I have Cystic Fibrosis and remember how hard it was to take my enzymes at school. I didn't have a nurse at school and sometimes noone would be in the office when I needed to take my meds. Cystic Fibrosis patients aren't irresponsible with there medications we rely on them and we shouldn't have to rely on anyone else in school for them.
My daughters does't have a full time nurse at their school either , she shows up twice a week. Of course they have never had a full time ( 7 days a week ) nurse .The teacher had given out the pills ( creon ) in elemantry school , and now that their into middle school the assistance nurse gives it to them.
This is a much needed law, especially for children with Cystic Fibrosis because their meal times are so important for their continued health. The last two years of high school I told my daughter to just carry them and swallow them at lunch and try not to be too obvious. School nurse visits are so unnecessary for this.
My family lived in different states as my daughter was going through school. In those states requiring that her enzymes be administered by a school nurse, she either missed out on the end of a lesson, or, more often, was late to lunch and had to gulp in down in order to finish. That, in itself, is problematic for children with cystic fibrosis. This is just a good-sense, practical proposal with no down side.
My Son had CF and once was suspended from school for taking his enzymes with out school assistance ..these enzymes are not a drug that a person can become addicted to or that a person can over dose on, nor are they harmful in any way, people who dont have CF , their body's make this enzyme naturally to aid in the digestion of their food , this is just more govt intrusion on our lives
I totally agree with and support this. These are students that NEED the medication and would not share, sell, or give away their medicines, they know how and when to take them as well. We want kids to grow up but take control over minor things that would help to teach them simple responsibility. This law is stating that kids demonstrate responsibility and understanding as well as compliance AND have thier DRs and PARENTS permission! Come on, get real! I wish you all the luck in the world in your efforts to get this law passed.
Diabetic children are not denied their insulin, as well as many other needs of our children in public school. Denying CF children their right to a happy, healthy and educational life is criminal! ALL children deserve the right to go to public school with their neighbors and friends. To not allow medication forcing them to be home schooled is wrong! If parents don't want their children in school with other children with special medical needs then send them to a private school. We the people pay the taxes on school and ALL legal residents have the RIGHT to send their children to school. They aren't contagious, they are children, let them take their medication. Otherwise FIRE every school nurse because I see no point in having one for children that fall and get hurt verses children that have real medical issues that ARE manageable.
My child has cf and because she has to go the office to get her pills she feels different from otherd it is a struggle everyday and this bill would help the self image of so many little ones so please pass the bill
where I grew up in PA, I carried and administered my own enzymes with meals 30 years ago. That was back when government was somewhat less invasive. Imagine I rode in the front seat of a car and rode a bike without a helmet and I'm still alive to tell about that too. A true miracle!
I am 51 yrs old with CF. I would not have lived this long had I not been allowed to do what I needed to do for my health. Plus the pressure in school of being different is great enough for those of us with this disease. Please do not make it any harder for us to live a "normal" life
CF kids definately should have a different set of "rules". They should not be in a nurses office with sick kids, when they are only there to get enzymes that they need to digest their food.
These children have to go into the clinic to have the nurse administer this medication. This is the worst place to even be in for these kids. The clinic is where all the sick kids go when they are not feeling well. Their immune system is also compromised because of CF. They should not be treated differently because of this illness. THey should be able to have their lunch with the other kids and not have their time taken away. The children need all the time they can to eat as well since they eat a bit slower.
If you haven't signed the petition, please do it! Help make this law a reality for the ones it means the most to! Cystic Fibrosis can strike anyone, at any age and if you or someone you loved where ever diagnosed with this cruel disease, wouldn't you want all the help you could get? Please sign the petition now! Thanks!
david s law
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