Took this shot for 12 months, felt better on it, minus the menopause side effects, all the stomach pain i had dissappeared have been off it for 5 months, dr said my periods would start around the time i was due for another shot, went through monopause, legs hurt where i could barely walk, arms the same, couldn't pin the arm and shoulder pain on the shot due to a car accident with whiplash, still have hot flashes, dizzy a lot and bad headaches at top of head when i get dizzy, my sex drive is gone, and now it hurts like hell when i do have sex with my husband
I have fibromyalgia with severe upper thigh pain and hip pain. I have overall muscle pain with weakness. My muscle stiffness is extreme in the mornings and comes back every afternoon making walking very difficult. I received 6 lupron injections in 1994 for endometriosis.My life has become very painful, but I have remained hopeful tnat this drug will be investigated and doctors will be informed so patients can make an informed decision about it's possible side effects. Hope to help others!!
I received 6 lupron injections for the treatment of endo in 2003. 3 months after my final injection I was diagnosed with fibromyalgia. This horrible drug changed my life forever. I am on strong rx's for pain, but the pain never goes away. Please warn others.
I must say my life has been changed in so many horrible ways by this medicine. It's been HELL since December of 2011 for me and I"m still battling the effects. My doctor talked me into getting my second shot and I regret it. I've been in severe pain for two months. My hips hurt to the point I can barely walk most days. I called my doctor not too long ago and she told me to cally my primary doctor and my doctor was pretty upset that she told me to do so. But she is helping me cope with the pain by MORE drugs. I'm sick of taking medicine. I'm sick of feeling like I'm going to get sick through out the day EVERYDAY. I"m sick of being in so much pain. It's taken time away from my Fiance' and my family. I'm scared to see how this will affect me in the long run. I want kids and so does my fiance' and now we have to face not being able to have them. And I have to face hurting my entire life because this drug is recommened. AND IT SHOULD NOT BE.....I trusted my doctor and I'm terrified to even go to a new one. But with medical issues I can no avoid going to the doctor. This shot should be taken off the market. Too many people are suffering long term affects and we should of been warned and I regret not researching this shot a little more.
My father was given Lupron 6 weeks ago. Now he is out of it. Sleeps all the time & does not eat. He went from a vibrant 86 yr old to severe incapcitation. No one will tell us why but I'm sure it is the Lupron
I have taken this drug, and my period has not returned. I am only 31 and am now undergoing several procedures to correct the lasting affects of this horrible drug. I have had horrible memory loss, problems with my bones, joint and jaw pain, insomnia, depression and anxiety, and now maybe not be able to have any more children.
i was on this drug and became pregnant within my secound treatment of every 3 mo now they said my son that i was pregnant with has Brain damage cuz the left side of the Brain did not grow they said it was fetal alcohol disease but i never drank with my son i also have myself digentitive disc disease, hypotension, bone and joint pain, tachycardia, fybromyalgia, memory loss, insomnia, and depression anxiety and several other things also my ex husbands wife also had the lupron injection she also has most of the symtoms also i really wish someone would do something
It is truly amazing how many woman have been treated with this horrible drug! I have had five injections of Lupron over the course of 10 years and just refused to take the injection 2 weeks ago. I had a complete hysterectomy in 2004 in an effort to stop the pain...only to learn a year later that the doctor was unable to remove all of my ovaries! She insisted that the Lupron shot would "burn out" the ovarian remnants. I reluctantly agreed and to this date I have gained too much weight to mention, have severe leg and hip pain on my left side, joint pain all over, lower back pain, severe asthma (which I did not have before)and the list goes on and on! Today I have an appointment with another OB and I hope she has a different approach. I really hope this petition makes a difference!
My oncologist put me on lupron injections to send me into menopause, because of lung fibrios. After the first shot, severe mood swings, hot flashes and cramps from hell. Now after my third shot I have excurxiating pain in my left hip and leg, that there is no relief for.
I had injections in '04, I am still having major issues with joint pain and back pain. Also, my teeth are now rotting, I did not have a cavity or anything until I was 35, 1 year after the shots.
Within 24hrs of getting a Lupron shot I ended up in the ER. The side effects for the next 6 months were awful. I regretted putting this in my body & rather deal with level 10 pain then ever deal with something like this again!
I suffer everyday due to lupron injections I was given at the age of 21. I had it 6 months one injection a month. constant pain, hormonal imbalance, and lumps in left breast and armpit and left rib cage that are painful. painful periods, restless leg syndrome, high resting pulse rate always 115 or higher, anxiety, depression, mood swings. and more. can't work steady job, and dont have health insurance.
I was not made fully aware of Lupron Depot injection side effects. I was told that I would be induced to menopause . That danger of bone loss would occur near the 6th month mark of monthly injections. I stopped taking the drug after my first 30 day injection. Total nightmare! Within the first hour I became very dizzy. Immediate moodswings. Laughing and crying in the same few minutes. Terrible short term memory loss began the day after the shot. Night Sweats. Severe chills. Joint pain. My knees felt weak and hurt. My hands still have joint pain. Urinary problems. All for the treatment of uterine fibroids!? My Lupron symptoms were worse than my uterine issues. I felt so decieved by my gynecologist. I was never warned. I was not warned on paper nor verbally. I went through two months of hellish symptoms after just one 30 day injection. My hands still hurt. I still get dizzy. I am a single woman. I am a medical health professional and cannot afford to lose my job lest I become homeless. I almost lost my job to this drug because of the memory loss; weight gain; moodiness and the startling struggle to breathe. My lungs were very tired after the injection and my breathing was labored. My clients and coworkers were alarmed. I was alarmed. Please take Lupron off the market. At the very least please disallow phd's from using this drug to treat female issues.
Its been four years since I took two injections of lupron. Still extremely ill and now have lesions on my brain and was just diagnosed with mast cell activation disorder which I know was caused by the lupron. Anyone that has all the symptoms we have all experienced after taking this drug should be tested for this disorder. My life is a living hell from this drug.
I was on Lupron for 7 months to treat my endometriosis. After the treatments my Dr. performed my 3rd laparoscopic surgery to determine if the Lupron treatments were successful. He then realized that the Lupron did not help me in fact the symptoms were worse! The endometrium had attached itself to my abdominal wall, my diaphragm, and even attached my left ovary and fallopian tube to the side wall. Also during the surgery my fallopian tubes did not drain. The effects of Lupron made me feel horrible. I feel like I missed out on 7 months of my life between the mood swings, joint pain, hot flashes/night sweats and lack of sleep. Now after being off of the Lupron for 3 months I still have the symptoms. Joint pain and hot flashes are the worst. I am 32 and the Dr. has recommended that I have children soon but as of right now I'm not at that point in my life to have kids. I am also nervous to have children because of two reasons: I'm afraid I cannot have them and I am afraid that something could go wrong because of the Lupron treatments. So instead of having kids he then recommended that I see a specialist.
I was on Lupron for 7 months to treat my endometriosis. After the treatments my Dr. performed my 3rd laparoscopic surgery to determine if the Lupron treatments were successful. He then realized that the Lupron did not help me in fact the symptoms were worse! The endometirum had attached itself to my abdominal wall, my diaphragm, and even attached my left ovary and fallopian tube to the side wall. Also during the surgery my fallopian tubes did not drain. The effects of Lupron made me feel horrible. I feel like I missed out on 7 months of my life between the mood swings, joint pain, hot flashes/night sweats and lack of sleep. Now after being off of the Lupron for 3 months I still have the symptoms. Joint pain and hot flashes are the worst. My Dr. has reccommended that I see a specialist.
Years later - suffering in innumerable ways; countless "unexplained" medical issues continue to arise. My life as I once knew it many years ago is gone. As I indicated to the medical profession years ago; this drug needs to be pulled off the market!
Lupron didn't improve my condition. Pain got better only for 3 months-after taking Lupron for 6 months, so my endo is still not cured. Side effects continue till now-it's been 7 months since last shot. I still get anxiety, exhaustion, moodiness, nausea. During Lupron it was even worst, to the point I couldn't function normally!
I recieved the lupron injections for endomitriosis. This was in 1998 now 12 years later the same memory loss I had when taking the lupron has not went away,neither the exuhaustion or anxiety ,depression,or bone pain. I have never been the same. I always knew it was the lupron, because since then I have struggled. Now it seems my thyroid is having problems. So there you have it, the side effects of lupron destroy! I know I have lived it !
I was on this drug from 2007 to the end of 2010 for endometriosis.
Knowledge is a powerful tool. I just wish I had more before I started Lupron (Lucrin in Europe). After 18 months off the medication, I am better that I was when I was on it, but my life is not what it once was. Having suffered psychosis during my Lupron treatment, it has been a long battle to recover.
Recently, I have learned a bit more about the relationship of hypoglycemia and adrenal fatigue to the use of Lupron. There is a strong relationship with the lingering anxiety disorder that I have.
This is an interesting chain of effects that can create a tangible, persistent battle with the physical symptoms of anxiety.... nevermind the battle with the initial illness or primary trauma (of a bowel perforation and sepsis following a surgical procedure for the endo).
The physical anxiety is something that I am dealing with on a daily basis, but knowing what it is is really good. Knowing the butterflies in my tummy are not solely a reaction today's stresses, but have a physiological source related to an general imbalance in my endocrine system is so helpful. Knowing my fatigue isn't really depression, but a general exhaustion with a physical cause is helpful too. Knowing it was caused by this medication... well, I don't have the words.
Looking at this petition and seeing sooooo many cases similar to mine, where patients develop mental health challenges, compounded by induced pituitary and adrenal issues and have compromised health for years, even decades after stopping it.
Some, like me, have developed hypoglycemia, I suppose there has to be an underlying tendency for that though. Some, also like me, have daily issues with heart rate (fast) and blood pressure (low). So many have lost careers, compromised relationships and a general feeling of loss of self. I have experienced all of this.
This poison must be taken off the market before any other person... man, woman or child... suffers from irreversible permanent damage to their bodies and lives.
Lupron steals your todays and tomorrows. Something has to be done.
My wife was given this med. for 6 months in preparation for surgery. Nothing out of the ordinary was told to us prior to her course of treatment. Now she has joint problems that hurt and aggravate her daily activities.
I took Lupron for six months for treatment prior to surgery - my joints are painful all over. I have been off Lupron for a little over two months now - no improvement yet in my joint pains.
I was diagnosed with severe endometriosis in Sept of 2007 I had the surgery in october and immediately was put on lupron after the surgery. I was 18 at the time and had no idea what was going on other than knowing I was in severe pain and had been for years. I am now 22 and just got my second round of lupron. I do not remember it being this terrible!! I have no immune system left, I first got shingles and now am battling a viral infection all in on one month! I have extreme fatigue and am constantly naseaus and dizzy. Not to mention the depression. I went from being normal working 2 jobs and attending school full time to barely being able to function and being sick ALL the time. There are many more side effects but I am to tired to even mention them.
my doctor would not tell me anything negative about this drug, i had to find out the all of the negative aspects on my own, thank god i did some research before i began this treatment.
I was given lupron for two years double doses back in 1994 when I was only 16. I was diagnosed with multiple sclerosis when I was 24 and suffer from constant back pain and hip pain. I took chemo to get out of a wheelchair. I am having surgery next week to have 8 lumps removed from lymph nodes that could possibly be from the chemo and caused hogkins lymphoma. My question now? Could all of of this have been avoided if I had never taken Lupron?
My seventeen year old daughter started taking this drug 20 mos. ago. I took her off when her bone density showed osteoporosis. She also has low vitamin D. She was put on the drug for severe PMS,depression,anxiety,mood swings etc. She was a little better on Lupron along with the estrogen patch. Since she has been off the drug for 2 mos. her PMS is the worst I have ever seen. No period yet.I am afraid she is going to hurt herself or someone else. I have been to many doctors and no one is able to help her.
My 9 year old daughter is given Lupron to treat early puberty. She does have a lot of pain on her legs. I am praying for not having any damaging side effects. We definitely want to see an investigation before it's too late.
I took Lupron in 1999, since I have had unexplained joint pain, severe vitamin D deficiency, hormonal issues. On top of this Lupron didn't even work for the Endometriosis, I ended up having three more surgeries since I was on it.
My wife has been on Lupron for a month and has debilitating pain in her hands and arms. She is in arguably more pain now than before the shot; just in a different location of the body.
I first took Lupron in 1196 after my diagnosis of severe Endometriosis. I was given a round of it for 6 months. I was told that i had about a 10% chance of having a child. All I ever wanted was to be a mom. I would have done anything to be able to do that. I was told that this would make all the pain go away and that i would hopefully conceive a child. 9 surgeries later and these side affects. I had mood swings, memory loss, anxiety, my hair was falling out, and my breasts lactated, and i gained 45 punds. I exercised and had a good diet and i still gained weight. I did another 6 month round in 1998 and successfully was able to get pregnant, but had a Placental Abruption at 31 weeks and almost died. I'm so thankful to have gotten pregnant and had my daughter, but the side affects 16 years later are still with me. I did another round in 2001 to try and get pregnant another time, and my OBGYN that I trusted told me that in good conscience that he could not put me on another round, for fear i would have terrible affects on my bones. I had a complete Hysterectomy in 2003 after still having severe Endometriosis pain and long periods. I have had a terrible time losing the weight and keeping it off after 16 years. My memory has been affected greatly and i have been diagnosed with Wilson's Thyroid Disease. I have bone, back and joint pain, and have shrunk an inch!!! If i would have known and had better knowledge of this drug, I NEVER WOULD HAVE TAKEN IT!! My daughter has a 75% chance of getting this disease, and I in good conscience would never put her through this!!! I trusted that my OBGYN was doing the best for me and would never put me in harms way. I will always have lasting problems from this drug!! It changed me as a person for good..We as a people need to stop this drug from being on the market. It is killing people and changing people's lives forever. We need to find something to help people with these terrible diseases that just want relief from terrible pain, and that just want to have a family!!
My daughter took Lupron injections in about 2004 for endometriosis. She has been unable to work since 2005 with debilitating migraines 24/7, fibromyalgia, IBS, Heart problems, tumors, seizures, and a multitude of other physical problems. This drug has ruined her health. I want to sue this company.
Investigation into Lupron Side Effects (Leuprolide Acetate)
1,766 People Have Sent 2,901 Letters and Emails
Sign the Petition
Some recent comments: these messages are published with permission of the signer.
Knowledge is a powerful tool. I just wish I had more before I started Lupron (Lucrin in Europe). After 18 months off the medication, I am better that I was when I was on it, but my life is not what it once was. Having suffered psychosis during my Lupron treatment, it has been a long battle to recover.
Recently, I have learned a bit more about the relationship of hypoglycemia and adrenal fatigue to the use of Lupron. There is a strong relationship with the lingering anxiety disorder that I have.
This is an interesting chain of effects that can create a tangible, persistent battle with the physical symptoms of anxiety.... nevermind the battle with the initial illness or primary trauma (of a bowel perforation and sepsis following a surgical procedure for the endo).
The physical anxiety is something that I am dealing with on a daily basis, but knowing what it is is really good. Knowing the butterflies in my tummy are not solely a reaction today's stresses, but have a physiological source related to an general imbalance in my endocrine system is so helpful. Knowing my fatigue isn't really depression, but a general exhaustion with a physical cause is helpful too. Knowing it was caused by this medication... well, I don't have the words.
Looking at this petition and seeing sooooo many cases similar to mine, where patients develop mental health challenges, compounded by induced pituitary and adrenal issues and have compromised health for years, even decades after stopping it.
Some, like me, have developed hypoglycemia, I suppose there has to be an underlying tendency for that though. Some, also like me, have daily issues with heart rate (fast) and blood pressure (low). So many have lost careers, compromised relationships and a general feeling of loss of self. I have experienced all of this.
This poison must be taken off the market before any other person... man, woman or child... suffers from irreversible permanent damage to their bodies and lives.
Lupron steals your todays and tomorrows. Something has to be done.
Sign the Petition