diagnosed with it about 16 years ago.

15 years ago had a back surgery on L4 - L5, L5 - S1.

Produces kidney stones at least twice a year.

Before and after her back surgery went through physical therapy, tens units, cortisone injections until they no longer helped. Sheís been in chronic pain for years.

She doesnít drink except for rare occasions, doesnít like being stoned or not in control, so no pot or anything else, has been in and out of chronic pain clinics, theyíve stop seeing here because thereís no money to be made on her, she just needs the script filled, due to the cruel treatment and pain standards sheís decided no more procedures until she canít stand the pain and loses to much function in her legs, waist and back to mandate another back surgery.

Theyíve had her on opioids for more than 10 years, she was taking only enough to keep the pain down to 3 Ė 4 pain level until her doctor moved. She never had or wanted enough to get rid of the pain so even when offered to increase the doses she refused knowing over time she would eventually need more and more.

Then the doctor game started, about 4 Ė 5 years ago her doctor moved on, the 1st replacement didnít want to prescribe her normal script, the 2nd one had no problems doing it, but left after a year, the 3rd had issues with prescribing them, the 4th didnít have any issues and even upped the dose until that Doctor moved away.

She has complications about quarterly, something they havenít been able to figure out (of course) but it puts her in major pain, crying, throwing up, not being able to eat, or keep any meds down until we put her in the ER, mind you this has been going on for 3 Ė 4 years. Weíve heard all the seeking meds, in my country people with blown off arms arenít as much of a baby as you and only get Advil, canít give you anything because we canít find anything wrong with you etc.

New Doc wrote meds when he felt like it, holidays she was guaranteed to go without since it wasnít convenient for him, I raised hell, got tired of screwing around and went to the affiliations advocate and got fed full of what I wanted to hear, then that doctor was forced to write the meds on time until we were able to find another replacement doctor.

The latest doctor said we could try this or try that, heíd send her to a specialist neurosurgeon she needed to see in the next two weeks, and she needed to see her MS doctor within X, then come back for another visit in 2 weeks, he had us jumping, seeming like he wanted us to miss just one appointment so he could say we werenít cooperating. I asked what he was going to do about her pain, he got into my face. I was so mellow itís was like it wasnít even me sitting there, I should have beat the crap out of him but I didnít even acknowledge that I was upset, I just kept asking him what he was willing to do, any work arounds that she hasnít tried that can be done to someone with
I stay awake at night pacing the floor or rocking in the bed. I have several conditions with my back. This has not only affected my, it's affected my family and their quality of life. I will not get a nuerostimulator because I do my research and my father also had one in his back that he was lucky to get out. He has irreversible damage from this. From what I read steroid injections aren't even FDA approved. I've been getting them for years and they are hot or miss. . I've tried so many meds besides opioids and all have came with bad side effects. I don't want to have to be like the people who have turned to the streets. I am a law abiding citizen. I shouldn't feel like I'm a burden on society because of my chronic pain. I pray that this ways heavy on your heart and realize you could be in our shoes and I wouldn't wish that on anyone. I think in your study you should be checking how many of the people who overdosed was under care for chronic pain. And herion should not be included in an opioid study. It's time you rethink your approach and stop targeting the ones with chronic pain.
I have had chronic lower back pain and sciatica for 7 years now. I also have DDD, osteoarthritis, stenosis, scoliosis, 3 herniated discs L4, L5 and S1. I have also had both legs and arms go numb with my left arm remaining numb for about a year and a half now. I was initially seeing a chiropractor because I didn't want to start taking pills, but after y months he told me he didn't know why he couldn't get rid of my pain. I went to pull my son's pants up when he was about 2 and I fell on the ground and couldn't get up for about 10 minutes when I finally used my arms to pull myself up to be sitting on my bottom and then pull myself the rest of the way up. I could hardly walk and couldn't even make a move with out screaming in pain. I was referred to an Anesthesiologist after I got my MRI done and He put me on a very low dose of pain medication which didn't even touch my pain. He made me get epidural steroid injections every 3 months charging my insurance $3,000 and my co pay was $300. After doing this for a few years in hopes it would eventually work he ended up getting air in my spinal cord and sent me home with my arms and legs spastically moving uncontrollably for about 5 hours. He called me in a order for Neurontin and told me to drink a lot of caffeine. It finally subsided after 5 to 6 hours. At my next visit he told me he wanted me to get another injection and I told him no way! He asked me why not and I asked him, " don't you remember getting air in my spinal cord ?" He said he never did. I then switched Dr.'s and they tried a different pain medication and it never touched my pain either. I tried to stick it out hoping it would go away, but it kept getting worse. I had completely lost my appetite, lost 50 lbs., was extremely depressed and some days suicidal,because I just wanted the pain to go away. Everytime In would tell the Dr.'s the pain medication wasn't working they would just write me a referral to see a psychiatrist. Well, after being in pain so long and losing 50 lbs. on the verge of getting divorced because In was in so much pain I could not have sex and he thought I was cheating on him lol. I ended up being discriminated at work for taking pain medication and was made fun of for the way I walked and was sent for a drug test which only showed My prescribed medication in it. They turned me into the State of Michigan saying they thought I was a drug addict and they took my nursing license from me saying I could only take Suboxone. My husband and I decided my quality of life was more important than a job. I finally found a Dr. that cared and gave me pain medication that actually worked!!! Only problem now is the medication that works is on back order and they have no idea for how long. I am scared to death it is going to be taken off of the market and then I will be back to square 1. I had to go to and call 200 to 300 pharmacies to get it filled last time and they said they would do it just this 1 time. The last year and a half on this
Sign this form and fight. Let our doctors treat us as they should, not the damn government agency; DEA....The DEA is using a back door and violating our HIPPA rights, a serious violation of our privacy.
The DEA is allowed to view medical records at will without a court ordered subpoena. Our Doctors need the right to treat their patients as they see fit, not the government..
THIS IS RIDICULOUS AND WHY I CANT FIND JUST A FAMILY DOCTOR TO TREAT MY EVERDAY ILLNESSES!! Don't place labels on the individuals who can't help they have chronic pain & definitely don't take our doctors away that give us what little bit of life we get to enjoy when we take our medications.
I was in a car accident 10 years ago. I went to my PCP who put me on pain meds and referred me through 4 doctors totaling 6 epidurals, 2 radial disk blocks, and a spinal lumbar radio frequency neurotomy. Nothing stopped the pain longer than 12-14 days, and was referred to pain management. I had to take narcotics, but at least I lived a normal manageable life. 2 1/2 weeks ago I went to my doctors office and it was closed by the DEA, with no instructions for the many patients, who like myself, were on pain medication for years. This was not some doctor that just took anyone, you had to have your MRI, show your conditions, treatments etc., he was not just writing out scripts for the hell of it. I went into immediate detox, couldn't work, and my boss finally fired me. I had about 10-12 pills left once he was closed and tried to detox as fast as I could, but it wasn't enough. I've now been in the hospital twice with a BP of 165/120 and treated for hypertension, and pain management at the ER. I'm now waiting for a bed to rapidly detox, even though my back pain has never been more excruciating. So thank you DEA for making me lose my job, most likely be evicted shortly, putting me the ER twice for dangerous detox symptoms, as well as being in agony, and now going to DETOX!!! I'm not an ADDICT, I know my body is dependent on this stuff, but I don't take more than was prescribed, even a little less if I didn't need it thank goodness, or I don't even know what I would have done the day you shut down my pain doctors office without having any options such as a temporary doctor to see us. You're disgusting, and your practices are beyond reprehensible. It would be easier for me to go try and find heroine in NY for pain than to get legitimate pain management (no I don't use heroine, I'm making a point). Go back and actually get yourselves dirty with the cartels and street drug war instead of doing the easy thing and just looking at any doctor that prescribes anything scheduled a class III narcotic and below and shutting them down.
Cluster headache sufferer. I want to thank DEA from protecting me from addiction. They have worked around the clock for my protection. My. Dr is afraid to give me the help I need. If I had kidney stones DEA would allow pain relief. But I just have headaches which are non lethal so they can't be that bad. The pain clinic tells me cluster headaches are the worst pain known. I agree. Luckily, DEA has judge my kidney stones treatable and the headaches benign. I thought both were nonlethal. Anyway, at 62 I have a plan. I no longer fear the unknown as it cannot be worse than the present. I do fear the FDA unapproved surgeries that the pain clinic pushes as I am a scientist and have used lab rates and have no desire to be one. I have an option left and DEA has no input on it.
The Fight for my LIFE!
This letter is geared toward pain control for chronic pancreatitis, a disease more painful than cancer. The way I see it, you CDC (and the DEA) are going about this completely backwards. It is NOT the OVER PRESCRIBING that is killing people via overdose. It is the LACK of prescribing the amount needed that sends the very sickest TO THE STREETS to buy them where there IS NO MEDICAL GUIDANCE. YOU are causing this epidemic CDC, right along with the DEA and whoever else is involved in curtailing how much pain medication is allowed to be prescribed and by whom. Most of us have literally boxes of medical documentation for our disease, and pain medication is desperately needed, especially when all other options have been tried and failed.
If you would untie the hands and remove the fear you have instilled in ALL doctors who can help us, it would bring about an incredible gift to our economy. A lot of us may be able to rejoin the workforce and be productive members of society. More money made by more people generates more buying power, thereby doing our part to help keep America healthy. But we can ONLY do that if America will do their part by keeping us healthy. My letter to CDC follows:
Dear CDC:
It's true. I am an addict. I am addicted to tolerable levels of pain 24/7. I am addicted to eating without vomiting and being dropped to my knees in UNBEARABLE pain seconds later. I am addicted to wanting to live the productive life I once led.
Those who suffer from this horrendously cruel, familial (now chronic) Pancreatitis (CP) is LIFE CHANGING! The frustration, tears, fear of the future, and depression that come from a lack of medical knowledge or compassion from the ER Staff, as well as the those organizations placing guidelines as to how much pain we can endure, will be LIFE ENDING for many of us. This I promise you. There is no cure for this chronically painful disease and yes, it can be fatal.
I didn't wake up one morning and decide to have a disease with NO CURE, requiring round the clock pain medication, just so I could present to the ER for a dose of humiliation and personal opinions included in my chart labeling me a drug seeker. These medical records will follow me my entire life and damage any hope I may have had for a better future. This disease CHOSE ME! It chose my son. It chose my family and countless others across the globe born with a mutated gene(s), which is only one cause of Pancreatitis.
When a disease brings thousands of us with debilitating pain to the ER, our family physician, or even our pain management doctors, then you are correct CDC. Better guidelines need to be put in place FOR THE PATIENT, not the doctor and certainly not CDC and the DEA. We DESPERATELY NEED help with pain relief, which has become greater than our home medications can handle! It is this lack of understanding of the disease that causes us to stay home as long as HUMANLY POSSIBLE before having to beg for help.
You know t
Addiction and pain control are two completely different things. Perhaps if the people in charge spoke with people in pain like they were people and not drug seekers or abusers we could get somewhere.
Addiction and chronic pain are two different medical conditions. They need to be viewed and treated separately. The DEA and now the CDC are harming chronic pain patients by treating them as addicts. Also those with addiction are turning to stronger drugs like heroin. Why can't the government see the harm they are doing to everyone?!
I have chronic, intractable migraines. Chronic means 15+ days per month with one (I have 20+ days) and intractable means they don't respond to treatment. I've had them since I was 15, I'm now 49. They became chronic 6 yrs ago. Over the years, I've taken the preventatives, abortives, combinations of all the different types of meds indicated to treat them. Some worked for a while then stopped. Some never worked. I've been poked, prodded, scanned, rayed, infused, and zapped. I have suffered not only the pain, nausea, sensitivities to light, sound, and smells in addition to all the side effects of the meds. I've done massage therapy, meditation, biofeedback, and seen therapists to learn skills to cope with the pain. I don't know from day to day whether I'll be functional or in bed in debilitating pain. I've missed so many days of work, family events, and time spent with friends that I've lost count. I'm left with meds that treat the symptoms (yes, pain meds) and anti-nausea meds. And I'm grateful for them because these at least give me some quality of life. The first I've had in decades. I've been accused of drug seeking by ER doctors when the pain is so bad I can't tolerate it. But I have to go through an agonizing decision process of whether I want to risk being treated like this with nothing being done to help me or to stay home and pray the pain will end someday soon. I'm blessed to have a general practioner for 20+ yrs who has never given up on me and a compassionate pain doctor. Most chronic pain patients aren't so lucky. I've had three neurologists and a headache specialist tell me they don't know what else to do and can no longer see me. It's bad enough that medical science can't help my condition. But it is infuriating that the DEA has a damn thing to do with my medical care. I don't know when it became more important to society to do everything possible to stop ppl from using drugs than having compassion to treat those of us who live with debilitating pain. But it has. And it disgusts me. DEA and the government - get the hell out of my healthcare!!! I promise, you wouldn't be able to function at all if you had to endure what we do. Sometimes I pray that all of you have to endure for one week what we live with daily. I would bet that would change the law and order/fighters of the drug war attitude that has now encompasses us. Leave us out of your fight. We have our own fights to battle.
I have an allergy that causes so much pain that it feels like I am on fire. I was told to go home and it would pass. I would like for everyone who works for the DEA or had anything to do with this go thru the same pain that I have, then maybe something would be done about this.
The Fight for my LIFE!
This letter is geared toward pain control for chronic pancreatitis, a disease more painful than cancer. The way I see it, you CDC (and the DEA) are going about this completely backwards. It is NOT the OVER PRESCRIBING that is killing people via overdose. It is the LACK of prescribing the amount needed that sends the very sickest TO THE STREETS to buy them where there IS NO MEDICAL GUIDANCE. YOU are causing this epidemic CDC, right along with the DEA and whoever else is involved in curtailing how much pain medication is allowed to be prescribed and by whom. Most of us have literally boxes of medical documentation for our disease, and pain medication is desperately needed, especially when all other options have been tried and failed.
If you would untie the hands and remove the fear you have instilled in ALL doctors who can help us, it would bring about an incredible gift to our economy. A lot of us may be able to rejoin the workforce and be productive members of society. More money made by more people generates more buying power, thereby doing our part to help keep America healthy. But we can ONLY do that if America will do their part by keeping us healthy.
Dear CDC:
It's true. I am an addict. I am addicted to tolerable levels of pain 24/7. I am addicted to eating without vomiting and being dropped to my knees in UNBEARABLE pain seconds later. I am addicted to wanting to live the productive life I once led.
Those who suffer from this horrendously cruel, familial (now chronic) Pancreatitis (CP) is LIFE CHANGING! The frustration, tears, fear of the future, and depression that come from a lack of medical knowledge or compassion from the ER Staff, as well as the those organizations placing guidelines as to how much pain we can endure, will be LIFE ENDING for many of us. This I promise you. There is no cure for this chronically painful disease and yes, it can be fatal.
I didn't wake up one morning and decide to have a disease with NO CURE, requiring round the clock pain medication, just so I could present to the ER for a dose of humiliation and personal opinions included in my chart labeling me a drug seeker. These medical records will follow me my entire life and damage any hope I may have had for a better future. This disease CHOSE ME! It chose my son. It chose my family and countless others across the globe born with a mutated gene(s), which is only one cause of Pancreatitis.
When a disease brings thousands of us with debilitating pain to the ER, our family physician, or even our pain management doctors, then you are correct CDC. Better guidelines need to be put in place FOR THE PATIENT, not the doctor and certainly not CDC and the DEA. We DESPERATELY NEED help with pain relief, which has become greater than our home medications can handle! It is this lack of understanding of the disease that causes us to stay home as long as HUMANLY POSSIBLE before having to beg for help.
You know the old saying, "I wouldn't
My wife and I have been shocked, hurt, and demoralized, when we moved to Modoc County and discovered that I could not receive ANY effective pain medication for a 2008 back injury that is well-documented. A doctor I saw only once saw my long hair and my lack of teeth and decided I was a malingerer. When I ordered my medical records so I could go see yet another doctor, I was shocked and hurt at the horrible things he said about me-- all before he ever received my previous records from my doctor in Contra Costa County! The last straw was when he told me he wouldn't even talk to me until I got off the very small amount of methadone I had tried to titrate from. I went from three pills a day (10 mg each) down to a half a pill a day. He refused to even talk to me or prescribe an anti-anxiety med until I got completely off of the methadone for a week. I tried to this but with no pain to take its place I am rack in tears at the end of the night nearly every night! As of this writing, we are still trying to find a doctor who will help me with my chronic pain, which has taken over my life and is having a terrible impact on my quality of life and continues to put enormous strain on my marriage.
The legal system is creating a great injustice to humanity. Those implementing stricter guidelines will one day find themselves on the other side of the coin. In this society we do not treat our dogs like this when they have problems.
It would be funny that judgemental doctors, med schools, pharmacists and the government (DEA) have made the War on (Street) Drugs even tougher by criminalizing and labelling suffering, innocent chronic pain patients. Many become so desperate, they feel their only choices are street drugs, unregulated alternative sources of relief or suicide. What a literal shame. Please show your compassion and integrity and FIX THIS!
The treatment or treating of many common complaints that people see a physician for, in the first place, is the inability to treat the pain or discomfort of the said condition by over-the-counter pain relievers, or remedies themselves. The government should not control our healthcare to the point that it has the right to tell our physicians how to do their jobs. Give Physicians their long-standing right to treat their patients as they see fit. Our first line of defense after the OTC's have failed is none other than our Family Physicians. They KNOW their patients and many have known them their whole lives. Who better than they to decide if we are drug seekers or not.
The treatment or treating of many common complaints that people see a physician for, in the first place, is the inability to treat the pain or discomfort of the said condition by over-the-counter pain relievers, or remedies themselves. The government should not control our healthcare to the point that it has the right to tell our physicians how to do their jobs. Give Physicians their long-standing right to treat their patients as they see fit. Our first line of defense after the OTC's have failed is none other than our Family Physicians. They KNOW their patients and many have known them their whole lives. Who better than they to decide if we are drug seekers or not.
If there's going to be so mnay regulations against things that are abused, by crooks, not all, then why dont they regulate alcohol. Make a rule a person can only purchase 1 small bottle every month. Make them feel crappy when they come to get it. And see how soon it is before they go looking for illegal ways to purchase a bigger bottle. Sounds crazy dont it? And alcohol serves no medicinal good at all! Instead the wrong people drink gallons, get in their cars, and drive drunk. In fact some will cost someone their lives! But is there any strict regulations on the purchase of alcohol? No! I doubt the big wig rule makers, including the governor would want to have to give up his liquor cabinent. Or even beign alloted a cup of alcohol to last for 28 days. People that need medicine that helps them function everyday should not have to be denied just because there are crooks out there will get it illegaly anyway! You're taking away a doctors ability to make judgement calls that might help their patients. Its a shame when there are needle exchanges for heroine addicts that are allowed to still use but those of us who need pain medicine cant be treated without judgement, or treated AT ALL!!! You all really stink sometimes!! Rethink what a mistake these controlling laws are. And the good law abiding people they affect the most!!
If not for opioid medication, I wouldn't be able to go to school or work. It has saved my life.
My husband was taken off his headache medication because he's " too old " . that just don't seen fair
The DEA terrorizes doctors to justify it's existence. This agency serves no useful purpose, and should be defunded and disbanded.
My family suffers in pain daily. No doctor will treat me,but they will bill me. My brother has a ruptured disc in his back ,but doctors won't prescribe more than aleve. Everyone is being punished for the wrong doing of few.
There are millions of people who suffer chronic pain. It is sickening that they suffer because of what drug addicts have done with pain meds. Yes, there is a risk of addiction, albeit very low risk in those seeking meds for pain, but it does come down to quality of life. People in this day and age should not have to suffer a miserable life of constant pain. People looking to get high will always find a way to do so no matter how many rules/regulations they put on pain meds. These rules do nothing but cost a pain patient money, time, and quality of life.
So far I am lucky - my pain management doctor knows that my SCS implant and failed fusion combined with DDD has put me in a place where pain and I will never be separated. And my doctor LISTENS TO ME. Not the DEA or CDC. Please let doctors treat their patients to the best of their ability. Thank you.
It's pretty said when your Chronic Pain doctor tells you he's sorry then gives you the whole spiel about how the DEA.....I hate to say this but if only the people that made this law could come down with severe chronic pain themselves would we then see a change in the law!
Stop the insanity. Patients in pain sometimes need meds.
Doctors who fail to treat chronic pain patients with integrity, compassion and appropriate medication should exit the medical field immediately. #patientsnotaddicts #firstdonoharm
I suffer from C.R.P.S. I have chronic pain daily!!! I am not an addict!!!!!
It's sad that the CDC, FDA, Government classifying people who really live with pain day in and day out and have been on opioids for years and years not just recently. It doesn't take a rocket scientist to see if I am looking at a patient record see what there illness is and see how long they have been on their meds versus a drug addict which probably stole/robbed the opioids in the first place. People think that limiting the prescription from doctors is really going to change the numbers of drug addicts. Drug addicts will find a way no matter what. Leave the chronic pain patients alone and add more service help for the drug addicts and get them the help they need. This is ridiculous.
I've been scrutinized my whole life by doctors that I've seen trying to get some kind of help for my pain. My regular physician won't touch me, but yet he understands I'm in pain and I need help.

I've been seeing a doctor at a pain clinic but I recently moved and had to (try) to find another doctor. I've been waiting for so long to get into another doctor, I've been thinking of just giving up. Why should I care when no one else does? I'm tired of fighting the system. No one understands unless these things happen to them.
Chronic pain affects 100 million people in the US (NIH-IOM). This number doesn't include family members, friends or treating physicians. That is 1 in 3 adults in America ( children & adolescents aren't in that figure either- yes, they also suffer with chronic pain) We are collectively worried about all the rhetoric coming out of the media & agencies concerning access to pain care. Where's the CDC's emergency "guidelines" for access to all forms of pain care for this population? Limits on opioids for pain care only hurts those who live with pain- Addicts will move on to other substances. Addicts seek euphoria, chronic pain patients seek relief (no euphoria involved)😔 Please investigate the data that is being utilized- even the CDC admits that the numbers are double and triple counted making the overdose epidemic appear larger than it is- see CDC site. Medical examiners report patients who have taken their medication as prescribed, but perish from unrelated cause- as being contributed to by opioids- this is misleading and wrong. Secret meetings to establish secret guidelines with secret groups inputs- this is just so wrong 😔
The not knowing that one day my doctor will tell me that she will no longer be able to prescribe pain meds for me is killing me slowly. Two weeks ago for the first time I was treated like a criminal when I called my pharmacy up to ask them a question about my pain meds. This has to stop. :-(
As a chronic pain patient I can relate to this problem. No one should be made to suffer by their doctor being afraid to prescribe narcotics especially when they have extensive records documenting their medical conditions! You can't imagine what its like to be in excruciating pain every single day. How depressing it is, how frustrating that you can't do so many basic things that regular people take for granted. I can't remember what it felt like to NOT have pain. I have a great pain management doctor but even on the strongest drugs it doesn't make the pain gone it just drops it enough to be able to do some things but often after activity there is a backlash and the pain will be worse for a day. Treat patients with compassion, instead of suspicion. Pain contracts and random drug testing combined with diagnostic tests, mri, etc should be more than sufficient to weed out the drug seekers.

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