First Do No Harm: The DEA targets Physicians who treat their patients pain.

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Some recent comments: these messages are published with permission of the signer.

Unintentionally these new regulation are forcing people to suffer terribly.
I believe these new policies are forcing people to street drugs,which is the true problem in the first place.
Treat addition if it's an issue,dobt force harm on the elderly and chronically ill.
I have been in constant pain for over 15 yrs. I've had ulcers, so I am not to take most over the counter pain relief. Being addicted to a pain medicine that helped me would be like being addicted to food. At my age addiction is the least of my worries. I'm much more concerned if I will be able to cook, wash dishes, or vacuum on any given day. I would really like to start to functioning instead of being someone's burden.
I have been diagnosed with fibromyalgia,and arthritis 20 years ago . It all started with a head on collision when I was 21. I am 51 now. I lived with pain most of my life until 7 years ago, pain was too much to bear. I do what my specialist tells me to do, nothing help. He put me on opioids 3 years ago. First I lived with a diagnosis which no one believed and now when it has its own ICD 10 code, you want to take away the only thing that keeps the edge off my pain?. I am a voter, and a tax payer. I am raising 2 children ( i hide my meds, so no one knows I take them). This is so no one takes my prescription pain meds. What you are forcing us to is life of pain, which I do not want to endure.
I am a 57 year old woman and have suffered with Multiple Sclerosis for over seven years now. The best way to describe my pain is to pour gasoline all over your skeletal bones and light them on fire! I started on a low dosage of pain medication due to the fact there is no cure for MS and I didn't want to build up a resistance to a pain medication to soon, the whole time thinking if it gets worse I can increase my pain medicine. Now that the Government has decided to let DEA act as our doctors I am without hope. DEA go out and deal with the drug dealers , go out and do your job but people suffering in need of pain medication from their Doctor is not your area. These Doctors have given much of their life to medical study to practice! It is simply the most ridiculous, dictated law the government has ever come up with! Because some other person either mentally distraught killed them self or a bad criminal apple in the bunch sold his medication I have to live in horrible pain for the rest of my life! So do I kill myself or become the criminal buying my pain medication off the street? All the people that passed this Dictative Judgemental Stupid Law .. I wish my affliction disease that I never would have wished on another soul .. I wish it on you!! I will be the 60 year old grandma you arrest and make the newspapers for drug dealing when I am caught buying them on the street!! I will be the citizen here no one cared about and have to leave the country for medication! Boy was I born in the wrong century , wish I could go buy a bottle of Laudanum from back in the western days!! Oh speaking of that Laudanum sold over the counter ... where were all the druggies then? This is all a bunch of BS and needs to be fixed or I might be one of the pain killer users that you do a study on in 10 years to see how many people decided suicide rather than live in pain! Opiants might cause constipation .. but the law allows 100 different drugs on commercials for heartburn or arthritis that has so many side effects even death, or a drug that 5 or 10 years later they are saying if you have taken this drug please call this lawyer! This better get fixed and fast before the citizens of this country gets fed up!
Suffering or pain should never be a option
Beaurocrats have no rights to tell Doctors how to do their jobs. All of Congress,Senators,Rep...etc. are all insured to the fullest with our Tax Dollars and yet want to regulate Our Country's patients pain meds? This must be stopped in it's tracks NOW!
Please help us who suffer we want to live normal lives without pain!! It's hurts to do anything go to Dr puts you muscle relaxers nothing for pain. Hard to work sleep or do anything! Imagine if you lived with daily pain every move you make hurts.
I've been in fairly severe pain for over 55 years now. It's not about getting "high" at all. It's about quality of life. I take 7.5 mg of hydrocodone as needed for pain. As needed means I go days without taking any, bearing the pain fairly well. As needed means sometimes taking only half a pill, seeing how that half takes the edge off the pain. As needed means taking the other half of that pill, seeing how that works. As needed sometimes means taking a full dose and following that with another full dose only when the prescribed time has elapsed. A good doctor once told me, "If you take pain medicine as prescribed and only when necessary, you will never have problems with addiction." I can go weeks, sometimes a month, between doses, and I've never experienced any withdrawal nor have I ever experienced any craving for the pills. I really don't care for the heavy effects of hydrocodone, but I do appreciate taking the hard edges off the pain so that I can appreciate and participate in life, giving me some quality. To be honest, regulators are making physician prescribed (and monitored) pain medication extraordinarily expensive that heroin is far less costly and, frankly, easier to get. I am physically disabled and am on a fixed income. Law makers are creating new heroin users, benefiting and supporting only criminal drug pushing thugs, effectively removing the physician from the scene. I am not yet at that point, but I am concerned that the lawmakers will force me to that option. What a cruel thing to do to us US citizens.
I have been in pain for twenty years. It has worstened as my health and diagnoses have changed. I originally injured my back on a call as a paramedic. I had spent yrs dealing with the very people that the DEA think that they are stopping, but all that they have and will be doing is hurting those who actually have had their quality of life taken away already. Just as those who choose to use guns illegally, be it as part of a gang or whatever the reason, they will find a gun, and just like up until now, they not once stopped by the police department to say 'just wanna make sure I have all my paperwork on this before I use it', they will never do it the legal way. Thise who abuse drugs will always do it the illegal way. You will still have people breaking into.others homes, going from ER to ER, Dr.to Dr, making it themselves, or buying off the streets. All that you have done is make sure that those who ACTUALLY are suffering from pain and debillitating conditions are made to suffer even more. They are forced to watch from a distance as their children grow.up thinking that they are not important because mom or dad could never lea e the bed or chair to come watch them play football or be in the school play. They also missed graduation, and all the time feeling like a failure for not being there, but what to do? It's not like you ever get any support from these so called Dr's, they never once have said "living with pain is a true and legitimate condition and famies need to support you, and society needs to support you, instead of being conditioned to look at and treat you as a druggy. The DEA has also made it easier for some offices to do like my office, who nust had the owning physician retire, so the other Drs decided to change the way things were done. We were informed that if you have no operable spinal condition, you will no longer receive meds. That was explained to me as if you cannot for some reason receive continued treatments other and in addition to meds, you are out. Broken down they admitted it means you must make money for them to keep you. You must be able.to have regular epidurals, etc that can be claimed in addition on insurance and if you need to talk more than 15 appointment, you must pay for.2, etc. Since I have severe fibromyalgia, diabetic neuropathy, herpatic neuropathy, scoliosis, spondiolysys and a number of other chronic pain conditions, I was told I had to repeat my mri and if there was nothing operable, meaning injections, I would have to come off all meds and no longer be seen. They already know I can't, because as a type 1 unstable diabetic the injections could kill me. I have a heart,/ lung problem that affects O2Sats too. Because I am in such a high level of pain, test proved that the meds did not effect my O2Sats(tthe first thing they wanted to blame, so the first tbey ruled.out) but if im taken off meds after so long tbey can kill me, and there is nothing to stop them. I suppose that shouldnt suprise us since theevel
We're ALL in a very BIG boat here..many of us have been prescribed pain medications for years-even decades..ANYONE can become a chronic pain patient..for me it was a gunshot in 2006,which left me with permanent non-stop chronic pain issues..for over a decade I was/am a perfect patient-went to specialist appts,evaluations,scans,x-rays,phy.therapy,the non-narcotic pain injections(that don't work!)..and for the past 9 years ive needed 300mg(MME) for a decent quality of life..

My doctor was kind about prescribing my two schdule2 medications(one .S.R &one I.R.) My pharmacist always kept my meds in stock and I was managing just fine,(I even had a job!)

Then my old doctor retired.I got sent up to Tucson where I was treated like the lowest form of human trash to ever crawl out of a gutter.Doctors viewed my chart with DISTAIN and CONTEMPT...begrudgingly prescribing me my schedule2 medications-with their own referral(like my condition hasn't been documented enough!)..I go to the specialist in their network (w a family member as a witness)-this QUACK of a doctor looked at the scans/x-rays and said my medical issues "really aren't that bad..and it appears you are on WAAAY too much opoid medication"..so me and my other family member are shaking our heads-"Well..what about the other dozen specialist evaluations we have??They read that this is a SEVERE situation and SUPPORT the opoid therapy??..I flipped open my records book and this doctor/specialist became angry and unstable..she said "Well-YOU are just on too high of an opoid regimen and need to be tapered.Morphine should ONLY be used for end stage cancer or hospice treatment!"...at that point my jaw dropped(Is this lady SERIOUS??)..that's when she leaned down,put her hand on my shoulder and said,"Last year my little brother-only 19yrs old DIED from a morphine overdose..so I refuse to prescribe narcotic medication"...and that's when we stood up,thanked her for her time and left!.. UNBELIEVABLE!!!..just because this doctors teenage "little"brother crushed up 6 M.S.Contin pills and snorted um in some desperate attempt to get high-and fell the f*ck over DEAD-should NOT mean her patients with legit pain issues should all suffer from her bias..because SHE decided w tears rolling down her face while her brother was being lowered 6ft into the ground-that SHE would NEVER prescribe so much as a vicodin EVER-NEVER again..

Thankfully my primary understood and continued to write my 300 MMEs/day so I could have a acceptable quality of life-and for two more years I was in the clear...

Then one sunny morning I go into his office for my once every 90day pain evaluation and I'm asked to sit down for a talk..apparently because of these new "CDC Guidelines" my medications are going to be tapered down from 300MME's/day to 90MME/day"...I took a deep breath and tried not to explode..I said"You mean to tell me the most important meds I need to function are being taken away for NO MEDICAL REASON??"..."Theres nothing I
I am 51 and due to the down market in my area I am forced to take a job on my feet all day, sometimes up to 58 hours a week. My body is being crippled and all my docs want to give me is Motrin, I also have diabetic pain but every doc is afraid to write scripts, in the meantime I feel I'm headed to disability, though was in perfect shape before this job. I just want help so bad.
DEA must need to move Heroine
My 75 year old mother now has to pay 40 dollars instead of 10 to go to a pain clinic to maybe get her 2 pain pills a day and they may not give them to her after 15 years back surgery ect. The cdc and the Dea need to stay out of doctor patients relationship
I'm in total agreement this system is broken. Working in Mental health many years. It's clear who seek and who hurt physically, mentally. Putting pressure on their family because they don't know. I've seen patients turn suicidal thinking that their family would be better off. Then there have been clear cases where some did.
The drug seekers, addicts with no respect nor held responsible for non compliance has caused this. Proper check up and blood work from a physician I agree. Because if you show up with nothing in your system your being prescribed. But test positive for street drugs. Yes you should be discharged.
But when you have innocent real true chronic pain. Specialist trail of notes, doctor appointments still trying to help yourself instead of masking the pain with major drugs.
But let me be clear while you have a compliant patient who comes to the point the pain is too much. HELP THEM. Do not turn your educated brain into a system.
Know the difference. Discharge or refer your non compliance patients to pain management.

This is a personal issue for me. I've seen to much wrongful treatment to good people.
Then I've seen prescriptions go to know non compliant patients.
Sadly the compliant patient catches all the pain of this.
Broken system, that scares the doctors that hold our wellbeing in their hands.
God bless all who truly suffer. I am one who prays for you.
For patients with long term chronic pain, this is a travesty. So the solution is to not give them the medication, which by the way their body NEEDS, and subject them to physical torment. I SEE. Is this NOT the reverse of their Hippocratic Oath? Because as I see it this does the patient HARM.
I am a 61 year old woman, that has had double hip replacements, back surgery, next in line for a knee replacements. My life has been filled with pain for over 30 years, but I have dealt with it as best I could. Recently my whole world has come to a complete stop, as to the fact, people that have no medical training have decided that our Dr's are idiots and can no longer write medication to relieve my pain. I have missed events in my family's life that will never be duplicated because I'm confined to sit and suffer. Bad people i.e. Drug seekers will always find a way to get what they want, even if it means robbing decent people like myself of what little meds we can be given now. Who ever thought that reducing pain medication down to levels that give no relief is a idiot, in what world is this a solution? It just presents more problems!! Decent people are the only ones that this is affecting, because we do not have the energy to drug shop and run around town to find dealers to sell us what we NEED, not want to get a buzz on. If they really want to try and clean something up.. Go after drunk drivers, I'm sure more people are dying from those people on the road than overdose's, why don't you shut down bars, close down liquor stores. If your truly concerned and not just grandstanding on a topic that you know you have sick people that have a harder time fighting back. All I want is my life back and to be as pain free as I was before and I do not believe that is asking to much.
As a chronic pain patient, I don't know where I would be without medication. I still get treated poorly by hospitals and new doctors give a lifted eyebrow but I don't care anymore. I will take medication over being in so much pain that I just want to die. At least, I have some quality of life this way. Thank you.
This is unfair and a great injustice to human beings whom suffer from Fibromyalgia, degeneration joint disease, osteoarthritis, twisted colon and ocular chronic Migraines. I personally am allergic to antiimflammatory drugs not to mention due to Gerd and gastrointestinal disorders I can not take such meds regardless. I have maintained my status of Dr. David Martin's patient in Whiteville, NC since 1998 and he has been the only physician to be able to treat my pain as I hurt somehow somewhere everyday of my miserable life and days I can not walk or get out of bed due to my illnesses. My last appointment I was informed a reduction of my pain medications will begin and did. I was informed I'd have to do this or be referred to a pain management clinic in which I do not know nor trust with my illnesses. In my life I have been sent to physical therapy, prescribed Assistive equipment as in, a tens unit I use frequently already, 2 different canes, 2 different walkers and now a wheelchair. This is not fair to my physician or patients like me whom are my age and my illnesses. I know what cancer is and does as most of us have endured the aftermath mental pain from the loss of loved ones my father had liver cancer passed away in 2008 thus he never required the medications I need to be able to function everyday of my life. He would not have this as he was very loving father and already knew my daily suffering unfortunately. I'm begging in a desperate manner not to allow the enforcement of such restrictions on a physician who has treated their patients in the most appropriate manner as mine ha . It is so unfair, also being told changes to be made on my anxiety medication that is the only source of sleep I do get which is maybe 3 hours at the most with medication as I hurt my body is in pain I wake and have fragmented sleep due to the pain. I know I will not be able to tolerate these changes pressed upon me due to the pressure my physician and many more caring providers. I'm not just a number I'm human. Thank you for allowing me to atleast express my thoughts, feelings no one really understands, and my opinion.
So unfair what dr kostenko is gong through. If a junky wants to abuse drugs they will find a way and do so it don't matter if they are closely monitored or not. What about the pharmacy that filled these peoples scripts looks to me like it would be more on them to catch the problem of seeing more than one dr and getting more than they shouldn
Oxycodone is cheap and it works well, evidently someone isn't getting rich enough. Therefore, let's attack good Americans who need these medications in order to have a semblance of a normal life. We aren't getting "high" or euphoric, but we will fight back as evidenced crom this petition.
I'm 55, for 45 yrs I've suffered with back issues. Did everything to try help..... 4 years ago I started falling. Went to surgeon was told I needed a spinal fusion. I didn't want.back survey but he said it was my only hope. Had the surgery, I'm worse off.
I'm originally from Howell, NJ. Now living in Oklahoma, I had a family Dr for three yrs that worked with me to find the right pain medication that I could take and function. Then the DEA steps in in 2013, have to go to pain management, now mind you. Before my surgery I tried everything.... Shots, tens unit,traction, shock ,chiropractic drs,didn't help.
I've been to a few pain management clinics in Tulsa Oklahoma and have basically been told I need to try the shots,etc.
No, if the would have worked I probably wouldn't of needed surgery. So I've been basically told no shots no pain meds.....
So I guess instead of going to drs we should be seeing the DEA . since they are making it threatening for drs to help.
Every month at my last pain management I was pee tested, fine, thank goodness I have great insurance. I get an itemized bill every month, the test price is almost 500.00..... I've never had a bad test, never had issues with pill counts,it's unreal.
And the kicker is, there are people that I have met that have told me what they get, the amounts etc. And they sell most.... So how in God's name do they do it?.
And I feel like I'm being looked at lime a drug addict because I need one pain script,?????
Those people make it so bad for us,the legitimate patients.....
Well I hope all that read this one day find the help we need....my last visit to the pain management, now mind you I've been going for a year and a half, I've NEVER seen a Dr. Just a PA and because I will not do the shots ( and because of the cage in my back they have to go through my sides) she cut my pill script in half....
!!!!!!!!!!!!!!!!! Uhhhhhhhhh.... Well maybe someone who gives a crap will read our remarks
I should not be treated like a drug addict, I have legitimate pain from a chronic condition. People are committing suicide to escape from the pain they feel. This is not a war on drugs, it's a war against people with pain. This should be illegal.One of the many reasons I am NOT proud to be an American.
I should not be treated like a drug addict, I have legitimate pain from a chronic condition. People are committing suicide to escape from the pain they feel. This is not a war on drugs, it's a war against people with pain. This should be illegal.One of the many reasons I am NOT proud to be an American.
In the last 7 years I have become a Chronic pain patent and 100 % Disabled. I have had 2 Lumbar fusions, Prostate cancer and Pancreatic Cancer and the whipple surgery for it. and 3 Hernia surgery's and continuous blood infections.I can no longer take the pain. I cant stand being treated like a criminal due to the way my pain Dr treats me. He prescribes me scant amounts of meds that barely helps. This is wrong and there should be a law suit against this administration for causing all this discrimination.
I have been in pain for twenty years. It has worstened as my health and diagnoses have changed. I originally injured my back on a call as a paramedic. I had spent yrs dealing with the very people that the DEA think that they are stopping, but all that they have and will be doing is hurting those who actually have had their quality of life taken away already. Just as those who choose to use guns illegally, be it as part of a gang or whatever the reason, they will find a gun, and just like up until now, they not once stopped by the police department to say 'just wanna make sure I have all my paperwork on this before I use it', they will never do it the legal way. Thise who abuse drugs will always do it the illegal way. You will still have people breaking into.others homes, going from ER to ER, Dr.to Dr, making it themselves, or buying off the streets. All that you have done is make sure that those who ACTUALLY are suffering from pain and debillitating conditions are made to suffer even more. They are forced to watch from a distance as their children grow.up thinking that they are not important because mom or dad could never lea e the bed or chair to come watch them play football or be in the school play. They also missed graduation, and all the time feeling like a failure for not being there, but what to do? It's not like you ever get any support from these so called Dr's, they never once have said "living with pain is a true and legitimate condition and famies need to support you, and society needs to support you, instead of being conditioned to look at and treat you as a druggy. The DEA has also made it easier for some offices to do like my office, who nust had the owning physician retire, so the other Drs decided to change the way things were done. We were informed that if you have no operable spinal condition, you will no longer receive meds. That was explained to me as if you cannot for some reason receive continued treatments other and in addition to meds, you are out. Broken down they admitted it means you must make money for them to keep you. You must be able.to have regular epidurals, etc that can be claimed in addition on insurance and if you need to talk more than 15 appointment, you must pay for.2, etc. Since I have severe fibromyalgia, diabetic neuropathy, herpatic neuropathy, scoliosis, spondiolysys and a number of other chronic pain conditions, I was told I had to repeat my mri and if there was nothing operable, meaning injections, I would have to come off all meds and no longer be seen. They already know I can't, because as a type 1 unstable diabetic the injections could kill me. I have a heart,/ lung problem that affects O2Sats too. Because I am in such a high level of pain, test proved that the meds did not effect my O2Sats(tthe first thing they wanted to blame, so the first tbey ruled.out) but if im taken off meds after so long tbey can kill me, and there is nothing to stop them. I suppose that shouldnt suprise us since theevel
I had a spine fusion due to spondylitis. Since then I have suffered from "failed back surgery syndrome" where the joints below or above the fusion have failed and I am in chronic pain. Pain clinics have been useless with their only options of burning nerves and steroid injections. So I have had to go to my surgeon for pain medication as all else are afraid.

It's getting harder to get it filled as pharmacies are also being terrorized by the DEA.

Its truly shameful the way people with chronic pain is treated in America. Shame on the p
I am so frustrated! I have followed every law and regulation to the letter. I have spent my money as asked. I have undergone unnecessary procedures so my insurance gives more money to my doctor, so I can be helped. I have taken off work EVERY MONTH to go to my doctor appointments. My life revolves around the 28 day medication limit. I fear my doctor taking a vacation. I fear a holiday landing on my normal appointment date. I dare not schedule myself any vacation. My doctor has evaluated me, run tests, and determined I need pain medication to be functional in life. Why is the government interfering? They don't know me. They don't have any medical knowledge or experience. All i want is to be able to go to work, do a few house hold chores, maybe go out to dinner occasionally. That's impossible without my medication. This is crazy! I don't know what to do anymore. Please listen to us!
I have had chronic pain and it's difficult for me to find doctors that are willing to prescribe me the medication i need because of the dea and these doctors that are afraid of prescribing me the medication i need and something needs to be done with this problem and these laws this is why there are so many people that are turning to harder drugs that are illegal and that are dying at a young age please do something quickly i don't want to be another statistic ty
I experience first hand the ridiculous reports, and excuses as the doctors wiggle around the real issues and say that pain management is best- when a few have said it's just a way to please several peoples, pharmaceuticals, Insurance, etc. Suicide has gone up, someone seeing the same doctor as me, committed suicide after 10 years of pain and the new "system" or pain management leaving him in agony he ended it. I was in the ER 13 times last year, cause I moved and my preexisting conditions and medications, no doctor would take me. Sent to a shady clinic, no MDs in sight, the MD running the clinic was in Italy. Avoiding discliplinary action, these very inexperienced LVN's put me in the hospital twice. Its been awful, worst nightmare, could have never imagined it could be legal to do any of this, let alone ethical. I'm at a pain clinic as I write this, recently reporting a doctor for inappropriate behaviour, told to probably keep it quiet, waiting for a "meeting" about my care. Please, there's so many who suffer needlessly. Sign and help.
Ive had 2 cervical surgeries, 2 shoulder surgeries, and 5 lumbar surgeries. Ive been on pain meds for 6 years now off and on between surgeries.If I went back to Vanderbilt today they would want to do surgery tomorrow. I have been doing well treating my pain until last month when my pain dr. cut my prescription in almost half.now I have no quality of life.Now I am stuck here in this recliner 24-7.i have 2 boys whom I love very much but now I cannot enjoy anything with them at all.there is not a single second in the day that I am not reminded of my pain.Now my days and nights are filled with thoughts of suicide. If it wasnt for my children I wouldnt be sitting here writing this statement.I just cant do that to them.i love them so much but im afraid one day I will give up the fight and end it.these laws your making are only punishing people who have already been through horrific circumstances. I did not ask to be in this condition.i was in a wreck caused by my employer several years ago. The people who are abusing opiates are always going to get what they want just like the criminals and guns.they will more than likely turn to heroin or something similar. They will find a way to get high one way or the other.But as for me im in a situation where I can not win.i cant get the medicine I need to have any quality of life and I cant turn to anything else because I am drug tested every month.if I do I will lose what little I do get.i cant go to the hospital because they wont do anything but refer me back to my neuro surgeon.my pain dr is not interested in doing anything else for me because hes afraid he will get in trouble.its a real shame that in the blink of an eye so many people are wrote off and cast aside.its a real shame the drs cant do their job for fear of politicians breathing down their necks and dictating the way they do their job.these politicians and the ones making these laws have no clue what they are doing.they have no clue what it means to be in this kind of pain.hell, they dont even have a clue as how to run the country. I pray someone will step up and save us before it is too late.i know in my situation too late could be any day now
What is most destructive is labeling w/anxiety disorder. This allows them to prescribe harmful meds (antidepressants, antiepleptic, anticonvulsants) which in my case, has led to severe side affects including aplastic anemia and prolonged bone marrow dysplasia. Has also led to chronic pancreatitis adversely affected kidneys when they'd already noted hydronephrosis 3 years ago, and now, am reduced to spending most of my time laying down w/only outings being Dr appointments. Why treat patients like this when xrays, mri's, endoscopy and ct scan shows every reason for patients pain? What's worse is that much of these problems can be attributed to meds they've prescibed for example amitrptlyne and klonopin raise cholesterol, they them prescribed simvistatin which caused muscle pain and other very odd symptoms culminating in myocardial infartion! As indicated below, 2011 auto accident caused by a young man more interested in cell phone than paying attention to oncoming traffic, caused more pain and problems to spine than I'd already had due to other accidents caused by unattentive/distracted drivers! People who have chronic pain just want to have decent quality of life!
As a 64 yr old person with multiple disabilities,having had multiple surgeries and living in constant pain , unfortunately requiring medications to enable me to survive my life with a a small amount of quality.
Why in Gods name are seriously ill people being cut off? I do not think we should be punished for those who choose to abuse medications needed for people like myself. Please help!
I can relate to this all to well. It's a shame chronic pain sufferers are treated in this manner. I didn't ask for the auto accident, I didn't ask for chronic pain that limits my daily life, but I am asking for a resolution to manage this pain.
I've been in severe/excruciating pain due to an accident and damage from a surgery for over 20 years and I'm only in my 40's. I'm barely able to function and work but I was able to do it. It was a life and I was grateful for it. Up until 2 weeks ago I've never missed work other than the surgery and time off trying to recover. 2 weeks ago my prescribing doctor stated they no longer prescribe certain medication's because of you worthless jackasses. I've taken these medications for 15 years and I was able to make it through the day and work. I've missed 2 days of work due to severe muscle cramping and spasms so far. I have no paid time off and I'm single with a low paying job. I blame this on you worthless jackasses! I've taken numerous narcotics and a muscle relaxant that made it to where I could barely have a quality life, and by that I mean I work and then go home and lie on the couch or go to sleep. But it was a life and I was able to work and support myself and not go on disability. I guess the government (which is embarrassingly clueless, evil and invasive) thinks it would be better for me to become unemployed and on disability than to take medication as prescribed and that worked. I would give everything I have for each and every one of you that decided on my fate to live the way I have to. You would have put a bullet through your head years ago. I haven't but it's now an option. You are evil. Give me my life back before I take it because of this pain.
Pam no the doctors are the ones asking to take 200 as they feel they are equipped and feel sorry for 101
It would be a further note that now even suboxone doctors are only allowed 100 patients per practice so if you are 101 you will have to find another doctor
I'm 55 years old had to fall over 30 feet broke both legs both ankles hip broke in 4 places numerous metal screws pens crotch shots before dr. put me in pain clinics they were mean gave me too much I didn't ask for it said I had to take it my doctor knows what I need knows how my body isand I think it's unjust to make me go back 2 somewhere that don't care
My daughter has TN and has been in chronic pain for 20 years. She has had 5 brain surgeries and doctors just think she is looking for drugs. It is inconceivable how she is treated when at times she can't tell them because the pain in her head and mouth are so bad she can't talk all she does is stutter. The DEA should be ashamed for how people who are legitimately in pain are treated when they seem quite willing to help heroin addicts, etc. yet people with chronic pain get no help what so ever, they are classified as doctor shopping for pain medication. Her 2 youngest children (now in their 20's have never known their mother in any way put sick, they do not know what a vibrant, wonderful sense of humor, and intelligent person she once was due to her chronic pain and that is extremely sad. WAKE UP DEA AND HELP THE PEOPLE WHO DESPERATELY NEED YOUR HELP.
I have lived with chronic pain for 7 years now and have been treated after trying several drugs with opioids. They do no completely take away my pain but they do help me to do every day tasks that I would not otherwise be able to do and I am able to raise my children. I have been on the same drug for pain for 5 years with no change in the number of pills or the milligrams that I take because I am a chronic pain patient and I am not out to get high so the's actually work for me and for my fibromyalgia pain, degenerative disc disease pain, and rheumatoid arthritis pain. I should be given a choice. I would rather take a risk on the opioids affecting my health as I grow older and be able to raise my children rather than to have my children watch me suffer in pain and unable to get out of bed. My children should not be made to care for me because of beaurocrats and drug addicts. It doesn't help to take opioids out of the picture, if they want to get high they will find something else to get high. You think that your heroin epidemic is bad now wait until you take the rights away from pain patients you will see a bigger epidemic. You give heroin addicts help by supplying a place for them to shoot up and a place for them to get clean needles, so you condone this but refuse to let a chronic pain patient get what helps them. This sickens me.
There are some people that need pain meds,such as myself. I took myself off of them 10 yrs ago,thinking it would be better for me. I do have several different ailments and disorders that cause me so much pain. I thought I could make it through. I can't find a physician that will even see me.I can't get out of my mouth trying to make such appointment, before theyou rattle off -- We won't be able to give you that. I ask if I can see a doctor, and that dr can make suggestions for physicians that might be helpful in each area. I still get turned down, to even be seen. Some of us really need it.We need drs in each area,if that helps.But,physicians leaving patients without telling them they aren't going to see you any longer is much more dangerous to a patient, by leaving them scared even,as to how they can find a physician that cares and will take the time to properly treat their patients and even save lives in some cases,depending on the patient and the medication. Please help us, and rethink about patients. I've endured so many things and I need to at least have a proper physician givING a thorough exam and referrals,if needed.
After many years of trial and error a wonderful pain specialist found the right combination of medications that allow me to function in an almost normal life. It's been 20+ yrs and now all of a sudden they are trying to take it away from me. I've done everything they have ever asked, not ever strayed from the rules and never increased my dosage. What gives them the right to discriminate and treat us like drug addicts, just because we have a medical problem???it isn't fair, it isn't right or moral, and too many are suffering because of the stigma!
Thank you for bringing it out in the open!
Keep up the good work!
My letter below got cut off, here is the rest of what I wrote but didn't print when submitted; ...Get this thing back on track. Let the doctors get back to doctoring and let those who suffer daily from chronic pain get back to trying to making it through another day. I personally am not a chronic pain patient, but I am the caregiver of someone who is. The perception of patient's who are prescribed opiates by the healthy public is grossly out of line with what is reality. Most people have absolutely no clue what someone who suffers from chronic pain must deal with every hour, of every day. Handcuffing a pain management doctor is morally wrong. It even criminal, in my opinion. We don't let terminally ill patient's suffer with pain; why should it be different for those who are not? Please answer that question for me.
To those who make decisions and laws that affect the lives of people who suffer from chronic pain, specifically regarding prescription medications, please listen and hear from those of us who are writing and petitioning. Please use some common sense when considering any changes that negatively impact the lives of those who are suffering, and also of those who love them. Be thankful that you are not among the millions who struggle to make it through each day. Those who battle with depression as a direct result of chronic pain. Those who simply want to function and participate in life as much as possible, but are being punished because of careless individuals who misuse medications and illicit drugs. Those who make and change laws regarding prescription medications, especially opiates, need to give the authority back to the prescribing physicians as to who they write pain management prescriptions for, what drugs to prescribe, and what therapeutic dosing is required for pain relief, without fear of repercussion from doing so. There is a drug problem in the US, and abroad. It will always be that way. Some people choose to use drugs who have no business in doing so. Some of them will die as a result of overdose. That result, though unfortunate, has nothing whatsoever to do with the people who are in pain, and need strong medicine to give them a fighting chance at making it through another day. Those who need these medications are not getting high on them. Ask them - they will tell you. There is no buzz associated with these medications for those who are in serious pain. The buzz is attained when an individual who is not in pain, takes the medications you are trying to take away. The issue is not the medication. The issue is the irresponsible behavior of some. Do not punish the doctors who have a responsibility to improve the lives of those who are ill. Do not punish the patient's who have no shot at pain relief without proper doses of opiate medications. Let the doctors do their jobs, they are quite good at it! They know how much medication their patient can take without dying as a result of taking it. Do not regulate or otherwise try to control how much medicine a doctor can prescribe, or a patient can take, based on overdose deaths in society. When used properly and as prescribed, powerful painkilling medicines will not likely kill the patient, as the physician monitors each patient on a monthly basis. Give the chronic pain patients what they need to survive. Give the doctors the tools they need to do their jobs. It is very simple, actually. As for the problem with the people dying from these same medications, I can only say that that is a separate issue, and it needs to be addressed. Just don't punish honest and responsible people in the process of addressing the problems of those who are not responsible. There are consequences for every action and inaction. Get this thing back on track. Let the doctors get back to doctoring and let those who suffe
This subject makes me furious. I have had Atypical Trigeminal Neuralgia (TN2), along with regular (well nothing's regular about TN) Trigeminal jolts & zaps & a myriad of other problems as well. I had a 2nd MVD craniotomy and got the complications that they told me not to worry about, 'only .02% of patients have ever gotten these complications'. I am in so much pain everyday that I am pretty much confined to bed bc it hurts my face & head to even walk.. It's been 21 years now. And I read so many letters of people who have awful pain as well. I had finally found a good pain Dr who didn't mind that I didn't get expensive injections (tried them, tried everything - 7 brain surgeries), I just needed him to try to understand what I was going thru with the "suicide disease" as it had been nicknamed long before I knew anything about it. He did what I asked & wasn't afraid to prescribe opioids to help take the edge off. He has been my pain Dr for the last ten years. I followed the rules, never had a problem with him at all, he had unscheduled urine tests, which I thought was responsible of him. Then new DEA guidelines came out here in Ohio, I guess everywhere else too?? At first nothing was said to me. Then we decided to move to KY to be nearer to our grandson. The minute we mentioned this to the girl at the counter where you schedule your next appt & get your scripts, all the nurses & receptionists in that front office came running over to us to say, almost in unison, "you can't be our patient anymore, it's now illegal to carry opioid prescriptions or the pills across state lines!" Two or three nurses came around to us & escorted us to the door, pushing the whole way. And that's when I understood just how scared my pain Dr (who was conveniently absent during this humiliating ordeal) was about the DEA & my meds. I don't know what he would have done if we hadn't moved. We moved back to OH after about 8 mths, I love my son & grandson who moved down there with his wife, but I missed my other 4 kids something terrible, esp my only daughter. She's with me everyday now, taking care of me.
So now that I've had a new pain Dr in Ky & I have a new one now that I'm back in OH who is so conservative & I am always in excruciating pain - I've started to stutter bc my mouth hurts so bad, inside & out. I will probably get accused of Dr shopping or I would try someone else.
HEY DEA DO YOUR JOB & GET THE HEROIN & COCAINE ADDICTS/DEALERS OFF THE STREETS!! LET THE PAIN DOCTORS WHO ARE TRUE PAIN DRS DO THEIR JOBS!! Sorry this is so long, I'm passionate about this problem!!
Kelley B. Cincinnati, OH
I am a LTDU according to the definition. At 12 I was involved in a serious roll over car accident followed by several my car accidents. March 20, 1990 was dragged thru an intersection and dragged by the vehicle for at least 65 feet on back and head. Chronic pain along with debilitating migraine headaches have been my constant companions with only relief found with marijuana (legal MMJ patient in AZ) along with muscle relaxers & narcotics. I am the only one that has reduced prescription drug use going from almost 500 Vicodin per month to about 120 but now because of legal MMJ use in AZ I am considered a drug addict. I have found using both MMJ and pain meds is the most effective treatment of my pain. Thought I could finally enjoy my life with less pain but then was told I am an illicit street drug user and that "using cannabis along with narcotics will kill you" Prescription drugs kill over 19 minutes last I checled statistics but cannabis never has, in 10,000 years not one documented case. I went to another DR after being with same practice for most of the 30 years been in AZ. He prescribed me not even three weeks of meds, I knew that I better start weening off these meds to reduce the inevitable withdrawal after 30 years on them. Not one time did a doctor or assistant suggest how to address tbe situation just how their policy prevents them from treating my pain since use MMJ. Sent to another Pain clinic, provided history and signed requests for medical records to be sent but today after 6 mos at dr and se eral at pain clinic found they only have one year of records. I have told all Dr.s I have records for last 7 years but none would accept them and apparently never read through the year of records they did have. I say apparently because I have been given meds that have side effects no Dr zhould ever prescribe a patient like me. I also suffer from PTSD after my husbands suicide in 08 so prescribing drugs such as Gralise that can cause depression or suicidal thoughts seems like the opposite of best for me. Lorzone was another one was given after stating stomach issues but yet no prescription such as Imeprozole (spelling) to combat the common side effect of naseau, vomiting and stomach pain. Sent for MRI'S & Xrays to screen me for being candidate fir steroid injections. I had steroid injections for 11 years until they were no longer effective leading to back surgery in 2011. Yesterday went to this pain clinic, to find was seeing a PA who informed me of reason they ordered MRI'S. Said they stopped being effective 5 years ago and was told they had just wanted current images. She read over the radiologists reports that stated L5S1 disc was bulging along with bulge on L4S1....interesting since the L5S1 was replaced with a plastic materiel where my disc had been, how can the plastic bulge and how can a radiologist not see (MRI with and without contrast along with Xrays) that one disc is natural L4S1, and one is plastic? The PA then says "you have had su
I am disabled from my injuries for life. I suffer from chronic pain. I was on the same dose for five years, 40 mgs day, I could function and enjoy my life as much as I could using cane, walker an be wheelchair. Now my pain Dr cut it in half I went through withdrawals and currently had heart attack and high blood pressure due to pain. I can no longer walk to restroom from living room without buckling from pain . I am depressed and don't want to be around anyone at all because I'm in so much pain. I understand there are people who abuse drugs. But cutting chronic pain patients down or off is inhumain! You are starting something you have no idea. There will be more people drinking, using illegal drugs coming from South of the border with tons more deaths due to overdoses not including the thousands who commit suicide! I admit there no reason to be alive if I can't move, walk and do normal things like walk to bathroom is rather die than cause my family more problems. These people deaths will be on your hands. There are way more deaths from alcohol and illegal drug use a month than overdoses of chronic pain pts! You should leave current pain pts on dose they're on and start petiole on lower dose to start.
I pray with all my heart you never have to watch a family member cry and not live life from pain. I pray you do though so you understand what you've done and I pray your Dr tells you deal with it.... You are not worthy of living a close to normal life. ... I agree that something needs done on this subject of people just wanting to get high. But this is not the way to do it at all.
I am livid! This is not about me, ive written plenty of times about the hell I have been forced into. This is about my brother, who has had five major back surgeries since December, got MRSA from the first surgery, that was caused by an incompetent surgeon who did not close him up properly. Ive watched my brother be tortured by the PA who had to pack and unpack the huge hole that my brother had in his back. I see how mich pain he is in, his back looks like a railroad track..His surgeon has been very neglectful these past few months, trying to get rid of my brother as the insurance money ran out, is pushing him out the door to a pain dr. Well he went today to the pain dr referred to him. This dr wants to lower his meds way more than half, allowing him 15 mgs!!! hes on 30mgs four times a day! The 30mgs has allowed him to get out of the house, maybe get a haircut, take a shower, walk his dog. and most importantly it LESSENED HIS PAIN AND GAVE HIM QUALITY OF LIFE! The pain dr told him he had two options, either go down to just 15 mgs or go on suboxone! HE IS NOT AN ADDICT! Suboxone, another opiod that relieves withdrawal, does nothing for the amount of pain my brother is in, and myself as well. SO IS THIS WHAT YOU CORRUPT PEN PUSHERS ARE DOING TO LEGITIMATE CHRONIC INTRACTABLE PAIN PATIENTS!? IS THE PLAN TO GET US ALL OFF OPIODS AND ADDICTED TO SUBOXONE B/C DR KOLODNY WHO OWNS THE PHOENIX HOUSE DETOX CTRS SAYS SUBOXONE IS ACCEPTABLE TO BE ON FOR VERY LONG PERIODS OF TIME, ITS ALL ABOUT THE DAM $$$ LAWMAKERS WANT A DR TO BE ABLE TO HANDLE 200 SUBOXONE PATIENTS INSTEAD OF 100. ARE YOU PREPARING FOR THE MAD RUSH OF MILLIONS OF CHRONIC PAIN PTS WHO YOU ARE FORCING TO DETOX AND IGNORE THEIR SEVERE PAIN!!! THIS IS A VIOLATION OF OUR RIGHTS! WE HAVE THE RIGHT TO TREAT OUR CONDITIONS AND THE TREATMENT OPTIONS SHOULD STAY BETWEEN A DR AND A PATIENT. YOU ALL CONSTANTLY THROW ADDICTION EVERYWHERE, THE NEWS, TV, NEWSPAPERS, ETC, AND YET NOONE IS STANDING BY THE THOUSANDS AND THOUSANDS OF LIVES LOST DUE TO CHRONIC PAIN AND PEOPLE KILLING THEMSELVES TO ESCAPE IT, YOU HAVE THOSE DEATHS LABELED AS OVERDOSES THOUGH. SHAME THE HELL ON ALL OF YOU! WAKE UP! HEROIN IS KILLING PEOPLE, ITS COMING IN FROM THE BORDERS, THE DEA DOESN'T STOP IT, AND WHY IS THAT!? MAYBE IF THEY TARGETED THE CARTEL LIKE THEY ARE TARGETING INNOCENT LAW ABIDING CHRONICALLY ILL PEOPLE, THE HEROIN DEATHS WOULD DIMINISH, BUT NO THE DEA CONTINUES TO RAID OUR DRS OFFICES, TREAT OUR DRS LIKE DEALERS AND US LEGITIMATE PAIN PTS AS ADDICTS. TWO WORDS TO ALL OF YOU F*** OFF!
I have had rheumatoid arthritis for 33 years. I have had multiple surgeries, replacing joints and ruptured tendons. Since this law has passed regarding hydrocodone, I feel like a drug addict. My primary doctor will prescribe 60/month. I cannot have a new prescription before the 30 day mark. Some days I need 3 hydrocodone in order to function. Any activities will cause pain and the only thing that will help is hydrocodone. I am 60 years old and thinking about trying to buy pain medicine on the street. This is what this new law has resorted me to. Very sad indeed. I do not abuse this medicine. I take as needed in order to function.
My chronic low back pain and sciatica is unbearable without pain medication that I have been on for years. I am on a very low dose and just 2 pills a day. This alleviates my pain probably 50% daily, which is a huge success, and lets me physically function and perform normal daily activities and chores around the home, being on disability. This monthly weaning, total elimination. of all pain medicine is unethical and beyond heartless. Please do not make doctors stop prescribing these meds, just implement urine testing to make sure patient's are taking their medicine and also adjust doses to exceptable amounts. Do not throw the baby out with the bathwater, so to speak for those of us playing by the rules and living in chronic pain. Time is of the essance, thank you.
My chronic low back pain and sciatica is unbearable without pain medication that I have been on for years. I am on a very low dose and just 2 pills a day. This alleviates my pain probably 50% daily, which is a huge success, and lets me physically function and perform normal daily activities and chores around the home, being on disability. This monthly weaning, total elimination. of all pain medicine is unethical and beyond heartless. Please do not make doctors stop prescribing these meds, just implement urine testing to make sure patient's are taking their medicine and also adjust doses to exceptable amounts. Do not throw the baby out with the bathwater, so to speak for those of us playing by the rules and living in chronic pain. Time is of the essance, thank you.
If it were the people that are making these rules that were in pain, They would do anything to stop it. People who have medical conditions that cause severe pain are being penalized for something they cannot help, ya that's really fair. What if it were you, how would you feel?
I signed a chronic pain management contract 20 years ago and have been comletely compliant to my end of contract and was told I would be on oxycontin for rest of my life, and I am legitimately allergic to Nsaidsand now my dr. of oer 10 years said I will give you your pain meds for 3 months then your on your own. I had no quality of life when they started me on meds and I have degenerative issues, How is that do no harm as they say. I wonder if life will be worth living. Shame on all of them!!!
I am writing on behalf of my mom, who I have watched suffer with multiple debilitating incurable conditions for ten years. Over the course of ten years, she has tried everything to lessen the severe pain and be a part of life. I've watched her go thru very painful epidurals which always intensified her pain, never lessened it, she's been thru years of PT, massage, chiro, accupuncture,nerves burned, steriods, facet and trigger point injections, nerves blocked, and the worse came when she had her second FAILED spinal fusions that left her with severe nerve damage. My mom use to be so happy, fun to be around, enjoyed working out in her garden, She use to have all ththe nieces and nephews, my cousins, come spend many sleepovers at our house, always putting the kids first, always wanting to create memories. She use to love photography and making wreaths. Ive watched my mom go from someone who gave 100% in whatever she did, to someone who can no longer leave the house, she has become bedridden. It's killing me to see her in so much pain. How can you people running this country get away with torturing my mom and many many more just like her. !! She deserves to be treated with respect and dignity, instead when I go to her pain dr appts, she is NEGLECTED, and DEGRADED, she always brings up to the dr how her health is rapidly deteriorating since her dr lowered her meds to INEFFECTIVE doses. He continues to say "his hands are tied" how is it that a chronic pain pt who has been on the same stable dose for eight years, has followed the rules, has been mistreated more times than I can count, has been discriminated against, is treated like some pill seeking junkie,,to going to having her meds lowered more than half, leaving her in excruciating daily pain!! Her dr thinks waiting eight hours to take a pill will be just fine. THAT IS NOT THE CASE! When she use to take her meds every four hours she was a functioning member of society. I miss my mom, I can't stand to see her suffer anymore, the dea and governments war on drugs is really a war against innocent law abiding citizens who are chronically ill, I will fight for my mom and her right to pain medication and the doses that worked for her. Treating patients the same across the board is unacceptable! My mom has spoken of taking her life, to end her suffering. How would you feel if your mom was suffering and being denied medication that would make the pain a little more tolerable . MY MOM IS NOT AN ADDICT! STOP TREATING PAIN PTS SO HORRIBLY WRONG! YOU ARE FORCING PEOPLE TO END THEIR LIVES! HOW DO YOU ALL SLEEP AT NIGHT!? THIS IS GENOCIDE! MURDERERS!
I live in Wheelersburg, Ohio, a small town 9 miles from Portsmouth, one of the most drug-addicted cities in the United States. My husband suffers from chronic pain from 2 herniated discs and degenerative arthritis of the spine, and relies on pain medication to function in his daily life and to be able to continue to work and support our family. He's not a candidate for surgery. He's tried the lumbar epidural steroid injections, which give him some relief for a couple weeks, however insurance will only pay for so many of those injections within a calendar year. Where we live, it's almost impossible for anyone with true, legitimate, chronic pain to be prescribed pain medication. We have one physician who still cares enough for his patients that he tolerates the constant scrutiny and investigations from the DEA, so that his patients with genuine pain can receive treatment and relief. With the way the DEA are going after the doctors, I'm not sure how much longer he'll be able to continue his practice. I implore congress to differentiate between chronic pain sufferers and the common pill junkies! This is one aspect of the pill addiction epidemic that needs to be carefully taken into consideration, before those with true chronic pain can no longer receive the legitimate pain management they need in order to maintain a adequate quality of life.
As a Nurse Practitioner becoming ill with an extremely painful disease, I was shocked to find our medical system and insurance are not for the sick. Doctors refuse to treat pain and often times refuse to treat the patient. They don't get reimbursed for all the treatments and referrals needed by chronically ill patients. Their offices refuse to return phone calls or even speak to patients so they will go elsewhere. Some times the doctors are just rude, hoping you will find another provider. Sometimes you will just receive a letter letting you go with some false reason. The power has been taken away from doctors by those unqualified to make the rules. We need to rally together and give the power to treat where it belongs- with Physicians and Providers.
Without pain medication for my incurable and painful disease, I am going to waste away, and suicide seems a less terrible option that buying heroin. I wouldn't begin to know where to find it anyway, as I've never used it or anything like it. My medication allows me to walk with far less pain, to sit up for more than a few minutes, and to enjoy the company of the people I know and love. I had a well regulated low dose plan than kept a steady dose in my system. I didn't feel high, I just didn't feel so much pain. Right now I'm basically praying for a miracle or death.
There are two people in my life who suffer from chronic pain. One is my father who walks with a cane when he can walk at all. The other is my best friend who suffers from interstitial cystitis and rheumatoid arthritis. Due to their suffering both have withdrawn from life. Both are in bed most hours of the day. One was an avid outdoorsman hunting fishing boating golfing until his back surgeries and the other ran three miles a day, ate organic, was an involved mother of five. Now both are shadows of themselves. Doctors are afraid to prescribe the medications that work for them because they will get flagged. Stop punishing those in need for the wrongdoing of criminals. I want my loved ones functional again.
Why can't these people understand I need my pain medicine or I suffer endless pain from my neuropathy, if one doctor refuses me treatment I should be able to go to another to get what I need. Since when does the DEA get to decided what is the right treatment for me by treating doctors as if their drug dealers and patients as if their drug addicts. Why would anyone put the most vulnerable people through endless suffering. Will this only change when someone you know you love has to go through days, months, years, of endless pain.
If the medical profession would be more willing to do what it takes to find the source of the pain, and then treat the cause, many of us would not be dealing with severe, chronic, debilitating pain and other problems. But these days it seems like going to the Dr is more like going to a technician who orders the same tests over and over again- like CT scans for which some conditions don't show up on. Things like adhesions and endometriosis which can only be diagnosed and treated via laparoscopy by a properly skilled excision surgeon, of which there are very few. Partly due to the greed of our health insurance companies who don't like to pay for exploratory surgery or will only pay a highly skilled laparoscopic excision surgeon for 1/2 hour of work when the surgery might take several hours.

So, because the medical system refuses to do what it takes to get the patient well, the patient is left to endure severe pain, often for years or the rest of their lives. The very least they should do is offer the patient pain relief so they can at least have a chance to hold down a job and be productive.

If the medical profession would pay more attention and respect to what the patient had to say, and not rely solely on what the typical tests show (or don't show) , and if the insurance companies didn't have so much power to deny us appropriate treatments, we might not have the pain epidemic that we do. But until something changes, the very least that those of us who are forced to live with pain should have the right to use these pain meds.
What the DEA is doing is reckless and irresponsible. Their politically motivated actions have inflicted devastating harm on thousands of innocent Americans. The DEA needs to change course before more innocent lives are destroyed. The DEA is hurting far more people than they could ever hope to save.
I recently moved from ny to florida THIS YEAR-2016. both my primary care physician and the pain clinic i was sent to told me i was on to much pain medicine. first thing that happened is the primary dr said he could not provide me with any narcotic or he risks a ten thousand dollar fine . the dr at the pain clinic immediately cut one of my meds (nucynta) from 100 mg 4x a day to 2x a day 200mg ext.
ended release. my insurance company would not cover my expenses so i was referred to another pain clinic. i have been there just 2x as of this day (5/24/2016)
just for the record i also take 3x a day 10 325mg of hydrocodone,and 3 75mg of lyrica and used to take 3 robaxan a day that was switched to tizanidine 3x a day.
i have done the triggerpoint injecr\tions and nerve blocks and had relief for about 30 minutes. i had back surgery in 2014..i suffer every day. the pain medicines help but do not take the pain away. it makes it somewhat tolerable but not very well.
my new pain clinic doctor in florida told me yesterday that the DEA is looking at him AND STATED "THE DEA HAS EYES ON YOU" which shocked me as it was totally unexpected. He also told me my doctors in ny have had me on way to much medicine. this is while seeing me for only the 2nd time. i found that very unusual. questioning my ny dr's assessment of me and his tx without even speaking with the dr in ny or as far as i know reviewing his medical records re: my tx (treatment). Long story short the florida dr said he wants to try triggerpoint injections again and get me off the nucynta altogether. i am open to that as long as the current dr will be able to help me manage my pain. the current dr did say he would not cut me off immediately as that would be problematic for me but would taper me off.
i am open to treatment suggestions but they need to work. i could go on for hours about being unable to live a life..my daily activities of living, including self care has been diminished by this chronic pain. i also suffer from severe depression and at least one dr thinks i have a schizo affective disorder. i take medications for that as well. i think all legistlatures on a local and state level need to take a deep breath and revisit the current florida laws. to have my dr tell me the DEA has eyes on me does wonders for my paranoia and depression. this is crazy behavior on the part of well meaning officials.
it is time to support your constituents that suffer from chronic pain instead of abusing us, because that is what you are doing. ABUSING US. I WAS NOT GOING TO SIGN MY NAME BUT I REFUSE TO LIVE IN FEAR OF GOVERNMENT. sorry for the typos!
Hi there, so very long story short. I have been very sick and medically fragile for two solid months...in agony. Prior to that my medical problems started in. January I was told that I had ulnar nerve compression and needed surgery. Then my abdomen is so hard and distended that it looks like I am 9 months pregnant. They also found that i have colonic inertia, hiatal hernia and ulcer which showed intestinal metaplasia. They are currently watching a swollen lymph node in my lungs in addition to multiple ground glass nodules. I am also scheduled for a cystoscopy because i have blood and protien in my urine. I am in excrutiating pain. All i do is go to doctors appts and lay around. I have to have someone shave my legs because i cant bend its just way too painful. I have right sided back pain that is a continuous stabbing feeling that never goes away no matter what i do. Can doctors really let you suffer. Aside from putting a gun to my head, honestly I dont know what to do. yes,they are still trying to figure out what is going on, but I have been like this for two months solid and prior to that the pain started in January and has progressively gotten worse. Enough is enough!
I have battled back issues/pain since my 21st birthday - that was 40 years ago. Since then, I have married, held two jobs in managementent of 18+ years duration, walked, worked out, cycled 300 miles per week or more, and generally speaking, tried to live a normal life.

Gradually back pain, chronic and disabling pain, sciatica, partial paralysis, change in bladder and bowel function, etc., began to chip away at the quality of life I had worked hard to maintain. Mine years ago, after multiple injections, MRIs, x-rays, therapies and doctors, I was diagnosed with Ankylosing Spondylitis, scoliosis, arthritis of the spine and a half dozen other maladies all spine related. I lost 3 inches in height during the years leading up to today, and have had two surgeries with more on the way. I AM IN CONSTANT PAIN AS A RESULT. The pain finally affected my performance on the job and in 2013, while on long term disability, I was let go by my employer of 19 years.

Today, the only thing that has helped reduce the pain and allowed me to function around the house vs bed ridden are opiate-based narcotics. Because of recent legislation and the resultant pressure on prescribers, have to drive from drugstore to drugstore because of the "suggested" limits imposed on doctors who prescribe them. I AM NOT A DRUG ABUSER! I HAVE A LEGITIMATE NEED FOR THESE MEDICATIONS and if they are taken away I will have no options but to turn to less than ideal means to treat my pain and try to live the rest of my now miserable life in debilitating pain.
I am a complete paraplegic since a roll over car accident. That was in 1978 was 16yrs old my life changed dramatically but I made the best of life on wheels. I had one successful spinal fusion @ 8 days after the accident. One to remove the Harrington rods,pins, screws due to the one that broke. In 2006 had anterior/posterior spine fusion which is twice the amount as before. Long story I live in constant pain I take pain med.s they help to allow time up in the wheelchair. I see 1 doc. 1 pharmacy and follow Dr.s orders. Random drug screens that never failed so please keep in mind Chronic pain patients are not the problem. Take heroin, meth, crack, synthetic marijuana ect. off the streets that will benefit Everyone. Pain does not discriminate at anytime your lives could changed in the blink of a eye like mine. My Dr.s want to do more but fear the lose of the license to do what they were educated to do! 1st Do No Harm!!
I have more diseases than I can count. I have had over 30 surgeries, I've been in critical care, been brought back by CPR and am STILL treated like I'm lying about the pain I'm in by EVERY single Doctor, hospital I go to! If I go to the ER too much...I'm a "frequent flier". If I don't go...then "I'm not in pain because people in pain would go more". My colon tore in two...completely split in half. As I'm laying there dying the surgeon says it's my fault. I'm moaning because the pain is so horrific...I can't speak. The doctors and nurses surrounded my bed and made fun of how I was moaning. I'd rather be dead. But, They don't care. No one does.

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