First Do No Harm: The DEA targets Physicians who treat their patients pain.

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Some recent comments: these messages are published with permission of the signer.

My pain has been under control with a stable dose of pain medication. What you are putting me and others through who are suffering is cruel and inhumane.
A gas chamber would be welcome kindness to the care you as politicians and rules are putting I aging me with.
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I want go extend my sympathy to my fellow chronic pain sufferers. I am the 54yo from hatfield, ma with all the painful conditions. I am refusing treatment for cancer because i don't want to extend my life because i cannot endure any more pain. I read a article about the DEA shutting down pain clinics. Most of the clinics serve the elderly.they were abruptly cut off. As a result of this, some went to methodone clinics, while others have turned suicide and many have turned to heroin for pain relief. Isn't it ironic that the elderly who have chronic pain had their pain meds taken away and are now using heroin?!?! I have read and heard from others with chronic pain also turn to heroin for pain relief. It is 2:32 am here and i can't sleep because my body is throbbing with pain!! I have cancer and cannot get pain relief! That is why i will be ending my life. I just cannot continue to exist in pain. Being in severe pain day after day affects you physical, mentally and emotionally. You try to distract yourself from it, but can't because it is constant and you have no relief. The DEA are not doctors yet they decide about our health. By restricting our meds and making us suffer, it is not going to reduce the heroin crisis. People use heroine to escape reality, a bad home life, depression, anxiety, etc. They self-medicate because of the lack of mental health services. This is not our problem. The DEA lost the war on drugs a long time ago and they will never win. They are hurting innocent people. Our doctors can check us with urine tests to make sure we are properly taking our meds. I had a surprise urine test and passed. I don't mind taking one. They can weed out those who abuse drugs. Let the doctors do their job and treat us with life-saving pain meds because being comfortable means living, going without, we exist. The fricken government has no right to determine our health care needs. Unless the each earn a medical degree. The doctors creed is "First do no harm". All of us would rather be healthy than ill. I had to quit my job which i loved. I miss my active life-photography, gardening, hiking, skiing, etc. I am a prisoner of chronic pain! And now i get to suffer! By restricting our meds is abuse!!! The DEA needs to punish the real criminals like the drug dealers and stop punishing us! Sharon
I want go extend my sympathy to my fellow chronic pain sufferers. I am the 54yo from hatfield, ma with all the painful conditions. I am refusing treatment for cancer because i don't want to extend my life because i cannot endure any more pain. I read a article about the DEA shutting down pain clinics. Most of the clinics serve the elderly.they were abruptly cut off. As a result of this, some went to methodone clinics, while others have turned suicide and many have turned to heroin for pain relief. Isn't it ironic that the elderly who have chronic pain had their pain meds taken away and are now using heroin?!?! I have read and heard from others with chronic pain also turn to heroin for pain relief. It is 2:32 am here and i can't sleep because my body is throbbing with pain!! I have cancer and cannot get pain relief! That is why i will be ending my life. I just cannot continue to exist in pain. Being in severe pain day after day affects you physical, mentally and emotionally. You try to distract yourself from it, but can't because it is constant and you have no relief. The DEA are not doctors yet they decide about our health. By restricting our meds and making us suffer, it is not going to reduce the heroin crisis. People use heroine to escape reality, a bad home life, depression, anxiety, etc. They self-medicate because of the lack of mental health services. This is not our problem. The DEA lost the war on drugs a long time ago and they will never win. They are hurting innocent people. Our doctors can check us with urine tests to make sure we are properly taking our meds. I had a surprise urine test and passed. I don't mind taking one. They can weed out those who abuse drugs. Let the doctors do their job and treat us with life-saving pain meds because being comfortable means living, going without, we exist. The fricken government has no right to determine our health care needs. Unless the each earn a medical degree. The doctors creed is "First do no harm". All of us would rather be healthy than ill. I had to quit my job which i loved. I miss my active life-photography, gardening, hiking, skiing, etc. I am a prisoner of chronic pain! And now i get to suffer! By restricting our meds is abuse!!! The DEA needs to punish the real criminals like the drug dealers and stop punishing us! Sharon
My pain medication has been more that cut in half. I have severe arthritis where i get about 20 cortisone shots a year. I also have discogenic disease, fibromyalgia, severe permanent bursitis in my right hip, carpal tunnel syndrome and a mass in my right lung. I am only 54 yo and had both my knees replaced when i was in my 40's because of arthritis. I am suffering do bad. All i do is lay in bed and cry because the pain is unbearable. Before the med reduction i could walk with a cane and do about 1/2 hour activity before i had to lay down for the back pain for 15 minutes. I am no longer living, i am existing. I am going to be committing suicide. At least the pain will end.
Government, stay out of the patient and doctor relationship. Until you suffer chronic pain you have no right to tell a person who went to medical school and took an oath to treat suffering patients how to do their job. Walk in a pain patient's shoes and see how you like it. You will never stop the abuse. People in severe pain will do what they have to do. You're only making the epidemic worse. When you herniate 7 discs and have spasms and severe nerve impingement and can't get help like myself, see how it feels. Remember you were voted in and will be voted out. Any true American that believes in freedom should sign this. Wake up people!
Chronic Pain Warriors, I have read the letter Richard from NV is speaking of. This pain warrior continued to write many many letters to the CDC and Miss Houry finally replied to him. It's a must read, print and like Richard suggests attach it to your story and send to anyone and everyone. WE MUST FIGHT BACK! I WILL NOT LIVE MUCH LONGER IF THINGS GET WORSE FOR US LEGITIMATE CHRONIC INTRACTABLE PAIN SUFFERERS. WE CANNOT LET THE CORRUPT LAWMAKERS TAKE OUR QUALITY OF LIFE AWAY!! TAKE OUR LIFESAVING PAIN MEDICATION, LEAVING US ABANDONED BY THE MEDICAL COMMUNITY..MY BODY IS AT WAR WITHIN ITSELF AND EACH DAY ANOTHER PIECE DIES. CHRONIC PAIN PTS ARE BEING TORTURED, LEFT TO EXIST IN A BROKEN PAINFUL SHELL, WHERE IS THE HELP FOR THE SUFFERING!?!!
Please go to: http://www.painnewsnetwork.org/stories/2016/7/19/cdc-opioid-guidelines-not-rule-regulation-or-law
Read the article by Pat Anson, Editor
You can find a link there to copy the letter I received from Dr. Houry at the CDC who oversaw
the development of "CDC Guideline for Prescribing Opioids for Chronic Pain - United States, 2016" Take a copy of it to your physician, pain mgt. physician, and any one else you can think of. Send a copy to your state and federal representatives. To the media. To the insurance companies. Anyone and everyone. It is a breakthrough letter. It dispels much of the misrepresentation, misinterpretation, and outright lies perpetrated by the politicians, the media, and insurance companies. My physician was ecstatic about it. He said he and his colleagues can use it to rebut any questions about
their judgement in opioid prescribing. Send out your story and this letter. There is a 2 day drug abuse prevention summit in Las Vegas NV Aug. 31-Sept. 1. Contact ROTA@NPHF.org for information and registration. Gov. Sandoval is Vice Chairman of the National Governors Association. 40 governors of this group are trying to pass legislation like Mass. to make it much much harder to get opioids for pain. Stand up and fight. RM
I have multiple herniated discs in my neck and back. I relocated to Rhode Island recently and found that its impossible to receive treatment for chronic severe pain even though multiple mri's clearly show "severe spinal stenosis" especially in the cervical region. The doctors here totally lack any form of compassion. My life is a living hell with lack of sleep and pain, thanks to insensative morons that took an oath to treat the suffering and the sick. I now believe the oath some doctors took was acuually the "hippocritical" oath.
My wife has chronic back pain. Come to my house and sadly watch her like I do everyday. Even with her pain meds she still has very real pain and no life. If her pain meds are taken away, she will soon be lifeless.................
I have a serious neck injury that now causes my left hand to be 'on fire' about 80% of the time, and my right hand is numb and tingle most of the time. My disc injury is apparently now protruding into my spinal cord. On a scale of 1 to 10, my neck and mid back pain is an 8 almost 100% of the time. When I go to the drugstore with my prescription ( my doctor is a highly respected pain management specialist) I am made to feel like some sort of drug addict, I am a professional, 55-year-old, well educated woman. Trust me when I tell you, if there was anyway I didn't have to take this medication I wouldn't!! I hate the feeling of going to the drugstore to get my prescription, I would give anything to avoid being made to feel like a common criminal. Two weeks ago I moved to Dallas Texas. It took me three weeks to get into see a neurologist, who does not write prescriptions. He refers only to a pain specialist who takes at least three weeks to get an appt with. You guessed it, I have a 30 day medication supply and now I am out of medication. I finally had to go to the ER yesterday because after two days without medication I was ready to pull my hair out!! I literally could not walk by myself to the uber driver's car. So now let's add humiliation in to the equation. And here's the part you're never going to believe, the hospital will not write me even a carryover prescription until I get into see the pain management doctor, despite the fact they didn't MRI and they can see my injuries!! Are you kidding me? So now I have to get on an airplane and fly back to where I came from to see my previous pain doctor in order to get enough of my prescription to get me to my appointment with the pain management doctor. This is absolutely criminal, what the federal government is doing to people who are truly sick and in pain! Completely heartless! I wish I could trade places with these idiots for a day.
Adding to below my comment . Also yes we have a drug epidemic in our state but also this is one way it starts is a doctor's prescribing these lethal drugs and get you hooked then just can cut you off and force patients to go elsewhere to get whatever they need and then get in trouble and be put in jail because they have been through a doctor who put them on a narcotic for years then can just dismiss you because you did not receive a phone call and we're unavailable at the time they called. People do work, run errands, and also take their kids to places to enjoy and also have fun during summer or just wanna sleep in a little on their day off of work. This is ridiculous and unfair to the patients who do suffer of pain on a daily basis . Doctors should be held accountable of these problems because they make you take these meds but also can just take away.
I was going to a pain clinic that I was referred to from my regular doctor and I been going to this pain clinic for almost 6 years. Last week they called me and of course it was my day off but I worked late the night before. Also I suffer with a rare disease called narcoleptsy. They called at 7a.m and because u had no idea that they called me until later on around 3:30 pm. By the time our conversation ended and u had to call my regular Doc to tell them what they did to me , pain clinic had said well reason we called you at ua.m. is due to us having to do a random pill count. Never had one the whole 6 years I had been there. Anyhow she says well you have until 400 to get here when we close and if not then your dismissed and won't get no more meds or anything....well of course I had strong emotions of scared, hurt, and what the he'll is happening right now to me. I suffer daily of chronic pain ever since I was a little kid. Well of course I could not drive 30 miles and make it there in 10 min so I asked if I could go to pharmacy and have my meds counted and they also refused that and said no. My theory behind this whole thing is that it is bull crappie that these doctors can get you dependence of and addicted to a pain medication they put you on and then just cut you off because you were not knowing they were gonna call you....also I asked the lady what would of happened if I would a been at work when they called me and I missed the call, and she said the same thing that I would a been dismissed. So anyways now they put me through being scared of what's gonna happen and how I'm gonna get to work and make it through my shift in pain and if I can feed my family. Not only have to miss work from being sick and have to go through all of this pain with none of my meds and on top of it miss work to go detox and miss being with my family because a doctor can just shut you off of something they put you on and got your body immune to and depend on this meds to get you through life out of the pain. In my eyes I understand certain protocols and rules that they give due to the people who due abuse and take advantage of the systems of abusing meds but also don't see how you have to guess when they will call, and if not at home or in bed and miss a call that they can just dismiss you from that????? You don't know when they will call that's why it is random but also gotta live in fear that if you go to store or work or Nothing you gotta do that if you do it then you can be punished and get all meds taken away in a second ...ridiculous and not fair to people like me who actually do struggle and are in pain daily and depend on medication just to get you up out of bed to get on with your day. Another reason I think if they do legalized Marijuana that it would do alot of good....half of the meds a pharmacy give out even just for a sore throat, cholesterol, or any thing else, is just as dangerous if not more than any other drug as in pain meds or illegal drugs on str
I suffer from CRPS and have done so for 11 years.. Just recently my pain management doctor decided on his own without consulting with me to lower my narcotics.. Now keep in mind I was doing excellent walking.. And since he decreased my medication it's hard for me to walk I'm in pain constantly.. This is going to turn into war. I can see it coming.. Gentle hugs to all those who suffer with chronic pain. God bless
This along with the very strickt rules and pain doctors throwing away patients ,thus having them go "cold turkey" from their narcotic pain meds ,should be illegal. What happened to ,"Do No Harm" and "patients rights"..? we are no loner a free country or citizens. it should be, it's our bodies, our rights to pain meds and we 're the ones whom have to live in them. Most would even agree to signing a legal wavier, not holding the doctors responsible. Everything today is deemed an overdose, even when it isn't and most pain and disabled patients are too sick and don;'t have the ways and means to push these things legally. So, again, there is Not justice for all.The war on drugs isn't working and taking pain meds away from real documented pain patients is just sending more good responsible patients out into the street;especially those whom have the money.But, so many poor and debilitated people like myself, have to become bedridden and suffer in silence. This is just plain EVIL!
Because the "War On Drugs" is a bloody JOKE and just causes billion$ of dollar$ of taxcattle dollar$ to be poured down a rathole called the "DEA", who will _never_ win the so-called "WAR" on Drugs. The FDA & the DEA justify calling for the medical community to say that opioids "are not suitable for treating chronic pain" because THEY have not had to endure chronic, unrelenting PAIN that destroys a persons will to live. The FDA and the DEA say that Rx opioids caused 17,000+ deaths in the US last year, BUT NOBODY has anything to say or has said anything about the 400,000+ deaths that are caused each year by medical screw-ups! No, just get the "spin-doctors" to say OMG!!! It's "Rx opioids". Please see the 03 May 2016 issue of "The British Medical Journal" article titled "Medical Error-The Third Leading Cause of Death In The US". Medical errors cause over 30 times (400,000) the so-called "torrent of Rx opioid deaths" each year! So, who has sh*t on their faces??? Will the chronic pain patients have to suffer and endure somehow until their suicides increase to the point that they can't be swept under the rug anymore ?!?!
I had polio as a child and had many surgeries that did nothing more than screwing me up worse than I was already. When I became unable to work about 10-15 years ago and began going to a doctor for chronic pain in my legs, back, and pretty much my entire body I refused to accept narcotic pain meds for the first 5 years. Finally the doctors threatened to stop treating me unless I accepted narcotic pain meds. Over the years I went from 5 mg of oxycodone 4 times a day to 20 mg of oxycodone 6 times a day along with 40mg of opana 3 times a day. It took YEARS for me to arrive at this massive dosage. About a year ago the cut my 20mg oxicodone to 5 a day.... Then 4 a day.... And now this month down to 3 a day, I'm in constant pain which has me very depressed and I feel as if I would actually be better off dead. Why is it that because of some people abusing and misusing pain meds, the rest of us who truly need them just to have a half*****normal life are punished??!! It's not fair!!! I worked my*****off my entire life when I was really not able for what?? Just to be treated like a damn back alley drug addict? This is total BS!! Someone just please shoot me!! I would do it myself but my religion says I will go to HELL if I take my own life... And if HELL IS ANY WORSE THAN THE SUFFERING I HAVE TO ENDURE RIGHT NOW DEOM BEING DENIED THE AMOUNT OF MESS I NEED TO FUNCTION..... Then I can't handle it!!
I have been on Fentanyl patches for 25 years and it has enabled me to live a relatively normal life. I had 5 back surgeries and went to pain clinics where injections made me paralyzed and Celebrex gave me symptoms of a stroke. Fentanyl has been my godsend and now my primary care physician cut me off and now I am back being treated like I am a common criminal. People can get drunk and kill people but people like myself who use narcotics responsibly are now made to live a life of severe pain. This Country disgusts me!!!!!!
I think it is so DISGUSTING I am literally writing this lying on the floor because my pain us so excruciating I can't even sit or get comfortable, I did Air Search & Rescue/Paramedic Work resulting in a 3rd Helicopter crash, resulting in a major (failed ) back surgery, I wasn't suppose to walk but with months of being in a rehab center and hard work and numbness and excruciating pain I did walk again, still Gavin the numbness, it's only gotten worse along with the pain, I went back many times they now think I have a ruptured/dislocated disc below ALL the bolts, plates etc , however do to their screw ups they a Are denying me ANY kind of pain meds, knowing I can't walk, move even go to the bathroom, it is purely criminal, disgusting and purely inhuman! I have abs No quality of live, extreme depression! I feel like no living at all, I've had 12 heart surgeries with no pain meds, 17 OBGyn surgeries never asked for any pain meds, this pain I can deal with! My heart goes out to ALL those who are so unfairly treated this way! Something should be done about this & Soon!!! andrea these pharm comp are making Billions it's more important to have a strait ***** than a strait back! Ridiculous!!!
I have suffered from osteoarthritis of the jaw for 22 years. I have had six reconstruction surgeries, none of which was successful. Then, in 2012, my left condyle broke, causing even more damage and pain. The top oral-maxillofacial surgeon in my state determined that I need a total jaw replacement surgery and sent a letter of medical necessity to my insurance company, telling them that I have the worst jaw he has ever seen. They denied the surgery, their panel of experts claimed that I have TMJ, although my surgeon explicitly told them I have osteoarthritis and degenerative arthritis in my jaw and facial bones. The pain since then has been so bad that I was taken off of Vicoprofen and put on Percocet. I never abused my prescription pills, nor did I build up a tolerance for them. I always took them as prescribed, sometimes less. Thanks to the hysteria surrounding prescription pain medication, I am now only able to get Tylenol 4, which does NOTHING for my type of pain. I have never felt "high" from my pills, rather I felt able to get out of bed and do basic errands and chores around the house. It is not fair that those of us who are in true pain have to suffer because a few idiots got their hands on pain medication and abused it! The quality of my life has decreased significantly since my Percocet was take away. My doctor is too afraid to even prescribe Lortab or Norco for me. Don't let those of us in real and chronic pain suffer because of the irresponsible behavior of others!
I was taking vicodin for pain. Have been since 2005. Took it for breast cancer lymph node removal pain, constant swelling in the radiated breast, swelling in right arm, osteoarthritis in both knees.nov leading to scoping of both knees.nov, scoping of shoulder, constant injections in both knees.nov, injections in low spine, herniated discs, spasms, swollen disc in back , back surgery to remove disc, spinal fusion surgery in low back, total knee replacement in June 2015, total breast reduction in Nov 2015. I took the vicodin when I had pain and my pain is was intense. So now I will not get it anymore thanks to the federal government sticking their nose in my business. Acupuncture, soothing music, massage, tens unit can only go so far and so far as I know I don't have a bag of money coming out my rear end. Enough said.
I'm a chronic pain patient in Texas..Low back pain with 4 lumbar surgeries....My new doctor started changing the doses on my meds...now I'm off all pain meds, but my quality of life is nil..
I'm in bed most of the day, due to the pain.I have become deconditioned,don't do housework, exercise or have a social life...I need the meds but have had it with the new policies....I've been tempted to use heroin, then go to Methadone Clinic
to be put on something. That Works....
I have been on a stable dose of pain meds for 10 years for a ruptured disc, spinal stenosis, migraines, rheumatoid arthritis and cellulitis in my foot. I'm a single mother and I've been forced down to less than half my regular dose and in the same breath I was told I need another spine surgery. I'm severely depressed, have little quality of life and never feel like doing anything, please don't you see the suicides and heroin abuse this stupid law is going to cause?!
Your hapless attempt to control drug abuse is only causing hell for those of us suffering needlessly. You have scared drs.out if caring about their patients and more about themselves. The DEA, CDC and Congress have learned NOTHING from the past. You will NEVER stop those who want to get high from finding ways to do so. You took Qualludes out of the USA, only to see an increase in crack cocaine and heroine. Teens began huffing. You can't fix these people, but you sure have ruined my life, a great life working FT, PTO President of my daughter's school and her Girl Scout troop leader all because I fell on the ice twice in one winter and injured myself. I didn't ask for that. And you are punishing me! You all are just political idiots who know NOTHING if how to fix this problem of Teen drug use. And you don't even realize the damaged you've cause us pain sufferers. How many of us will need to commit suicide because we can't take itanymore severe chronic pain before someone in Congress opens their eyes and hearts! Shame on your all for being such egomaniacs!
I have Endometriosis, a heart condition and have had chronic pain since I was a child. My doctor, the man who sees me face to face, who hears about my suffering and sees what I endure, is the one who should be allowed to decide what medications I am given, not a group of people in a room who have never met me and have likely never suffered from any chronic pain condition.

As a result of these actions people will soon be taking copious amounts of OTC drugs or obtaining illegal drugs like heroin to combat pain. People who used to be able to hold down a job will no longer be able to get out of bed from the pain forcing the government to support them. And finally, people who used to fight through their day with their pain barely controlled, will be unable to find relief and the suicide rate for these individuals will skyrocket.

Physicians should be treating patients, not government guidelines.
I suffer from Trigeminal Neuralgia, which is commonly called "suicide disease" because that's mainly how it kills ppl, although it has other ways particularly if like me you got it through botched surgery (not naturally like most cases, traumatic surgery related tn is more painful and slowly damages the entire body when pain isn't treated) and glands were damaged and leak toxins in the bloodstream when they swell up from the tn pain. The toxins damage all organs. Any 9th grade biology student learns pain causes swelling in that area until the pain signal is gone. My body cannot repair this nerve damage. The gland that swells sits on top my jaw joint under my ear and when it swells it presses harder on the painful damaged nerve causing more pain, which causes more swelling...which causes more pain...which causes more swelling. I'm allergic to the main drug used to treat TN tegretol, it gives me "spider web bruises" which luckily I caught very quickly otherwise everyday I took them i'd have a 10% chance of having an aneurism that day. Even if I wasn't prone to the bursting capillaries this drug also messes up your hearing and your mind and many patients end up in the ER crying non stop and don't know why just after 9 days of treatment with this drug. It doesn't respond to anti-inflammatories or steroids bc the pain signals are still present even if the swelling went down enough to lessen some pain, but it doesn't. The pain signal is too strong bc this nerve connects DIRECTLY to the brain stem and is the strongest nerve in the body capable of sending the strongest pain signal the brain can feel. Medication withdrawal from the physical damage it does to the body and the added stress make this vicious pain/swelling cycle 100X faster and by day 2 of no meds I already cannot eat and can feel pain in my whole body head to toe from toxins in my blood which start shutting down kidneys first very rapidly that day or a day or two after. I have textbook perfect blood pressure, pulse, sugar levels when on my pain meds and glands are normal sized not leaking, however by the end of day two my pulse is racing, my bp is skyrocketed so high it looks like I eat rock salt for breakfast lunch and dinner everyday of my life, my pulse and sugar level starts going on a roller coaster ride, on top of that I cannot eat cause the jaw, ear, teeth, gum, face pain is a million times stronger than hunger pains which will go numb after a few days (at one point in time when I had no dr and limited meds I had to set reminders on my phone of what day I ate last and what day I absolutely have to try to eat a few bites of something and in just a few months I dropped from 210 lbs to 130 lbs). By day 3 the combination of withdrawal, 48+ hrs of insomnia/sleep deprivation from pain, and toxins I will most likely begin seizuring, if not on day 3 then 100% will happen on day 4. The stress and physical damage withdrawal does to the body causes more pain and more swelling, the toxins keep bu
I am a chronic pain patient with serious and well documented pain causing medical issues. I am seeing a pain management doctor who has admitted to me that she CANNOT treat me with the dosage of medication that she is fairly sure would help me because "that particular strength [30 milligram dosage] is 'flagged' and more likely to cause our office to undergo a DEA audit." When doctors have to worry more about DEA audits than about what would benefit their patients, something is terribly wrong. Also, I am reading articles about how there have been ENORMOUS increases in the amount of heroin use (and by extention, heroin overdoses) because heroin is now both cheaper and easier to obtain than narcotic pain pills. That being the case, I don't see how the government can justify the current regulations even from a "harm reduction" standpoint. The reality of the situation is that the stricter prescribing regulations for opioid medication has done NOTHING to slow down illegal narcotic use, it has only switched the drug of choice, and it has had profound negative impact on the quality of treatment and quality of life for chronic pain patients.
I've suffered chronic pain for 16 years with Fibromyalgia and osteoarthritis...I tried everything under the sun...physical therapy...all the meds...and finally got control of the pain with Percocet 10s and was finally able to live a normal life and now out of the blue they want to mess with my meds...sent me to pain management...want to burn my nerves in the neck and give me injection of cortozones...what good is all that when the pain is all over...Its not my fault idiots want to abuse these meds and screw things all up for those who really need em and don't abuse them...this government has gone too far with this...if a person wants to kill themselves with it...who the hell is the government to try and control all of us...esp. when guns are legal to carry...it's messed up...
I suffer from a long list of painful conditions, fibromyalgia, systemic lupus,disinigrating disc disease,2 herniated discs and so much more.I am 40 years old and I live as a 80 year old.I take a couple synthetic meds just to be somewhat comfortable.My doctor has been great with medicating me until 3 years ago.One of the meds,he took away due to new DEA rules.That 1 medication helped with the breakthrough pain.It took 3 years just to get my breakthrough Med back but he won't give me what I was on for the 10 years before he took it away 3 years ago.That medicine worked very well for immediate relief. My quality of life was better then than it is now.But anyway,this is my point I make to my doctor.If you cut down or cut off people,after 13 years or however long someone has been taking these pain meds of being on meds,you're addicted no matter what.So now you have all these people who are buying them off the street which I wouldn't know but I assume it is an expensive way to get relief,next they turn to heroin which is cheaper.And that is how this epidemic happens.Now why should the people who responsibly take their meds,don't sell them,don't abuse them or whatever the case may be, become banned from getting their meds because of what the DEA assumes is the problem.We shouldn't have to all suffer for the mistakes of others. We are all separate with our pain but united to continue to receive it!I cringe wondering what this country is turning into.DON'T TAKE OUR MEDS AWAY!FREE COUNTRY,RIGHT?
This is insane! There are people who desperately need pain meds who are in severe pain. Don't penalize these people just because there are others who accidentally overdose. Stop criminalizing everybody - it's an unfair stereotype. Compassion is what we need! People are suffering and need to have pain relief.
I have been suffering from degenerative disc Disease for at least 20 Years.I've never had surgery,but.I am a chronic pain 24/7 In the last 2 Months.My doctor not only started cutting My pain medication.He took away My nerve medication away.As Anybody with Chronic Pain Knows.Nerve Medication helps with pain.I used to be on Four Norco's a Day,along with Two Xanax.The reason I was on Xanax,was for panic attack's.I also had Seizures.Anyway.I would get to My Second pain pill of the Day and still be walking like an 80 Year Old.So.I would take a Xanax.And Finally The pain would be at least bearable enough to get out and about.My panic attacks are caused by pain.So.I believe I am under medicated.I see My Doctor Tomorrow.I believe I will be cut down even more.It's pretty bad When You get to be afraid to go see Your own Doctor that You've been seeing for Years.I tend to change subjects.So.Good Luck to All of You.I hope We can change This around before Anyone Else go's off The Deep End.
I have been suffering from degenerative disc Disease for at least 20 Years.I've never had surgery,but.I am a chronic pain 24/7 In the last 2 Months.My doctor not only started cutting My pain medication.He took away My nerve medication away.As Anybody with Chronic Pain Knows.Nerve Medication helps with pain.I used to be on Four Norco's a Day,along with Two Xanax.The reason I was on Xanax,was for panic attack's.I also had Seizures.Anyway.I would get to My Second pain pill of the Day and still be walking like an 80 Year Old.So.I would take a Xanax.And Finally The pain would be at least bearable enough to get out and about.My panic attacks are caused by pain.So.I believe I am under medicated.I see My Doctor Tomorrow.I believe I will be cut down even more.It's pretty bad When You get to be afraid to go see Your own Doctor that You've been seeing for Years.I tend to change subjects.So.Good Luck to All of You.I hope We can change This around before Anyone Else go's off The Deep End.
STOP the WAR on legal pain management docs!!!
I have been living with degenerative disk disease for 8 years, and have 3 herniated discs in a row that acupuncture, weight loss, 5 rounds of physical therapy and meetings with surgeons, neurologists etc. and I'm inoperable because I don't have the money for disc implants. I have spent so much of my late 20's and early 30's in intense pain. I just want to be a good husband and father......I have never been able to really pick up my daughter and hug her for fear of increasing my pain. Nowadays, without opiate treatment, I'm a grown man that cry's and moans in front of his wife and 11 year old daughter, with nothing either can do. I have just been asked for a divorce. I understand it, My disease is progressing, and I can't make a decent income, I can't **** her properly, (not even close) and am miserable and think about suicide constantly. I left Minnesota a year ago to move to Alaska, and their are simply no Dr's willing to take a patient like me on. I just want a basic quality of life, and will **** in any cup at any time. I have 10 years of MRI's , Dr's notes (with the same dr) all of my medical history, and no one will touch me. I'm literally going to have to live in a homeless shelter, and lie in agony until I cannot be there anymore either. I have no hope, no money, no access to help, and no dignity. With the newly extra enforced federal guidelines, I can't be the only one, that either faces life as a burden to those they love, while living in agony for their struggle, or just.......ending things. I know opiates are perfect, but their is simply no alternative. Lyrica, amyltriptaline, nuerontin, numatone, ibuprofen, ice baths, hot showers, massages, physical therapy, chronic pain counceling.......nothing. My I asked about Cannabis once, but my Dr. responded that it was a good alternative, but if I was drug tested, and it was hot, he would let me go and cancel my current prescriptions and care. He even said it would be safer than opiates. For someone with a progressive disease, what alternative is their other than the mercy of death. When you are up 60 hours at a time because the pain is too great to sleep until your body demands it, and then its in fits for only a couple hours......What are our alternatives. This is compounded by knowing, that when I WAS treated with Fentanyl, I got to have my life back. I could walk again. I had hope again. I wish that in this case, their was a way to die with dignity, or die legally, with the advice of a Dr, so it didn't seem so shameful, and I didn't feel like I was abandoning and letting down the only people I truly love more than anything. I have suffered, so that I could spend time with them, but as it gets worse, I don't know how long anyone could hold out for. It makes me wish my wife never met me, so she wasn't emotionally and financially ruined by my condition. Chronic pain, can literally ruin a family, take good people away either through suffering, or death, and all it w
I have been in recovery for about a year and I have severe pain in a couple places. I said to my doctor when I first met him to not ever prescribe me pain meds because I used to be an addict. It was a mistake to do and I hope nobody ever tells their doctor this because if you ever are in pain and u do need something you are out of luck. I feel i am being treated like a addict by my primary care doctor after letting him know. I went and got things on the street because I was denied and couldnt deal with it. I finally got clean and called a million places to get help in a clinic and one place responded and it was over 100 miles away. I needed to go so I did now im depending on this guy to help me and the the pharmacy treated me like an addict when getting my addiction meds only giving me portions at a time when the script was for a normal amount. I asked my doctor they told me they never told the pharmacy to give me partials. To end the whole scenario after yelling at the pharmacist for making me drive there for nothing I came back later for the rest and never went back. The next month I go to my doctor and he lowers the dose by 1/3 saying its a law but clearly states its a recommended dose not a maximum dose allowed.I was being harassed to find a new clinic closer to where i live but nobody would let me in because I was already in a place.One place agreed but didnt want to do all these meeting to me are useless anyway and already a half a year good.Now my doctor is always talking down on me and criticizing my weight when the persons an addiction councelor? Its crazy how people who want help and depend on doctors for assistance but get treated like crack addicts and looked down on. I am so close to just saying screw it and starting back up because im sick of it. Someone needs to team up and form some sort of patient union of some sort to protect themselves from arrogant doctors who think they can treat you bad. I'm contemplating contacting a lawyer and seeing if they can help. Its depressing. I'm even nervous to bring up another subject because I'm nervous im gonna be labeled again because the treatment is a controlled drug. Everything I said is 100 percent true. Sickening!!. DEE
I can no longer walk because of the pain medication decrease. It is 1 am and I can't sleep because Pain Clinic took away my long acting opiod as CDC advised short acting. I have a rod in my back, two replaced hips, pinched nerves, surgery not possible, spondylethesis, but my doctor says the State of Mi has made the voluntary CDC guidelines into an enforceable law and they will cut my pain meds in half. There will be no quality of life left for me. I won't be able to cope, I am already doing everything CDC suggested, PT, meditation, CBT, psychotherapy. I want my medication and quality of life back! I am almost 60 and getting ready for colon surgery and cataract removal. I want the government to stay out of my pain specialists relationship with me as a unique patient with unique needs.
I have systemic lupus that is destroying my joints and other body parts. Believe me, it hurts to slowly die and degenerate. I was also blessed with diabetes, fibromyalgia and polyspleenia. My day consists of lying in bed and watching my life pass by. I have actually witnessed other people die that did not feel as bad as me. Why begrudge me the little relief I can get because there are people out there that take drugs to get high? What about MY rights to lie here and slowly die with some relief! My pain is so bad and the stress so high always wondering if my doctor or pharmacist is going to be closed for bogus reasons. The only thing I can see is maybe the DEA is crooked. They would rather see heroin and pills from mexico here so they can bust dealers and seize money and property that they are able to keep. The statistics for overdose does not warrant this frenzy we pain patients are suffering under. I wish every person behind this suffer excruciating pain for a month and then just think what that is like when you have pain day in, day out, year after year until merciful death comes and takes you!!!
I live with a lot of pain from both fibermyalgia and jaw pain. I only take Tylenol when I'm in severe pain - not everyday, so I'm not addicted to it! But, I'm also sick of taking medicine that doesn't work and become a drug store for no reason or doctors that dont do anything about it except suggest things that I'm already doing! Going to the doctor is a joke because they don't understand what the pain is like!
I am a Veteran and have been in severe pain for years due to Tarlov Cyst Disease and Nerve Damage. On top of this I also had an ADCF surgery on my Cervical (Neck) area. All with debilitating pain and needing pain medication long term for severe chronic pain. This is needed so I can function minimally at the most. Without these medications I would be bed ridden and would be a burden to my family.
Doctors are now not prescribing pain relieving medicines due to the negligence of our governments actions relating to abusers.. Legitimate people are suffering severely in this country. These abusers should be dealt with by law and we should treat legitimate chronic pain patients as they should be. Please change this attack on the documented patients that need help and the few doctors that help these patients.
Taking away legitimate prescriptions is only harming people. Also, drug abusers are turning to dirtier more nefarious underground drugs. I thought people are innocent until proven guilty. The government is now dictating what our bodies feel? I'm sure the rich and powerful do not suffer.
I believe the "Real" reason for government illegal involvement is because the failure of "Obamacare" & the outrageous costs! So in order to control orices & spending Obama, CDC, DEA & Health insurance Companies cAmerica up with this Rediculous claim about ppl overdosing on prescription drugs when it's the Street drugs that's killing ppl & Not prescription medications! Patients get drug tested 3-4 sometimes more every year, we have 2 pock up the prescriptions in chronic pain, we have to wait until we are Completely Out 2 refill while in severe chronic pain! How in the HELL does that crap make sense? If you ever knew what chronic pain was you ppl wouldn't interfere & would actually act to help the millions who suffer needlessly! It's all a government scam to shore up the runaway Healthcare costs of "OBAMACARE"!
As a paraplegic who was injured in "78" there is No Cure yet. I suffer with chronic pain as do 100. Million Americans why are we punshished for those who use illegal street drugs such as White China and Illegal form of Fentnlyl?? These are coming in through our Wide Open Borders. The Herion and Prescription drug Epidemic is as big of a fraud as the War on Drugs! Most of us know how cozy our government is with big pharma and drug cartels. It insults me to be thrown into the same group as a addict, I abide by the laws. Keep my Dr.s appts. Even drug tested to assure I'm not dr. Shopping or selling my meds. Which have been cut 2 times since the DEA & CDC guidelines lines. I also want my Dr.s to not fear the loss of licience for treating my pain as they feel is enough to have a quality of life. I fully understand I will never be pain free but it is not asking to much to get out of bed? I miss so many family functions because of the pain. Please think of the Chronic pain and Chronic diseases this legislation will kill off. I will never resort to street drugs but to be free from pain I'd be lying if sucide had not crossed my mind. My Faith keeps me from doing so but it is sad at this time 2016 this is even a thought. Stop and listen to your citizens the legal ones for once., Thank you.
I am 67 and have been in chronic pain for many years. I was treated well in California, but have been shat upon my the medical profession and by all of the pharmacies here in Colorado. I frequently consider suicide. But that's another anomaly. You cannot seek assistance in the taking of your life.
Taking away legitimate prescriptions is only harming people. Also, drug abusers are turning to dirtier more nefarious underground drugs. I thought people are innocent until proven guilty. The government is now dictating what our bodies feel? I'm sure the rich and powerful do not suffer.
This is not communist Russia this is America where government has hearings on baseball an now steps into our homes an lives an punishes it's citizens because of addicts. This is why people do stupid things! I don't wonna be a couch potato so leave good doctors do what they are schooled too do. Let government worry about illegal drugs an leave the doctors alone!!!!
i'm a sever chronic pain sufferer. i've suffered since a pre-teen. i went yrs and yrs, well over 10 just trying to ignore it eating ibuprfen and tyl to a point i got reflux and ulcers, i even went to dr and we tried muscle relaxants and antidepressants but had really bad side effects, and finally got so bad i couldn't get out of bed, take care of my kids or even work, not even small housework... i finally went back in and was given propox and vicodin, my first increase in pain meds was after quite a few yrs ( mainly changed because given less tyl version so took one instead of 2 pills per dose and given one extra dose a day added) and then not until my surgery with 3 moth hosp stay where i was put on fentynyl and oxycodone . i have fibromyalgia all over severley. without meds i can not get out of bed. i can not even be touched lightly as it feels as if i have been hit by a baseball bat! add to that i now have a tube feeding, i finally went to the emergency room after a month of literally NO sleep and inability to even take down water - i was so malnourished it required a feeding tube - add to that a 3 month hosp stay due to complications from the surgery... so now i have gastroporesis on top of everything else. which causes more pain in the form of someone twisting my intestines and crushing them - unlike the fibro which is continuous im blessed its down to a few times a day for a while now....i was told by my dr i have to be off all pain meds within 6 months - im going to have to go back to inability to get out of bed, unable to touch my grandchildren because it will be to painful to even feel thier touch...... in over 25 yrs i've had 2 increases of meds - last was when had surgery and more pain with stomach issues.... i even decreased my fentynyl patch on my own, asking the doc for less, to be less tired get around more even though i have to live with more pain.. i don't get high on these meds ( i might also add i refused one upgrade in meds long ago to morphine, when he did it, i took 3 pills, got so high i refused and went back to my other regime because i needed to function at work home etc....) all i've read on the guidelines - drs should NOT be taking us that really need it. from my understanding anyhow. that there is some grading system. so why are we being lumped in with the addicts. i've always gladly signed my contracts with doc - followed to the letter and even asked for urine tests when it seemed they should be testing more... i've done all the right things, pain specialist, gabapentin and other meds ( with serious side effects that made me unable to be productive ) , i was tried on gabapentin and other drugs like it , they made me feel drunk, i couldn't work or function "drunk" literally bouncing into walls! and my pain increased so bad with one i don't recall its name, my body would distort in pain, i could not lay down or sit up comfortably, my arms would curl around the air and my body, not to mention other severe side effects
I think it's ridicules that people who are in sever pain get treated like drug addicts when the doctor can see from my x rays exactly what's causing my pain and knows the only thing that can be done is for me to take pain medication
Cops are not doctors. The DEA should not be telling health care professionals how to care for patients. For anyone else, it would be illegal to treat a patients without a license or with a license but never meeting the patient. The DEA is doing both, and refuses to change policy regardless of science showing how much harm those policies do. Portugal is a great example of a way to combat addiction without destroying people in the process.
I am writing to you today regarding your decision on SB524/HR953 Comprehensive Addiction & Recovery Act of 2016. Please reconsider this bill.
Having a career in Emergency Medical Services for twenty five years, I have seen many deaths and near deaths from Heroin overdoses. I am sad for all the young lives taken by the poisons in a syringe (I've seen too many of those) but that epidemic intervention should not be used as a punishment against good Doctors treating legitimate chronic pain patients or used against these patients! I lost my career because of an accident and injury to my spine. I have had one failed three level 360* spinal fusion. I have been told that a revision surgery is "too risky" I am awaiting an appointment for a second opinion. I have a spinal cord stimulater in my spine and I take medication for chronic pain. I have taken pain medication for four years, same dose, same Doctor. On my worst days I cannot move and everything that touches my legs causes excruciating pain. It feels like my skin is being ripped off of my legs. On my best days I am never 100% pain free. I wake up daily with pain in my lower back. Then as my day progresses the pain gets worse with everything I do. With a combination of lidocaine patches, pain medication, medication for neuropathy, medication for muscle spasms and my sheer will, I am able to have some quality in my life. Without all of this, I would not want to live! I would not be able to deal with that amount of pain day in and day out. All I ask for is to be comfortable enough to go places with my husband (who hasn't left me yet) to hang out with my children and grandchildren. To take my dog for walks like I used too. Many of us agree that our country needs to do more in helping those that are suffering from addiction. There needs to be more rehab and recovery places that are affordable or better yet covered by insurance. These places need to be nice and committed, not dumping grounds. There has to be a solution to stop the illegal, illicit, synthetic drugs like the fentanyl coming from China across our open borders. More needs to be done to halt the manufacturing of heroin. Go after the suppliers and distributers. Addiction is an illness and needs to be dealt with as such. But our government needs to remember people like me also, over a million strong. We are not addicts! I get absolutely no "high" from my medication. All I get is some relief from pain and some relief is better than none. So, until there is a cure or I wake up miraculously recovered, it is my life. I beseech you to reevaluate the decisions being made at all levels of government. People with chronic pain are being severely hurt by these rules, laws or guidelines through no fault of their own. Permanent injuries and life altering pain can happen to anybody of any age. I believe you will see an increase in drug abuse and addiction because pain patients will turn to whatever means to get relief from their pain. Sadly, I believe yo
After years of all kinds of pain management and finally finding I am a rapid opiate metaboliser, I find today that my second doctor can't adiquately treat my chronic pain as has been the last 5 years. I am not an " addict" but need my pain medicine as a diabetic would need his or her medicine. I have never had any incidents involving misuse or abuse of any of my meds. Now my doctor can't treat my pain and has to take me almost completely off of my medicine. This kind of across the board gestapo tactics by the Oregon medical board is of no help to anyone that is in my health situation.! Surely there's someone having the same trouble I am? Help please!
I'm a chronic pain patient in N California and was denied by all pharmacies after 16 yrs of taking opioids legally, getting masters degree, teaching at university, running three large businesses (thanks to pain management). I've spoken with the DEA and pharmacy board, everyone pointing fingers as to whose fault it is that millions of pain patients like me are being abandoned as a result of no scientific data. Research shows there is no limit to the actual amount of morphine equivalents a person should take to manage care as long as pain is managed and side effects are not a problem. Also, of thousands of people studied in long term pain management programs, only .04% abused them. My question to the medical boards harassing our doctors and the DEA--what about the other 99.06% of us???? Do you want us to go to Mexico to get our meds? Or the streets to by heroin? This is unethical and goes against all clinical research. I suspect there is politics and greed at play here and we pain patients no longer have the luxury of sitting idle. They are torturing us and will continue to do so until we stand up and fight for our rights to take our pain meds LEGALLY!!
I'm a chronic pain patient in N California and was denied by all pharmacies after 16 yrs of taking opioids legally, getting masters degree, teaching at university, running three large businesses (thanks to pain management). I've spoken with the DEA and pharmacy board, everyone pointing fingers as to whose fault it is that millions of pain patients like me are being abandoned as a result of no scientific data. Research shows there is no limit to the actual amount of morphine equivalents a person should take to manage care as long as pain is managed and side effects are not a problem. Also, of thousands of people studied in long term pain management programs, only .04% abused them. My question to the medical boards harassing our doctors and the DEA--what about the other 99.06% of us???? Do you want us to go to Mexico to get our meds? Or the streets to by heroin? This is unethical and goes against all clinical research. I suspect there is politics and greed at play here and we pain patients no longer have the luxury of sitting idle. They are torturing us and will continue to do so until we stand up and fight for our rights to take our pain meds LEGALLY!!
I have ankylosing spondylitis and am in constant pain 24/7. The pain medication I do take is necessary for me to just be able to get out of bed!! The medicine doesn't NOT take all the pain away but it makes it bearable. I have marked limitations on all activities. I get treated horrible by my pharmacy that I have used for years!!! I have enough to deal with because of my disease and the last thing I need is to fight with doctors, pharmacists and even society!!! It's our right to be treated by physicians and to not have to be labeled as "drug abusers"
This new attempt to stop drug abuse in America is just plain wrong. People are being hurt by the one's we relay on to ease our pain. It is the older people that are being harmed the most. How many lives is it going to take before our "Leader's" stop this action. There is an election this year and our vote maybe our best friend.
I have been living with extreme pain for many years. I have fibroalgia, degenerative joint disease, and narcolepsy. Between all 3 combined, I can barely get up every morning. My muscles ache and hurt. It has been frustrating trying 2 get any relief from doctors. Please help with something legal, so 1 doesmt have 2 turn 2 the dangers on streets.
Thank You

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